Well, I reposted the list of links to web sites dealing with sleep disorders, but it got buried.
Question:
I reposted the list of links, but it got posted as a reply to an earlier repost, so it may be hard to find. Let me try reposting it, but as a reply to this note, so that it will show up at the top of the list! Kent Taylor (Mongo)
Response:
================================================================ Here is a collection of sleep and sleep-disorder links that I have selected from many that I have seen because I think these are very useful for someone who is starting to look for information about sleep disorders. Section A is general information that gives an overview of various sleep disorders. Section B is about sleep apnea. Section C is about narcolepsy. Section D is about sleep related movement disorders, such as restless leg syndrome (RLS), periodic limb movement disorder (PLMD), sleep starts, etc. Section E is about sleep paralysis. Section F is about insomnia. Section G is about Delayed Sleep Phase Syndrome (DSPS). Section H is about night terrors (pavor nocturnus), sleep-walking, enuresis, etc. Following those is a list of sleep-related newsgroups. There are other disorders, too, for which I have not provided separate sections of links. Item A2 has links to some of these other disorders. Thanks to Paul Kemp, this list is also available at the following web page: http://www.kemp.demon.co.uk/mongo.html ================================================================ —– A: General information about sleep and sleep disorders (A1) Web page with short summary of normal sleep and sleep disorders: http://www4.umdnj.edu/med/slepsymp.html (A2) Sleep Net collection of links with ratings (very useful): http://www.sleepnet.com/links.htm (A3) Info about a variety of sleep disorders, including descriptions, diagnoses, treatments, and related links. Still under construction but much information nonetheless. Note: this page points to additional pages – be sure to check them all. This is page one of eight. http://members.aol.com/THRVSleep/Diso.html (A4) SleepNet "Everything you wanted to know about sleep disorders but were too tired to ask"; contains discussion forums, info about disorders, sleep links, news, etc http://www.sleepnet.com/index.shtml (home page) http://www.sleepnet.com/wwwboard/wwwboard.html (discussion forums) (A5) American Sleep Disorders Association (ASDA) (oriented towards medical professionals) http://www.asda.org American Sleep Disorder Association list of accredited sleep centers and labs http://www.asda.org/centers.htm (A6) National Sleep Foundation (NSF) http://www.sleepfoundation.org (A7) Glossaries of sleep related terms http://members.aol.com/blackcover/glossary.html http://www.geocities.com/HotSprings/Spa/4752/page1.html#term16 (A8) National Library of Medicine (part of National Institute of Health) (USA) http://www.nlm.nih.gov/ (home page) http://medlineplus.nlm.nih.gov/medlineplus/ (allows searching for med info) (A9) Websciences.org publications BiblioSleep – bibliography of sleep related papers from 1992 to present http://www.websciences.org/bibliosleep/ NAPS – New Abstracts and Papers in Sleep; recent papers on sleep topics http://www.websciences.org/bibliosleep/naps/ (A10) Basics of sleep behavior from UCLA http://bisleep.medsch.ucla.edu/sleepsyllabus/ (A11) Sleep Medicine home page; collection of links in MANY categories: support groups, sources of information, books, medications, etc., etc.; very useful for its breadth http://www.users.cloud9.net/~thorpy/welcome.html (A12) Sleep Center, Inc; a variety of sleep-related info, including an excellent link list Note: these links now appear to be broken http://www.sleep-central.com/index.htm (main page) http://www.sleep-central.com/f_links.htm (list of links around the world) (A13) National School of Sleep Medicine (NSSM); oriented towards health professionals but there are useful links under "Support Links" and "library" http://sleepmedicine.org/ (A14) KidsHealth.org; info about childhood sleep disorders http://kidshealth.org/parent/healthy/sleep_disorder.html (A15) Healthology.com; sleep disorders and sleep hygiene http://www.healthology.com/sleepdisorders/frameset.html (A16) Sleep Medicine Associates of Dallas, Texas; info about sleep disorders, CPAP tips, Epworth Sleepiness Test (self-quiz with scoring) http://www.sleepmed.com/index.html Glossary of sleep and sleep test terms and abbreviations from the same site http://www.sleepmed.com/glossary.html (A17) Newcastle Sleep Disorders Centre (Australia) Information about normal sleep and about several sleep disorders http://www.newcastle.edu.au/department/md/sleep/index.html (A18) Dr. Koop’s info about sleep disorders (has pages on several disorders) http://www.drkoop.com/adam/mhc/top/000800.htm (A19) Cephalon Inc.’s excessive daytime sleepiness (EDS) site (Cephalon markets Provigil) http://www.daytimesleep.org/what.htm (A20) SleepNet’s guide to sleep labs http://www.sleepnet.com/slplabs.htm (A22) Wake Forest University Dept. of Neurology; descriptions of sleep test and several sleep disorders; a convenient, short overview http://www.bgsm.edu/neurology/department/diagneuro/disorder.html ================================================================ —– B: Sleep apnea information (B1) American Sleep Apnea Association (ASAA): http://www.sleepapnea.org/ (B2) Phantom Sleep Resources (primarily sleep apnea, with self-test quiz and FAQ) http://www.newtechpub.com/phantom/ http://www.newtechpub.com/phantom/faq/osa_faq.htm (very good FAQ) (B3) Conjo Distributing home page. This is a supplier’s web-site that has photos of CPAP equipment, many useful tips, equipment cleaning instructions, illustrations of obstructive sleep apnea, etc, and of course a catalog and price list. Although I have had no dealings with Conjo, I have seen many positive comments about the company and its owner on the alt.support.sleep-disorder newsgroup. Certainly the web pages are very informative. http://www.cpapman.com/ (B4) Tony Polson’s sleep apnea page (UK) http://www.scalby.freeserve.co.uk/osa.htm (B5) Paul Kemp’s wonderful photos of the popular Resmed/Sullivan Mirage mask (UK) http://www.kemp.demon.co.uk/mirage/ (B6) Mike’s Trach Page – about the tracheostomy operation for OSA; also FAQ and OSA terms http://members.aol.com/citylinc/osa/index.htm (B7) A.W.A.K.E. (Alert, Well, And Keeping Energetic) is a support group for people with sleep apnea and their families; information about AWAKE groups in your area or about starting an AWAKE group may be obtained by sending an e-mail request to: aw…@sleepapnea.org (B8) Sleep Matters, the quarterly newsletter of the UK Sleep Apnoea (British for apnea) Trust Association (SATA), a registered charity "… to improve the lot of sleep apnoea patients, their partners and their families" http://www.sleepmatters.org (B9) "Obstructive Sleep Apnoea" (British spelling of apnea) by Dr John Loadsman of Australia; thorough description of apnea and its causes, diagnosis, consequences, treatment, etc. http://www.usyd.edu.au/su/anaes/lectures/Sleep_Apnoea.html (B10) John B. Fisher’s list of URLs on health risks and consequences of sleep apnea; note that there are many entries from the site of Kerrin Leon White, M.D., a physician with severe sleep apnea; Dr. White’s home page may be found at: http://www.geocities.com/HotSprings/Spa/4752/index.html John’s list (many thanks, John!): General/Broad Information: http://www.cnn.com/HEALTH/9703/17/nfm/sleep.deprivation/index.html http://www.usyd.edu.au/su/anaes/lectures/Sleep_Apnoea.html http://www.geocities.com/HotSprings/Spa/4752/page32.html Sleep Apnea and the Heart http://www.newtechpub.com/phantom/contrib/heart.htm http://www.geocities.com/HotSprings/Spa/4752/page30.html http://www.geocities.com/HotSprings/Spa/4752/page48.html http://www.geocities.com/HotSprings/Spa/4752/page84.html http://www.geocities.com/HotSprings/Spa/4752/page112.html Sleep Apnea and Strokes http://www.cnn.com/HEALTH/9808/16/snoring/ http://www.americanheart.org/Whats_News/AHA_News_Releases/dyken11.html Sleep Apnea and the Brain http://www.geocities.com/HotSprings/Spa/4752/page20.html http://www.geocities.com/HotSprings/Spa/4752/page22.html http://www.geocities.com/HotSprings/Spa/4752/page36.html http://www.geocities.com/HotSprings/Spa/4752/page104.html http://www.geocities.com/HotSprings/Spa/4752/page138.html (B11) Dr. Koop’s Medical Encyclopedia – apnea http://www.drkoop.com/centers/Sleep_Apnea/ (main page) http://www.drkoop.com/adam/mhc/top/000811.htm (obstructive sleep apnea) http://www.drkoop.com/adam/mhc/top/003997.htm (central sleep apnea) (B12) Vancouver Sleep and Breathing Center – an excellent site that discusses apnea and snoring along with their causes and treatments; includes discussion of merits problems with the various treatments with a list of questions to ask; includes photos showing actual apnea and snoring events http://www.sleep-breathing.bc.ca/default.htm (B13) Mayo Clinic’s description of sleep apnea; includes sound files of apnea events. http://www.mayohealth.org/mayo/9803/htm/apnea.htm (B14) A.P.N.E.A. Net – Apnea Patient’s News, Education, & Awareness Network http://www.apneanet.org/ (B15) Dr. Rose’s Peripheral Brain http://faculty.washington.edu/momus/PB/obstruct.htm (OSA, hypopnea) http://faculty.washington.edu/momus/PB/tableofc.htm (main page) (B16) Guidelines for referral and management of snoring and sleep apnoea (UK) http://www.equip.ac.uk/issue1/snoring.htm (B17) National Institutes of Health; breathing disorders during sleep http://www.equip.ac.uk/issue1/snoring.htm (B18) Univ. of California, Davis; overview of apnea; includes descriptions and graphs of apnea events
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