Tired….still….
Question:
"Carl J." <c…@europa.lonestar.remove.org> wrote: >> Carl….. I can’t imagine any situation where untreated sleep apnea >> could make you unemployable. >I’ve read lots of people’s unfortunate stories here about how untreated sleep >apnea can make it quite hard to function (like this thread) and by reading >such posts here I can "imagine" it very easily.
I think the key here is _undiagnosed_ sleep apnea, the side effects can easily make you unemployable. Once diagnosed, most people get relief and have no need for compensation. Tom
Response:
- Hide quoted text — Show quoted text -In article <fefhnu4k9k2cqo2cripkuvaivs4kbnl…@4ax.com>, Tom Devlin wrote: > "Carl J." <c…@europa.lonestar.remove.org> wrote: >>> Carl….. I can’t imagine any situation where untreated sleep apnea >>> could make you unemployable. >>I’ve read lots of people’s unfortunate stories here about how untreated sleep >>apnea can make it quite hard to function (like this thread) and by reading >>such posts here I can "imagine" it very easily. > I think the key here is _undiagnosed_ sleep apnea, the side effects > can easily make you unemployable. > Once diagnosed, most people get relief and have no need for > compensation. > Tom
True. But some people do not get adequate relief after being diagnosed. Either because CPAP does not help for some reason or because they developed other conditions, known or unknown, from a long period of undiagnosed apnea.
Response:
"NormC" <no…@socal.rr.com> wrote in message
news:3D7687EF.9BA9683A@socal.rr.com… > If you have obstructional sleep apnea, it’s treatable. So why would the
I cant believe you typed that. It is treatable for the MAJORITY but for some, like myself, it is not! — Friar Tuck was always the butt of Spoonerism Jokes from the Merry Men!
Response:
"Carl J." <c…@europa.lonestar.remove.org> wrote in message
news:slrnandb6b.aq0.carl@europa.lonestar.org… > In article <3D7687EF.9BA96…@socal.rr.com>, NormC wrote: > > If you have obstructional sleep apnea, it’s treatable. > Except when it’s not. Seems like I’ve read a number of posts here from > people with apnea (OSA as well as CSA) where they just can’t get CPAP > to help.
Exactly! — Friar Tuck was always the butt of Spoonerism Jokes from the Merry Men!
Response:
"gregh" <s…@abuse.someone.else> wrote in message
news:ox0e9.2108$Sr6.71754@ozemail.com.au… – Hide quoted text — Show quoted text -> "Lee Babcock" <leebabc…@pathcom.com> wrote in message > news:3D767715.EF1F0B88@pathcom.com… > > "Carl J." wrote: > > > Does anyone know of an actual case in the USA of someone getting SS > > > disability (or any disability) for Sleep Apnea? It seems to me that > this > > > is a pretty important issue for some people here and it’s hard to > imagine > > > it being excluded. > > Carl….. I can’t imagine any situation where untreated sleep apnea > > could make you unemployable. However, untreated long enough and you > Surely you have to be joking! I have to sleep in the afternoon. I can get > away with 1 or 2 afternoons in a row where I dont but my ability to work > after just 1 goes down a fair bit and after 2, a lot!
Just a PS to what I said above. After 1 afternoon, my heart rate has increased and after 2 it is beating erratically. Sleeping of a night, such that it is, does not fix this. I pushed it to 3 afternoons once and had to take the next 3 days off to get over it. I don’t know exactly what is happening to me at that stage but I know it reminds me of when I had a severely overactive thyroid and how that made my heart race. I still cant believe you typed that. "Uninformed" is too polite a word for that comment you made! — Friar Tuck was always the butt of Spoonerism Jokes from the Merry Men!
Response:
In article <3D767715.EF1F0…@pathcom.com>, Lee Babcock wrote: > "Carl J." wrote: >> Does anyone know of an actual case in the USA of someone getting SS >> disability (or any disability) for Sleep Apnea? It seems to me that this >> is a pretty important issue for some people here and it’s hard to imagine >> it being excluded. > Carl….. I can’t imagine any situation where untreated sleep apnea > could make you unemployable.
I’ve read lots of people’s unfortunate stories here about how untreated sleep apnea can make it quite hard to function (like this thread) and by reading such posts here I can "imagine" it very easily. > However, untreated long enough and you > could end up with any number of health problems that could make you > unemployable.
True. But in some cases CPAP simply doesn’t work for people and they don’t know about or their doctors can’t identify any other specific problems being involved.
Response:
In article <3D7687EF.9BA96…@socal.rr.com>, NormC wrote: > If you have obstructional sleep apnea, it’s treatable.
Except when it’s not. Seems like I’ve read a number of posts here from people with apnea (OSA as well as CSA) where they just can’t get CPAP to help. > So why would the > taxpayers want to make disability payments to someone with obstructional sleep > apnea.
Because they are for people with disabilities. Sorry but I think you are off on a tangent here. This discussion was not about the merits of SS disability qualifications for Americans. You and I are not in charge of that after all. My question asked if anyone knew of *examples* of someone having apnea (*either* CSA or OSA) getting disability. I bet that some people here (such as the original poster) would find that information pretty useful. > If you have other sleep disorders that are not so readily treatable, or not > treatble at all, such as central sleep apnea, then you could be a candidate > for SSD.
True, but this would include any disorder that someone cannot get treatment for or where the treatment does not help or work.
Response:
On Wed, 04 Sep 2002 17:11:49 -0400, Lee Babcock <leebabc…@pathcom.com> wrote: >Carl….. I can’t imagine any situation where untreated sleep apnea >could make you unemployable.
Hypersomnia. — Visit Charlie’s Sneaker Pages: http://sneakers.pair.com/
Response:
On Wed, 04 Sep 2002 17:11:49 -0400, Lee Babcock <leebabc…@pathcom.com> wrote: >Carl….. I can’t imagine any situation where untreated sleep apnea >could make you unemployable.
I read the newsletter that our company medical department puts out. They have had more than a few people who went in for a medical evaluation for work problems and had undiagnosed OSA. OSA treatment put them back to normal. — Visit Charlie’s Sneaker Pages: http://sneakers.pair.com/
Response:
"Carl J." <c…@europa.remove.lonestar.remove.org> wrote in message
news:slrnancnje.8nc.carl@europa.lonestar.org… > Does anyone know of an actual case in the USA of someone getting SS > disability (or any disability) for Sleep Apnea? It seems to me that this > is a pretty important issue for some people here and it’s hard to imagine > it being excluded.
Going back to about 1995, yes I do. At that time – and obviously this may not apply now in any form – you could in SOME states. — Friar Tuck was always the butt of Spoonerism Jokes from the Merry Men!
Response:
"Lee Babcock" <leebabc…@pathcom.com> wrote in message
news:3D767715.EF1F0B88@pathcom.com… > "Carl J." wrote: > > Does anyone know of an actual case in the USA of someone getting SS > > disability (or any disability) for Sleep Apnea? It seems to me that this > > is a pretty important issue for some people here and it’s hard to imagine > > it being excluded. > Carl….. I can’t imagine any situation where untreated sleep apnea > could make you unemployable. However, untreated long enough and you
Surely you have to be joking! I have to sleep in the afternoon. I can get away with 1 or 2 afternoons in a row where I dont but my ability to work after just 1 goes down a fair bit and after 2, a lot! — Friar Tuck was always the butt of Spoonerism Jokes from the Merry Men!
Response:
If you have obstructional sleep apnea, it’s treatable. So why would the taxpayers want to make disability payments to someone with obstructional sleep apnea. If you have other sleep disorders that are not so readily treatable, or not treatble at all, such as central sleep apnea, then you could be a candidate for SSD. Does anyone know of an actual case in the USA of someone getting SS disability (or any disability) for Sleep Apnea? It seems to me that this is a pretty important issue for some people here and it’s hard to imagine it being excluded. In article <ir1bnuomsv4lhmso3pfbdr3rs6k2bjf…@4ax.com>, – Hide quoted text — Show quoted text -Zi…@World.Wide.Circus wrote: > For someone from Australia, you just described what it takes to get > approved for SSDI/SSI in the US very well. Good job. > Tal wrote: >>Greg……first – let me say, none of my doctors had anything to do with me >>getting disability really – on my recent review, my doc let me know how >>LITTLE he konws about cfs by putting on my form that the only problem cfs >>presents is tiredness…..that couldn’t be much further from the truth. >>So forget the whole doctor thing for now….and listen to what i have to say >>You DO NOT get approved for disability based on what particular illnesss you >>have!! The thing that gets you approved or rejected is how well you cope >>with dailiy activities!! >>I urge you to try again, if your docs won’t fill in the relevant forms, go >>to a different doc, but based on all the things you keep saying, i guarantee >>that if you persue this you will be approved.
Response:
FYI SSDI ===> Social Security Death Index (a database) SSD ===> Social Security Disability SSI ===> Supplemental Security Income Did you mean SSD…. or SSI? – Hide quoted text — Show quoted text -c…@XschizoaffectiveX.org wrote: > SSDI pays so little that I can’t imagine someone really wanting to be > on it. Some thing like $500 per month is all it pays. > On Wed, 04 Sep 2002 22:24:51 GMT, NormC <no…@socal.rr.com> wrote: > >If you have obstructional sleep apnea, it’s treatable. So why would the > >taxpayers want to make disability payments to someone with obstructional sleep > >apnea. > >If you have other sleep disorders that are not so readily treatable, or not > >treatble at all, such as central sleep apnea, then you could be a candidate > >for SSD. > >Does anyone know of an actual case in the USA of someone getting SS > >disability (or any disability) for Sleep Apnea? It seems to me that this > >is a pretty important issue for some people here and it’s hard to imagine > >it being excluded. > >In article <ir1bnuomsv4lhmso3pfbdr3rs6k2bjf…@4ax.com>, > >Zi…@World.Wide.Circus wrote: > >> For someone from Australia, you just described what it takes to get > >> approved for SSDI/SSI in the US very well. Good job. > >> Tal wrote: > >>>Greg……first – let me say, none of my doctors had anything to do with me > >>>getting disability really – on my recent review, my doc let me know how > >>>LITTLE he konws about cfs by putting on my form that the only problem cfs > >>>presents is tiredness…..that couldn’t be much further from the truth. > >>>So forget the whole doctor thing for now….and listen to what i have to say > >>>You DO NOT get approved for disability based on what particular illnesss you > >>>have!! The thing that gets you approved or rejected is how well you cope > >>>with dailiy activities!! > >>>I urge you to try again, if your docs won’t fill in the relevant forms, go > >>>to a different doc, but based on all the things you keep saying, i guarantee > >>>that if you persue this you will be approved.
Response:
Does anyone know of an actual case in the USA of someone getting SS disability (or any disability) for Sleep Apnea? It seems to me that this is a pretty important issue for some people here and it’s hard to imagine it being excluded. – Hide quoted text — Show quoted text -In article <ir1bnuomsv4lhmso3pfbdr3rs6k2bjf…@4ax.com>, Zi…@World.Wide.Circus wrote: > For someone from Australia, you just described what it takes to get > approved for SSDI/SSI in the US very well. Good job. > Tal wrote: >>Greg……first – let me say, none of my doctors had anything to do with me >>getting disability really – on my recent review, my doc let me know how >>LITTLE he konws about cfs by putting on my form that the only problem cfs >>presents is tiredness…..that couldn’t be much further from the truth. >>So forget the whole doctor thing for now….and listen to what i have to say >>You DO NOT get approved for disability based on what particular illnesss you >>have!! The thing that gets you approved or rejected is how well you cope >>with dailiy activities!! >>I urge you to try again, if your docs won’t fill in the relevant forms, go >>to a different doc, but based on all the things you keep saying, i guarantee >>that if you persue this you will be approved.
Response:
"Carl J." wrote: > Does anyone know of an actual case in the USA of someone getting SS > disability (or any disability) for Sleep Apnea? It seems to me that this > is a pretty important issue for some people here and it’s hard to imagine > it being excluded.
Carl….. I can’t imagine any situation where untreated sleep apnea could make you unemployable. However, untreated long enough and you could end up with any number of health problems that could make you unemployable. What other health problems do you have? Regards Lee in Toronto —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– http://www.newsfeeds.com – The #1 Newsgroup Service in the World! —–== Over 80,000 Newsgroups – 16 Different Servers! =—–
Response:
hmm……wonder how he’d go sending me a ‘not’ … i did of course mean note — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://www.anchorweb.com.au/sleepdisorders this site is a work in progress – feel free to submit info/articles
Response:
Greg….seems you’ve changed your email addy since we last corresponded, send me a not and i’ll email you back. I should add, that on the papers i’m going to send you, before lodging them i crossed out my response to the section about driving cause i didn’t want them to take my license away! — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://www.anchorweb.com.au/sleepdisorders this site is a work in progress – feel free to submit info/articles
Response:
Beth – You are now doing what I would have done if I could!!!! I hope he does what you say. I agree (as best I can without nowing the Aussie system) with every doggone word you have written. – Hide quoted text — Show quoted text -Tal wrote: > Greg……first – let me say, none of my doctors had anything to do with me > getting disability really – on my recent review, my doc let me know how > LITTLE he konws about cfs by putting on my form that the only problem cfs > presents is tiredness…..that couldn’t be much further from the truth. > So forget the whole doctor thing for now….and listen to what i have to say > You DO NOT get approved for disability based on what particular illnesss you > have!! The thing that gets you approved or rejected is how well you cope > with dailiy activities!! > I urge you to try again, if your docs won’t fill in the relevant forms, go > to a different doc, but based on all the things you keep saying, i guarantee > that if you persue this you will be approved. > When filling in the application forms, be honest about all the things you > can’t do, it’s hard to not want to present ourselves at our best, but what > you need to do is fill in the forms baring your worst days in mind, NOT your > best. Be specific about the things you can do and why, ie, exhaustion > (abiltity to walk, stand, endurance etc), congnative difficulties > (inablility to think straight, difficulty remembering things, difficulty > expressing things in words etc), muscle weakness (inablility to lift heavy > objects, carry things etc) etc. don’t be general, be as specific as you > can. – i have copies of my last review papers which i’ll send you off-list > so you can see how I went about filling them out – they’re essentially the > same as the initial application. My review has been approved twice now, > btw, and NOT on what the doc says, cause liek i mentioned above, all he did > is say i’m tired and woudln’t be able to show up to work every day. > Another important thing to remember, is to make sure they know that you > can’t do all required daily activities. I mentioned that I often have to > have people help with housecleaning and sometimes have people cook meals for > me (if it ws the case then i’d have also mentioned that my mum has to help > me wash my own hair!) i also probably mentioned that i can’t even manage to > take a shower every day because i have to reserve that energy to be able to > do soemthing else, like pick up a few groceries or whatever. This stuff is > important to mention to the DHS doc if you have to see one.. have your wife > drive you to the appointment and mention that too. > WOrk hisory i think also plays a part, i believe that the fact that i’d only > been able to work part time/casual in the past few years and that I had had > to leave at least one job because of the illness worked in my favour…so > make sure they know you can’t work, and that you’ve been struggling to try > and work from home a few hours here and there just to be able to survive. > you have to give this a go greg, cause i KNOW if you go about it the right > way you WILL get approved. whether or not you’ll be able to survive on the > pathetic amount of money they call the disability pension is another matter > entirely. > — > Beth in Australia > =================== > FAQ for alt.support.sleep-disorder can be found here > http://www.anchorweb.com.au/sleepdisorders > this site is a work in progress – feel free to submit info/articles > "gregh" <s…@abuse.someone.else> wrote in message > news:tadd9.1208$Sr6.43895@ozemail.com.au… > > "Tal" <beth…@hotmail.com> wrote in message > > news:akvi02$1lv840$1@ID-148111.news.dfncis.de… > > > > Cant work full time because of OSA – you who have been here since 1994 > > > when > > > > I started in the newsgroup, will know the OSA details to which I > refer. > > > > Cant get any form of Govt assistance so decided to try and work > properly > > > Greg, I really can’t understand this, on different occassions you’ve > > > mentioned that in addition to apnea, doctors have diagnosed you with at > > > least CFS and also MS – there’s NO WAY you can’t get govt disability > based > > > on that…. so if you’ve tried, try again, and make sure you do it > > right… > > > make sure they know what these docs have said and make sure they know > you > > > need help even to do day to day activities. > > Maybe you ought to go to doctors more recently then. I did. The simple > rule > > of thumb is: > > 1) Sleep Apnea doesn’t get anything. > > 2) The CFS I have would not be an issue if I didn’t have Sleep Apnea and > as > > the bulk of people can be treated for their sleep apnea and live > > normal/almost normal working lives, I don’t qualify even though it is > clear > > from medical records that my sleep apnea problem isn’t one that CAN be > > treated by anything around TODAY (that is to leave space for possible > future > > treatments I don’t yet know about). > > 3) MS I have is admittedly very low key right now. Eg, if it were MS only > > and no other health problem, there would be not a real lot of time I would > > have to have off work in any given year. Interestingly, I don’t get the > flu > > any longer and haven’t for years and I found out that many MS people have > > the same thing happen to them. Oddity! Anyway, I would likely have no more > > sick days than someone with the flu in any given year. > > So to be honest with you – there still remains no way in which I can > > actually GET any Govt assistance. However, I may be RUINED by the attempt. > > See, right now I am self employed and rely on my car to get me to jobs I > > have to do, wherever they may be as I do them at peoples’ homes and/or > > businesses. Without the car, I would not be able to get to most places as > > the cost would be prohibitive. I couldn’t walk the 10-20K some people are > > from any train station and as buses aren’t a big thing around here, the > only > > other alternative would be taxi from home to the railway as there is no > bus > > within 2K of me then train to the nearest station and taxi anything up to > > 20K from there. The gear I carry is heavy, too so even if a few Ks away > from > > the station, by the time I got there I would be wasted. Right now I can > pull > > up outside their house/business and cart the stuff inside. > > As to docs KNOWING I am in need of help, believe me they do but they > either > > are too lazy to do something (I believe this only of the GP I see who was > > the one who said "MS" to me which is why I keep going to him as he has > > proven he can see past the sleep apnea but is otherwise not a real helpful > > person) or are too antagonistic. I believe I have related the case of the > 3 > > neurologists before, the first wanting to deck me for saying "MRI" when he > > said "X-RAY" for something that had nothing to do with MS/Sleep Apnea/CFS > > and then the other 2 who knew I had been to the first. I have to wait a > few > > years and go to see someone entirely different and start from scratch – > > something the lazy GP told me he thought was in my best interests. I think > > that is a fair comment, too. So, I don’t have medical help and if I am too > > quick in trying to get it right now, I actually have neurologists, should > it > > come to me needing them – and it will – who will actively work AGAINST me > in > > order to keep the first neuro happy. > > I could say "such is life" but I am too angry for that. I could sue > perhaps > > but there would be no proof as you can well imagine. So, I am stuck where > I > > am, asking for ideas on ways I might be able to cut expenditure or > increase > > income that are possible for me. > > Beth I am no going to whinge endlessly about "how unfair it is" because I > > have done enough of that before. I just want some sage financial advice > from > > people in here who may be in a position to give it…..things that I can > > still achieve before it is too late. That’s all I want to ask from the > > readers in here. Until some years have passed I don’t have a snowball’s > > chance in Sydney of getting any medical payment assistance from the Govt > and > > the way the Feds are going, by the time I can they wont be giving much, if > > any, out anyway. > > — > > Friar Tuck was always the butt of Spoonerism Jokes from the Merry Men!
Response:
Greg……first – let me say, none of my doctors had anything to do with me getting disability really – on my recent review, my doc let me know how LITTLE he konws about cfs by putting on my form that the only problem cfs presents is tiredness…..that couldn’t be much further from the truth. So forget the whole doctor thing for now….and listen to what i have to say You DO NOT get approved for disability based on what particular illnesss you have!! The thing that gets you approved or rejected is how well you cope with dailiy activities!! I urge you to try again, if your docs won’t fill in the relevant forms, go to a different doc, but based on all the things you keep saying, i guarantee that if you persue this you will be approved. When filling in the application forms, be honest about all the things you can’t do, it’s hard to not want to present ourselves at our best, but what you need to do is fill in the forms baring your worst days in mind, NOT your best. Be specific about the things you can do and why, ie, exhaustion (abiltity to walk, stand, endurance etc), congnative difficulties (inablility to think straight, difficulty remembering things, difficulty expressing things in words etc), muscle weakness (inablility to lift heavy objects, carry things etc) etc. don’t be general, be as specific as you can. – i have copies of my last review papers which i’ll send you off-list so you can see how I went about filling them out – they’re essentially the same as the initial application. My review has been approved twice now, btw, and NOT on what the doc says, cause liek i mentioned above, all he did is say i’m tired and woudln’t be able to show up to work every day. Another important thing to remember, is to make sure they know that you can’t do all required daily activities. I mentioned that I often have to have people help with housecleaning and sometimes have people cook meals for me (if it ws the case then i’d have also mentioned that my mum has to help me wash my own hair!) i also probably mentioned that i can’t even manage to take a shower every day because i have to reserve that energy to be able to do soemthing else, like pick up a few groceries or whatever. This stuff is important to mention to the DHS doc if you have to see one.. have your wife drive you to the appointment and mention that too. WOrk hisory i think also plays a part, i believe that the fact that i’d only been able to work part time/casual in the past few years and that I had had to leave at least one job because of the illness worked in my favour…so make sure they know you can’t work, and that you’ve been struggling to try and work from home a few hours here and there just to be able to survive. you have to give this a go greg, cause i KNOW if you go about it the right way you WILL get approved. whether or not you’ll be able to survive on the pathetic amount of money they call the disability pension is another matter entirely. — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://www.anchorweb.com.au/sleepdisorders this site is a work in progress – feel free to submit info/articles "gregh" <s…@abuse.someone.else> wrote in message
news:tadd9.1208$Sr6.43895@ozemail.com.au… – Hide quoted text — Show quoted text -> "Tal" <beth…@hotmail.com> wrote in message > news:akvi02$1lv840$1@ID-148111.news.dfncis.de… > > > Cant work full time because of OSA – you who have been here since 1994 > > when > > > I started in the newsgroup, will know the OSA details to which I refer. > > > Cant get any form of Govt assistance so decided to try and work properly > > Greg, I really can’t understand this, on different occassions you’ve > > mentioned that in addition to apnea, doctors have diagnosed you with at > > least CFS and also MS – there’s NO WAY you can’t get govt disability based > > on that…. so if you’ve tried, try again, and make sure you do it > right… > > make sure they know what these docs have said and make sure they know you > > need help even to do day to day activities. > Maybe you ought to go to doctors more recently then. I did. The simple rule > of thumb is: > 1) Sleep Apnea doesn’t get anything. > 2) The CFS I have would not be an issue if I didn’t have Sleep Apnea and as > the bulk of people can be treated for their sleep apnea and live > normal/almost normal working lives, I don’t qualify even though it is clear > from medical records that my sleep apnea problem isn’t one that CAN be > treated by anything around TODAY (that is to leave space for possible future > treatments I don’t yet know about). > 3) MS I have is admittedly very low key right now. Eg, if it were MS only > and no other health problem, there would be not a real lot of time I would > have to have off work in any given year. Interestingly, I don’t get the flu > any longer and haven’t for years and I found out that many MS people have > the same thing happen to them. Oddity! Anyway, I would likely have no more > sick days than someone with the flu in any given year. > So to be honest with you – there still remains no way in which I can > actually GET any Govt assistance. However, I may be RUINED by the attempt. > See, right now I am self employed and rely on my car to get me to jobs I > have to do, wherever they may be as I do them at peoples’ homes and/or > businesses. Without the car, I would not be able to get to most places as > the cost would be prohibitive. I couldn’t walk the 10-20K some people are > from any train station and as buses aren’t a big thing around here, the only > other alternative would be taxi from home to the railway as there is no bus > within 2K of me then train to the nearest station and taxi anything up to > 20K from there. The gear I carry is heavy, too so even if a few Ks away from > the station, by the time I got there I would be wasted. Right now I can pull > up outside their house/business and cart the stuff inside. > As to docs KNOWING I am in need of help, believe me they do but they either > are too lazy to do something (I believe this only of the GP I see who was > the one who said "MS" to me which is why I keep going to him as he has > proven he can see past the sleep apnea but is otherwise not a real helpful > person) or are too antagonistic. I believe I have related the case of the 3 > neurologists before, the first wanting to deck me for saying "MRI" when he > said "X-RAY" for something that had nothing to do with MS/Sleep Apnea/CFS > and then the other 2 who knew I had been to the first. I have to wait a few > years and go to see someone entirely different and start from scratch – > something the lazy GP told me he thought was in my best interests. I think > that is a fair comment, too. So, I don’t have medical help and if I am too > quick in trying to get it right now, I actually have neurologists, should it > come to me needing them – and it will – who will actively work AGAINST me in > order to keep the first neuro happy. > I could say "such is life" but I am too angry for that. I could sue perhaps > but there would be no proof as you can well imagine. So, I am stuck where I > am, asking for ideas on ways I might be able to cut expenditure or increase > income that are possible for me. > Beth I am no going to whinge endlessly about "how unfair it is" because I > have done enough of that before. I just want some sage financial advice from > people in here who may be in a position to give it…..things that I can > still achieve before it is too late. That’s all I want to ask from the > readers in here. Until some years have passed I don’t have a snowball’s > chance in Sydney of getting any medical payment assistance from the Govt and > the way the Feds are going, by the time I can they wont be giving much, if > any, out anyway. > — > Friar Tuck was always the butt of Spoonerism Jokes from the Merry Men!
Response:
- Hide quoted text — Show quoted text -gregh wrote: > "NormC" <no…@socal.rr.com> wrote in message > news:3D73B1BF.7BA321CE@socal.rr.com… > > Gregh – Almost two years ago, you and Patrick Richards both posted your > > serious health and income problems at about the same time. > > If you recall, I offered to help, because of my own similar experiences. > > Patrick’s case was clear to me; however, yours wasn’t. When I tried to > get > > additional information from you, I said something that you didn’t like… > > and Beth joined you in bashing me. > Norm, > I know your screen/newsgroup name but if you expect me to recall what > happened 2 years ago in a newsgroup except in a general sort of sense, you > dont know untreated sleep apnea! I have actually made the effort on more > than one occasion to remember specific details of one event or another and I > tell you I can get there, still but the effort drains me so generally > speaking, I let the "delete" enzyme do it’s thing!
Well, it was a special event for me <g>… so I remember it. But I sure know what you mean. > > I believe that I was, and am, of significant help to Patrick, continung up > > to today in his second round with the doctor’s letters to those of > > importance (insurance companies, government agencies, etc.). Even though > > it has become clear to me that you do need help, because of your living in > > Oz, I haven’t really had much in the way of ideas. However, Beth’s > > response to your post, below, has caused me to re-offer my help. > > However, your response to her post is very important to my being able to > > help. > Believe me when I say I don’t have a clue what you mean in that last > sentence, thus invalidating anything I thought made sense to me in the > preceding paragraph. Sorry about that.
What I should have said was, "Your response to her post is very important to my being able to decide if I can help." Having read your response, I have no ideas whatsoever. Sorry. – Hide quoted text — Show quoted text -> I didn’t get to sleep yesterday > afternoon because of the 17 year old son of a customer I saw yesterday > morning who took it upon himself to look inside his computer and blamed me > for the mess he created, easily fixed by me at no income because it isn’t > something I could have proven at any stage one way or another. Still spiting > chips about that as he told me I was an idiot for laying his computer on > it’s side (computer was off) to extract the dead modem and put in a working > one. Dickhead doesn’t know squat and was telling ME I know nothing. Sure. I > fixed all the crap he had caused, told him I knew he had done it and if he > plays around inside the computer again – this in earshot of the mother – he > would be PAYING for the fix next time. No apologies, either. ARGH! Oh and I > NEED my afternoon sleep so today I made sure I didn’t have an appointment to > do (usually make them at night) and am taking the time to rest so I can get > on with working. Still – a whole day with no income is not good but the > mistakes I may make if I tried to work like I am now would end up costing > more! > — > Friar Tuck was always the butt of Spoonerism Jokes from the Merry Men!
Response:
"NormC" <no…@socal.rr.com> wrote in message
news:3D73B1BF.7BA321CE@socal.rr.com… > Gregh – Almost two years ago, you and Patrick Richards both posted your > serious health and income problems at about the same time. > If you recall, I offered to help, because of my own similar experiences. > Patrick’s case was clear to me; however, yours wasn’t. When I tried to get > additional information from you, I said something that you didn’t like… > and Beth joined you in bashing me.
Norm, I know your screen/newsgroup name but if you expect me to recall what happened 2 years ago in a newsgroup except in a general sort of sense, you dont know untreated sleep apnea! I have actually made the effort on more than one occasion to remember specific details of one event or another and I tell you I can get there, still but the effort drains me so generally speaking, I let the "delete" enzyme do it’s thing! > I believe that I was, and am, of significant help to Patrick, continung up > to today in his second round with the doctor’s letters to those of > importance (insurance companies, government agencies, etc.). Even though > it has become clear to me that you do need help, because of your living in > Oz, I haven’t really had much in the way of ideas. However, Beth’s > response to your post, below, has caused me to re-offer my help. > However, your response to her post is very important to my being able to > help.
Believe me when I say I don’t have a clue what you mean in that last sentence, thus invalidating anything I thought made sense to me in the preceding paragraph. Sorry about that. I didn’t get to sleep yesterday afternoon because of the 17 year old son of a customer I saw yesterday morning who took it upon himself to look inside his computer and blamed me for the mess he created, easily fixed by me at no income because it isn’t something I could have proven at any stage one way or another. Still spiting chips about that as he told me I was an idiot for laying his computer on it’s side (computer was off) to extract the dead modem and put in a working one. Dickhead doesn’t know squat and was telling ME I know nothing. Sure. I fixed all the crap he had caused, told him I knew he had done it and if he plays around inside the computer again – this in earshot of the mother – he would be PAYING for the fix next time. No apologies, either. ARGH! Oh and I NEED my afternoon sleep so today I made sure I didn’t have an appointment to do (usually make them at night) and am taking the time to rest so I can get on with working. Still – a whole day with no income is not good but the mistakes I may make if I tried to work like I am now would end up costing more! — Friar Tuck was always the butt of Spoonerism Jokes from the Merry Men!
Response:
"Tal" <beth…@hotmail.com> wrote in message
news:akvi02$1lv840$1@ID-148111.news.dfncis.de… > > Cant work full time because of OSA – you who have been here since 1994 > when > > I started in the newsgroup, will know the OSA details to which I refer. > > Cant get any form of Govt assistance so decided to try and work properly > Greg, I really can’t understand this, on different occassions you’ve > mentioned that in addition to apnea, doctors have diagnosed you with at > least CFS and also MS – there’s NO WAY you can’t get govt disability based > on that…. so if you’ve tried, try again, and make sure you do it right… > make sure they know what these docs have said and make sure they know you > need help even to do day to day activities.
Maybe you ought to go to doctors more recently then. I did. The simple rule of thumb is: 1) Sleep Apnea doesn’t get anything. 2) The CFS I have would not be an issue if I didn’t have Sleep Apnea and as the bulk of people can be treated for their sleep apnea and live normal/almost normal working lives, I don’t qualify even though it is clear from medical records that my sleep apnea problem isn’t one that CAN be treated by anything around TODAY (that is to leave space for possible future treatments I don’t yet know about). 3) MS I have is admittedly very low key right now. Eg, if it were MS only and no other health problem, there would be not a real lot of time I would have to have off work in any given year. Interestingly, I don’t get the flu any longer and haven’t for years and I found out that many MS people have the same thing happen to them. Oddity! Anyway, I would likely have no more sick days than someone with the flu in any given year. So to be honest with you – there still remains no way in which I can actually GET any Govt assistance. However, I may be RUINED by the attempt. See, right now I am self employed and rely on my car to get me to jobs I have to do, wherever they may be as I do them at peoples’ homes and/or businesses. Without the car, I would not be able to get to most places as the cost would be prohibitive. I couldn’t walk the 10-20K some people are from any train station and as buses aren’t a big thing around here, the only other alternative would be taxi from home to the railway as there is no bus within 2K of me then train to the nearest station and taxi anything up to 20K from there. The gear I carry is heavy, too so even if a few Ks away from the station, by the time I got there I would be wasted. Right now I can pull up outside their house/business and cart the stuff inside. As to docs KNOWING I am in need of help, believe me they do but they either are too lazy to do something (I believe this only of the GP I see who was the one who said "MS" to me which is why I keep going to him as he has proven he can see past the sleep apnea but is otherwise not a real helpful person) or are too antagonistic. I believe I have related the case of the 3 neurologists before, the first wanting to deck me for saying "MRI" when he said "X-RAY" for something that had nothing to do with MS/Sleep Apnea/CFS and then the other 2 who knew I had been to the first. I have to wait a few years and go to see someone entirely different and start from scratch – something the lazy GP told me he thought was in my best interests. I think that is a fair comment, too. So, I don’t have medical help and if I am too quick in trying to get it right now, I actually have neurologists, should it come to me needing them – and it will – who will actively work AGAINST me in order to keep the first neuro happy. I could say "such is life" but I am too angry for that. I could sue perhaps but there would be no proof as you can well imagine. So, I am stuck where I am, asking for ideas on ways I might be able to cut expenditure or increase income that are possible for me. Beth I am no going to whinge endlessly about "how unfair it is" because I have done enough of that before. I just want some sage financial advice from people in here who may be in a position to give it…..things that I can still achieve before it is too late. That’s all I want to ask from the readers in here. Until some years have passed I don’t have a snowball’s chance in Sydney of getting any medical payment assistance from the Govt and the way the Feds are going, by the time I can they wont be giving much, if any, out anyway. — Friar Tuck was always the butt of Spoonerism Jokes from the Merry Men!
Response:
Cant work full time because of OSA – you who have been here since 1994 when I started in the newsgroup, will know the OSA details to which I refer. Cant get any form of Govt assistance so decided to try and work properly anyway but that wasn’t possible so started my own business, self employed doing anything and everything to do with computers excepting I am no "Bob the Builder" by a long shot so am not going to go ripping walls apart to lay cabling – not that it really is an issue now. Been doing that about 2 years now and took some time today to reflect on what it was like this time a year ago and went back through my records. Apparently about the same as it is now. Very quiet, not much incoming money but that will change in about 2 months for about 4 months. The fact is that if it were not for the "line of credit" style housing loan I have, we would long ago have been on the streets and with the available credit I have and if everything else, bills and income etc, remain status quo, in about 2 years I actually WILL be on the streets. Because of the business I do, I claim internet connection bills for my business which is why I can be here whinging like this. I wasn’t really up to trying to figure all this out today but tried my best to think of ways out of this. Some small changes came to mind and are now implemented but they really don’t mean much. The fact is that the only major thing that would make any difference is for me to do exactly as the doctors told me would happen by 50 and kark it. Never been a quitter and so didn’t believe – and still don’t – that their quackery rules. I will still have OSA by 50 (less than 3 years away) and it doesn’t get better untreated as it is for me but dying? Not likely unless I am stupid and exercise hard which IS likely, given my lack of oxygen to cause a problem. Then it was obvious – I don’t have kids but I have a house, car, 2 dogs and wife to consider, my wife travelling around 2.5 hours each day each way to work so near 6 hours (and actually more if there is some hold-up) or quarter of the day in transit. If I actually DO kark it, the life insurance I have covers the housing bill and she can at least start saving some money. There must be a better answer though. Anyone been in this position and gotten out of it even though your medical problem didn’t actually get better? Any ideas welcome. Ta! — Friar Tuck was always the butt of Spoonerism Jokes from the Merry Men!
Response:
> Cant work full time because of OSA – you who have been here since 1994 when > I started in the newsgroup, will know the OSA details to which I refer. > Cant get any form of Govt assistance so decided to try and work properly
Greg, I really can’t understand this, on different occassions you’ve mentioned that in addition to apnea, doctors have diagnosed you with at least CFS and also MS – there’s NO WAY you can’t get govt disability based on that…. so if you’ve tried, try again, and make sure you do it right… make sure they know what these docs have said and make sure they know you need help even to do day to day activities. — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://www.anchorweb.com.au/sleepdisorders this site is a work in progress – feel free to submit info/articles
Response:
Gregh – Almost two years ago, you and Patrick Richards both posted your serious health and income problems at about the same time. If you recall, I offered to help, because of my own similar experiences. Patrick’s case was clear to me; however, yours wasn’t. When I tried to get additional information from you, I said something that you didn’t like… and Beth joined you in bashing me. I believe that I was, and am, of significant help to Patrick, continung up to today in his second round with the doctor’s letters to those of importance (insurance companies, government agencies, etc.). Even though it has become clear to me that you do need help, because of your living in Oz, I haven’t really had much in the way of ideas. However, Beth’s response to your post, below, has caused me to re-offer my help. However, your response to her post is very important to my being able to help. – Hide quoted text — Show quoted text -gregh wrote: > Cant work full time because of OSA – you who have been here since 1994 when > I started in the newsgroup, will know the OSA details to which I refer. > Cant get any form of Govt assistance so decided to try and work properly > anyway but that wasn’t possible so started my own business, self employed > doing anything and everything to do with computers excepting I am no "Bob > the Builder" by a long shot so am not going to go ripping walls apart to lay > cabling – not that it really is an issue now. Been doing that about 2 years > now and took some time today to reflect on what it was like this time a year > ago and went back through my records. Apparently about the same as it is > now. Very quiet, not much incoming money but that will change in about 2 > months for about 4 months. The fact is that if it were not for the "line of > credit" style housing loan I have, we would long ago have been on the > streets and with the available credit I have and if everything else, bills > and income etc, remain status quo, in about 2 years I actually WILL be on > the streets. Because of the business I do, I claim internet connection bills > for my business which is why I can be here whinging like this. I wasn’t > really up to trying to figure all this out today but tried my best to think > of ways out of this. Some small changes came to mind and are now implemented > but they really don’t mean much. The fact is that the only major thing that > would make any difference is for me to do exactly as the doctors told me > would happen by 50 and kark it. Never been a quitter and so didn’t believe – > and still don’t – that their quackery rules. I will still have OSA by 50 > (less than 3 years away) and it doesn’t get better untreated as it is for me > but dying? Not likely unless I am stupid and exercise hard which IS likely, > given my lack of oxygen to cause a problem. Then it was obvious – I don’t > have kids but I have a house, car, 2 dogs and wife to consider, my wife > travelling around 2.5 hours each day each way to work so near 6 hours (and > actually more if there is some hold-up) or quarter of the day in transit. If > I actually DO kark it, the life insurance I have covers the housing bill and > she can at least start saving some money. There must be a better answer > though. Anyone been in this position and gotten out of it even though your > medical problem didn’t actually get better? Any ideas welcome. Ta! > — > Friar Tuck was always the butt of Spoonerism Jokes from the Merry Men!
