I'm so embarrassed, I don't know what is wrong! please help
Question:
welcome!!!! and glad your here! the more you tell, or ask, the more you learn!!! say ANYTHING you need to, everyone will try to help with where to look for help, or just tell you what they know, it’s great! hope you post again soon! =) TourettesN <tourett…@aol.com> wrote in message
news:19990613203818.08573.00001646@ng-fg1.aol.com… – Hide quoted text — Show quoted text -> Hi, > My name is Megan and I’m new to this ng. I’m 22 years old and was dx’d with TS > when I was 5. Life is hell for me right now… I feel as though I’m going out > of my mind. I’m not sure what is wrong. I have a problem which seems to wax and > wane. I’m too ashamed to describe it. I’m having trouble sleeping (haven’t > slept for 24 hours). I need help. If anyone knows of a web page or some way > that I can locate a list for TS support groups in the US, I would really > appreciate it. Does anyone with TS have trouble sleeping? I don’t know anyone > to help me with this, I’m embarrassed. > Megan
Response:
Hi, My name is Megan and I’m new to this ng. I’m 22 years old and was dx’d with TS when I was 5. Life is hell for me right now… I feel as though I’m going out of my mind. I’m not sure what is wrong. I have a problem which seems to wax and wane. I’m too ashamed to describe it. I’m having trouble sleeping (haven’t slept for 24 hours). I need help. If anyone knows of a web page or some way that I can locate a list for TS support groups in the US, I would really appreciate it. Does anyone with TS have trouble sleeping? I don’t know anyone to help me with this, I’m embarrassed. Megan
Response:
I don’t know > anyone > > to help me with this, I’m embarrassed. > > Megan
Megan, you’ve come to the right place. Glad you found us! Tell us more. Is the most difficult problem you are having right now getting enough sleep? There are some things that might help you….let us know if that’s what you meant. KAT In CT
Response:
. I’m not sure what is wrong. I have a problem which seems to wax and > wane. I’m too ashamed to describe it. I’m having trouble sleeping (haven’t > slept for 24 hours). I need help.
I know it is not a medical advice, but perhaps it helps: I have a dog and when I can’t sleep I go out with my dog and walk, sometimes very long and afterwards I can sleep. Take care ticstump Sent via Deja.com http://www.deja.com/ Share what you know. Learn what you don’t.
Response:
. I’m not sure what is wrong. I have a problem which seems to wax and > wane. I’m too ashamed to describe it.
Don’t be ashamed. Here we all have the same problems. I’m having trouble sleeping (haven’t > slept for 24 hours). I need help.
I know it is not a medical advice, but perhaps it helps: I have a dog and when I can’t sleep I go out with my dog and walk, sometimes very long and afterwards I can sleep. Take care ticstump Sent via Deja.com http://www.deja.com/ Share what you know. Learn what you don’t.
Response:
Megan, Please elaborate on your sleeping concerns. I had trouble falling asleep (especially when stressed) due to ticing. Fortunately, in my case, Tenex has helped. Tom TourettesN wrote in message
<19990613203818.08573.00001…@ng-fg1.aol.com>… – Hide quoted text — Show quoted text ->Hi, >My name is Megan and I’m new to this ng. I’m 22 years old and was dx’d with TS >when I was 5. Life is hell for me right now… I feel as though I’m going out >of my mind. I’m not sure what is wrong. I have a problem which seems to wax and >wane. I’m too ashamed to describe it. I’m having trouble sleeping (haven’t >slept for 24 hours). I need help. If anyone knows of a web page or some way >that I can locate a list for TS support groups in the US, I would really >appreciate it. Does anyone with TS have trouble sleeping? I don’t know anyone >to help me with this, I’m embarrassed. >Megan
Response:
Dear Tom, Shoulder jerking and other tics have made it hard for me to fall asleep too, although it hasn’t seemed to interfere as much as this .. I can’t even describe it. Something within my head is circulating constantly, some form of weird fretting or mind-buzz .. and it is nonstop. I’m having trouble falling asleep at all, and when I do I average around 1 or 2 hours a night if I’m unable to sneak in a nap beforehand. Nights are so bad I rock my body, bang my head or blast the volume of the TV and radio until it literally drowns out <the noise> in my own head. I don’t see or hear things, but something happens things do, I’m so tired I can’t keep up, I sweat constantly to keep up but I can’t keep up and I’m willing to take absolutely anything that might work. Has Tenex been able to help you get on a regular sleep schedule? Thank you for listening, and take care, Megan
Response:
KATAUB…@prodigy.net wrote: >> Is the most difficult problem you are having right now getting enough sleep?
KAT In CT Dear Kathryn, Yes, I am able to get only about 1- 2 hours of sleep on the average plus dosing and short naps throughout every joint in my body feels the exhaustion because I cannot keep up with it. I am resorting to rocking, banging my forehead on the table, it makes me feel so frustrated and angry, anything that will make it stop. It gets really bad at night. Part of the problem is I’m too embarrassed to tell anyone the things I do. I’m hiding from everyone and it is making tje problem worse.Thanks for listening. Megan
Response:
It is definitely not necessary to be "embarassed" about your problem, but it is important to get competent advice — ideally, from a knowledgeable medical professional. There are lots of different medical conditions that can cause insomnia and there are appropriate treatments for most of them. But it’s probably not a good idea to jump to the solution before you have a clearer idea of what’s causing the problem. Translation — please get yourself to a good doctor as soon as possible! Take care. Kate
Response:
Megan, In that Tenex "slows-down" the body (e.g., lower blood pressure, reduced heart rate), it has helped me feel less "antzy" when trying to wind down/fall asleep. Also, when startled out of a deep sleep (for whatever reason), my heart rate does not speed-up as much as it used to. Tom TourettesN wrote in message
<19990615234348.07138.00000…@ng-bd1.aol.com>… – Hide quoted text — Show quoted text ->Dear Tom, > Shoulder jerking and other tics have made it hard for me to fall asleep too, >although it hasn’t seemed to interfere as much as this .. I can’t even describe >it. Something within my head is circulating constantly, some form of weird >fretting or mind-buzz .. and it is nonstop. I’m having trouble falling asleep >at all, and when I do I average around 1 or 2 hours a night if I’m unable to >sneak in a nap beforehand. Nights are so bad I rock my body, bang my head or >blast the volume of the TV and radio until it literally drowns out <the noise> >in my own head. I don’t see or hear things, but something happens things do, >I’m so tired I can’t keep up, I sweat constantly to keep up but I can’t keep up >and I’m willing to take absolutely anything that might work. Has Tenex been >able to help you get on a regular sleep schedule? Thank you for listening, and >take care, >Megan
Response:
In article <19990616000626.07148.00000…@ng-bd1.aol.com>, – Hide quoted text — Show quoted text -tourett…@aol.com (TourettesN) wrote: > KATAUB…@prodigy.net wrote: > >> Is the most difficult problem you are having right now getting enough sleep? > KAT In CT > Dear Kathryn, > Yes, I am able to get only about 1- 2 hours of sleep on the average plus dosing > and short naps throughout every joint in my body feels the exhaustion because I > cannot keep up with it. I am resorting to rocking, banging my forehead on the > table, it makes me feel so frustrated and angry, anything that will make it > stop. It gets really bad at night. Part of the problem is I’m too embarrassed > to tell anyone the things I do. I’m hiding from everyone and it is making tje > problem worse.Thanks for listening. > Megan
I go through periods where I get less than 2 hrs sleep per night. They are probably the worst problems of any kind that I ever go through. I don’t know if this part is anything you can relate to, but being ashamed of my tics aggravates my ticcing and my inability to sleep. My inability to sleep aggravates my tics. And so on… Sometimes racing thoughts are a big part of what keeps me awake. Also,the more behind I am in sleep, the more pressure I feel about falling asleep. The more pressure I feel, the more difficult it is for me to sleep. I feel that I do need to try again to find the right medication to help me sleep. Hope to find the right doctor soon, so I can continue that search, though I don’t feel that desperate right now, considering I’m sleeping a lot better in the last few weeks than I was in the previous months. Josh
Response:
> > KATAUB…@prodigy.net wrote: > > >> Is the most difficult problem you are having right now getting enough > sleep? > > KAT In CT > > Dear Kathryn, > > Yes, I am able to get only about 1- 2 hours of sleep on the average plus > dosing > > and short naps throughout every joint in my body feels the exhaustion > because I > > cannot keep up with it.
I used to have this problem more frequently when I was working full time. High intensity job, lots of energy required, lots of need to be "up". I’d come home wired, and like I was going 60 miles an hour in a 15 mile zone. What helped me was running or walking (till my orthopedic problems got in the way). But any kind of exercise will do. DON’T do it too close to bedtime, whatever, or it will KEEP you awake. When my knees and feet gave out, I tried melatonin. Darned stuff works, too. At this point in my life, I don’t have the problem as much as I used to. I think part of it was environmental, exacerbating the sometimes difficult times some of us with TS have falling asleep. I am still a "light sleeper," and require about 10 hours each night for optimum "efficiency," but I no longer have the difficulties that I used to have, as I said, especially when I was "out there" in the thick of things, EVERY day. This is one of the reasons why I believe that environment is SO important to each of us. Finding what works for us, what helps us relax, feel comfortable, secure, etc etc. KAT in CT
Response:
When I began taking Clonodine for tics I experience extreme insomnia. I have heard that people with tic disorders tend to be very sensitive to side effects.
Response:
KAT wrote: >I’d come home wired, and like I was going 60 miles an hour in a 15 mile >zone.
Me too, that’s it exactly.
