Narcolepsy symptoms from MS
Question:
BG, I have no idea why your doctor prescribed Amantadine for your problems of falling asleep. Provigil is used for narcolepsy, so you night check out this drug. At any rate, do something before you kill yourself on the highway. Joyce – Hide quoted text — Show quoted text -Kami wrote: > Good Luck Bruce!!! > Smiles! > Kami > "BG" <dgiv…@neo.rr.com> wrote in message > news:9b4je.446$UP.273@tornado.ohiordc.rr.com… > > Hi everyone, I’ve been lurking for about a year and never really had > > anything to say. ;) Or maybe I have and don’t remember… > > I was DX in ‘01 and I’ve been on Avonex since ‘02 with good results. I > > work > > 2nd shift (thank goodness) and walk the floor of a large machine shop as a > > supervisor. Leg pain (spaz, ice-pick) and fatige (sever lead in ass > > syndrom) > > hits me about 1-2 nights a week and I have fallen asleep 3 or 4 times > > while > > driving home at midnight. And that is SCARY!!! Luckily I haven’t killed > > myself or anyone else in a wreck, just some minor body damage that I was > > able to fix. I only have the problem after a bad night of fatiuge and leg > > pain, but while I’m driving I can’t tell when it’s coming on. > > My Dr. put me on Amantadine but that seemed to increase the leg pain and > > didn’t really help on the way home. Now I have some Ritalin to use on an > > as > > needed basis. > > Does anyone have experiance with similar symptoms or Ritalin. > > I’m trying to treat it myself with diet, I’ve taken to having a protein > > shake or power bar every couple hours and that seems to help. I QUIT > > SMOKING!!!! Now I’m trying to drop the extra 30lbs from that so I dropped > > the sugary pop and coffee > > Wish me luck. Gotta go to work! > > Bruce
Response:
On Thu, 19 May 2005 17:39:17 GMT, "BG" <dgiv…@neo.rr.com> wrote in alt.support.mult-sclerosis: >I have fallen asleep 3 or 4 times while >driving home at midnight.
Do they still sell that stuff for truck drivers, called something like "No-Doz"? I think they were pretty much pure caffeine tablets. Another talk with your doc is in order. I once waited for a stop sign to turn green (shift work). — Gardening Zones Canada Zone 5a United States Zone 3a Near Ottawa, Ontario
Response:
The ironic thing for me: for years before MS, I thought I was narcoleptic the way I always fell asleep in classes at school. 
Mind you, for you it’s far more serious. I hope you get it solved before you or someone else gets hurt! — MSInformation: Busting myths and bringing hope http://m-sinfo.org/newslettersubscribe.html Also a message forum: http://m-sinfo.org/mscommunication
Response:
Thanks Kami I caught that on my way out the door. Sometimes someone says just the right thing in just the right way when you need it most! Joyce, I think I dose off from exhaustion not Narcolepsy. I tend to push myself through the fatigue and pain to keep my job…work is not very sympathetic. Quitting or even going on disability is not an option right now. Provigil was offered but I do not want to take a daily, or twice daily scrip. I asked for something I could take on an as needed basis and was prescribed Ritalin. I was told this is fast acting and will ware off in a couple hours…just what I was looking for if it works like that for me. And to make everyone in Ohio feel safer…my ride home is not on the highway and is only 7 miles! Bruce "gwajean48" <gwajea…@yahoo.com> wrote in message
news:1116537213.569677.271830@f14g2000cwb.googlegroups.com… – Hide quoted text — Show quoted text -> BG, > I have no idea why your doctor prescribed Amantadine for your problems > of falling asleep. Provigil is used for narcolepsy, so you night check > out this drug. At any rate, do something before you kill yourself on > the highway. > Joyce > Kami wrote: > > Good Luck Bruce!!! > > Smiles! > > Kami > > "BG" <dgiv…@neo.rr.com> wrote in message > > news:9b4je.446$UP.273@tornado.ohiordc.rr.com… > > > Hi everyone, I’ve been lurking for about a year and never really > had > > > anything to say. ;) Or maybe I have and don’t remember… > > > I was DX in ‘01 and I’ve been on Avonex since ‘02 with good > results. I > > > work > > > 2nd shift (thank goodness) and walk the floor of a large machine > shop as a > > > supervisor. Leg pain (spaz, ice-pick) and fatige (sever lead in ass > > > syndrom) > > > hits me about 1-2 nights a week and I have fallen asleep 3 or 4 > times > > > while > > > driving home at midnight. And that is SCARY!!! Luckily I haven’t > killed > > > myself or anyone else in a wreck, just some minor body damage that > I was > > > able to fix. I only have the problem after a bad night of fatiuge > and leg > > > pain, but while I’m driving I can’t tell when it’s coming on. > > > My Dr. put me on Amantadine but that seemed to increase the leg > pain and > > > didn’t really help on the way home. Now I have some Ritalin to use > on an > > > as > > > needed basis. > > > Does anyone have experiance with similar symptoms or Ritalin. > > > I’m trying to treat it myself with diet, I’ve taken to having a > protein > > > shake or power bar every couple hours and that seems to help. I > QUIT > > > SMOKING!!!! Now I’m trying to drop the extra 30lbs from that so I > dropped > > > the sugary pop and coffee > > > Wish me luck. Gotta go to work! > > > Bruce
Response:
> I once waited for a stop sign to turn green (shift work). > —
((UHGG)) now my head hurts!lol I was drinking way too much coffee already. I do need to eventually go to sleep at night so I didn’t want anything that would last very long, and that is what all those pills are designed to do. I hope the Ritalin fits the bill. Anyone here tried it?
Response:
I fell asleep writing a long email to my newly diagnosed friend and ended up with a long string (six pages) of kkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkk kkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkk which I fortunately didn’t send it my sleeep. — "gwajean48" <gwajea…@yahoo.com> wrote in message
news:1116537213.569677.271830@f14g2000cwb.googlegroups.com… – Hide quoted text — Show quoted text -> BG, > I have no idea why your doctor prescribed Amantadine for your problems > of falling asleep. Provigil is used for narcolepsy, so you night check > out this drug. At any rate, do something before you kill yourself on > the highway. > Joyce > Kami wrote: >> Good Luck Bruce!!! >> Smiles! >> Kami >> "BG" <dgiv…@neo.rr.com> wrote in message >> news:9b4je.446$UP.273@tornado.ohiordc.rr.com… >> > Hi everyone, I’ve been lurking for about a year and never really > had >> > anything to say. ;) Or maybe I have and don’t remember… >> > I was DX in ‘01 and I’ve been on Avonex since ‘02 with good > results. I >> > work >> > 2nd shift (thank goodness) and walk the floor of a large machine > shop as a >> > supervisor. Leg pain (spaz, ice-pick) and fatige (sever lead in ass >> > syndrom) >> > hits me about 1-2 nights a week and I have fallen asleep 3 or 4 > times >> > while >> > driving home at midnight. And that is SCARY!!! Luckily I haven’t > killed >> > myself or anyone else in a wreck, just some minor body damage that > I was >> > able to fix. I only have the problem after a bad night of fatiuge > and leg >> > pain, but while I’m driving I can’t tell when it’s coming on. >> > My Dr. put me on Amantadine but that seemed to increase the leg > pain and >> > didn’t really help on the way home. Now I have some Ritalin to use > on an >> > as >> > needed basis. >> > Does anyone have experiance with similar symptoms or Ritalin. >> > I’m trying to treat it myself with diet, I’ve taken to having a > protein >> > shake or power bar every couple hours and that seems to help. I > QUIT >> > SMOKING!!!! Now I’m trying to drop the extra 30lbs from that so I > dropped >> > the sugary pop and coffee >> > Wish me luck. Gotta go to work! >> > Bruce
Response:
i use Alertec for my exhaustion probs,,, it is very effective and also non speed drug,, very clean , minimal side effects,, one pill does me fine and i only take it if i wake up tired as i know then how my day will go when i wake up,,,, if i feel like i am still asleep or need to go back to sleep i take one Alertec pill,, works great,, and i sleep well at night too. i have tried all the fatigue meds for Ms use and found this to be the best for me,, with the least negative side effects,, bobbyD "BG" <dgiv…@neo.rr.com> wrote in message
news:05eje.373$9v1.321@tornado.ohiordc.rr.com… – Hide quoted text — Show quoted text ->> I once waited for a stop sign to turn green (shift work). >> — > ((UHGG)) now my head hurts!lol > I was drinking way too much coffee already. I do need to eventually go to > sleep at night so I didn’t want anything that would last very long, and > that > is what all those pills are designed to do. I hope the Ritalin fits the > bill. > Anyone here tried it?
Response:
BG wrote: > I was drinking way too much coffee already. I do need to eventually go to > sleep at night so I didn’t want anything that would last very long, and that > is what all those pills are designed to do. I hope the Ritalin fits the > bill. > Anyone here tried it?
hi bruce, i haven’t had ALL the M.S. anti-fatigue meds, but i’ve sure had a lot of them! ritalin was one, as well as provigil (works like a miracle drug for many, didn’t do squat for me!), amantadine (very first anti-fatigue med ever prescribed for me — didn’t even feel a little jolt, only way i knew i was taking it was because it made me sick to my stomach, LOL), phentermine and cylert (both speed, both made me ‘not sleepy’ but NOT ‘not tired’), prozac (not for depression, just fo fatigue — couldn’t even feel it), and wellbutrin (again, for fatigue rather than depression — i noticed wellbutrin, but again, it was more like a strong cup of cofee than anything else in my case). i only kept the ritalin prescription for one month — the drug was not doing the trick for me, and it was a huge hassle having to go back to the neuro EVERY single month to get the refills. one thing i’ll say about the wellburtin — it’s an ‘SSNDRI’ rather than a plain SSRI, has FX on your serotonin, norepinephrine (i know i mangled that spelling), and dopamine, but NOT on your GABA, which (they tell me) is why it doesn’t interfere with your ability to get to sleep at night. it’s new enough not to be generic yet, so it’s expen$ive. have you thought of something like — pop a provigil in the morning, don’t drink as much coffee during the day, then have a good strong cuppa a few minutes before your shift ends? also, just because certain drugs didn’t do the trick for ME, it doesn’t mean they won’t have the FX that YOU want from them. have you tried ritalin? does it seem to be helping? a possible non-drug method ight also be, since you live so close to your workplace, seeing if someone who works the same shift that you do would be amenable to ‘car-pooling’ — they drive, you kick in a few bucks for gas every week. when dennis’s bike is in the shop, that’s the kind of thing that HE does! ;-> best of good fortune to you, rose
Response:
Hi everyone, I’ve been lurking for about a year and never really had anything to say. ;) Or maybe I have and don’t remember… I was DX in ‘01 and I’ve been on Avonex since ‘02 with good results. I work 2nd shift (thank goodness) and walk the floor of a large machine shop as a supervisor. Leg pain (spaz, ice-pick) and fatige (sever lead in ass syndrom) hits me about 1-2 nights a week and I have fallen asleep 3 or 4 times while driving home at midnight. And that is SCARY!!! Luckily I haven’t killed myself or anyone else in a wreck, just some minor body damage that I was able to fix. I only have the problem after a bad night of fatiuge and leg pain, but while I’m driving I can’t tell when it’s coming on. My Dr. put me on Amantadine but that seemed to increase the leg pain and didn’t really help on the way home. Now I have some Ritalin to use on an as needed basis. Does anyone have experiance with similar symptoms or Ritalin. I’m trying to treat it myself with diet, I’ve taken to having a protein shake or power bar every couple hours and that seems to help. I QUIT SMOKING!!!! Now I’m trying to drop the extra 30lbs from that so I dropped the sugary pop and coffee Wish me luck. Gotta go to work! Bruce
Response:
&%%#$%!!! Can I take that back and hit the sell checker first! Hahaha!!! "BG" <dgiv…@neo.rr.com> wrote in message
news:9b4je.446$UP.273@tornado.ohiordc.rr.com… – Hide quoted text — Show quoted text -> Hi everyone, I’ve been lurking for about a year and never really had > anything to say. ;) Or maybe I have and don’t remember… > I was DX in ‘01 and I’ve been on Avonex since ‘02 with good results. I work > 2nd shift (thank goodness) and walk the floor of a large machine shop as a > supervisor. Leg pain (spaz, ice-pick) and fatige (sever lead in ass syndrom) > hits me about 1-2 nights a week and I have fallen asleep 3 or 4 times while > driving home at midnight. And that is SCARY!!! Luckily I haven’t killed > myself or anyone else in a wreck, just some minor body damage that I was > able to fix. I only have the problem after a bad night of fatiuge and leg > pain, but while I’m driving I can’t tell when it’s coming on. > My Dr. put me on Amantadine but that seemed to increase the leg pain and > didn’t really help on the way home. Now I have some Ritalin to use on an as > needed basis. > Does anyone have experiance with similar symptoms or Ritalin. > I’m trying to treat it myself with diet, I’ve taken to having a protein > shake or power bar every couple hours and that seems to help. I QUIT > SMOKING!!!! Now I’m trying to drop the extra 30lbs from that so I dropped > the sugary pop and coffee > Wish me luck. Gotta go to work! > Bruce
Response:
Good Luck Bruce!!! Smiles! Kami "BG" <dgiv…@neo.rr.com> wrote in message
news:9b4je.446$UP.273@tornado.ohiordc.rr.com… – Hide quoted text — Show quoted text -> Hi everyone, I’ve been lurking for about a year and never really had > anything to say. ;) Or maybe I have and don’t remember… > I was DX in ‘01 and I’ve been on Avonex since ‘02 with good results. I > work > 2nd shift (thank goodness) and walk the floor of a large machine shop as a > supervisor. Leg pain (spaz, ice-pick) and fatige (sever lead in ass > syndrom) > hits me about 1-2 nights a week and I have fallen asleep 3 or 4 times > while > driving home at midnight. And that is SCARY!!! Luckily I haven’t killed > myself or anyone else in a wreck, just some minor body damage that I was > able to fix. I only have the problem after a bad night of fatiuge and leg > pain, but while I’m driving I can’t tell when it’s coming on. > My Dr. put me on Amantadine but that seemed to increase the leg pain and > didn’t really help on the way home. Now I have some Ritalin to use on an > as > needed basis. > Does anyone have experiance with similar symptoms or Ritalin. > I’m trying to treat it myself with diet, I’ve taken to having a protein > shake or power bar every couple hours and that seems to help. I QUIT > SMOKING!!!! Now I’m trying to drop the extra 30lbs from that so I dropped > the sugary pop and coffee > Wish me luck. Gotta go to work! > Bruce
