4th Sleep Study
Question:
Charles L. Perrin noted: > Did you have a full-blown sleep study or one of the > "mini" versions? A full-blown sleep study (in other > words: EEG, EKG, EOG, EMG, oximetry, chest and > abdominal motion) will catch central sleep apneas in > the act.
Charles, you are of course correct. However, it’s amazing when I started to read the information from my pulmonologist, I noted (a) that my doctor noted that MOST of my apneas were obstructive in nature. This would include MIXED !! But then, you see, my pulmonologist thinks that when I drop my weight my problems will go away. Yeah, right! Oh, don’t get me wrong. It will help. But I had sleep apnea even as a teen. With my neurological problem, it’s almost certain I tend to have Central based apneas (even during the day). So, it’s possible (though it’s VERY rare) that central apnea is a problem — and a doctor might not share this information. The fact that it’s difficult to treat might contribute to this behaviour. Regards, =jbf= John B. Fisher
Response:
From what I know Central Sleep Apnea is a condition where your brain forgets to tell your body to breath. You still have the same symptoms as Obstructive, lack of oxygen, fatigue, irritibility, depression, high blood pressure (which I am also on meds for), snoring and "night terrors"(when you jump out of a sleep screaming or scream in your sleep) My girlfriend has observed me stop breathing for a few seconds and then gasp for air during the night as well as snoring and having night terrors. I went for three sleep tests, including one with the mask. The mask was unsucessful which is why I ruled out Obstructive. The Doctor I was seeing wasn’t very aggressive in trying to help me, so I went to a Neurologist. He started me on Vivactyl, 5mgs before bedtime. Right away my girlfriend noticed a change. I slept more soundly didn’t snore and the night terrors were gone. I do still feel tired throughout the day, but not as bad as before and I am alot less irritable. (I’m sure I could benefit from proper nutrition and exercise as well.) Central is the more dangerous of the two because of the fact that it is caused by your brain and alot harder to treat. I haven’t found much on the causes of it yet, but I’m still looking. I can remember having the symptoms through my teen years (i’m 30 now) but always thought it was just "me". If I find out anything new, I’ll certainly post it here. Mark TPoun <tp…@aol.com> wrote in message
news:19990929234924.02028.00000328@ng-fq1.aol.com… – Hide quoted text — Show quoted text -> >I tried an autoset CPAP but it made no difference. Were can I find out > >more > >about Central Sleep Apnea? I think that this is more then likely the > >problem. > Roger…..I have a large CSA component in my overall apnea problem (have OSA > too). Unfortunately their is not much out there on either the understanding of > CSA, nor on effective treatment unfortunately. > Yes, as was pointed out to you there are some drugs which seem to help (but I > don;t see many "real good" drugs) and the BiPAP also seems to help when regular > CPAP pressures can induce CSA events. > It seems that CSA is recognized but not understood. > Also, we are in the minority (even within the apnea kingdom) so it;s > understandable that there is much more information on OSA than CSA. > One day…. > Trevor
Response:
> >I tried an autoset CPAP but it made no difference. Were can I find out > >more about Central Sleep Apnea? I think that this is more then likely the > >problem. > Did you have a full-blown sleep study or one of the "mini" versions? A > full-blown sleep study (in other words: EEG, EKG, EOG, EMG, oximetry, > chest and abdominal motion) will catch central sleep apneas in the > act.
Yes I have had two full-blown sleep studies, and one MSLT.
Response:
>I tried an autoset CPAP but it made no difference. Were can I find out >more >about Central Sleep Apnea? I think that this is more then likely the >problem.
Roger…..I have a large CSA component in my overall apnea problem (have OSA too). Unfortunately their is not much out there on either the understanding of CSA, nor on effective treatment unfortunately. Yes, as was pointed out to you there are some drugs which seem to help (but I don;t see many "real good" drugs) and the BiPAP also seems to help when regular CPAP pressures can induce CSA events. It seems that CSA is recognized but not understood. Also, we are in the minority (even within the apnea kingdom) so it;s understandable that there is much more information on OSA than CSA. One day…. Trevor
Response:
On Wed, 29 Sep 1999 19:28:18 -0800, "rlewing" <rlew…@cyberis.net> wrote: >I tried an autoset CPAP but it made no difference. Were can I find out >more about Central Sleep Apnea? I think that this is more then likely the >problem.
Did you have a full-blown sleep study or one of the "mini" versions? A full-blown sleep study (in other words: EEG, EKG, EOG, EMG, oximetry, chest and abdominal motion) will catch central sleep apneas in the act. I showed a couple of them in the lab, but an incredibly frightening number of obstructive ones (like 87 an hour!).
Response:
Mark wrote: > You may have Central Sleep Apnea as well as Obstructive > Sleep Apnea. The mask may be taking care of the obstructive > but not the central … I actually went to see a neurologist who is > treating me now, so you may be on the right track…
Mark, I concur with your thoughts. It also appears that some people vary quite widely in the amount of pressure they need to control the obstruction. An Autoset CPAP might be another idea to try. Regards, =jbf= John B. Fisher
Response:
> > You may have Central Sleep Apnea as well as Obstructive > > Sleep Apnea. The mask may be taking care of the obstructive > > but not the central … I actually went to see a neurologist who is > > treating me now, so you may be on the right track… > Mark, I concur with your thoughts. It also appears that some people vary > quite widely in the amount of pressure they need to control the obstruction. > An Autoset CPAP might be another idea to try.
John B. Fisher I tried an autoset CPAP but it made no difference. Were can I find out more about Central Sleep Apnea? I think that this is more then likely the problem.
Response:
Hi Roger, You may have Central Sleep Apnea as well as Obstructive Sleep Apnea. The mask may be taking care of the obstructive but not the central, which can only be treated with medication. I have central and have been taking Vivactyl which seems to help, but doesn’t eliminate it. The sleep tests I have had ruled out obstructive. I actually went to see a neurologist who is treating me now, so you may be on the right track. Try searching on the web for more info, there’s a little bit out there. I hope this helps, Good Luck, Mark – Hide quoted text — Show quoted text -> My name is Roger and I have never sent a newsgroup e-mail before but I need > some help and I hope you can give me some ideas. > I just had my 4th sleep study last week. The 4th was also a MSLT I have > what the plamanolagest refers to as sever sleep apnea averaging 2 per minute > or about 128 per hour. I have been on a CPAP for the last 4 years. > Now hears the problem I keep getting more and more tired and the doc has > raised my pressure two times and now I am at 12cm of water. I had a > nasoplasty last year to fix my deviated septum and that went well. I have > been very worried about losing my job as the kind of work I do it is a very > big problem to fall asleep while on duty. To the point that I had been > taking caffeine pills to the amount of 1600 mg+ in a 8 hour day just to stay > awake and some times that was not even doing the job, I still can fall > asleep talking to people and I take naps on my breaks and at lunch. NOW > you may think as did the doc that I was taking the mask off at night NOT SO. > At home I wont even take a nap without it. I still wake up in the middle of > the night with the need to go (if you know what I mean). They told me that > was a symptom of sleep apnea. The Palmenaolegest said that the CPAP has > stopped all of my apneas and he did not know what else to do so he referred > me to a neurologist and he is the one that ordered the MSLT, blood tests, > urine test, and MRI. > he took me off work for 30 days which is hard when you have a wife and 5 > kids still at home and no income. I am thinking about medical retirement if > this does not work. At best I have maybe 4 or 5 good productive hours out > of each day with naps in-between. > Any Ideas? I really need some options. > Sorry this is so long I should have tried this sooner > — > —- > / _________o 0 0 > ||=|====|==============|<|} > / 0 0 > —- > Roger Ewing > E-MAIL rlew…@cyberis.net.nospam > * * * * * * * * * * * * * * * * * :/: > * Just * ./ > * PICK it. * / > * * * * * * * * * * * * * * * * * (_)
Response:
My name is Roger and I have never sent a newsgroup e-mail before but I need some help and I hope you can give me some ideas. I just had my 4th sleep study last week. The 4th was also a MSLT I have what the plamanolagest refers to as sever sleep apnea averaging 2 per minute or about 128 per hour. I have been on a CPAP for the last 4 years. Now hears the problem I keep getting more and more tired and the doc has raised my pressure two times and now I am at 12cm of water. I had a nasoplasty last year to fix my deviated septum and that went well. I have been very worried about losing my job as the kind of work I do it is a very big problem to fall asleep while on duty. To the point that I had been taking caffeine pills to the amount of 1600 mg+ in a 8 hour day just to stay awake and some times that was not even doing the job, I still can fall asleep talking to people and I take naps on my breaks and at lunch. NOW you may think as did the doc that I was taking the mask off at night NOT SO. At home I wont even take a nap without it. I still wake up in the middle of the night with the need to go (if you know what I mean). They told me that was a symptom of sleep apnea. The Palmenaolegest said that the CPAP has stopped all of my apneas and he did not know what else to do so he referred me to a neurologist and he is the one that ordered the MSLT, blood tests, urine test, and MRI. he took me off work for 30 days which is hard when you have a wife and 5 kids still at home and no income. I am thinking about medical retirement if this does not work. At best I have maybe 4 or 5 good productive hours out of each day with naps in-between. Any Ideas? I really need some options. Sorry this is so long I should have tried this sooner — —- / _________o 0 0 ||=|====|==============|<|} / 0 0 —- Roger Ewing E-MAIL rlew…@cyberis.net.nospam * * * * * * * * * * * * * * * * * :/: * Just * ./ * PICK it. * / * * * * * * * * * * * * * * * * * (_)
