Sleep apneas (apnoea).
Question:
You mention in your article that you choked with the use of CPAP, have you heard of or has anyone suggested trying BiPAP. It is currently used here for those persons who are unable to tolerate CPAP for much the same reason you described. The unit itself uses 2 pressure levels, the first is IPAP or inspiratory pressure and would probably be set at the same pressure your CPAP unit was for inspiration, second is EPAP which is a pressure less than the IPAP that you exhale against, the EPAP is set at a pressure you would feel much more comfortable to exhale against and yet would still be enough to maintain a patent airway, I know that both Healthdyne and Respironics have these units available, not sure if Puritan Bennett have is yet. Patrick – Hide quoted text — Show quoted text -gr…@fl.net.au (gregh) wrote: >Howdy. >I am hoping someone reads this area. ;-} >I have, as you might guess, sleep apnea defined as being as severe as it >can get and me still be here to talk about it. What I am asking for is any >help anyone might have. Let me fill you in: >1) Nov 1993, after not being able to walk half a kilometre to the train >without feeling like I was having a heart attack and doing my job so badly >I was going to get the sack soon anyway, I gave up my job and concentrated >on finding out what was wrong with me. >2) Jan 1994. Sleep Apnea diagnosed. >3) Feb 1994. Sleep test done and confirmed I was in the high MILD bordering >on bad. >4) Feb 1994 to now. Various treatments tried including CPAP, all to no >effect. I almost choked on CPAP though I had it 3 months. >5) June 1996. Further sleep study and I am now as severe as it gets. >My doctor, yesterday, suggested trachiostomy as a possibility but warned me >that it meant staying out of dusty or dirty environments (as if that were >possible – my HOUSE, no matter how much I clean it, always seems dusty to >me). He can think of nothing else but I have decded I dont like the idea of >the trachiostomy. >Has anyone anything else to suggest that may be of help please? >Thanks in advance. > ———————————————————————— >|Sysop of Amiga’s Sci-Fi BBS gr…@fl.net.au | >|Are you old when you enjoy a good headbanger record with others over 40?| > ————————————————————————
Response:
In article <handym19-0811960008010…@port3.annex4.nwlink.com>, handy…@mail.idt.net (Robert Larson) writes: > I wouldn’t go >for the operation as they told me it only was a 50% help.
Oops! You must be referring to the UPPP (palate) operation. That is the surgery that is usually said to be 50% effective 50% of the time. The original poster was considering a tracheostomy, which is 100% effective at treating obstructive sleep apnea. It is actually an option to consider if the person’s apnes is so severe as to be immeditely life threatening. Once the person is stabilized and ready to go on CPAP the trach opening can be closed back up. But if he isn’t quite door, he might be smart to give CPAP a second try. Sally in Seattle JSo…@aol.com
Response:
- Hide quoted text — Show quoted text -In article <1557.6883T1390T1…@fl.net.au>, gr…@fl.net.au wrote: > Howdy. . > 4) Feb 1994 to now. Various treatments tried including CPAP, all to no > effect. I almost choked on CPAP though I had it 3 months. > 5) June 1996. Further sleep study and I am now as severe as it gets. > My doctor, yesterday, suggested trachiostomy as a possibility but warned me > that it meant staying out of dusty or dirty environments (as if that were > possible – my HOUSE, no matter how much I clean it, always seems dusty to > me). He can think of nothing else but I have decded I dont like the idea of > the trachiostomy. > Has anyone anything else to suggest that may be of help please? > Thanks in advance.
Are you using or did you use the Sullivan mask. I had bad times until I went with the Sullivan. I am in my 4th year. It is wonderful. My CPAP is set at 9. I would suggest getting the machine and going with it. Get up early at say 5:00AM if it bothers you. Remember the quality sleep it gives you will be twice as effective as the anpea sleep. I wouldn’t go for the operation as they told me it only was a 50% help. What good is it to go from severe to bad. With CPAP I went from say 250+ to 4 apneas per night. Can you try the machine again? I take mine everywhere except backpacking. I am trying to find the perfect 12-volt battery and a lighter machine and backpacking will be within my grasp. Definitely Not "Sleepless in Seattle", Bob Larson
Response:
I have a permanent tracheostomy for my Sleep Apnea. I got it before the CPAP came into use. I tried the CPAP, which worked for me, and found the trach less obtrusive and I slept better and breathed better. The warning about dust applies only while the trach is open (i.e. when you are going to sleep or sleeping). I keep my trach plugged during my waking hours (about 18 hours a day) to make it easy to talk, cough, etc. If there is anything else I can tell you that will help, let me know. – Hide quoted text — Show quoted text -In article <1557.6883T1390T1…@fl.net.au>, gr…@fl.net.au wrote: > Howdy. > I am hoping someone reads this area. ;-} > I have, as you might guess, sleep apnea defined as being as severe as it > can get and me still be here to talk about it. What I am asking for is any > help anyone might have. Let me fill you in: > 1) Nov 1993, after not being able to walk half a kilometre to the train > without feeling like I was having a heart attack and doing my job so badly > I was going to get the sack soon anyway, I gave up my job and concentrated > on finding out what was wrong with me. > 2) Jan 1994. Sleep Apnea diagnosed. > 3) Feb 1994. Sleep test done and confirmed I was in the high MILD bordering > on bad. > 4) Feb 1994 to now. Various treatments tried including CPAP, all to no > effect. I almost choked on CPAP though I had it 3 months. > 5) June 1996. Further sleep study and I am now as severe as it gets. > My doctor, yesterday, suggested trachiostomy as a possibility but warned me > that it meant staying out of dusty or dirty environments (as if that were > possible – my HOUSE, no matter how much I clean it, always seems dusty to > me). He can think of nothing else but I have decded I dont like the idea of > the trachiostomy. > Has anyone anything else to suggest that may be of help please? > Thanks in advance. > ———————————————————————— > |Sysop of Amiga’s Sci-Fi BBS gr…@fl.net.au | > |Are you old when you enjoy a good headbanger record with others over 40?| > ————————————————————————
Response:
Howdy. I am hoping someone reads this area. ;-} I have, as you might guess, sleep apnea defined as being as severe as it can get and me still be here to talk about it. What I am asking for is any help anyone might have. Let me fill you in: 1) Nov 1993, after not being able to walk half a kilometre to the train without feeling like I was having a heart attack and doing my job so badly I was going to get the sack soon anyway, I gave up my job and concentrated on finding out what was wrong with me. 2) Jan 1994. Sleep Apnea diagnosed. 3) Feb 1994. Sleep test done and confirmed I was in the high MILD bordering on bad. 4) Feb 1994 to now. Various treatments tried including CPAP, all to no effect. I almost choked on CPAP though I had it 3 months. 5) June 1996. Further sleep study and I am now as severe as it gets. My doctor, yesterday, suggested trachiostomy as a possibility but warned me that it meant staying out of dusty or dirty environments (as if that were possible – my HOUSE, no matter how much I clean it, always seems dusty to me). He can think of nothing else but I have decded I dont like the idea of the trachiostomy. Has anyone anything else to suggest that may be of help please? Thanks in advance. ———————————————————————— |Sysop of Amiga’s Sci-Fi BBS gr…@fl.net.au | |Are you old when you enjoy a good headbanger record with others over 40?| ————————————————————————
