Category: PLMD

PLMD — Changes once properly medicated?

Question:

I noticed it over time. It took quite a while to make up my sleep deficit, and as I did so life gradually improved. So did my temper and I am no longer requiring medication for depression. I really only required a low level of meds, and the meds given to me produced a terrible reaction, so I quit taking them and on Doc’s advice am self-medicating with OTC products (chiefly benadryl and melatonin, alternately) until such a time as that no longer works for me. Then we’ll explore other options. But I also made some other changes, and I believe these changes made the most difference in my life: I got more active, learned about sleep hygiene, learned about my disorders and what worked for me to make them manageable. I worked hard on nutrition and diet, lost weight, and developed a quieting routine at night that I found soothing. I also am teaching my kids to A) go to bed on time –they’re all night owls. B) Not disturb me after a certain time unless someone is bleeding, we have an intruder, the house is on fire, or there’s vomit involved. C) To develop their own sleep routine so that when the time comes they too will be able to easily handle the same disorder—both hubby and I suffer, so they are bound to do so too. For most of us, that means a warm bath, reading until a certain time, and then lights out. HTH Lis "jamie dolan (AKA OCD Boy)" <ja…@ashwoodinc.com> wrote in message news:Eg6Cd.4743$Vc.3825@newssvr31.news.prodigy.com… – Hide quoted text — Show quoted text -> WOW, > so it was a big change for you > Did you notice this right away once you got the meds to right dose or did > you only notice it as you body adjusted over time. > So exactly how did you treat your PLMD? > Jamie > > I’m wakeful and easily so during the day, and have recently been able to > > return to a highly complex job that requires significant careful attention > > and brainpower. > > That was all mostly due to lifestyle changes. > > Cheers > > Lis > > "jamie dolan (AKA OCD Boy)" <ja…@ashwoodinc.com> wrote in message > > news:1104033223.ef8b3e58c8581d1297c7ab09a2cd4cee@teranews… > >> For thoes of you with severe plmd how much of a differance did you notice > > in > >> daytime wakefullness once you were on some sort of a treatment for PLMD. > >> Thanks! > >> — > >> -Jamie

Response:

Significantly  changed. My husband can no longer claim that I hunt dear with a Dodge Caravan. My reflexes have vastly improved. The deer still jump in from of me while driving, occaisionally, but I don’t kill them or my car anymore :) I’m wakeful and easily so during the day, and have recently been able to return to a highly complex job that requires significant careful attention and brainpower. That was all mostly due to lifestyle changes. Cheers Lis "jamie dolan (AKA OCD Boy)" <ja…@ashwoodinc.com> wrote in message news:1104033223.ef8b3e58c8581d1297c7ab09a2cd4cee@teranews… – Hide quoted text — Show quoted text -> For thoes of you with severe plmd how much of a differance did you notice in > daytime wakefullness once you were on some sort of a treatment for PLMD. > Thanks! > — > -Jamie

Response:

WOW, so it was a big change for you Did you notice this right away once you got the meds to right dose or did you only notice it as you body adjusted over time. So exactly how did you treat your PLMD? Jamie – Hide quoted text — Show quoted text -> I’m wakeful and easily so during the day, and have recently been able to > return to a highly complex job that requires significant careful attention > and brainpower. > That was all mostly due to lifestyle changes. > Cheers > Lis > "jamie dolan (AKA OCD Boy)" <ja…@ashwoodinc.com> wrote in message > news:1104033223.ef8b3e58c8581d1297c7ab09a2cd4cee@teranews… >> For thoes of you with severe plmd how much of a differance did you notice > in >> daytime wakefullness once you were on some sort of a treatment for PLMD. >> Thanks! >> — >> -Jamie

Response:

For thoes of you with severe plmd how much of a differance did you notice in daytime wakefullness once you were on some sort of a treatment for PLMD. Thanks! — -Jamie

Response:

jamie dolan (AKA OCD Boy) wrote: > For thoes of you with severe plmd how much of a differance did you notice in > daytime wakefullness once you were on some sort of a treatment for PLMD. > Thanks!

Go to http:www.rlshelp.org  I have given a more detailed answer to another member.  look for sender name rob.  best wishes.

Response:

Do oyu know what page it is on.  I looked and lookedany I can not find oyur message. — -Jamie "rob" <bnj…@infionline.net> wrote in message

news:tLwzd.2630$qf5.1943@newsread3.news.atl.earthlink.net… – Hide quoted text — Show quoted text -> jamie dolan (AKA OCD Boy) wrote: >> For thoes of you with severe plmd how much of a differance did you notice >> in daytime wakefullness once you were on some sort of a treatment for >> PLMD. >> Thanks! > Go to http:www.rlshelp.org  I have given a more detailed answer to another > member.  look for sender name rob.  best wishes.

Response:

Sleep Alarm Survey

Question:

AGAIN you utter idiot. I HAVE NOTHING TO DO WITH THAT PRODUCT OR SURVEY. really just cant get over yourself can you? you are wrong. DEAL WITH IT. again it is TELLING that someone who never even looked at a simple survey – nevermind the actual device – claims a basis of knowledge to call it a scam and the device/product ’shit’. again you ARE WRONG   now grow up and deal with that. "Twinkle" <Sl…@last.never> wrote in message

news:EV9kd.155$Wk4.8267@nnrp1.ozemail.com.au… – Hide quoted text — Show quoted text -> What is WITH us is that we have had one HELL of a lot of SCAMMERS, like > yourself! You have the right to peddle your SHIT anywhere you like. No-one > is contesting that! > Equally, we have the right to EXPOSE you for the scammer you are! You don’t > have to like it. We don’t like your SCAMS. So, we are all fairly even, in > the end! You are a SCAMMER and we EXPOSE you! > "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message > news:0sKdnbcCS6CIdxLcRVn-qA@comcast.com… > > WOW ANOTHER ONE       YIKES  what is with you people? > > Just more twinkle closed mined sheep replies i guess. Kilfile all ya want. > > lmfao. > > just proves me correct. again > > PLEASE DO report me – NOTHING WILL HAPPEN  I DID NOT SPAM . > > THERE IS NO CONNECTION TO THAT OUTFIT AND ME. > > and it is JUST A SURVEY site. I did not have to buy anything or divulge > > any > > personal information other than some VERY GENERIC MULTIPLE ANSWER > > quesitons. > > It ONLY asks VERY GENERIC, NON-specific info. > > Never even gave my zip code! > > ??? DID YOU EVEN GO TO THE SURVEY > > IT WILL PROVE you, Lily, Twinkle are WRONG  - IF you can handle that > > truth. > > and the SHOUT is for EMPHASIS as i have BEEN WRONGLY accused and > > slandered. > > AND NO   NEVER had problems with my ISP  same one for over 6 years. > > Mbankat > >snipped

Response:

ROTFLMFAO  YOUR words provide proof FOR ME ! (Again you are a liar. And a totally misinformed self-loving moron.) Once again  now read this REALLY slowly – and get help if you must: I HAVE NOTHING TO DO WITH THAT DEVICE/PRODUCT. OH YES  what ever happened to your claim that I dont have any sleep disorders? Like your claim I am a spammer/scammer? Let me use YOUR POINT to show how RIDICULOUS it is – IF I was involved with that product do you REALLY think I would have this kind of flame-war over it? Funny part is it makes much more news of the entire thing and gives it more exposure. That said, I would not want this kind of exposure for any product I was connected to. But as I have no such connection it matters not to me. Twinkle, ah dear Twinkle.  CATCH A CLUE – you are wrong. there is no connection. I never spammed. You just dismissed a simple survey with no reason. And a device that may or may not be helpful without any knowledge of it whatsoever. I called you on it and now you cant cope with that reality. Not only are you a closed-minded liar. You are an immature fool. Yep  I would say such things on an internet forum if I was trying to sell something. get it yet?  can you admit yet you are wrong about this entire thing on several levels?? "Twinkle" <Sl…@last.never> wrote in message

news:rX9kd.156$Wk4.8295@nnrp1.ozemail.com.au… > Just for anybody who has ever done SALES before or knows someone who wants > to do sales in the future, below is a way you can show ANYBODY how NOT to > get the correct type of attention! Nothing like laughing in someone’s face > to turn them off

the rest of this simpleton’s nonsense snipped. it is in the thread if you care that much

Response:

"MBankaT" <MBankaT@Lost&MapLess.net> wrote in message

news:n6KdnQDrEfszeRLcRVn-sg@comcast.com… > ps  i would enjoy it if you would explain how and what of anything i said > was "lunacy"

the post read IDIOCY btw…. vitriolic diatribe snipped again welcome to my killfiles bye bye ashhole – Hide quoted text — Show quoted text -> "Tiger Lily" <m…@privacy.com> wrote in message > news:2va5puF2jmcdqU1@uni-berlin.de… > > "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message > > news:vPidnSJSmINASBLcRVn-pA@comcast.com… > > > WOW   sorry that in addition to your sleep disorders you are one VERY > > angry > > > person! > > vitriolic diatribe snipped > > you just lost another potential respondent with your idiocy > > bye….. don’t let the door hit your ass on the way out

Response:

lmfao   another one  Lily i say good for you – go join your fellow twinkle into the land of denial and hypocrisy. Have a nice trip "Tiger Lily" <m…@privacy.com> wrote in message

news:2varcgF2j43tlU1@uni-berlin.de… – Hide quoted text — Show quoted text -> "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message > news:n6KdnQDrEfszeRLcRVn-sg@comcast.com… > > ps  i would enjoy it if you would explain how and what of anything i said > > was "lunacy" > the post read IDIOCY > btw…. vitriolic diatribe snipped again > welcome to my killfiles > bye bye ashhole > > "Tiger Lily" <m…@privacy.com> wrote in message > > news:2va5puF2jmcdqU1@uni-berlin.de… > > > "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message > > > news:vPidnSJSmINASBLcRVn-pA@comcast.com… > > > > WOW   sorry that in addition to your sleep disorders you are one VERY > > > angry > > > > person! > > > vitriolic diatribe snipped > > > you just lost another potential respondent with your idiocy > > > bye….. don’t let the door hit your ass on the way out

Response:

Your first line proves people shouldn’t listen to you. I quote the lot for all to read. "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message

news:PvednXkIBr-GRhLcRVn-uw@comcast.com… – Hide quoted text — Show quoted text -> LMFAO  you sir are a JERK. > I AM NOT " attempting to SELL something on this newsgroup that is just a > SCAM item." I DARE YOU TO PROVE THAT BASELESS ACCUSATION! > You siimply cannot cope with the fact that my reply was completely on > target > and that YOU are completely WRONG not only about the item, the original > post > and ME. > LMFAO  now you THINK you can determine if I have sleep apnea, rls and plmd > ? > wow you are a bigger arse than i even first imagined. > Amusing tho   but a hypocritcal self-worshiping arse you remain. > Mbankat > Ps  you want the serial number off my cpap machine ??? > "Twinkle" <Sl…@last.never> wrote in message > news:qSQjd.145$sh3.8752@nnrp1.ozemail.com.au… >> Sorry but > We don’t like SCAMMERS here. It is pretty damned obvious >> that, > excepting >> possible SIDS, a sleep alarm to tell you that you aren’t sleeping >> properly >> is utter rot. >> "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message >> news:vPidnSJSmINASBLcRVn-pA@comcast.com… >> > WOW   sorry that in addition to your sleep disorders you are one VERY >> > angry >> > person! >> > First of all – there is NO way I (or anyone else for that matter) could >> > possibly know how bad your disorder is and that you have it worse than > all >> > of the rest of us. >> > Second – YOU TOTALLY dismissed the alarm item WITHOUT even looking into >> > what >> > it is or what it does. You admitted that by not wanting to visit the > site >> > as >> > you feared it harmful. (and all it was is a survey site with more info > on >> > the device and related links) >> > Third- I am NOT telling YOU specifically ANYTHING – which, however YOU > DID >> > by dismissing something for everyone as ridiculous – apparently – as if >> > you >> > speak for everyone. You don’t. >> > Fourth – YOUR CLOSED MINDEDNESS is proven as IF you ACTUALLY LOOK INTO > it >> > so >> > that you would have SOME IDEA WHAT YOU ARE TALKING ABOUT you will see >> > there >> > are several options and functions NOT ALL OF WHICH ARE DESIGNED TO WAKE >> > YOU >> > UP AT EVERY EPISODE.  ROTFLMFAO – that idea would be absurd. Who would >> > ever >> > think of such a thing – oh yea  YOU DID. Knowing at lease something > about >> > an >> > item BEFORE you totally dismiss it for the rest of the world IS A GOOD >> > THING.  (again lmfao) >> > Fifth – A SCAM ???  it is JUST A SURVEY. WOW really I mean WOW you > really >> > do >> > think very highly of yourself. You dismiss a NEW ITEM in its DESIGN and >> > PLANNING phase and YOU  ALREADY KNOW it is a scam and a foolish device. > I >> > know of a family doctor, who ten years ago, thought all this sleep >> > apnea >> > stuff was a fad. You remind me of him. >> > YET YOU NEVER EVEN LOOKED INTO IT.  You call that Open-minded? You call >> > that >> > a GOOD thing? >> > Sixth – I AM Closed minded?? !! Sorry but REALLY he deserves this by > now. >> > YOU ARSE !  YOU WON’T EVEN look into the item and  you completely > dismiss >> > it >> > as both foolish and a scam and you call ME closed-minded.  opps   again >> > ROTFLMFAO >> > Seventh – Your analogy on my comment of using the mask is ABSURD and >> > has >> > no >> > connection whatsoever. IN FACT THOUSANDS said they would NEVER wear a >> > headset – A have an older brother who said it – he elected for surgery >> > rather than wear a headset.  ooppss AGAIN lmfao.  So, when you said "I >> > doubt >> > it" … YOU ARE WRONG YET AGAIN.  oh yea, and this ng and the entire > realm >> > of sleep disorders is NOT ABOUT YOU. Sorry for that dose of reality. >> > Eighth –  Yes, I am sure whoever "invented the CPAP did so out of a >> > PERCEIVED NEED". again LMFAO – AS ARE THE PEOPLE TRYING TO CREATE THIS > NEW >> > ALARM – REPORTING – MONITORING DEVICE.  Do you really think ( I could > stop >> > that question right there!) they went to the trouble of having > preliminary >> > designs and a LEGITIMATE survey done as they perceive NO NEED?? !! >> > WOW >> > dude  how could you – being so open minded of course – MISS SO MUCH > about >> > this entire issue.  (And YES they do ask about anesthetic as they are >> > required to be certain the patient can handle it and no other of > thousands >> > of issues that might be present. They DONT just chuck on some >> > anesthetic >> > because there is a need.) >> > NINTH – this one is MORE AMUSING than the previous eight.  He says "You >> > remind me of an ancient stereotype in American made Western films – the >> > SNAKE OIL salesman!"  First – I have absolutely no connection with the >> > people designing or making that device. I first only saw it the other > day >> > as >> > I came into this ng.  Second, again he ASSumes the device is snake oil. >> > Like >> > I said previously, I know a family doctor who said the same of the >> > apnea >> > issue.  Again, this is from the guy who calls me closed-minded and > thinks >> > he >> > is open minded. Yet this item is the same as snake-oil -> WHEN HE > ADMITTED >> > HE KNOWS NOTHING OF THE ITEM – well, that is beside his totally > incorrect >> > first impression that his open mind made with extremely little >> > information. >> > Then he carries this line of NONSENSE to a far reaching extreme. opps >> > AGAIN >> > rotflmfao >> > Tenth –  "If you want to peddle rubbish, pick a newsgroup less > informed." >> > OPPS  just have to say it again:   WHAT AN ARSE.  Look  you > closed-minded, >> > hypocritical, arrogant, self-righteous, sicker than thou ->  ARSE. > ….. >> > YOU ARE NOT SPEAKING FOR ALL IN THIS PUBLIC FORUM. >> > THE REASON for reading a ng like this is PRECISELY for information such > as >> > a >> > potential new device that may prove helpful. YET not only do you ASSume >> > you >> > police this ng for posting accuracy – which you cannot and WONT by your >> > own >> > admission – yet YOU want to retain the self- appointed authority to >> > determine what is rubbish?   Why you self aggrandizing Hypocritical > arse. >> > The only thing that can help any ng be less informed is having people > like >> > you limiting the public discourse as you have here. >> > You ASSume I am peddling it – You ASSume wrong. I am a sleep disorder >> > sufferer as are you and others here. I am OPEN to devices and >> > techniques >> > that may help. At least I DON’T make a ASSumption that I have the power > to >> > dismiss a device WITHOUT KNOWING ANYTHING ABOUT IT.     Makes me wonder > if >> > you have a similar or competing idea and you want to trash this one so >> > that >> > only yours will prevail. Certainly you attempt to do that with new >> > ideas >> > such as this potential device. >> > AND AGAIN YOU CLOSED MINDED ARSE – HOW DO YOU KNOW THIS ITEM IS RUBBISH > ?? >> > YOU NEVER LOOKED INTO IT. >> > wow,  no  I mean WOW. >> > "Twinkle" <Sl…@last.never> wrote in message >> > news:q7Jjd.102$sh3.6611@nnrp1.ozemail.com.au… >> >> "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message >> >> news:S9GdnSOKuNDBpxLcRVn-sw@comcast.com… >> >> > LOL  the link is harmless and legitimate … the survey is simple >> >> > and >> > may >> >> > lead to something helpful ( IMHO ) based upon the questions they >> > asked…. >> >> > ….AND -IMHO – your saying: "Sleep alarm to stop anything else – > self >> >> > defeating." is simply closed-minded. >> >> I suffer from, to quote more than one sleep professional medico, the >> >> worst >> >> sleep apnea a person can have and still be alive to talk about it. > Apart >> >> from lack of oxygen going to below 60% of a night, I also get less >> >> than >> >> 10 >> >> minutes REM sleep per night. >> >> Given the above, a bloody alarm to wake me up to tell me I am not >> >> sleeping >> >> correctly, in your opinion, is a GOOD thing? >> >> Take away sleep disorders and have a person who is just having > disturbed >> >> sleep only for maybe a few days and then returns to normal in the > normal >> > run >> >> of things. You think an alarm to wake them to tell them they arent >> > sleeping >> >> well when they KNOW they arent is a GOOD thing? >> >> Close minded? No – just open minded enough to know a scam when I hear >> >> one. >> >> If you think you are getting away with a scam in here without a > comment, >> > YOU >> >> are too close minded. >> >> > I bet some people said nobody would wear a strapped-on apnea mask so >> >> > why >> >> > bother making one! >> >> I doubt it. The Australian who invented CPAP did it out of a perceived >> > need. >> >> He didnt ask anyone if they would wear it in the first place. Do you > ask >> >> a >> >> patient undergoing heart surgery if they REALLY want that anaesthetic? >> >> > Reminds me of an old cartoon given to sales groups.  The Middle Ages >> > army >> >> > commander, heading off to battle, was grabbing his sword as he left > his >> >> > battlefield tent.  His aide tried to get him to stop for a minute to >> > talk >> >> > to >> >> > a salesman. The commander told his aide he had no time for some >> > salesman’s >> >> > silly ideas. The salesman was selling machine guns. >> >> You remind me of an ancient stereotype in American made Western >> >> films – >> > the >> >> SNAKE OIL salesman! >> >> "Drink this snake oil and be cured of cancer, cured of all your pains. > $1 >> > a >> >> bottle! It doesn’t get cheaper! Why look at this stranger here. Did >> >> YOU >> > try >> >> my Snake Oil? YEAH! I was feeling like a 75 year old before I took it > and >> >> look at me now. I am virile and 30!". >> >> If you want to peddle rubbish, pick a newsgroup less informed.

Response:

no, it just proves i call a spade a spade. "Twinkle" <Sl…@last.never> wrote in message

news:QT9kd.153$Wk4.8310@nnrp1.ozemail.com.au… – Hide quoted text — Show quoted text -> Your first line proves people shouldn’t listen to you. I quote the lot for > all to read. > "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message > news:PvednXkIBr-GRhLcRVn-uw@comcast.com… > > LMFAO  you sir are a JERK. > > I AM NOT " attempting to SELL something on this newsgroup that is just a > > SCAM item." I DARE YOU TO PROVE THAT BASELESS ACCUSATION! > > You siimply cannot cope with the fact that my reply was completely on > > target > > and that YOU are completely WRONG not only about the item, the original > > post > > and ME. > > LMFAO  now you THINK you can determine if I have sleep apnea, rls and plmd > > ? > > wow you are a bigger arse than i even first imagined. > > Amusing tho   but a hypocritcal self-worshiping arse you remain. > > Mbankat > > Ps  you want the serial number off my cpap machine ??? > > "Twinkle" <Sl…@last.never> wrote in message > > news:qSQjd.145$sh3.8752@nnrp1.ozemail.com.au… > >> Sorry but > We don’t like SCAMMERS here. It is pretty damned obvious > >> that, > > excepting > >> possible SIDS, a sleep alarm to tell you that you aren’t sleeping > >> properly > >> is utter rot. > >> "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message > >> news:vPidnSJSmINASBLcRVn-pA@comcast.com… > >> > WOW   sorry that in addition to your sleep disorders you are one VERY > >> > angry > >> > person! > >> > First of all – there is NO way I (or anyone else for that matter) could > >> > possibly know how bad your disorder is and that you have it worse than > > all > >> > of the rest of us. > >> > Second – YOU TOTALLY dismissed the alarm item WITHOUT even looking into > >> > what > >> > it is or what it does. You admitted that by not wanting to visit the > > site > >> > as > >> > you feared it harmful. (and all it was is a survey site with more info > > on > >> > the device and related links) > >> > Third- I am NOT telling YOU specifically ANYTHING – which, however YOU > > DID > >> > by dismissing something for everyone as ridiculous – apparently – as if > >> > you > >> > speak for everyone. You don’t. > >> > Fourth – YOUR CLOSED MINDEDNESS is proven as IF you ACTUALLY LOOK INTO > > it > >> > so > >> > that you would have SOME IDEA WHAT YOU ARE TALKING ABOUT you will see > >> > there > >> > are several options and functions NOT ALL OF WHICH ARE DESIGNED TO WAKE > >> > YOU > >> > UP AT EVERY EPISODE.  ROTFLMFAO – that idea would be absurd. Who would > >> > ever > >> > think of such a thing – oh yea  YOU DID. Knowing at lease something > > about > >> > an > >> > item BEFORE you totally dismiss it for the rest of the world IS A GOOD > >> > THING.  (again lmfao) > >> > Fifth – A SCAM ???  it is JUST A SURVEY. WOW really I mean WOW you > > really > >> > do > >> > think very highly of yourself. You dismiss a NEW ITEM in its DESIGN and > >> > PLANNING phase and YOU  ALREADY KNOW it is a scam and a foolish device. > > I > >> > know of a family doctor, who ten years ago, thought all this sleep > >> > apnea > >> > stuff was a fad. You remind me of him. > >> > YET YOU NEVER EVEN LOOKED INTO IT.  You call that Open-minded? You call > >> > that > >> > a GOOD thing? > >> > Sixth – I AM Closed minded?? !! Sorry but REALLY he deserves this by > > now. > >> > YOU ARSE !  YOU WON’T EVEN look into the item and  you completely > > dismiss > >> > it > >> > as both foolish and a scam and you call ME closed-minded.  opps again > >> > ROTFLMFAO > >> > Seventh – Your analogy on my comment of using the mask is ABSURD and > >> > has > >> > no > >> > connection whatsoever. IN FACT THOUSANDS said they would NEVER wear a > >> > headset – A have an older brother who said it – he elected for surgery > >> > rather than wear a headset.  ooppss AGAIN lmfao.  So, when you said " I > >> > doubt > >> > it" … YOU ARE WRONG YET AGAIN.  oh yea, and this ng and the entire > > realm > >> > of sleep disorders is NOT ABOUT YOU. Sorry for that dose of reality. > >> > Eighth –  Yes, I am sure whoever "invented the CPAP did so out of a > >> > PERCEIVED NEED". again LMFAO – AS ARE THE PEOPLE TRYING TO CREATE THIS > > NEW > >> > ALARM – REPORTING – MONITORING DEVICE.  Do you really think ( I could > > stop > >> > that question right there!) they went to the trouble of having > > preliminary > >> > designs and a LEGITIMATE survey done as they perceive NO NEED?? !! > >> > WOW > >> > dude  how could you – being so open minded of course – MISS SO MUCH > > about > >> > this entire issue.  (And YES they do ask about anesthetic as they are > >> > required to be certain the patient can handle it and no other of > > thousands > >> > of issues that might be present. They DONT just chuck on some > >> > anesthetic > >> > because there is a need.) > >> > NINTH – this one is MORE AMUSING than the previous eight.  He says "You > >> > remind me of an ancient stereotype in American made Western films – the > >> > SNAKE OIL salesman!"  First – I have absolutely no connection with the > >> > people designing or making that device. I first only saw it the other > > day > >> > as > >> > I came into this ng.  Second, again he ASSumes the device is snake oil. > >> > Like > >> > I said previously, I know a family doctor who said the same of the > >> > apnea > >> > issue.  Again, this is from the guy who calls me closed-minded and > > thinks > >> > he > >> > is open minded. Yet this item is the same as snake-oil -> WHEN HE > > ADMITTED > >> > HE KNOWS NOTHING OF THE ITEM – well, that is beside his totally > > incorrect > >> > first impression that his open mind made with extremely little > >> > information. > >> > Then he carries this line of NONSENSE to a far reaching extreme. opps > >> > AGAIN > >> > rotflmfao > >> > Tenth –  "If you want to peddle rubbish, pick a newsgroup less > > informed." > >> > OPPS  just have to say it again:   WHAT AN ARSE.  Look  you > > closed-minded, > >> > hypocritical, arrogant, self-righteous, sicker than thou ->  ARSE. > > ….. > >> > YOU ARE NOT SPEAKING FOR ALL IN THIS PUBLIC FORUM. > >> > THE REASON for reading a ng like this is PRECISELY for information such > > as > >> > a > >> > potential new device that may prove helpful. YET not only do you ASSume > >> > you > >> > police this ng for posting accuracy – which you cannot and WONT by your > >> > own > >> > admission – yet YOU want to retain the self- appointed authority to > >> > determine what is rubbish?   Why you self aggrandizing Hypocritical > > arse. > >> > The only thing that can help any ng be less informed is having people > > like > >> > you limiting the public discourse as you have here. > >> > You ASSume I am peddling it – You ASSume wrong. I am a sleep disorder > >> > sufferer as are you and others here. I am OPEN to devices and > >> > techniques > >> > that may help. At least I DON’T make a ASSumption that I have the power > > to > >> > dismiss a device WITHOUT KNOWING ANYTHING ABOUT IT.     Makes me wonder > > if > >> > you have a similar or competing idea and you want to trash this one so > >> > that > >> > only yours will prevail. Certainly you attempt to do that with new > >> > ideas > >> > such as this potential device. > >> > AND AGAIN YOU CLOSED MINDED ARSE – HOW DO YOU KNOW THIS ITEM IS RUBBISH > > ?? > >> > YOU NEVER LOOKED INTO IT. > >> > wow,  no  I mean WOW. > >> > "Twinkle" <Sl…@last.never> wrote in message > >> > news:q7Jjd.102$sh3.6611@nnrp1.ozemail.com.au… > >> >> "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message > >> >> news:S9GdnSOKuNDBpxLcRVn-sw@comcast.com… > >> >> > LOL  the link is harmless and legitimate … the survey is simple > >> >> > and > >> > may > >> >> > lead to something helpful ( IMHO ) based upon the questions they > >> > asked…. > >> >> > ….AND -IMHO – your saying: "Sleep alarm to stop anything else – > > self > >> >> > defeating." is simply closed-minded. > >> >> I suffer from, to quote more than one sleep professional medico, the > >> >> worst > >> >> sleep apnea a person can have and still be alive to talk about it. > > Apart > >> >> from lack of oxygen going to below 60% of a night, I also get less > >> >> than > >> >> 10 > >> >> minutes REM sleep per night. > >> >> Given the above, a bloody alarm to wake me up to tell me I am not > >> >> sleeping > >> >> correctly, in your opinion, is a GOOD thing? > >> >> Take away sleep disorders and have a person who is just having > > disturbed > >> >> sleep only for maybe a few days and then returns to normal in the > > normal > >> > run > >> >> of things. You think an alarm to wake them to tell them they arent > >> > sleeping > >> >> well when they KNOW they arent is a GOOD thing? > >> >> Close minded? No – just open minded enough to know a scam when I hear > >> >> one. > >> >> If you think you are getting away with a scam in here without a > > comment, > >> > YOU > >> >> are too close minded. > >> >> > I bet some people said nobody would wear a strapped-on apnea mask so > >> >> > why > >> >> > bother making one! > >> >> I doubt it. The Australian who invented CPAP did it out of a perceived > >> > need. > >> >> He didnt ask anyone if they would wear it in the first place. Do you > > ask > >> >> a > >> >> patient undergoing heart surgery if they REALLY want that anaesthetic? > >> >> > Reminds me of an old cartoon given to sales groups.  The Middle Ages > >> > army > >> >> > commander, heading off to battle, was grabbing his sword as he left > > his > >> >> > battlefield tent.  His aide tried to get him to stop for a minute to > >> > talk > >> >> > to > >> >> > a salesman. The commander told his aide he had no time for some

… read more »

Response:

"Tiger Lily" <m…@privacy.com> wrote in message

news:2vcreeF2ikdeuU1@uni-berlin.de… – Hide quoted text — Show quoted text -> "Twinkle" <Sl…@last.never> wrote in message > news:oZ9kd.157$Wk4.8019@nnrp1.ozemail.com.au… >> You keep killfiles? How many are related to this newsgroup? It would be >> interesting because I have to say that this is the only newsgroup I am in >> that actively attempts to get rid of scammers and spammers. I have found > no >> need to killfile from this newsgroup because they seem to get the message >> and go away! Good news, there, at least! :) > i have 2 people from here killfiled….. one is a sociopath who would > steal > other people’s nicks complete, so i had to ‘unkillfile’ that one and deal > with the sociopath (who has gone away……. alas so have a lot of very > well > informed posters to this newsgroup) > this troll in this thread with his vitriol just won that position as the > only person killfiled here……. i don’t need nor want to read his crap

Yep, I doubt ANYONE needs his crap!

Response:

This newsgroup has a long history of ‘crap’. Some of it is from the likes of the late non-lamented Sheri Sousa, some of it is from folk like myself who sometimes foolishly post when sleep-deprived. YMMV. Into every life, a certain amount of ‘crap’ must come. Enjoy the stuff of value. Ignore the ‘crap’ that comes from idiots like Democrats, Republicans, etc. CRAP! regards, eric pearson nonono.ericp1.non…@nonono.fuse.net On Tue, 9 Nov 2004 14:34:38 -0700, "Tiger Lily" <m…@privacy.com> wrote: – Hide quoted text — Show quoted text ->"Twinkle" <Sl…@last.never> wrote in message >news:oZ9kd.157$Wk4.8019@nnrp1.ozemail.com.au… >> You keep killfiles? How many are related to this newsgroup? It would be >> interesting because I have to say that this is the only newsgroup I am in >> that actively attempts to get rid of scammers and spammers. I have found >no >> need to killfile from this newsgroup because they seem to get the message >> and go away! Good news, there, at least! :) >i have 2 people from here killfiled….. one is a sociopath who would steal >other people’s nicks complete, so i had to ‘unkillfile’ that one and deal >with the sociopath (who has gone away……. alas so have a lot of very well >informed posters to this newsgroup) >this troll in this thread with his vitriol just won that position as the >only person killfiled here……. i don’t need nor want to read his crap

Response:

"Tiger Lily" <m…@privacy.com> wrote in message

news:2varcgF2j43tlU1@uni-berlin.de… > "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message > news:n6KdnQDrEfszeRLcRVn-sg@comcast.com… >> ps  i would enjoy it if you would explain how and what of anything i said >> was "lunacy" > the post read IDIOCY > btw…. vitriolic diatribe snipped again > welcome to my killfiles

You keep killfiles? How many are related to this newsgroup? It would be interesting because I have to say that this is the only newsgroup I am in that actively attempts to get rid of scammers and spammers. I have found no need to killfile from this newsgroup because they seem to get the message and go away! Good news, there, at least! :) > bye bye ashhole

Now just WHAT did your mother tell you about talking to assholes? You KNOW you only get SHIT from them! :)

Response:

SCAMMER BELOW! "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message

news:EKidnfhKQqQg8Q3cRVn-1Q@comcast.com… – Hide quoted text — Show quoted text -> lmfao   another one  Lily i say good for you – go join your fellow twinkle > into the land of denial and hypocrisy. Have a nice trip > "Tiger Lily" <m…@privacy.com> wrote in message > news:2varcgF2j43tlU1@uni-berlin.de… >> "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message >> news:n6KdnQDrEfszeRLcRVn-sg@comcast.com… >> > ps  i would enjoy it if you would explain how and what of anything i > said >> > was "lunacy" >> the post read IDIOCY >> btw…. vitriolic diatribe snipped again >> welcome to my killfiles >> bye bye ashhole >> > "Tiger Lily" <m…@privacy.com> wrote in message >> > news:2va5puF2jmcdqU1@uni-berlin.de… >> > > "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message >> > > news:vPidnSJSmINASBLcRVn-pA@comcast.com… >> > > > WOW   sorry that in addition to your sleep disorders you are one > VERY >> > > angry >> > > > person! >> > > vitriolic diatribe snipped >> > > you just lost another potential respondent with your idiocy >> > > bye….. don’t let the door hit your ass on the way out

Response:

"Twinkle" <Sl…@last.never> wrote in message

news:oZ9kd.157$Wk4.8019@nnrp1.ozemail.com.au… > You keep killfiles? How many are related to this newsgroup? It would be > interesting because I have to say that this is the only newsgroup I am in > that actively attempts to get rid of scammers and spammers. I have found no > need to killfile from this newsgroup because they seem to get the message > and go away! Good news, there, at least! :)

i have 2 people from here killfiled….. one is a sociopath who would steal other people’s nicks complete, so i had to ‘unkillfile’ that one and deal with the sociopath (who has gone away……. alas so have a lot of very well informed posters to this newsgroup) this troll in this thread with his vitriol just won that position as the only person killfiled here……. i don’t need nor want to read his crap

Response:

Just for anybody who has ever done SALES before or knows someone who wants to do sales in the future, below is a way you can show ANYBODY how NOT to get the correct type of attention! Nothing like laughing in someone’s face to turn them off. Oh – and BEWARE THIS SCAMMER! "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message

news:n6KdnQDrEfszeRLcRVn-sg@comcast.com… – Hide quoted text — Show quoted text -> LMFAO  AGAIN > Look Lily, and for those who might be otherwise ‘challenged’ –> > I AM NOT CONNECTED IN ANY WAY SHAPE OR FORM TO THIS SURVEY OR THE DEVICE. > Other than I took the survey today when I read the original post. LOL that > is the extent of my connection. > THEREFORE  I cannot lose ANYthing – potential respondent or what. > THE SIMPLE TRUTH IS THIS:  Twinkle JUMPED to a conclusion. I called him on > it. He can’t deal with it so he makes further FALSE accusations of me to > cover his behind. > Wow. > And I simply don’t care if you block me as that just proves you are a > closed > minded sheep like twinkle is. > You both may have been in this ng longer than I, or more regularly, but I > have been using ng for about 5-6 years. So I understand how some people > just > align with the regular posters. > If you HONESTLY read my posts you would CERTAINLY see that what I said of > twinkle and his reply is on target. > AND I DON’T CARE IF YOU DON’T GO TO THE SURVEY. It matters not to me. Be > as > closed minded as twinkle is. Seems your loss not mine. > Mbankat > ps  i would enjoy it if you would explain how and what of anything i said > was "lunacy" > "Tiger Lily" <m…@privacy.com> wrote in message > news:2va5puF2jmcdqU1@uni-berlin.de… >> "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message >> news:vPidnSJSmINASBLcRVn-pA@comcast.com… >> > WOW   sorry that in addition to your sleep disorders you are one VERY >> angry >> > person! >> vitriolic diatribe snipped >> you just lost another potential respondent with your idiocy >> bye….. don’t let the door hit your ass on the way out

Response:

What is WITH us is that we have had one HELL of a lot of SCAMMERS, like yourself! You have the right to peddle your SHIT anywhere you like. No-one is contesting that! Equally, we have the right to EXPOSE you for the scammer you are! You don’t have to like it. We don’t like your SCAMS. So, we are all fairly even, in the end! You are a SCAMMER and we EXPOSE you! "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message

news:0sKdnbcCS6CIdxLcRVn-qA@comcast.com… – Hide quoted text — Show quoted text -> WOW ANOTHER ONE       YIKES  what is with you people? > Just more twinkle closed mined sheep replies i guess. Kilfile all ya want. > lmfao. > just proves me correct. again > PLEASE DO report me – NOTHING WILL HAPPEN  I DID NOT SPAM . > THERE IS NO CONNECTION TO THAT OUTFIT AND ME. > and it is JUST A SURVEY site. I did not have to buy anything or divulge > any > personal information other than some VERY GENERIC MULTIPLE ANSWER > quesitons. > It ONLY asks VERY GENERIC, NON-specific info. > Never even gave my zip code! > ??? DID YOU EVEN GO TO THE SURVEY > IT WILL PROVE you, Lily, Twinkle are WRONG  - IF you can handle that > truth. > and the SHOUT is for EMPHASIS as i have BEEN WRONGLY accused and > slandered. > AND NO   NEVER had problems with my ISP  same one for over 6 years. > Mbankat > "Quick" <quick7135-n…@NOSPAMyahoo.com> wrote in message > news:1099950140.31772@sj-nntpcache-3… >> BZZZZTTTT. >> I quit reading your first post when it said "more information >> on the product will be provided as soon as you enter some >> information… yada, yada,".  My guess is that posting spam >> here directly is in violation of your ISP’s terms and conditions? >> Had problems with ISP terms and conditions before? >> Then I quit reading your second post when you started SHOUTING >> with "indignant outrage".  I’ve just kill filed you so maybe somebody >> else will read your response. >> -Quick >> MBankaT wrote: >> > FYI all who are following this thread and are actually open minded >> > and care for the truth. You can determine for YOURSELVES if this is a >> > scam or otherwise, without the policing, censorship and closed-minded >> > limitations others may try to impose upon you. Notice, I NEVER said >> > it was NOT a scam, I said it does not appear to be one at all to me. >> > And I actually bothered to take a look at it before I made any >> > pre-conceived and/or damning (and false I think) determination. I >> > have every faith that YOU can determine and decide for yourselves. >> > This came directly from the site hosting the survey: >> > Dear potential customer, >> > Thank you for taking the time to help in our project. >> > We are graduate students at the University of Southern California >> > conducting a Technology Feasibility Analysis on a new Alarm System. >> > The following "end-user" survey will help us evaluate our product, >> > which will be described later. >> >  The entire survey should take you less than 5 minutes to complete. >> > The survey is divided into 3 sections: >> > 1. Sleeping/Waking patterns >> > 2. Product description and questions >> > 3. Demographics >> > The information we collect here will be used solely to determine the >> > demand and acceptability of this product in the market. >> > We will NOT sell any data we collect here to anyone, nor will we ask >> > any information that may identify you personally. >> > If you would like more information on our project, or would like to >> > discuss it with us, please contact us by email. >> > Thank you again for your time and information, >> > The BIOCHRON team >> > Thank you very much for your time and contribution to our project. >> > If you would like to comment further on our BIOCHRON project or this >> > survey, please email us or use the following sections. We did not >> > want to make a survey that was too long, but we would really >> > appreciate any additional comments or suggestions you have. >> > (Survey done through the SurveyMonkey website.) >> > "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message >> > news:PvednXkIBr-GRhLcRVn-uw@comcast.com… >> >> LMFAO  you sir are a JERK. >> >> I AM NOT " attempting to SELL something on this newsgroup that is >> >> just a SCAM item." I DARE YOU TO PROVE THAT BASELESS ACCUSATION! >> >> You siimply cannot cope with the fact that my reply was completely >> >> on target and that YOU are completely WRONG not only about the item, >> >> the original post and ME. >> >> LMFAO  now you THINK you can determine if I have sleep apnea, rls >> >> and plmd ? wow you are a bigger arse than i even first imagined. >> >> Amusing tho   but a hypocritcal self-worshiping arse you remain. >> >> Mbankat >> >> Ps  you want the serial number off my cpap machine ??? >> >> "Twinkle" <Sl…@last.never> wrote in message >> >> news:qSQjd.145$sh3.8752@nnrp1.ozemail.com.au… >> >>> Sorry but > We don’t like SCAMMERS here. It is pretty damned >> >>> obvious that, excepting possible SIDS, a sleep alarm to tell you >> >>> that you aren’t sleeping properly is utter rot. >> >>> "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message >> >>> news:vPidnSJSmINASBLcRVn-pA@comcast.com… >> >>>> WOW   sorry that in addition to your sleep disorders you are one >> >>>> VERY angry >> >>>> person! >> >>>> First of all – there is NO way I (or anyone else for that matter) >> >>>> could possibly know how bad your disorder is and that you have it >> >>>> worse than all of the rest of us. >> >>>> Second – YOU TOTALLY dismissed the alarm item WITHOUT even looking >> >>>> into what >> >>>> it is or what it does. You admitted that by not wanting to visit >> >>>> the site as >> >>>> you feared it harmful. (and all it was is a survey site with more >> >>>> info on the device and related links) >> >>>> Third- I am NOT telling YOU specifically ANYTHING – which, however >> >>>> YOU DID by dismissing something for everyone as ridiculous – >> >>>> apparently – as if you >> >>>> speak for everyone. You don’t. >> >>>> Fourth – YOUR CLOSED MINDEDNESS is proven as IF you ACTUALLY LOOK >> >>>> INTO it so >> >>>> that you would have SOME IDEA WHAT YOU ARE TALKING ABOUT you will >> >>>> see there >> >>>> are several options and functions NOT ALL OF WHICH ARE DESIGNED TO >> >>>> WAKE YOU >> >>>> UP AT EVERY EPISODE.  ROTFLMFAO – that idea would be absurd. Who >> >>>> would ever >> >>>> think of such a thing – oh yea  YOU DID. Knowing at lease >> >>>> something about an >> >>>> item BEFORE you totally dismiss it for the rest of the world IS A >> >>>> GOOD THING.  (again lmfao) >> >>>> Fifth – A SCAM ???  it is JUST A SURVEY. WOW really I mean WOW you >> >>>> really do >> >>>> think very highly of yourself. You dismiss a NEW ITEM in its >> >>>> DESIGN and PLANNING phase and YOU  ALREADY KNOW it is a scam and a >> >>>> foolish device. I know of a family doctor, who ten years ago, >> >>>> thought all this sleep apnea stuff was a fad. You remind me of him. >> >>>> YET YOU NEVER EVEN LOOKED INTO IT.  You call that Open-minded? You >> >>>> call that >> >>>> a GOOD thing? >> >>>> Sixth – I AM Closed minded?? !! Sorry but REALLY he deserves this >> >>>> by now. YOU ARSE !  YOU WON’T EVEN look into the item and  you >> >>>> completely dismiss it >> >>>> as both foolish and a scam and you call ME closed-minded.  opps >> > again >> >>>> ROTFLMFAO >> >>>> Seventh – Your analogy on my comment of using the mask is ABSURD >> >>>> and has no >> >>>> connection whatsoever. IN FACT THOUSANDS said they would NEVER >> >>>> wear a headset – A have an older brother who said it – he elected >> >>>> for surgery rather than wear a headset.  ooppss AGAIN lmfao.  So, >> >>>> when you said "I doubt >> >>>> it" … YOU ARE WRONG YET AGAIN.  oh yea, and this ng and the >> >>>> entire realm of sleep disorders is NOT ABOUT YOU. Sorry for that >> >>>> dose of reality. >> >>>> Eighth –  Yes, I am sure whoever "invented the CPAP did so out of a >> >>>> PERCEIVED NEED". again LMFAO – AS ARE THE PEOPLE TRYING TO CREATE >> >>>> THIS NEW ALARM – REPORTING – MONITORING DEVICE.  Do you really >> >>>> think ( I could stop that question right there!) they went to the >> >>>> trouble of having preliminary designs and a LEGITIMATE survey done >> >>>> as they perceive NO NEED?? !! WOW dude  how could you – being so >> >>>> open minded of course – MISS SO MUCH about this entire issue. >> >>>> (And YES they do ask about anesthetic as they are required to be >> >>>> certain the patient can handle it and no other of thousands of >> >>>> issues that might be present. They DONT just chuck on some >> >>>> anesthetic because there is a need.) >> >>>> NINTH – this one is MORE AMUSING than the previous eight.  He says >> >>>> "You remind me of an ancient stereotype in American made Western >> >>>> films – the SNAKE OIL salesman!"  First – I have absolutely no >> >>>> connection with the people designing or making that device. I >> >>>> first only saw it the other day as >> >>>> I came into this ng.  Second, again he ASSumes the device is snake >> >>>> oil. Like >> >>>> I said previously, I know a family doctor who said the same of the >> >>>> apnea issue.  Again, this is from the guy who calls me >> >>>> closed-minded and thinks he >> >>>> is open minded. Yet this item is the same as snake-oil -> WHEN HE >> >>>> ADMITTED HE KNOWS NOTHING OF THE ITEM – well, that is beside his >> >>>> totally incorrect first impression that his open mind made with >> >>>> extremely little information. >> >>>> Then he carries this line of NONSENSE to a far reaching extreme. >> >>>> opps AGAIN >> >>>> rotflmfao >> >>>> Tenth –  "If you want to peddle rubbish, pick a newsgroup less >> >>>> informed." OPPS  just have to say it again:   WHAT AN ARSE.  Look >> >>>> you closed-minded, hypocritical, arrogant, self-righteous, sicker >> >>>> than thou ->  ARSE. ….. YOU

… read more »

Response:

WOW ANOTHER ONE       YIKES  what is with you people? Just more twinkle closed mined sheep replies i guess. Kilfile all ya want. lmfao. just proves me correct. again PLEASE DO report me – NOTHING WILL HAPPEN  I DID NOT SPAM . THERE IS NO CONNECTION TO THAT OUTFIT AND ME. and it is JUST A SURVEY site. I did not have to buy anything or divulge any personal information other than some VERY GENERIC MULTIPLE ANSWER quesitons. It ONLY asks VERY GENERIC, NON-specific info. Never even gave my zip code! ??? DID YOU EVEN GO TO THE SURVEY IT WILL PROVE you, Lily, Twinkle are WRONG  - IF you can handle that truth. and the SHOUT is for EMPHASIS as i have BEEN WRONGLY accused and slandered. AND NO   NEVER had problems with my ISP  same one for over 6 years. Mbankat "Quick" <quick7135-n…@NOSPAMyahoo.com> wrote in message

news:1099950140.31772@sj-nntpcache-3… – Hide quoted text — Show quoted text -> BZZZZTTTT. > I quit reading your first post when it said "more information > on the product will be provided as soon as you enter some > information… yada, yada,".  My guess is that posting spam > here directly is in violation of your ISP’s terms and conditions? > Had problems with ISP terms and conditions before? > Then I quit reading your second post when you started SHOUTING > with "indignant outrage".  I’ve just kill filed you so maybe somebody > else will read your response. > -Quick > MBankaT wrote: > > FYI all who are following this thread and are actually open minded > > and care for the truth. You can determine for YOURSELVES if this is a > > scam or otherwise, without the policing, censorship and closed-minded > > limitations others may try to impose upon you. Notice, I NEVER said > > it was NOT a scam, I said it does not appear to be one at all to me. > > And I actually bothered to take a look at it before I made any > > pre-conceived and/or damning (and false I think) determination. I > > have every faith that YOU can determine and decide for yourselves. > > This came directly from the site hosting the survey: > > Dear potential customer, > > Thank you for taking the time to help in our project. > > We are graduate students at the University of Southern California > > conducting a Technology Feasibility Analysis on a new Alarm System. > > The following "end-user" survey will help us evaluate our product, > > which will be described later. > >  The entire survey should take you less than 5 minutes to complete. > > The survey is divided into 3 sections: > > 1. Sleeping/Waking patterns > > 2. Product description and questions > > 3. Demographics > > The information we collect here will be used solely to determine the > > demand and acceptability of this product in the market. > > We will NOT sell any data we collect here to anyone, nor will we ask > > any information that may identify you personally. > > If you would like more information on our project, or would like to > > discuss it with us, please contact us by email. > > Thank you again for your time and information, > > The BIOCHRON team > > Thank you very much for your time and contribution to our project. > > If you would like to comment further on our BIOCHRON project or this > > survey, please email us or use the following sections. We did not > > want to make a survey that was too long, but we would really > > appreciate any additional comments or suggestions you have. > > (Survey done through the SurveyMonkey website.) > > "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message > > news:PvednXkIBr-GRhLcRVn-uw@comcast.com… > >> LMFAO  you sir are a JERK. > >> I AM NOT " attempting to SELL something on this newsgroup that is > >> just a SCAM item." I DARE YOU TO PROVE THAT BASELESS ACCUSATION! > >> You siimply cannot cope with the fact that my reply was completely > >> on target and that YOU are completely WRONG not only about the item, > >> the original post and ME. > >> LMFAO  now you THINK you can determine if I have sleep apnea, rls > >> and plmd ? wow you are a bigger arse than i even first imagined. > >> Amusing tho   but a hypocritcal self-worshiping arse you remain. > >> Mbankat > >> Ps  you want the serial number off my cpap machine ??? > >> "Twinkle" <Sl…@last.never> wrote in message > >> news:qSQjd.145$sh3.8752@nnrp1.ozemail.com.au… > >>> Sorry but > We don’t like SCAMMERS here. It is pretty damned > >>> obvious that, excepting possible SIDS, a sleep alarm to tell you > >>> that you aren’t sleeping properly is utter rot. > >>> "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message > >>> news:vPidnSJSmINASBLcRVn-pA@comcast.com… > >>>> WOW   sorry that in addition to your sleep disorders you are one > >>>> VERY angry > >>>> person! > >>>> First of all – there is NO way I (or anyone else for that matter) > >>>> could possibly know how bad your disorder is and that you have it > >>>> worse than all of the rest of us. > >>>> Second – YOU TOTALLY dismissed the alarm item WITHOUT even looking > >>>> into what > >>>> it is or what it does. You admitted that by not wanting to visit > >>>> the site as > >>>> you feared it harmful. (and all it was is a survey site with more > >>>> info on the device and related links) > >>>> Third- I am NOT telling YOU specifically ANYTHING – which, however > >>>> YOU DID by dismissing something for everyone as ridiculous – > >>>> apparently – as if you > >>>> speak for everyone. You don’t. > >>>> Fourth – YOUR CLOSED MINDEDNESS is proven as IF you ACTUALLY LOOK > >>>> INTO it so > >>>> that you would have SOME IDEA WHAT YOU ARE TALKING ABOUT you will > >>>> see there > >>>> are several options and functions NOT ALL OF WHICH ARE DESIGNED TO > >>>> WAKE YOU > >>>> UP AT EVERY EPISODE.  ROTFLMFAO – that idea would be absurd. Who > >>>> would ever > >>>> think of such a thing – oh yea  YOU DID. Knowing at lease > >>>> something about an > >>>> item BEFORE you totally dismiss it for the rest of the world IS A > >>>> GOOD THING.  (again lmfao) > >>>> Fifth – A SCAM ???  it is JUST A SURVEY. WOW really I mean WOW you > >>>> really do > >>>> think very highly of yourself. You dismiss a NEW ITEM in its > >>>> DESIGN and PLANNING phase and YOU  ALREADY KNOW it is a scam and a > >>>> foolish device. I know of a family doctor, who ten years ago, > >>>> thought all this sleep apnea stuff was a fad. You remind me of him. > >>>> YET YOU NEVER EVEN LOOKED INTO IT.  You call that Open-minded? You > >>>> call that > >>>> a GOOD thing? > >>>> Sixth – I AM Closed minded?? !! Sorry but REALLY he deserves this > >>>> by now. YOU ARSE !  YOU WON’T EVEN look into the item and  you > >>>> completely dismiss it > >>>> as both foolish and a scam and you call ME closed-minded.  opps > > again > >>>> ROTFLMFAO > >>>> Seventh – Your analogy on my comment of using the mask is ABSURD > >>>> and has no > >>>> connection whatsoever. IN FACT THOUSANDS said they would NEVER > >>>> wear a headset – A have an older brother who said it – he elected > >>>> for surgery rather than wear a headset.  ooppss AGAIN lmfao.  So, > >>>> when you said "I doubt > >>>> it" … YOU ARE WRONG YET AGAIN.  oh yea, and this ng and the > >>>> entire realm of sleep disorders is NOT ABOUT YOU. Sorry for that > >>>> dose of reality. > >>>> Eighth –  Yes, I am sure whoever "invented the CPAP did so out of a > >>>> PERCEIVED NEED". again LMFAO – AS ARE THE PEOPLE TRYING TO CREATE > >>>> THIS NEW ALARM – REPORTING – MONITORING DEVICE.  Do you really > >>>> think ( I could stop that question right there!) they went to the > >>>> trouble of having preliminary designs and a LEGITIMATE survey done > >>>> as they perceive NO NEED?? !! WOW dude  how could you – being so > >>>> open minded of course – MISS SO MUCH about this entire issue. > >>>> (And YES they do ask about anesthetic as they are required to be > >>>> certain the patient can handle it and no other of thousands of > >>>> issues that might be present. They DONT just chuck on some > >>>> anesthetic because there is a need.) > >>>> NINTH – this one is MORE AMUSING than the previous eight.  He says > >>>> "You remind me of an ancient stereotype in American made Western > >>>> films – the SNAKE OIL salesman!"  First – I have absolutely no > >>>> connection with the people designing or making that device. I > >>>> first only saw it the other day as > >>>> I came into this ng.  Second, again he ASSumes the device is snake > >>>> oil. Like > >>>> I said previously, I know a family doctor who said the same of the > >>>> apnea issue.  Again, this is from the guy who calls me > >>>> closed-minded and thinks he > >>>> is open minded. Yet this item is the same as snake-oil -> WHEN HE > >>>> ADMITTED HE KNOWS NOTHING OF THE ITEM – well, that is beside his > >>>> totally incorrect first impression that his open mind made with > >>>> extremely little information. > >>>> Then he carries this line of NONSENSE to a far reaching extreme. > >>>> opps AGAIN > >>>> rotflmfao > >>>> Tenth –  "If you want to peddle rubbish, pick a newsgroup less > >>>> informed." OPPS  just have to say it again:   WHAT AN ARSE.  Look > >>>> you closed-minded, hypocritical, arrogant, self-righteous, sicker > >>>> than thou ->  ARSE. ….. YOU ARE NOT SPEAKING FOR ALL IN THIS > >>>> PUBLIC FORUM. > >>>> THE REASON for reading a ng like this is PRECISELY for information > >>>> such as a > >>>> potential new device that may prove helpful. YET not only do you > >>>> ASSume you > >>>> police this ng for posting accuracy – which you cannot and WONT by > >>>> your own > >>>> admission – yet YOU want to retain the self- appointed authority to > >>>> determine what is rubbish?   Why you self aggrandizing > >>>> Hypocritical arse. The only thing that can help any ng be less > >>>> informed is having people like you limiting the public discourse > >>>> as you have here. > >>>> You ASSume I am peddling it – You ASSume wrong. I am

… read more »

Response:

LMFAO  you sir are a JERK. I AM NOT " attempting to SELL something on this newsgroup that is just a SCAM item." I DARE YOU TO PROVE THAT BASELESS ACCUSATION! You siimply cannot cope with the fact that my reply was completely on target and that YOU are completely WRONG not only about the item, the original post and ME. LMFAO  now you THINK you can determine if I have sleep apnea, rls and plmd ? wow you are a bigger arse than i even first imagined. Amusing tho   but a hypocritcal self-worshiping arse you remain. Mbankat Ps  you want the serial number off my cpap machine ??? "Twinkle" <Sl…@last.never> wrote in message

news:qSQjd.145$sh3.8752@nnrp1.ozemail.com.au… – Hide quoted text — Show quoted text -> Sorry but > We don’t like SCAMMERS here. It is pretty damned obvious that, excepting > possible SIDS, a sleep alarm to tell you that you aren’t sleeping properly > is utter rot. > "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message > news:vPidnSJSmINASBLcRVn-pA@comcast.com… > > WOW   sorry that in addition to your sleep disorders you are one VERY > > angry > > person! > > First of all – there is NO way I (or anyone else for that matter) could > > possibly know how bad your disorder is and that you have it worse than all > > of the rest of us. > > Second – YOU TOTALLY dismissed the alarm item WITHOUT even looking into > > what > > it is or what it does. You admitted that by not wanting to visit the site > > as > > you feared it harmful. (and all it was is a survey site with more info on > > the device and related links) > > Third- I am NOT telling YOU specifically ANYTHING – which, however YOU DID > > by dismissing something for everyone as ridiculous – apparently – as if > > you > > speak for everyone. You don’t. > > Fourth – YOUR CLOSED MINDEDNESS is proven as IF you ACTUALLY LOOK INTO it > > so > > that you would have SOME IDEA WHAT YOU ARE TALKING ABOUT you will see > > there > > are several options and functions NOT ALL OF WHICH ARE DESIGNED TO WAKE > > YOU > > UP AT EVERY EPISODE.  ROTFLMFAO – that idea would be absurd. Who would > > ever > > think of such a thing – oh yea  YOU DID. Knowing at lease something about > > an > > item BEFORE you totally dismiss it for the rest of the world IS A GOOD > > THING.  (again lmfao) > > Fifth – A SCAM ???  it is JUST A SURVEY. WOW really I mean WOW you really > > do > > think very highly of yourself. You dismiss a NEW ITEM in its DESIGN and > > PLANNING phase and YOU  ALREADY KNOW it is a scam and a foolish device. I > > know of a family doctor, who ten years ago, thought all this sleep apnea > > stuff was a fad. You remind me of him. > > YET YOU NEVER EVEN LOOKED INTO IT.  You call that Open-minded? You call > > that > > a GOOD thing? > > Sixth – I AM Closed minded?? !! Sorry but REALLY he deserves this by now. > > YOU ARSE !  YOU WON’T EVEN look into the item and  you completely dismiss > > it > > as both foolish and a scam and you call ME closed-minded.  opps   again > > ROTFLMFAO > > Seventh – Your analogy on my comment of using the mask is ABSURD and has > > no > > connection whatsoever. IN FACT THOUSANDS said they would NEVER wear a > > headset – A have an older brother who said it – he elected for surgery > > rather than wear a headset.  ooppss AGAIN lmfao.  So, when you said "I > > doubt > > it" … YOU ARE WRONG YET AGAIN.  oh yea, and this ng and the entire realm > > of sleep disorders is NOT ABOUT YOU. Sorry for that dose of reality. > > Eighth –  Yes, I am sure whoever "invented the CPAP did so out of a > > PERCEIVED NEED". again LMFAO – AS ARE THE PEOPLE TRYING TO CREATE THIS NEW > > ALARM – REPORTING – MONITORING DEVICE.  Do you really think ( I could stop > > that question right there!) they went to the trouble of having preliminary > > designs and a LEGITIMATE survey done as they perceive NO NEED?? !!   WOW > > dude  how could you – being so open minded of course – MISS SO MUCH about > > this entire issue.  (And YES they do ask about anesthetic as they are > > required to be certain the patient can handle it and no other of thousands > > of issues that might be present. They DONT just chuck on some anesthetic > > because there is a need.) > > NINTH – this one is MORE AMUSING than the previous eight.  He says "You > > remind me of an ancient stereotype in American made Western films – the > > SNAKE OIL salesman!"  First – I have absolutely no connection with the > > people designing or making that device. I first only saw it the other day > > as > > I came into this ng.  Second, again he ASSumes the device is snake oil. > > Like > > I said previously, I know a family doctor who said the same of the apnea > > issue.  Again, this is from the guy who calls me closed-minded and thinks > > he > > is open minded. Yet this item is the same as snake-oil -> WHEN HE ADMITTED > > HE KNOWS NOTHING OF THE ITEM – well, that is beside his totally incorrect > > first impression that his open mind made with extremely little > > information. > > Then he carries this line of NONSENSE to a far reaching extreme. opps > > AGAIN > > rotflmfao > > Tenth –  "If you want to peddle rubbish, pick a newsgroup less informed." > > OPPS  just have to say it again:   WHAT AN ARSE.  Look  you closed-minded, > > hypocritical, arrogant, self-righteous, sicker than thou ->  ARSE. ….. > > YOU ARE NOT SPEAKING FOR ALL IN THIS PUBLIC FORUM. > > THE REASON for reading a ng like this is PRECISELY for information such as > > a > > potential new device that may prove helpful. YET not only do you ASSume > > you > > police this ng for posting accuracy – which you cannot and WONT by your > > own > > admission – yet YOU want to retain the self- appointed authority to > > determine what is rubbish?   Why you self aggrandizing Hypocritical arse. > > The only thing that can help any ng be less informed is having people like > > you limiting the public discourse as you have here. > > You ASSume I am peddling it – You ASSume wrong. I am a sleep disorder > > sufferer as are you and others here. I am OPEN to devices and techniques > > that may help. At least I DON’T make a ASSumption that I have the power to > > dismiss a device WITHOUT KNOWING ANYTHING ABOUT IT.     Makes me wonder if > > you have a similar or competing idea and you want to trash this one so > > that > > only yours will prevail. Certainly you attempt to do that with new ideas > > such as this potential device. > > AND AGAIN YOU CLOSED MINDED ARSE – HOW DO YOU KNOW THIS ITEM IS RUBBISH ?? > > YOU NEVER LOOKED INTO IT. > > wow,  no  I mean WOW. > > "Twinkle" <Sl…@last.never> wrote in message > > news:q7Jjd.102$sh3.6611@nnrp1.ozemail.com.au… > >> "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message > >> news:S9GdnSOKuNDBpxLcRVn-sw@comcast.com… > >> > LOL  the link is harmless and legitimate … the survey is simple and > > may > >> > lead to something helpful ( IMHO ) based upon the questions they > > asked…. > >> > ….AND -IMHO – your saying: "Sleep alarm to stop anything else – self > >> > defeating." is simply closed-minded. > >> I suffer from, to quote more than one sleep professional medico, the > >> worst > >> sleep apnea a person can have and still be alive to talk about it. Apart > >> from lack of oxygen going to below 60% of a night, I also get less than > >> 10 > >> minutes REM sleep per night. > >> Given the above, a bloody alarm to wake me up to tell me I am not > >> sleeping > >> correctly, in your opinion, is a GOOD thing? > >> Take away sleep disorders and have a person who is just having disturbed > >> sleep only for maybe a few days and then returns to normal in the normal > > run > >> of things. You think an alarm to wake them to tell them they arent > > sleeping > >> well when they KNOW they arent is a GOOD thing? > >> Close minded? No – just open minded enough to know a scam when I hear > >> one. > >> If you think you are getting away with a scam in here without a comment, > > YOU > >> are too close minded. > >> > I bet some people said nobody would wear a strapped-on apnea mask so > >> > why > >> > bother making one! > >> I doubt it. The Australian who invented CPAP did it out of a perceived > > need. > >> He didnt ask anyone if they would wear it in the first place. Do you ask > >> a > >> patient undergoing heart surgery if they REALLY want that anaesthetic? > >> > Reminds me of an old cartoon given to sales groups.  The Middle Ages > > army > >> > commander, heading off to battle, was grabbing his sword as he left his > >> > battlefield tent.  His aide tried to get him to stop for a minute to > > talk > >> > to > >> > a salesman. The commander told his aide he had no time for some > > salesman’s > >> > silly ideas. The salesman was selling machine guns. > >> You remind me of an ancient stereotype in American made Western films – > > the > >> SNAKE OIL salesman! > >> "Drink this snake oil and be cured of cancer, cured of all your pains. $1 > > a > >> bottle! It doesn’t get cheaper! Why look at this stranger here. Did YOU > > try > >> my Snake Oil? YEAH! I was feeling like a 75 year old before I took it and > >> look at me now. I am virile and 30!". > >> If you want to peddle rubbish, pick a newsgroup less informed.

Response:

LMFAO  AGAIN Look Lily, and for those who might be otherwise ‘challenged’ –> I AM NOT CONNECTED IN ANY WAY SHAPE OR FORM TO THIS SURVEY OR THE DEVICE. Other than I took the survey today when I read the original post. LOL that is the extent of my connection. THEREFORE  I cannot lose ANYthing – potential respondent or what. THE SIMPLE TRUTH IS THIS:  Twinkle JUMPED to a conclusion. I called him on it. He can’t deal with it so he makes further FALSE accusations of me to cover his behind. Wow. And I simply don’t care if you block me as that just proves you are a closed minded sheep like twinkle is. You both may have been in this ng longer than I, or more regularly, but I have been using ng for about 5-6 years. So I understand how some people just align with the regular posters. If you HONESTLY read my posts you would CERTAINLY see that what I said of twinkle and his reply is on target. AND I DON’T CARE IF YOU DON’T GO TO THE SURVEY. It matters not to me. Be as closed minded as twinkle is. Seems your loss not mine. Mbankat ps  i would enjoy it if you would explain how and what of anything i said was "lunacy" "Tiger Lily" <m…@privacy.com> wrote in message

news:2va5puF2jmcdqU1@uni-berlin.de… – Hide quoted text — Show quoted text -> "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message > news:vPidnSJSmINASBLcRVn-pA@comcast.com… > > WOW   sorry that in addition to your sleep disorders you are one VERY > angry > > person! > vitriolic diatribe snipped > you just lost another potential respondent with your idiocy > bye….. don’t let the door hit your ass on the way out

Response:

BZZZZTTTT. I quit reading your first post when it said "more information on the product will be provided as soon as you enter some information… yada, yada,".  My guess is that posting spam here directly is in violation of your ISP’s terms and conditions? Had problems with ISP terms and conditions before? Then I quit reading your second post when you started SHOUTING with "indignant outrage".  I’ve just kill filed you so maybe somebody else will read your response. -Quick – Hide quoted text — Show quoted text -MBankaT wrote: > FYI all who are following this thread and are actually open minded > and care for the truth. You can determine for YOURSELVES if this is a > scam or otherwise, without the policing, censorship and closed-minded > limitations others may try to impose upon you. Notice, I NEVER said > it was NOT a scam, I said it does not appear to be one at all to me. > And I actually bothered to take a look at it before I made any > pre-conceived and/or damning (and false I think) determination. I > have every faith that YOU can determine and decide for yourselves. > This came directly from the site hosting the survey: > Dear potential customer, > Thank you for taking the time to help in our project. > We are graduate students at the University of Southern California > conducting a Technology Feasibility Analysis on a new Alarm System. > The following "end-user" survey will help us evaluate our product, > which will be described later. >  The entire survey should take you less than 5 minutes to complete. > The survey is divided into 3 sections: > 1. Sleeping/Waking patterns > 2. Product description and questions > 3. Demographics > The information we collect here will be used solely to determine the > demand and acceptability of this product in the market. > We will NOT sell any data we collect here to anyone, nor will we ask > any information that may identify you personally. > If you would like more information on our project, or would like to > discuss it with us, please contact us by email. > Thank you again for your time and information, > The BIOCHRON team > Thank you very much for your time and contribution to our project. > If you would like to comment further on our BIOCHRON project or this > survey, please email us or use the following sections. We did not > want to make a survey that was too long, but we would really > appreciate any additional comments or suggestions you have. > (Survey done through the SurveyMonkey website.) > "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message > news:PvednXkIBr-GRhLcRVn-uw@comcast.com… >> LMFAO  you sir are a JERK. >> I AM NOT " attempting to SELL something on this newsgroup that is >> just a SCAM item." I DARE YOU TO PROVE THAT BASELESS ACCUSATION! >> You siimply cannot cope with the fact that my reply was completely >> on target and that YOU are completely WRONG not only about the item, >> the original post and ME. >> LMFAO  now you THINK you can determine if I have sleep apnea, rls >> and plmd ? wow you are a bigger arse than i even first imagined. >> Amusing tho   but a hypocritcal self-worshiping arse you remain. >> Mbankat >> Ps  you want the serial number off my cpap machine ??? >> "Twinkle" <Sl…@last.never> wrote in message >> news:qSQjd.145$sh3.8752@nnrp1.ozemail.com.au… >>> Sorry but > We don’t like SCAMMERS here. It is pretty damned >>> obvious that, excepting possible SIDS, a sleep alarm to tell you >>> that you aren’t sleeping properly is utter rot. >>> "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message >>> news:vPidnSJSmINASBLcRVn-pA@comcast.com… >>>> WOW   sorry that in addition to your sleep disorders you are one >>>> VERY angry >>>> person! >>>> First of all – there is NO way I (or anyone else for that matter) >>>> could possibly know how bad your disorder is and that you have it >>>> worse than all of the rest of us. >>>> Second – YOU TOTALLY dismissed the alarm item WITHOUT even looking >>>> into what >>>> it is or what it does. You admitted that by not wanting to visit >>>> the site as >>>> you feared it harmful. (and all it was is a survey site with more >>>> info on the device and related links) >>>> Third- I am NOT telling YOU specifically ANYTHING – which, however >>>> YOU DID by dismissing something for everyone as ridiculous – >>>> apparently – as if you >>>> speak for everyone. You don’t. >>>> Fourth – YOUR CLOSED MINDEDNESS is proven as IF you ACTUALLY LOOK >>>> INTO it so >>>> that you would have SOME IDEA WHAT YOU ARE TALKING ABOUT you will >>>> see there >>>> are several options and functions NOT ALL OF WHICH ARE DESIGNED TO >>>> WAKE YOU >>>> UP AT EVERY EPISODE.  ROTFLMFAO – that idea would be absurd. Who >>>> would ever >>>> think of such a thing – oh yea  YOU DID. Knowing at lease >>>> something about an >>>> item BEFORE you totally dismiss it for the rest of the world IS A >>>> GOOD THING.  (again lmfao) >>>> Fifth – A SCAM ???  it is JUST A SURVEY. WOW really I mean WOW you >>>> really do >>>> think very highly of yourself. You dismiss a NEW ITEM in its >>>> DESIGN and PLANNING phase and YOU  ALREADY KNOW it is a scam and a >>>> foolish device. I know of a family doctor, who ten years ago, >>>> thought all this sleep apnea stuff was a fad. You remind me of him. >>>> YET YOU NEVER EVEN LOOKED INTO IT.  You call that Open-minded? You >>>> call that >>>> a GOOD thing? >>>> Sixth – I AM Closed minded?? !! Sorry but REALLY he deserves this >>>> by now. YOU ARSE !  YOU WON’T EVEN look into the item and  you >>>> completely dismiss it >>>> as both foolish and a scam and you call ME closed-minded.  opps > again >>>> ROTFLMFAO >>>> Seventh – Your analogy on my comment of using the mask is ABSURD >>>> and has no >>>> connection whatsoever. IN FACT THOUSANDS said they would NEVER >>>> wear a headset – A have an older brother who said it – he elected >>>> for surgery rather than wear a headset.  ooppss AGAIN lmfao.  So, >>>> when you said "I doubt >>>> it" … YOU ARE WRONG YET AGAIN.  oh yea, and this ng and the >>>> entire realm of sleep disorders is NOT ABOUT YOU. Sorry for that >>>> dose of reality. >>>> Eighth –  Yes, I am sure whoever "invented the CPAP did so out of a >>>> PERCEIVED NEED". again LMFAO – AS ARE THE PEOPLE TRYING TO CREATE >>>> THIS NEW ALARM – REPORTING – MONITORING DEVICE.  Do you really >>>> think ( I could stop that question right there!) they went to the >>>> trouble of having preliminary designs and a LEGITIMATE survey done >>>> as they perceive NO NEED?? !! WOW dude  how could you – being so >>>> open minded of course – MISS SO MUCH about this entire issue. >>>> (And YES they do ask about anesthetic as they are required to be >>>> certain the patient can handle it and no other of thousands of >>>> issues that might be present. They DONT just chuck on some >>>> anesthetic because there is a need.) >>>> NINTH – this one is MORE AMUSING than the previous eight.  He says >>>> "You remind me of an ancient stereotype in American made Western >>>> films – the SNAKE OIL salesman!"  First – I have absolutely no >>>> connection with the people designing or making that device. I >>>> first only saw it the other day as >>>> I came into this ng.  Second, again he ASSumes the device is snake >>>> oil. Like >>>> I said previously, I know a family doctor who said the same of the >>>> apnea issue.  Again, this is from the guy who calls me >>>> closed-minded and thinks he >>>> is open minded. Yet this item is the same as snake-oil -> WHEN HE >>>> ADMITTED HE KNOWS NOTHING OF THE ITEM – well, that is beside his >>>> totally incorrect first impression that his open mind made with >>>> extremely little information. >>>> Then he carries this line of NONSENSE to a far reaching extreme. >>>> opps AGAIN >>>> rotflmfao >>>> Tenth –  "If you want to peddle rubbish, pick a newsgroup less >>>> informed." OPPS  just have to say it again:   WHAT AN ARSE.  Look >>>> you closed-minded, hypocritical, arrogant, self-righteous, sicker >>>> than thou ->  ARSE. ….. YOU ARE NOT SPEAKING FOR ALL IN THIS >>>> PUBLIC FORUM. >>>> THE REASON for reading a ng like this is PRECISELY for information >>>> such as a >>>> potential new device that may prove helpful. YET not only do you >>>> ASSume you >>>> police this ng for posting accuracy – which you cannot and WONT by >>>> your own >>>> admission – yet YOU want to retain the self- appointed authority to >>>> determine what is rubbish?   Why you self aggrandizing >>>> Hypocritical arse. The only thing that can help any ng be less >>>> informed is having people like you limiting the public discourse >>>> as you have here. >>>> You ASSume I am peddling it – You ASSume wrong. I am a sleep >>>> disorder sufferer as are you and others here. I am OPEN to devices >>>> and techniques that may help. At least I DON’T make a ASSumption >>>> that I have the power to dismiss a device WITHOUT KNOWING ANYTHING >>>> ABOUT IT.     Makes me wonder if you have a similar or competing >>>> idea and you want to trash this one so that >>>> only yours will prevail. Certainly you attempt to do that with new >>>> ideas such as this potential device. >>>> AND AGAIN YOU CLOSED MINDED ARSE – HOW DO YOU KNOW THIS ITEM IS >>>> RUBBISH ?? YOU NEVER LOOKED INTO IT. >>>> wow,  no  I mean WOW. >>>> "Twinkle" <Sl…@last.never> wrote in message >>>> news:q7Jjd.102$sh3.6611@nnrp1.ozemail.com.au… >>>>> "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message >>>>> news:S9GdnSOKuNDBpxLcRVn-sw@comcast.com… >>>>>> LOL  the link is harmless and legitimate … the survey is >>>>>> simple and may lead to something helpful ( IMHO ) based upon the >>>>>> questions they asked…. >>>>>> ….AND -IMHO – your saying: "Sleep alarm to stop anything else >>>>>> – self defeating." is simply closed-minded. >>>>> I suffer from, to quote more than one sleep professional medico,

… read more »

Response:

"MBankaT" <MBankaT@Lost&MapLess.net> wrote in message

news:vPidnSJSmINASBLcRVn-pA@comcast.com… > WOW   sorry that in addition to your sleep disorders you are one VERY angry > person!

vitriolic diatribe snipped you just lost another potential respondent with your idiocy bye….. don’t let the door hit your ass on the way out

Response:

FYI all who are following this thread and are actually open minded and care for the truth. You can determine for YOURSELVES if this is a scam or otherwise, without the policing, censorship and closed-minded limitations others may try to impose upon you. Notice, I NEVER said it was NOT a scam, I said it does not appear to be one at all to me. And I actually bothered to take a look at it before I made any pre-conceived and/or damning (and false I think) determination. I have every faith that YOU can determine and decide for yourselves. This came directly from the site hosting the survey: Dear potential customer, Thank you for taking the time to help in our project. We are graduate students at the University of Southern California conducting a Technology Feasibility Analysis on a new Alarm System. The following "end-user" survey will help us evaluate our product, which will be described later.  The entire survey should take you less than 5 minutes to complete. The survey is divided into 3 sections: 1. Sleeping/Waking patterns 2. Product description and questions 3. Demographics The information we collect here will be used solely to determine the demand and acceptability of this product in the market. We will NOT sell any data we collect here to anyone, nor will we ask any information that may identify you personally. If you would like more information on our project, or would like to discuss it with us, please contact us by email. Thank you again for your time and information, The BIOCHRON team Thank you very much for your time and contribution to our project. If you would like to comment further on our BIOCHRON project or this survey, please email us or use the following sections. We did not want to make a survey that was too long, but we would really appreciate any additional comments or suggestions you have. (Survey done through the SurveyMonkey website.) "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message

news:PvednXkIBr-GRhLcRVn-uw@comcast.com… – Hide quoted text — Show quoted text -> LMFAO  you sir are a JERK. > I AM NOT " attempting to SELL something on this newsgroup that is just a > SCAM item." I DARE YOU TO PROVE THAT BASELESS ACCUSATION! > You siimply cannot cope with the fact that my reply was completely on target > and that YOU are completely WRONG not only about the item, the original post > and ME. > LMFAO  now you THINK you can determine if I have sleep apnea, rls and plmd ? > wow you are a bigger arse than i even first imagined. > Amusing tho   but a hypocritcal self-worshiping arse you remain. > Mbankat > Ps  you want the serial number off my cpap machine ??? > "Twinkle" <Sl…@last.never> wrote in message > news:qSQjd.145$sh3.8752@nnrp1.ozemail.com.au… > > Sorry but > We don’t like SCAMMERS here. It is pretty damned obvious that, > excepting > > possible SIDS, a sleep alarm to tell you that you aren’t sleeping properly > > is utter rot. > > "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message > > news:vPidnSJSmINASBLcRVn-pA@comcast.com… > > > WOW   sorry that in addition to your sleep disorders you are one VERY > > > angry > > > person! > > > First of all – there is NO way I (or anyone else for that matter) could > > > possibly know how bad your disorder is and that you have it worse than > all > > > of the rest of us. > > > Second – YOU TOTALLY dismissed the alarm item WITHOUT even looking into > > > what > > > it is or what it does. You admitted that by not wanting to visit the > site > > > as > > > you feared it harmful. (and all it was is a survey site with more info > on > > > the device and related links) > > > Third- I am NOT telling YOU specifically ANYTHING – which, however YOU > DID > > > by dismissing something for everyone as ridiculous – apparently – as if > > > you > > > speak for everyone. You don’t. > > > Fourth – YOUR CLOSED MINDEDNESS is proven as IF you ACTUALLY LOOK INTO > it > > > so > > > that you would have SOME IDEA WHAT YOU ARE TALKING ABOUT you will see > > > there > > > are several options and functions NOT ALL OF WHICH ARE DESIGNED TO WAKE > > > YOU > > > UP AT EVERY EPISODE.  ROTFLMFAO – that idea would be absurd. Who would > > > ever > > > think of such a thing – oh yea  YOU DID. Knowing at lease something > about > > > an > > > item BEFORE you totally dismiss it for the rest of the world IS A GOOD > > > THING.  (again lmfao) > > > Fifth – A SCAM ???  it is JUST A SURVEY. WOW really I mean WOW you > really > > > do > > > think very highly of yourself. You dismiss a NEW ITEM in its DESIGN and > > > PLANNING phase and YOU  ALREADY KNOW it is a scam and a foolish device. > I > > > know of a family doctor, who ten years ago, thought all this sleep apnea > > > stuff was a fad. You remind me of him. > > > YET YOU NEVER EVEN LOOKED INTO IT.  You call that Open-minded? You call > > > that > > > a GOOD thing? > > > Sixth – I AM Closed minded?? !! Sorry but REALLY he deserves this by > now. > > > YOU ARSE !  YOU WON’T EVEN look into the item and  you completely > dismiss > > > it > > > as both foolish and a scam and you call ME closed-minded.  opps again > > > ROTFLMFAO > > > Seventh – Your analogy on my comment of using the mask is ABSURD and has > > > no > > > connection whatsoever. IN FACT THOUSANDS said they would NEVER wear a > > > headset – A have an older brother who said it – he elected for surgery > > > rather than wear a headset.  ooppss AGAIN lmfao.  So, when you said "I > > > doubt > > > it" … YOU ARE WRONG YET AGAIN.  oh yea, and this ng and the entire > realm > > > of sleep disorders is NOT ABOUT YOU. Sorry for that dose of reality. > > > Eighth –  Yes, I am sure whoever "invented the CPAP did so out of a > > > PERCEIVED NEED". again LMFAO – AS ARE THE PEOPLE TRYING TO CREATE THIS > NEW > > > ALARM – REPORTING – MONITORING DEVICE.  Do you really think ( I could > stop > > > that question right there!) they went to the trouble of having > preliminary > > > designs and a LEGITIMATE survey done as they perceive NO NEED?? !! WOW > > > dude  how could you – being so open minded of course – MISS SO MUCH > about > > > this entire issue.  (And YES they do ask about anesthetic as they are > > > required to be certain the patient can handle it and no other of > thousands > > > of issues that might be present. They DONT just chuck on some anesthetic > > > because there is a need.) > > > NINTH – this one is MORE AMUSING than the previous eight.  He says "You > > > remind me of an ancient stereotype in American made Western films – the > > > SNAKE OIL salesman!"  First – I have absolutely no connection with the > > > people designing or making that device. I first only saw it the other > day > > > as > > > I came into this ng.  Second, again he ASSumes the device is snake oil. > > > Like > > > I said previously, I know a family doctor who said the same of the apnea > > > issue.  Again, this is from the guy who calls me closed-minded and > thinks > > > he > > > is open minded. Yet this item is the same as snake-oil -> WHEN HE > ADMITTED > > > HE KNOWS NOTHING OF THE ITEM – well, that is beside his totally > incorrect > > > first impression that his open mind made with extremely little > > > information. > > > Then he carries this line of NONSENSE to a far reaching extreme. opps > > > AGAIN > > > rotflmfao > > > Tenth –  "If you want to peddle rubbish, pick a newsgroup less > informed." > > > OPPS  just have to say it again:   WHAT AN ARSE.  Look  you > closed-minded, > > > hypocritical, arrogant, self-righteous, sicker than thou ->  ARSE. > ….. > > > YOU ARE NOT SPEAKING FOR ALL IN THIS PUBLIC FORUM. > > > THE REASON for reading a ng like this is PRECISELY for information such > as > > > a > > > potential new device that may prove helpful. YET not only do you ASSume > > > you > > > police this ng for posting accuracy – which you cannot and WONT by your > > > own > > > admission – yet YOU want to retain the self- appointed authority to > > > determine what is rubbish?   Why you self aggrandizing Hypocritical > arse. > > > The only thing that can help any ng be less informed is having people > like > > > you limiting the public discourse as you have here. > > > You ASSume I am peddling it – You ASSume wrong. I am a sleep disorder > > > sufferer as are you and others here. I am OPEN to devices and techniques > > > that may help. At least I DON’T make a ASSumption that I have the power > to > > > dismiss a device WITHOUT KNOWING ANYTHING ABOUT IT.     Makes me wonder > if > > > you have a similar or competing idea and you want to trash this one so > > > that > > > only yours will prevail. Certainly you attempt to do that with new ideas > > > such as this potential device. > > > AND AGAIN YOU CLOSED MINDED ARSE – HOW DO YOU KNOW THIS ITEM IS RUBBISH > ?? > > > YOU NEVER LOOKED INTO IT. > > > wow,  no  I mean WOW. > > > "Twinkle" <Sl…@last.never> wrote in message > > > news:q7Jjd.102$sh3.6611@nnrp1.ozemail.com.au… > > >> "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message > > >> news:S9GdnSOKuNDBpxLcRVn-sw@comcast.com… > > >> > LOL  the link is harmless and legitimate … the survey is simple and > > > may > > >> > lead to something helpful ( IMHO ) based upon the questions they > > > asked…. > > >> > ….AND -IMHO – your saying: "Sleep alarm to stop anything else – > self > > >> > defeating." is simply closed-minded. > > >> I suffer from, to quote more than one sleep professional medico, the > > >> worst > > >> sleep apnea a person can have and still be alive to talk about it. > Apart > > >> from lack of oxygen going to below 60% of a night, I also get less than > > >> 10 > > >> minutes REM sleep per night. > > >> Given the above, a bloody alarm to wake me up to tell me I am not > > >> sleeping > > >> correctly, in your opinion, is a GOOD thing? > > >> Take away sleep disorders and

… read more »

Response:

Sorry but you are attempting to SELL something on this newsgroup that is just a SCAM item. We don’t like SCAMMERS here. It is pretty damned obvious that, excepting possible SIDS, a sleep alarm to tell you that you aren’t sleeping properly is utter rot. "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message

news:vPidnSJSmINASBLcRVn-pA@comcast.com… – Hide quoted text — Show quoted text -> WOW   sorry that in addition to your sleep disorders you are one VERY > angry > person! > First of all – there is NO way I (or anyone else for that matter) could > possibly know how bad your disorder is and that you have it worse than all > of the rest of us. > Second – YOU TOTALLY dismissed the alarm item WITHOUT even looking into > what > it is or what it does. You admitted that by not wanting to visit the site > as > you feared it harmful. (and all it was is a survey site with more info on > the device and related links) > Third- I am NOT telling YOU specifically ANYTHING – which, however YOU DID > by dismissing something for everyone as ridiculous – apparently – as if > you > speak for everyone. You don’t. > Fourth – YOUR CLOSED MINDEDNESS is proven as IF you ACTUALLY LOOK INTO it > so > that you would have SOME IDEA WHAT YOU ARE TALKING ABOUT you will see > there > are several options and functions NOT ALL OF WHICH ARE DESIGNED TO WAKE > YOU > UP AT EVERY EPISODE.  ROTFLMFAO – that idea would be absurd. Who would > ever > think of such a thing – oh yea  YOU DID. Knowing at lease something about > an > item BEFORE you totally dismiss it for the rest of the world IS A GOOD > THING.  (again lmfao) > Fifth – A SCAM ???  it is JUST A SURVEY. WOW really I mean WOW you really > do > think very highly of yourself. You dismiss a NEW ITEM in its DESIGN and > PLANNING phase and YOU  ALREADY KNOW it is a scam and a foolish device. I > know of a family doctor, who ten years ago, thought all this sleep apnea > stuff was a fad. You remind me of him. > YET YOU NEVER EVEN LOOKED INTO IT.  You call that Open-minded? You call > that > a GOOD thing? > Sixth – I AM Closed minded?? !! Sorry but REALLY he deserves this by now. > YOU ARSE !  YOU WON’T EVEN look into the item and  you completely dismiss > it > as both foolish and a scam and you call ME closed-minded.  opps   again > ROTFLMFAO > Seventh – Your analogy on my comment of using the mask is ABSURD and has > no > connection whatsoever. IN FACT THOUSANDS said they would NEVER wear a > headset – A have an older brother who said it – he elected for surgery > rather than wear a headset.  ooppss AGAIN lmfao.  So, when you said "I > doubt > it" … YOU ARE WRONG YET AGAIN.  oh yea, and this ng and the entire realm > of sleep disorders is NOT ABOUT YOU. Sorry for that dose of reality. > Eighth –  Yes, I am sure whoever "invented the CPAP did so out of a > PERCEIVED NEED". again LMFAO – AS ARE THE PEOPLE TRYING TO CREATE THIS NEW > ALARM – REPORTING – MONITORING DEVICE.  Do you really think ( I could stop > that question right there!) they went to the trouble of having preliminary > designs and a LEGITIMATE survey done as they perceive NO NEED?? !!   WOW > dude  how could you – being so open minded of course – MISS SO MUCH about > this entire issue.  (And YES they do ask about anesthetic as they are > required to be certain the patient can handle it and no other of thousands > of issues that might be present. They DONT just chuck on some anesthetic > because there is a need.) > NINTH – this one is MORE AMUSING than the previous eight.  He says "You > remind me of an ancient stereotype in American made Western films – the > SNAKE OIL salesman!"  First – I have absolutely no connection with the > people designing or making that device. I first only saw it the other day > as > I came into this ng.  Second, again he ASSumes the device is snake oil. > Like > I said previously, I know a family doctor who said the same of the apnea > issue.  Again, this is from the guy who calls me closed-minded and thinks > he > is open minded. Yet this item is the same as snake-oil -> WHEN HE ADMITTED > HE KNOWS NOTHING OF THE ITEM – well, that is beside his totally incorrect > first impression that his open mind made with extremely little > information. > Then he carries this line of NONSENSE to a far reaching extreme. opps > AGAIN > rotflmfao > Tenth –  "If you want to peddle rubbish, pick a newsgroup less informed." > OPPS  just have to say it again:   WHAT AN ARSE.  Look  you closed-minded, > hypocritical, arrogant, self-righteous, sicker than thou ->  ARSE.  ….. > YOU ARE NOT SPEAKING FOR ALL IN THIS PUBLIC FORUM. > THE REASON for reading a ng like this is PRECISELY for information such as > a > potential new device that may prove helpful. YET not only do you ASSume > you > police this ng for posting accuracy – which you cannot and WONT by your > own > admission – yet YOU want to retain the self- appointed authority to > determine what is rubbish?   Why you self aggrandizing Hypocritical arse. > The only thing that can help any ng be less informed is having people like > you limiting the public discourse as you have here. > You ASSume I am peddling it – You ASSume wrong. I am a sleep disorder > sufferer as are you and others here. I am OPEN to devices and techniques > that may help. At least I DON’T make a ASSumption that I have the power to > dismiss a device WITHOUT KNOWING ANYTHING ABOUT IT.     Makes me wonder if > you have a similar or competing idea and you want to trash this one so > that > only yours will prevail. Certainly you attempt to do that with new ideas > such as this potential device. > AND AGAIN YOU CLOSED MINDED ARSE – HOW DO YOU KNOW THIS ITEM IS RUBBISH ?? > YOU NEVER LOOKED INTO IT. > wow,  no  I mean WOW. > "Twinkle" <Sl…@last.never> wrote in message > news:q7Jjd.102$sh3.6611@nnrp1.ozemail.com.au… >> "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message >> news:S9GdnSOKuNDBpxLcRVn-sw@comcast.com… >> > LOL  the link is harmless and legitimate … the survey is simple and > may >> > lead to something helpful ( IMHO ) based upon the questions they > asked…. >> > ….AND -IMHO – your saying: "Sleep alarm to stop anything else – self >> > defeating." is simply closed-minded. >> I suffer from, to quote more than one sleep professional medico, the >> worst >> sleep apnea a person can have and still be alive to talk about it. Apart >> from lack of oxygen going to below 60% of a night, I also get less than >> 10 >> minutes REM sleep per night. >> Given the above, a bloody alarm to wake me up to tell me I am not >> sleeping >> correctly, in your opinion, is a GOOD thing? >> Take away sleep disorders and have a person who is just having disturbed >> sleep only for maybe a few days and then returns to normal in the normal > run >> of things. You think an alarm to wake them to tell them they arent > sleeping >> well when they KNOW they arent is a GOOD thing? >> Close minded? No – just open minded enough to know a scam when I hear >> one. >> If you think you are getting away with a scam in here without a comment, > YOU >> are too close minded. >> > I bet some people said nobody would wear a strapped-on apnea mask so >> > why >> > bother making one! >> I doubt it. The Australian who invented CPAP did it out of a perceived > need. >> He didnt ask anyone if they would wear it in the first place. Do you ask >> a >> patient undergoing heart surgery if they REALLY want that anaesthetic? >> > Reminds me of an old cartoon given to sales groups.  The Middle Ages > army >> > commander, heading off to battle, was grabbing his sword as he left his >> > battlefield tent.  His aide tried to get him to stop for a minute to > talk >> > to >> > a salesman. The commander told his aide he had no time for some > salesman’s >> > silly ideas. The salesman was selling machine guns. >> You remind me of an ancient stereotype in American made Western films – > the >> SNAKE OIL salesman! >> "Drink this snake oil and be cured of cancer, cured of all your pains. $1 > a >> bottle! It doesn’t get cheaper! Why look at this stranger here. Did YOU > try >> my Snake Oil? YEAH! I was feeling like a 75 year old before I took it and >> look at me now. I am virile and 30!". >> If you want to peddle rubbish, pick a newsgroup less informed.

Response:

WOW   sorry that in addition to your sleep disorders you are one VERY angry person! First of all – there is NO way I (or anyone else for that matter) could possibly know how bad your disorder is and that you have it worse than all of the rest of us. Second – YOU TOTALLY dismissed the alarm item WITHOUT even looking into what it is or what it does. You admitted that by not wanting to visit the site as you feared it harmful. (and all it was is a survey site with more info on the device and related links) Third- I am NOT telling YOU specifically ANYTHING – which, however YOU DID by dismissing something for everyone as ridiculous – apparently – as if you speak for everyone. You don’t. Fourth – YOUR CLOSED MINDEDNESS is proven as IF you ACTUALLY LOOK INTO it so that you would have SOME IDEA WHAT YOU ARE TALKING ABOUT you will see there are several options and functions NOT ALL OF WHICH ARE DESIGNED TO WAKE YOU UP AT EVERY EPISODE.  ROTFLMFAO – that idea would be absurd. Who would ever think of such a thing – oh yea  YOU DID. Knowing at lease something about an item BEFORE you totally dismiss it for the rest of the world IS A GOOD THING.  (again lmfao) Fifth – A SCAM ???  it is JUST A SURVEY. WOW really I mean WOW you really do think very highly of yourself. You dismiss a NEW ITEM in its DESIGN and PLANNING phase and YOU  ALREADY KNOW it is a scam and a foolish device. I know of a family doctor, who ten years ago, thought all this sleep apnea stuff was a fad. You remind me of him. YET YOU NEVER EVEN LOOKED INTO IT.  You call that Open-minded? You call that a GOOD thing? Sixth – I AM Closed minded?? !! Sorry but REALLY he deserves this by now. YOU ARSE !  YOU WON’T EVEN look into the item and  you completely dismiss it as both foolish and a scam and you call ME closed-minded.  opps   again ROTFLMFAO Seventh – Your analogy on my comment of using the mask is ABSURD and has no connection whatsoever. IN FACT THOUSANDS said they would NEVER wear a headset – A have an older brother who said it – he elected for surgery rather than wear a headset.  ooppss AGAIN lmfao.  So, when you said "I doubt it" … YOU ARE WRONG YET AGAIN.  oh yea, and this ng and the entire realm of sleep disorders is NOT ABOUT YOU. Sorry for that dose of reality. Eighth –  Yes, I am sure whoever "invented the CPAP did so out of a PERCEIVED NEED". again LMFAO – AS ARE THE PEOPLE TRYING TO CREATE THIS NEW ALARM – REPORTING – MONITORING DEVICE.  Do you really think ( I could stop that question right there!) they went to the trouble of having preliminary designs and a LEGITIMATE survey done as they perceive NO NEED?? !!   WOW dude  how could you – being so open minded of course – MISS SO MUCH about this entire issue.  (And YES they do ask about anesthetic as they are required to be certain the patient can handle it and no other of thousands of issues that might be present. They DONT just chuck on some anesthetic because there is a need.) NINTH – this one is MORE AMUSING than the previous eight.  He says "You remind me of an ancient stereotype in American made Western films – the SNAKE OIL salesman!"  First – I have absolutely no connection with the people designing or making that device. I first only saw it the other day as I came into this ng.  Second, again he ASSumes the device is snake oil. Like I said previously, I know a family doctor who said the same of the apnea issue.  Again, this is from the guy who calls me closed-minded and thinks he is open minded. Yet this item is the same as snake-oil -> WHEN HE ADMITTED HE KNOWS NOTHING OF THE ITEM – well, that is beside his totally incorrect first impression that his open mind made with extremely little information. Then he carries this line of NONSENSE to a far reaching extreme. opps AGAIN rotflmfao Tenth –  "If you want to peddle rubbish, pick a newsgroup less informed." OPPS  just have to say it again:   WHAT AN ARSE.  Look  you closed-minded, hypocritical, arrogant, self-righteous, sicker than thou ->  ARSE.  ….. YOU ARE NOT SPEAKING FOR ALL IN THIS PUBLIC FORUM. THE REASON for reading a ng like this is PRECISELY for information such as a potential new device that may prove helpful. YET not only do you ASSume you police this ng for posting accuracy – which you cannot and WONT by your own admission – yet YOU want to retain the self- appointed authority to determine what is rubbish?   Why you self aggrandizing Hypocritical arse. The only thing that can help any ng be less informed is having people like you limiting the public discourse as you have here. You ASSume I am peddling it – You ASSume wrong. I am a sleep disorder sufferer as are you and others here. I am OPEN to devices and techniques that may help. At least I DON’T make a ASSumption that I have the power to dismiss a device WITHOUT KNOWING ANYTHING ABOUT IT.     Makes me wonder if you have a similar or competing idea and you want to trash this one so that only yours will prevail. Certainly you attempt to do that with new ideas such as this potential device. AND AGAIN YOU CLOSED MINDED ARSE – HOW DO YOU KNOW THIS ITEM IS RUBBISH ?? YOU NEVER LOOKED INTO IT. wow,  no  I mean WOW. "Twinkle" <Sl…@last.never> wrote in message

news:q7Jjd.102$sh3.6611@nnrp1.ozemail.com.au… – Hide quoted text — Show quoted text -> "MBankaT" <MBankaT@Lost&MapLess.net> wrote in message > news:S9GdnSOKuNDBpxLcRVn-sw@comcast.com… > > LOL  the link is harmless and legitimate … the survey is simple and may > > lead to something helpful ( IMHO ) based upon the questions they asked…. > > ….AND -IMHO – your saying: "Sleep alarm to stop anything else – self > > defeating." is simply closed-minded. > I suffer from, to quote more than one sleep professional medico, the worst > sleep apnea a person can have and still be alive to talk about it. Apart > from lack of oxygen going to below 60% of a night, I also get less than 10 > minutes REM sleep per night. > Given the above, a bloody alarm to wake me up to tell me I am not sleeping > correctly, in your opinion, is a GOOD thing? > Take away sleep disorders and have a person who is just having disturbed > sleep only for maybe a few days and then returns to normal in the normal run > of things. You think an alarm to wake them to tell them they arent sleeping > well when they KNOW they arent is a GOOD thing? > Close minded? No – just open minded enough to know a scam when I hear one. > If you think you are getting away with a scam in here without a comment, YOU > are too close minded. > > I bet some people said nobody would wear a strapped-on apnea mask so why > > bother making one! > I doubt it. The Australian who invented CPAP did it out of a perceived need. > He didnt ask anyone if they would wear it in the first place. Do you ask a > patient undergoing heart surgery if they REALLY want that anaesthetic? > > Reminds me of an old cartoon given to sales groups.  The Middle Ages army > > commander, heading off to battle, was grabbing his sword as he left his > > battlefield tent.  His aide tried to get him to stop for a minute to talk > > to > > a salesman. The commander told his aide he had no time for some salesman’s > > silly ideas. The salesman was selling machine guns. > You remind me of an ancient stereotype in American made Western films – the > SNAKE OIL salesman! > "Drink this snake oil and be cured of cancer, cured of all your pains. $1 a > bottle! It doesn’t get cheaper! Why look at this stranger here. Did YOU try > my Snake Oil? YEAH! I was feeling like a 75 year old before I took it and > look at me now. I am virile and 30!". > If you want to peddle rubbish, pick a newsgroup less informed.

Response:

Dear Sleep Forum members, A few colleagues and myself are undertaking a feasibility analysis for a new alarm system that we are developing, and we would like to request your input on it. We have created a very short survey that will provide us some valuable information about your sleeping and waking patterns,and some feedback on our new alarm, which will be further described in the middle of the survey.          http://www.surveymonkey.com/s.asp?u=55077696029 The alarm is currently not intended for any specific sleep disorder, and we did not place too much information on the science behind it, in order not to overwhelm or bias the survey.  However, if you have any questions about it, suggestions, or comments, please do include them at the end of the survey or feel free to email me directly.  We are at the early stages of development, and any and all feedback would be greatly appreciated. The survey is very short, and should take you about 5 minutes to complete.  Of course, all your data will only be used for the purpose of our feasibility analysis, and we will not ask for any information that will identify you personally.  Please feel free to forward and post this message to anyone or group you think would be interested in such an alarm.         http://www.surveymonkey.com/s.asp?u=55077696029 Thank you in advance for your time and answers, Walid Soussou

Response:

"Walid Soussou" <aliens…@yahoo.com> wrote in message

news:50bd9c26.0411031403.21acb62d@posting.google.com… > Dear Sleep Forum members, > A few colleagues and myself are undertaking a feasibility analysis for > a new alarm system that we are developing, and we would like to

Not going to click on a link that may be trouble SO I will answer this way: Sleep alarm to stop SIDS happening – good. Sleep alarm to stop anything else – self defeating.

Response:

LOL  the link is harmless and legitimate … the survey is simple and may lead to something helpful ( IMHO ) based upon the questions they asked…. ….AND -IMHO – your saying: "Sleep alarm to stop anything else – self defeating." is simply closed-minded. I bet some people said nobody would wear a strapped-on apnea mask so why bother making one! Reminds me of an old cartoon given to sales groups.  The Middle Ages army commander, heading off to battle, was grabbing his sword as he left his battlefield tent.  His aide tried to get him to stop for a minute to talk to a salesman. The commander told his aide he had no time for some salesman’s silly ideas. The salesman was selling machine guns. Mbankat "Twinkle" <Sl…@last.never> wrote in message

news:Vanid.87$At6.4326@nnrp1.ozemail.com.au… – Hide quoted text — Show quoted text -> "Walid Soussou" <aliens…@yahoo.com> wrote in message > news:50bd9c26.0411031403.21acb62d@posting.google.com… > > Dear Sleep Forum members, > > A few colleagues and myself are undertaking a feasibility analysis for > > a new alarm system that we are developing, and we would like to > Not going to click on a link that may be trouble SO I will answer this way: > Sleep alarm to stop SIDS happening – good. > Sleep alarm to stop anything else – self defeating.

Response:

"MBankaT" <MBankaT@Lost&MapLess.net> wrote in message

news:S9GdnSOKuNDBpxLcRVn-sw@comcast.com… > LOL  the link is harmless and legitimate … the survey is simple and may > lead to something helpful ( IMHO ) based upon the questions they asked…. > ….AND -IMHO – your saying: "Sleep alarm to stop anything else – self > defeating." is simply closed-minded.

I suffer from, to quote more than one sleep professional medico, the worst sleep apnea a person can have and still be alive to talk about it. Apart from lack of oxygen going to below 60% of a night, I also get less than 10 minutes REM sleep per night. Given the above, a bloody alarm to wake me up to tell me I am not sleeping correctly, in your opinion, is a GOOD thing? Take away sleep disorders and have a person who is just having disturbed sleep only for maybe a few days and then returns to normal in the normal run of things. You think an alarm to wake them to tell them they arent sleeping well when they KNOW they arent is a GOOD thing? Close minded? No – just open minded enough to know a scam when I hear one. If you think you are getting away with a scam in here without a comment, YOU are too close minded. > I bet some people said nobody would wear a strapped-on apnea mask so why > bother making one!

I doubt it. The Australian who invented CPAP did it out of a perceived need. He didnt ask anyone if they would wear it in the first place. Do you ask a patient undergoing heart surgery if they REALLY want that anaesthetic? > Reminds me of an old cartoon given to sales groups.  The Middle Ages army > commander, heading off to battle, was grabbing his sword as he left his > battlefield tent.  His aide tried to get him to stop for a minute to talk > to > a salesman. The commander told his aide he had no time for some salesman’s > silly ideas. The salesman was selling machine guns.

You remind me of an ancient stereotype in American made Western films – the SNAKE OIL salesman! "Drink this snake oil and be cured of cancer, cured of all your pains. $1 a bottle! It doesn’t get cheaper! Why look at this stranger here. Did YOU try my Snake Oil? YEAH! I was feeling like a 75 year old before I took it and look at me now. I am virile and 30!". If you want to peddle rubbish, pick a newsgroup less informed.

Response:

Old member – new poster

Question:

Go for it Dwight!  But if you decide to do both types of interferon at the same time, they’ll kick you out of the clinical trial if you tell them that’s what you did.  Stick with the daily Infergen, it’s an ass-kicker without the PEG.  You can always use the PEG if you don’t feel up to the daily Infergen.  Best of luck, bud! Elmo ///////// Elmo, I’ve thought about your third round of tx a lot the last few days. I’ve still got 6 months of Peg left and will have a new script for the infergen. Think I’m going to try for the trial and see if I can get in. Dwight elmoemer…@webtv.net wrote:

I’m certain your doc would never recommend doing both types of interferon at the same time. Mine wouldn’t have either. I just happened to have a script for both and when I told the gal (a nurse practitioner) that was treating me what I’d done, she got pissed off. No health care provider in their right mind would suggest it, I put my life on the line by doing it. But I made it through and am still alive today and it appears I’m still without virus. Daily Infergen and riba are my suggestion for as long as you can stand it, then Pegasys and riba. I’ll bet my next set of blues on it. Good luck to you, Carey! Elmo ///////////// Elmo: Congratulations on your success. I hope you remain undetectable for months, if not years, ahead. From the therapy regime you talked about, you indeed fought the "Thing" with a vengence. Taking both Infergen, Riba, and PEG simutaneously is something to behold, as well as something to be said about. I don’t know if I could do that much at one time. I have a doc appointment in a couple of weeks. I will ask him about the same regime. Thanks for the suggestion. Carey elmoemer…@webtv.net wrote in message

<news:8844-4179471E-361@storefull-3253.bay.webtv.net>… Welcome, Carey!! Thanks for relating you story and recommendations. Your experience with the 3 X week shots and riba were the same as mine…..afer 6 months my viral load rebounded while still taking the meds. My second round of tx involved weekly shots of Scherring’s form of PEG and riba. I cleared the virus at about the 16th week but relapsed as soon as I came off tx. My third round consisted of taking daily shots of Infergen, Amantadine and 1400mg of riba. For a period of two weeks, I did both daily Infergen and Roche’s weekly shot of PEG. When I couldn’t handle it anymore, I did the weekly shots of PEG and reduced my riba to 1200mg. I went undetectable in my 7th week of tx and remained that way til I had completed 11 months of therapy. One month after finishing all the meds, I was still undetectable. You might consider daily Infergen and riba. It seems to have worked for me. Regards, Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile — Dwight Dragon Slayers’ Club: http://geocities.com/dwightmspage/ http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

"Carey" <ch…@yahoo.com> wrote in message

news:cef45b25.0410232023.5436efc4@posting.google.com… > Thomas Wagner <t…@capecod.com> wrote in message

<news:ceqin0tqq655f78achrrpkcje81gd22g6f@4ax.com>… – Hide quoted text — Show quoted text -> > On 21 Oct 2004 23:18:12 -0700, ch…@yahoo.com (Carey) wrote: > > >I have been off all treatments now for nearly three years. I have read > > >a lot of PEG, but I don’t feel it will do any good. Tho it is a time > > >release form with the interferon attached to a molecule of glycol > > >(antifreeze for those not in the know), > > It’s not really antifreeze. Different molecular structure. But you can > > use it "to stabilize green wood to keep it from cracking, splitting and > > shrinking"… > > >I didn’t feel using the same > > >drugs regardless of what matrix it was in would do me any good. > > >However, after some research, I am beginning to change my mind. Any > > >suggestions from those with 1A? Has there really been recession or > > >total clearance? Your advice would be greatly appreciated. > > I’ve had similar experiences with the old interferon. I went through > > monotherapy (no response), then standard interferon combo. I cleared, > > but then relapsed within days after end of treatment. Then I went on > > PEG-combo, and cleared for good (over a year now), even though my > > treatment was cut short by a thyroid problem. It probably wasn’t just > > the different form of interferon, but also that I could mostly stick to > > the normal dose with the help of Procrit and Neupogen. In the previous > > treatment, I was on reduced dose for most of the time because those meds > > weren’t available, and my red and white blood cells got dangerously low. > > So there you have it – a success story (genotype 1). > > Thomas > Thomas: > WOW!!!! Good to hear. I think I will do the PEG. At least for 6 > months. There is a saying in the local community that if you don’t > respond within 6 months, you won’t respond by going any further with > it. > Yup, I am going to do it. I did it twice before, i can do it again. > Come on Dragon, show me your teeth.

Hi Carey, I think you can get a pretty good idea after 12 weeks if the Evil Drugs are gonna work. Good luck to you. Waterspider

Response:

"Thomas Wagner" <t…@capecod.com> wrote in message

news:ceqin0tqq655f78achrrpkcje81gd22g6f@4ax.com… – Hide quoted text — Show quoted text -> On 21 Oct 2004 23:18:12 -0700, ch…@yahoo.com (Carey) wrote: > >I have been off all treatments now for nearly three years. I have read > >a lot of PEG, but I don’t feel it will do any good. Tho it is a time > >release form with the interferon attached to a molecule of glycol > >(antifreeze for those not in the know), > It’s not really antifreeze. Different molecular structure. But you can > use it "to stabilize green wood to keep it from cracking, splitting and > shrinking"… > >I didn’t feel using the same > >drugs regardless of what matrix it was in would do me any good. > >However, after some research, I am beginning to change my mind. Any > >suggestions from those with 1A? Has there really been recession or > >total clearance? Your advice would be greatly appreciated. > I’ve had similar experiences with the old interferon. I went through > monotherapy (no response), then standard interferon combo. I cleared, > but then relapsed within days after end of treatment. Then I went on > PEG-combo, and cleared for good (over a year now), even though my > treatment was cut short by a thyroid problem. It probably wasn’t just > the different form of interferon, but also that I could mostly stick to > the normal dose with the help of Procrit and Neupogen. In the previous > treatment, I was on reduced dose for most of the time because those meds > weren’t available, and my red and white blood cells got dangerously low. > So there you have it – a success story (genotype 1). > Thomas

Hm. Well, congratulations, Thomas. I had no idea you’d had such a bitch of a time killing the dragon. Explains why you’re so knowledgeable about it though. Waterspider

Response:

Elmo, I’ve thought about your third round of tx a lot the last few days.   I’ve still got 6 months of Peg left and will have a new script for the infergen.  Think I’m going to try for the trial and see if I can get in. Dwight – Hide quoted text — Show quoted text -elmoemer…@webtv.net wrote: > I’m certain your doc would never recommend doing both types of > interferon at the same time.  Mine wouldn’t have either.  I just > happened to have a script for both and when I told the gal (a nurse > practitioner) that was treating me what I’d done, she got pissed off. > No health care provider in their right mind would suggest it, I put my > life on the line by doing it.  But I made it through and am still alive > today and it appears I’m still without virus.  Daily Infergen and riba > are my suggestion for as long as you can stand it, then Pegasys and > riba.  I’ll bet my next set of blues on it.  Good luck to you, Carey!   > Elmo > /////////////   > Elmo: > Congratulations on your success. I hope you remain undetectable for > months, if not years, ahead. > From the therapy regime you talked about, you indeed fought the "Thing" > with a vengence. Taking both Infergen, Riba, and PEG simutaneously is > something to behold, as well as something to be said about. I don’t know > if I could do that much at one time. I have a doc appointment in a > couple of weeks. I will ask him about the same regime. Thanks for the > suggestion. > Carey > elmoemer…@webtv.net wrote in message > <news:8844-4179471E-361@storefull-3253.bay.webtv.net>… > Welcome, Carey!! Thanks for relating you story and recommendations. Your > experience with the 3 X week shots and riba were the same as > mine…..afer 6 months my viral load rebounded while still taking the > meds. My second round of tx involved weekly shots of Scherring’s form of > PEG and riba. I cleared the virus at about the 16th week but relapsed as > soon as I came off tx. My third round consisted of taking daily shots of > Infergen, Amantadine and 1400mg of riba. For a period of two weeks, I > did both daily Infergen and Roche’s weekly shot of PEG. When I couldn’t > handle it anymore, I did the weekly shots of PEG and reduced my riba to > 1200mg. I went undetectable in my 7th week of tx and remained that way > til I had completed 11 months of therapy. One month after finishing all > the meds, I was still undetectable. You might consider daily Infergen > and riba. It seems to have worked for me. Regards, > Elmo > http://community.webtv.net/elmoemerson/DocElmosHepFile

– Dwight Dragon Slayers’ Club:  http://geocities.com/dwightmspage/

Response:

I’m certain your doc would never recommend doing both types of interferon at the same time.  Mine wouldn’t have either.  I just happened to have a script for both and when I told the gal (a nurse practitioner) that was treating me what I’d done, she got pissed off. No health care provider in their right mind would suggest it, I put my life on the line by doing it.  But I made it through and am still alive today and it appears I’m still without virus.  Daily Infergen and riba are my suggestion for as long as you can stand it, then Pegasys and riba.  I’ll bet my next set of blues on it.  Good luck to you, Carey!   Elmo /////////////   Elmo: Congratulations on your success. I hope you remain undetectable for months, if not years, ahead. From the therapy regime you talked about, you indeed fought the "Thing" with a vengence. Taking both Infergen, Riba, and PEG simutaneously is something to behold, as well as something to be said about. I don’t know if I could do that much at one time. I have a doc appointment in a couple of weeks. I will ask him about the same regime. Thanks for the suggestion. Carey elmoemer…@webtv.net wrote in message

<news:8844-4179471E-361@storefull-3253.bay.webtv.net>… Welcome, Carey!! Thanks for relating you story and recommendations. Your experience with the 3 X week shots and riba were the same as mine…..afer 6 months my viral load rebounded while still taking the meds. My second round of tx involved weekly shots of Scherring’s form of PEG and riba. I cleared the virus at about the 16th week but relapsed as soon as I came off tx. My third round consisted of taking daily shots of Infergen, Amantadine and 1400mg of riba. For a period of two weeks, I did both daily Infergen and Roche’s weekly shot of PEG. When I couldn’t handle it anymore, I did the weekly shots of PEG and reduced my riba to 1200mg. I went undetectable in my 7th week of tx and remained that way til I had completed 11 months of therapy. One month after finishing all the meds, I was still undetectable. You might consider daily Infergen and riba. It seems to have worked for me. Regards, Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile

Response:

Elmo: Congratulations on your success. I hope you remain undetectable for months, if not years, ahead. From the therapy regime you talked about, you indeed fought the "Thing" with a vengence. Taking both Infergen, Riba, and PEG simutaneously is something to behold, as well as something to be said about. I don’t know if I could do that much at one time. I have a doc appointment in a couple of weeks. I will ask him about the same regime. Thanks for the suggestion. Carey – Hide quoted text — Show quoted text -elmoemer…@webtv.net wrote in message <news:8844-4179471E-361@storefull-3253.bay.webtv.net>… > Welcome, Carey!!  Thanks for relating you story and recommendations. > Your experience with the 3 X week shots and riba were the same as > mine…..afer 6 months my viral load rebounded while still taking the > meds.  My second round of tx involved weekly shots of Scherring’s form > of PEG and riba.  I cleared the virus at about the 16th week but > relapsed as soon as I came off tx.  My third round consisted of taking > daily shots of Infergen, Amantadine and 1400mg of riba.  For a period of > two weeks, I did both daily Infergen and Roche’s weekly shot of PEG. > When I couldn’t handle it anymore, I did the weekly shots of PEG and > reduced my riba to 1200mg.  I went undetectable in my 7th week of tx and > remained that way til I had completed 11 months of therapy.  One month > after finishing all the meds, I was still undetectable.   > You might consider daily Infergen and riba.  It seems to have worked for > me.  Regards, > Elmo > http://community.webtv.net/elmoemerson/DocElmosHepFile

Response:

I have been on many newsgroups and forums over the last 10 years. But, after the first group, I was confronted with whiners who wanted to know more about their ailment. I had spent a year doing research and learned a lot about the immune system and blood diseases. I am not an expert by any means, but I have lerned a lot over time. I am persistent in keeping the dragon at bay knowing my immune system cannot beat the "Thing". So, I just cope and await new treatments to come out. So, let me introduce myself: I am a long term, chronic HCV patient. I was diagnosed when the "Thing" was called Non-A Non-B. Having no basis from which to do any decent research on, there was little literature on the subject. After the initial CBC showed elevated AlTs and ASTs, at around a couple of thousands, it was not serious enough in my mind to go through unknown territory of Interferon treatment. So, I waited. My BX showed me as Class 2 fibrosis and Class 1 Cirrhrosis. In those days it was a qualtative tests, RIBA 1 and Riba 2 that showed you had the virus. But, it did not show what kind. As testing became more elaborate and better, finally the PCR came out. In those days it was just a qualitative test. Now that is also a quantativie test, it is much better to keep progress. I have Genotype 1A. For those not in the know, 1A is the worse of all the genotypes and the most prevalent in the USA. So, after learning what I really had, and what I was up against, the only treatment available at that time was Interferon 1A by Schering-Plouhg. We use to have have to mix our own with a powder and water and then subcutaneous injections three times a week. That went on for a year. No response. About that time, the pharm. came up with a premixed verson in a vial in combination with Ribavirin. I did that for a year, three times a week. At first there was a dramatic response, but after 6 months, the count returned to its regular level. But, since the time period of the treatment was still beig investigated, I was on it for a year. So, for two years in a row, I kept up the fight with no response. Needless to say, I was nothing but skin and bones after two years. You loose a lot of protein and muscle tone. I lost a lot of weight, but still active in my favorite sports of kayaking and rafting. I have been off all treatments now for nearly three years. I have read a lot of PEG, but I don’t feel it will do any good. Tho it is a time release form with the interferon attached to a molecule of glycol (antifreeze for those not in the know), I didn’t feel using the same drugs regardless of what matrix it was in would do me any good. However, after some research, I am beginning to change my mind. Any suggestions from those with 1A? Has there really been recession or total clearance? Your advice would be greatly appreciated. For those who are just starting out on treatment whether it be mono-therapy or combo, or the PEG, here is some advice I learned in how to control those awful side affects: 1.    DRINK LOTS OF WATER. ABOUT THREE LITERS A DAY. SURPRISING ENOUGH, BUT LOTS OF WATER REALLY MAKES YOU FEEL BETTER. 2.   TAKE ADVIL (IBUPROHEN) RIGHT AFTER THE INJECTIONS. IT WILL HELP YOU SLEEP THROUGH THE SIDE AFFECTS OF JOINT AND MUSCLE PAIN. 3.   EAT NORMALLY. THAT IS, EAT NUTRITIOUS MEALS. AND MAKE SURE YOU EAT FOOD WITH PROTEIN SUCH AS STEAK OR CHICKEN. I AM NOT MUCH OF BEEF EATER, SO I ATE A LOT OF CHICKEN. 4.    THIS IS JUST MY PERSONAL OPINION, BUT STAY AWAY FROM ALL THE IMMUNE SUPPLEMENTS. YOU HAVE NO IDEA WHAT IS REALLY IN THEM. AND THEY HAVE THE POTENTIAL OF CAUSING MORE HARM THAN GOOD. 5.    THIS IS NEEDLESS TO SAY, BUT STOP THE ALCOHOL CONSUMPTION. I MEAN, STOP IT RIGHT NOW. ALCOHOL METABOLIZES IN THE LIVER AND CAUSES NECROSIS. YOUR LIVER IS ALREADY COMPROMISED WITH THE HCV, SO WHY MAKE IT WORSE. TAKE CARE OF YOUR LIVER AND IT WILL TAKE CARE OF YOU. 6.    ALSO, ABSTAIN FROM CAFFIENE. IT ALSO METABOLIZES IN THE LIVER. THIS WAS THE HARDEST ONE TO STOP. IT TOOk AWHILE, BUT I DID IT. I REALLY DID HATE GIVING UP MY CUP OF "MUD" EACH MORNING, BUT I DID IT. I WAS THOROUGHLY SURPIRSED HOW MUCH OF COLAS AND OTHER SHELF PRODUCTS CONTAIN CAFFIENE. EVEN CHOCOLATE. BELIEVE IT OR NOT, BUT CHOCOLATE HAS THE HIGHEST CONTENT OF CAFFIENE THAN MOST SOFT DRINKS. 7.    FOR THOSE WONDERING IF HCV HAS ANY AFFECT ON THE PEREPHIAL NERVOUS SYSTEM, I BELIEVE IT DOES. I HAVE PLMD (MYOCLONIC JERKS). ALL MY RESEARCH, INCLUDING MY NEUROLOGIST’S, HAVE ESTABLISHED THAT THERE IS A LINK BETWEEN THE PERIPHEAL NERVIOUS SYSTEM AND CHRONIC HCV. I HAVE BEEN TAKEN CLONOPIN FOR THE PLMD. SOMETIMES IT WORKS….SOMETIMES IT DOESN’T. 8.   AND LAST, NEVER GIVE UP HOPE. HOPE IS ALL YOU HAVE. IF YOU BELIEVE IN A SUPREME BEING, I SUGGEST YOU ASK FOR HIS/HER ASSISTANCE. HOPE AND PRAYER GOES A LONG WAY WITH YOUR MENTAL STATE. AND WHEN THE MENTAL STATE IS IN GOOD SHAPE, THE BODY FOLLOWS. I USE TRANSCENDTAL MEDITATION. SEEMS TO WORK FOR ME. Well, I didn’t mean to make this introduction into a thesis, but I did want to introduce myself as someone YOU can ask dumb questions and, hopefully, I can respond with an intelligent, concise, and coherrent answer. There is a frontier saying: Sometimes the bare gets you….sometimes you get the bare. (bare = bear). I believe, in time, we all will get the bear if we don’t give up hope and take care of our bodies. Hope to hear from ya’ soon. If not, good luck and god bless you in your search for a full recovery. Carey

Response:

Paul: Thank you for your welcome to the group. I have not shown any outward symptoms (knock on wood). Other than the PLMD, all outward signs are normal. However, my last BX showed "bridging" of the Biliaries which means the viens inside the liver that carry bile are starting to clog up with scar tissue. It is a very slow process, so I don’t expect to see my stool or skin change color until a few years from now. Pale while stools indicates the lack of bile, and yellowish skin and eyes (the whites of the eyes) indicates bile is building up close to the skin (jaundice). The liver is an amazing organ. As the largest internal organ, and the only multi-functional organ, it can also regenerate itself if it is given a chance. The caveat is……..the "THING" keeps attacking the cells and your entire immune system is always fighting. That is why a lot of HCV sufferers catch colds and flues easily. Again, thanks for the welcome and hope we can continue communicating. Carey – Hide quoted text — Show quoted text -"Paul2" <emperor…@nospam.rogers.com> wrote in message <news:av6dne6VvNkrdOXcRVn-pQ@rogers.com>… > Hey Carey: Thanks for the introduction. > You’ve obviously taken your infection with HCV and learned a great deal. > I look forward to reading your posts in the future. > At present are you symptomatic at all? I always ask people I meet with HepC > this. Mainly because for years I’ve been so sick and tired that I like to > know the percentage of others who battle this "thing" in like fashion. > Anyway, have a great day and thanks again. > Paul2(as in "as well") > "Carey" <ch…@yahoo.com> wrote in message > news:cef45b25.0410212218.42b61143@posting.google.com… > > I have been on many newsgroups and forums over the last 10 years. But, > > after the first group, I was confronted with whiners who wanted to > > know more about their ailment. I had spent a year doing research and > > learned a lot about the immune system and blood diseases. I am not an > > expert by any means, but I have lerned a lot over time. I am > > persistent in keeping the dragon at bay knowing my immune system > > cannot beat the "Thing". So, I just cope and await new treatments to > > come out. > > So, let me introduce myself: > > I am a long term, chronic HCV patient. I was diagnosed when the > > "Thing" was called Non-A Non-B. Having no basis from which to do any > > decent research on, there was little literature on the subject. After > > the initial CBC showed elevated AlTs and ASTs, at around a couple of > > thousands, it was not serious enough in my mind to go through unknown > > territory of Interferon treatment. So, I waited. My BX showed me as > > Class 2 fibrosis and Class 1 Cirrhrosis. In those days it was a > > qualtative tests, RIBA 1 and Riba 2 that showed you had the virus. > > But, it did not show what kind. > > As testing became more elaborate and better, finally the PCR came out. > > In those days it was just a qualitative test. Now that is also a > > quantativie test, it is much better to keep progress. I have Genotype > > 1A. For those not in the know, 1A is the worse of all the genotypes > > and the most prevalent in the USA. > > So, after learning what I really had, and what I was up against, the > > only treatment available at that time was Interferon 1A by > > Schering-Plouhg. We use to have have to mix our own with a powder and > > water and then subcutaneous injections three times a week. That went > > on for a year. > > No response. > > About that time, the pharm. came up with a premixed verson in a vial > > in combination with Ribavirin. I did that for a year, three times a > > week. > > At first there was a dramatic response, but after 6 months, the count > > returned to its regular level. But, since the time period of the > > treatment was still beig investigated, I was on it for a year. So, for > > two years in a row, I kept up the fight with no response. > > Needless to say, I was nothing but skin and bones after two years. You > > loose a lot of protein and muscle tone. I lost a lot of weight, but > > still active in my favorite sports of kayaking and rafting. > > I have been off all treatments now for nearly three years. I have read > > a lot of PEG, but I don’t feel it will do any good. Tho it is a time > > release form with the interferon attached to a molecule of glycol > > (antifreeze for those not in the know), I didn’t feel using the same > > drugs regardless of what matrix it was in would do me any good. > > However, after some research, I am beginning to change my mind. Any > > suggestions from those with 1A? Has there really been recession or > > total clearance? Your advice would be greatly appreciated. > > For those who are just starting out on treatment whether it be > > mono-therapy or combo, or the PEG, here is some advice I learned in > > how to control those awful side affects: > > 1.    DRINK LOTS OF WATER. ABOUT THREE LITERS A DAY. SURPRISING > > ENOUGH, BUT LOTS OF WATER REALLY MAKES YOU FEEL BETTER. > > 2.   TAKE ADVIL (IBUPROHEN) RIGHT AFTER THE INJECTIONS. IT WILL HELP > > YOU SLEEP THROUGH THE SIDE AFFECTS OF JOINT AND MUSCLE PAIN. > > 3.   EAT NORMALLY. THAT IS, EAT NUTRITIOUS MEALS. AND MAKE SURE YOU > > EAT FOOD WITH PROTEIN SUCH AS STEAK OR CHICKEN. I AM NOT MUCH OF BEEF > > EATER, SO I ATE A LOT OF CHICKEN. > > 4.    THIS IS JUST MY PERSONAL OPINION, BUT STAY AWAY FROM ALL THE > > IMMUNE SUPPLEMENTS. YOU HAVE NO IDEA WHAT IS REALLY IN THEM. AND THEY > > HAVE THE POTENTIAL OF CAUSING MORE HARM THAN GOOD. > > 5.    THIS IS NEEDLESS TO SAY, BUT STOP THE ALCOHOL CONSUMPTION. I > > MEAN, STOP IT RIGHT NOW. ALCOHOL METABOLIZES IN THE LIVER AND CAUSES > > NECROSIS. YOUR LIVER IS ALREADY COMPROMISED WITH THE HCV, SO WHY MAKE > > IT WORSE. TAKE CARE OF YOUR LIVER AND IT WILL TAKE CARE OF YOU. > > 6.    ALSO, ABSTAIN FROM CAFFIENE. IT ALSO METABOLIZES IN THE LIVER. > > THIS WAS THE HARDEST ONE TO STOP. IT TOOk AWHILE, BUT I DID IT. I > > REALLY DID HATE GIVING UP MY CUP OF "MUD" EACH MORNING, BUT I DID IT. > > I WAS THOROUGHLY SURPIRSED HOW MUCH OF COLAS AND OTHER SHELF PRODUCTS > > CONTAIN CAFFIENE. EVEN CHOCOLATE. BELIEVE IT OR NOT, BUT CHOCOLATE HAS > > THE HIGHEST CONTENT OF CAFFIENE THAN MOST SOFT DRINKS. > > 7.    FOR THOSE WONDERING IF HCV HAS ANY AFFECT ON THE PEREPHIAL > > NERVOUS SYSTEM, I BELIEVE IT DOES. I HAVE PLMD (MYOCLONIC JERKS). ALL > > MY RESEARCH, INCLUDING MY NEUROLOGIST’S, HAVE ESTABLISHED THAT THERE > > IS A LINK BETWEEN THE PERIPHEAL NERVIOUS SYSTEM AND CHRONIC HCV. I > > HAVE BEEN TAKEN CLONOPIN FOR THE PLMD. SOMETIMES IT WORKS….SOMETIMES > > IT DOESN’T. > > 8.   AND LAST, NEVER GIVE UP HOPE. HOPE IS ALL YOU HAVE. IF YOU > > BELIEVE IN A SUPREME BEING, I SUGGEST YOU ASK FOR HIS/HER ASSISTANCE. > > HOPE AND PRAYER GOES A LONG WAY WITH YOUR MENTAL STATE. AND WHEN THE > > MENTAL STATE IS IN GOOD SHAPE, THE BODY FOLLOWS. I USE TRANSCENDTAL > > MEDITATION. SEEMS TO WORK FOR ME. > > Well, I didn’t mean to make this introduction into a thesis, but I did > > want to introduce myself as someone YOU can ask dumb questions and, > > hopefully, I can respond with an intelligent, concise, and coherrent > > answer. > > There is a frontier saying: Sometimes the bare gets you….sometimes > > you get the bare. (bare = bear). I believe, in time, we all will get > > the bear if we don’t give up hope and take care of our bodies. > > Hope to hear from ya’ soon. If not, good luck and god bless you in > > your search for a full recovery. > > Carey

Response:

On 21 Oct 2004 23:18:12 -0700, ch…@yahoo.com (Carey) wrote: >I have been off all treatments now for nearly three years. I have read >a lot of PEG, but I don’t feel it will do any good. Tho it is a time >release form with the interferon attached to a molecule of glycol >(antifreeze for those not in the know),

It’s not really antifreeze. Different molecular structure. But you can use it "to stabilize green wood to keep it from cracking, splitting and shrinking"… >I didn’t feel using the same >drugs regardless of what matrix it was in would do me any good. >However, after some research, I am beginning to change my mind. Any >suggestions from those with 1A? Has there really been recession or >total clearance? Your advice would be greatly appreciated.

I’ve had similar experiences with the old interferon. I went through monotherapy (no response), then standard interferon combo. I cleared, but then relapsed within days after end of treatment. Then I went on PEG-combo, and cleared for good (over a year now), even though my treatment was cut short by a thyroid problem. It probably wasn’t just the different form of interferon, but also that I could mostly stick to the normal dose with the help of Procrit and Neupogen. In the previous treatment, I was on reduced dose for most of the time because those meds weren’t available, and my red and white blood cells got dangerously low. So there you have it – a success story (genotype 1). Thomas — To reach me, complete my last name in the address.

Response:

Welcome, Carey!!  Thanks for relating you story and recommendations. Your experience with the 3 X week shots and riba were the same as mine…..afer 6 months my viral load rebounded while still taking the meds.  My second round of tx involved weekly shots of Scherring’s form of PEG and riba.  I cleared the virus at about the 16th week but relapsed as soon as I came off tx.  My third round consisted of taking daily shots of Infergen, Amantadine and 1400mg of riba.  For a period of two weeks, I did both daily Infergen and Roche’s weekly shot of PEG. When I couldn’t handle it anymore, I did the weekly shots of PEG and reduced my riba to 1200mg.  I went undetectable in my 7th week of tx and remained that way til I had completed 11 months of therapy.  One month after finishing all the meds, I was still undetectable.   You might consider daily Infergen and riba.  It seems to have worked for me.  Regards, Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile

Response:

Hey Carey: Thanks for the introduction. You’ve obviously taken your infection with HCV and learned a great deal. I look forward to reading your posts in the future. At present are you symptomatic at all? I always ask people I meet with HepC this. Mainly because for years I’ve been so sick and tired that I like to know the percentage of others who battle this "thing" in like fashion. Anyway, have a great day and thanks again. Paul2(as in "as well") "Carey" <ch…@yahoo.com> wrote in message

news:cef45b25.0410212218.42b61143@posting.google.com… – Hide quoted text — Show quoted text -> I have been on many newsgroups and forums over the last 10 years. But, > after the first group, I was confronted with whiners who wanted to > know more about their ailment. I had spent a year doing research and > learned a lot about the immune system and blood diseases. I am not an > expert by any means, but I have lerned a lot over time. I am > persistent in keeping the dragon at bay knowing my immune system > cannot beat the "Thing". So, I just cope and await new treatments to > come out. > So, let me introduce myself: > I am a long term, chronic HCV patient. I was diagnosed when the > "Thing" was called Non-A Non-B. Having no basis from which to do any > decent research on, there was little literature on the subject. After > the initial CBC showed elevated AlTs and ASTs, at around a couple of > thousands, it was not serious enough in my mind to go through unknown > territory of Interferon treatment. So, I waited. My BX showed me as > Class 2 fibrosis and Class 1 Cirrhrosis. In those days it was a > qualtative tests, RIBA 1 and Riba 2 that showed you had the virus. > But, it did not show what kind. > As testing became more elaborate and better, finally the PCR came out. > In those days it was just a qualitative test. Now that is also a > quantativie test, it is much better to keep progress. I have Genotype > 1A. For those not in the know, 1A is the worse of all the genotypes > and the most prevalent in the USA. > So, after learning what I really had, and what I was up against, the > only treatment available at that time was Interferon 1A by > Schering-Plouhg. We use to have have to mix our own with a powder and > water and then subcutaneous injections three times a week. That went > on for a year. > No response. > About that time, the pharm. came up with a premixed verson in a vial > in combination with Ribavirin. I did that for a year, three times a > week. > At first there was a dramatic response, but after 6 months, the count > returned to its regular level. But, since the time period of the > treatment was still beig investigated, I was on it for a year. So, for > two years in a row, I kept up the fight with no response. > Needless to say, I was nothing but skin and bones after two years. You > loose a lot of protein and muscle tone. I lost a lot of weight, but > still active in my favorite sports of kayaking and rafting. > I have been off all treatments now for nearly three years. I have read > a lot of PEG, but I don’t feel it will do any good. Tho it is a time > release form with the interferon attached to a molecule of glycol > (antifreeze for those not in the know), I didn’t feel using the same > drugs regardless of what matrix it was in would do me any good. > However, after some research, I am beginning to change my mind. Any > suggestions from those with 1A? Has there really been recession or > total clearance? Your advice would be greatly appreciated. > For those who are just starting out on treatment whether it be > mono-therapy or combo, or the PEG, here is some advice I learned in > how to control those awful side affects: > 1.    DRINK LOTS OF WATER. ABOUT THREE LITERS A DAY. SURPRISING > ENOUGH, BUT LOTS OF WATER REALLY MAKES YOU FEEL BETTER. > 2.   TAKE ADVIL (IBUPROHEN) RIGHT AFTER THE INJECTIONS. IT WILL HELP > YOU SLEEP THROUGH THE SIDE AFFECTS OF JOINT AND MUSCLE PAIN. > 3.   EAT NORMALLY. THAT IS, EAT NUTRITIOUS MEALS. AND MAKE SURE YOU > EAT FOOD WITH PROTEIN SUCH AS STEAK OR CHICKEN. I AM NOT MUCH OF BEEF > EATER, SO I ATE A LOT OF CHICKEN. > 4.    THIS IS JUST MY PERSONAL OPINION, BUT STAY AWAY FROM ALL THE > IMMUNE SUPPLEMENTS. YOU HAVE NO IDEA WHAT IS REALLY IN THEM. AND THEY > HAVE THE POTENTIAL OF CAUSING MORE HARM THAN GOOD. > 5.    THIS IS NEEDLESS TO SAY, BUT STOP THE ALCOHOL CONSUMPTION. I > MEAN, STOP IT RIGHT NOW. ALCOHOL METABOLIZES IN THE LIVER AND CAUSES > NECROSIS. YOUR LIVER IS ALREADY COMPROMISED WITH THE HCV, SO WHY MAKE > IT WORSE. TAKE CARE OF YOUR LIVER AND IT WILL TAKE CARE OF YOU. > 6.    ALSO, ABSTAIN FROM CAFFIENE. IT ALSO METABOLIZES IN THE LIVER. > THIS WAS THE HARDEST ONE TO STOP. IT TOOk AWHILE, BUT I DID IT. I > REALLY DID HATE GIVING UP MY CUP OF "MUD" EACH MORNING, BUT I DID IT. > I WAS THOROUGHLY SURPIRSED HOW MUCH OF COLAS AND OTHER SHELF PRODUCTS > CONTAIN CAFFIENE. EVEN CHOCOLATE. BELIEVE IT OR NOT, BUT CHOCOLATE HAS > THE HIGHEST CONTENT OF CAFFIENE THAN MOST SOFT DRINKS. > 7.    FOR THOSE WONDERING IF HCV HAS ANY AFFECT ON THE PEREPHIAL > NERVOUS SYSTEM, I BELIEVE IT DOES. I HAVE PLMD (MYOCLONIC JERKS). ALL > MY RESEARCH, INCLUDING MY NEUROLOGIST’S, HAVE ESTABLISHED THAT THERE > IS A LINK BETWEEN THE PERIPHEAL NERVIOUS SYSTEM AND CHRONIC HCV. I > HAVE BEEN TAKEN CLONOPIN FOR THE PLMD. SOMETIMES IT WORKS….SOMETIMES > IT DOESN’T. > 8.   AND LAST, NEVER GIVE UP HOPE. HOPE IS ALL YOU HAVE. IF YOU > BELIEVE IN A SUPREME BEING, I SUGGEST YOU ASK FOR HIS/HER ASSISTANCE. > HOPE AND PRAYER GOES A LONG WAY WITH YOUR MENTAL STATE. AND WHEN THE > MENTAL STATE IS IN GOOD SHAPE, THE BODY FOLLOWS. I USE TRANSCENDTAL > MEDITATION. SEEMS TO WORK FOR ME. > Well, I didn’t mean to make this introduction into a thesis, but I did > want to introduce myself as someone YOU can ask dumb questions and, > hopefully, I can respond with an intelligent, concise, and coherrent > answer. > There is a frontier saying: Sometimes the bare gets you….sometimes > you get the bare. (bare = bear). I believe, in time, we all will get > the bear if we don’t give up hope and take care of our bodies. > Hope to hear from ya’ soon. If not, good luck and god bless you in > your search for a full recovery. > Carey

Response:

running out of meds to use, insomnia

Question:

Chronic insomnia here, you know all the routine… I’ve tried herbal; valerian root & melatonin— didn’t work at all trazadone even at lowest dose made me a zombie the next day sonata — was not a, didnt work all ambien was great, for abt 2 months then pooped out restorial, worked temp. dose was doubled and again worked temp I’m at my wits end, no I do not have sleep apnea lack of sleep, take hrs to get to sleep then I wake up in 2-3 hrs I’m wide awake plus wake up early, can be up till 6am and I’m up by 10am they have a sleep dsiorder clinic here, but get this they don’t treat insomnia! and the doc told he doubted very much that the clnic would be of any help please excuse the typos and spelling, tis 2:15 am and I dont have my glasses on 2 more Q’s does this newsgrp have chat on MIRC or else where? is there a FAQ? thank you ensoul What difference does it make to the dead, the orphans and the homeless, whether the mad destruction is wrought under the name of totalitarianism or the holy name of liberty or democracy?   ~Mahatma Gandhi

Response:

On 04 Sep 2004 06:14:07 GMT, Ensoul100 wrote: >Chronic insomnia here, you know all the routine… >ambien was great, for abt 2 months then pooped out >restorial, worked temp. dose was doubled and again worked temp

You and your doctor may have to cycle the effective drugs to keep them effective… that darn brain has a tendency to downregulate/upregulate and make them ineffective. :-(

Response:

- Hide quoted text — Show quoted text -Ensoul100 wrote: > Chronic insomnia here, you know all the routine… > I’ve tried herbal; valerian root & melatonin— didn’t work at all > trazadone even at lowest dose made me a zombie the next day > sonata — was not a, didnt work all > ambien was great, for abt 2 months then pooped out > restorial, worked temp. dose was doubled and again worked temp > I’m at my wits end, no I do not have sleep apnea > lack of sleep, take hrs to get to sleep then I wake up in 2-3 hrs I’m wide > awake > plus wake up early, can be up till 6am and I’m up by 10am > they have a sleep dsiorder clinic here, but get this they don’t treat insomnia! > and the doc told he doubted very much that the clnic would be of any help > please excuse the typos and spelling, tis 2:15 am and I dont have my glasses on > 2 more Q’s > does this newsgrp have chat on MIRC or else where? > is there a FAQ? > thank you > ensoul > What difference does it make to the dead, the orphans and the homeless, whether > the mad destruction is wrought under the name of totalitarianism or the holy > name of liberty or democracy? >   ~Mahatma Gandhi

I have sleep apnea. PLMD, and RA arthritis.  I use sleeping pills. Ambien and Sonta are suppose to be very safe pills.  However there is an addiction-tolerance problem with all pills.  You take ambien at bedtime.   It will put you to sleep and keep you asleep for about 2.5 hours.  You should use Sonata when you wake up.  It will put you to asleep for 1 to 2 hours. There is a concept called drugh Holiday.  Using this concep is suppose to prevent addiction and the development of tolerance.  For exampl: use ambien for a max of two weeks.  Then take a break and use something else or go cold turkey.  Then switch back to ambien. Reference: http://rlshelp.  The Medical advisor is a Dr. Mark Bushfurher.  He is also a board member on th RLS Foundation’s  Medical Advisory Board.  He is a highly respected RLS specialist.  AS far as the drug Holiday concept, you will have to read his patient letters.   Best wishes.

Response:

ensoul…@aol.com (Ensoul100) wrote: >ambien was great, for abt 2 months then pooped out

Have you tried taking a break (a couple of weeks?) then going back on it? I’ve been taking Ambien for years and regularly experience tolerance, go off it, then back on. >restorial, worked temp. dose was doubled and again worked temp >I’m at my wits end, no I do not have sleep apnea >lack of sleep, take hrs to get to sleep then I wake up in 2-3 hrs I’m wide >awake >plus wake up early, can be up till 6am and I’m up by 10am

I know the feeling. I once was up (out of bed, watching TV) until 5:00 AM. Went to bed, fell asleep, and was awake again at 6:30. >they have a sleep dsiorder clinic here, but get this they don’t treat insomnia! >and the doc told he doubted very much that the clnic would be of any help

According to my sleep doc, sleep studies are geared towards OSA and there are no diagnostics for insomnia. FWIW, here’s a horror story for you. I waited six months to see a sleep specialist at Duke. At that time, I had been under treatment by another sleep doc for about eight years. I went armed with two years worth of charts and logs showing that I had not had a "normal" night’s sleep in the last two years. I had kept a tape recorder next to  the bed and each time I awoke I would record the time. I was awake enough to pick up the recorder, press the "record" button, make my recordings, and turn the machine off 6-8 times in an eight hour period. I also had a sleep study showing I never achieved Delta phase. He spent less than five minutes with me, told me I could not possibly have the symptoms I was describing, that "everyone has periods of awakening" and I should see a shrink to learn how to stop worrying about it. I wish I had his home phone number so I could call him during each of those periods of "normal awakening." Dick Evans

Response:

The valerium root just wasn’t giving me enough sleep so I went to a new doctor and he gave me Clonazepam 0.5mg and I have had a good nights sleep every night. Nothing less than 6 hours and usually 8 hours plus. I don’t use alcohol or caffeine of course. Good luck. 2004 06:14:07 GMT, ensoul…@aol.com (Ensoul100) wrote: – Hide quoted text — Show quoted text ->Chronic insomnia here, you know all the routine… >I’ve tried herbal; valerian root & melatonin— didn’t work at all >trazadone even at lowest dose made me a zombie the next day >sonata — was not a, didnt work all >ambien was great, for abt 2 months then pooped out >restorial, worked temp. dose was doubled and again worked temp >I’m at my wits end, no I do not have sleep apnea >lack of sleep, take hrs to get to sleep then I wake up in 2-3 hrs I’m wide >awake >plus wake up early, can be up till 6am and I’m up by 10am >they have a sleep dsiorder clinic here, but get this they don’t treat insomnia! >and the doc told he doubted very much that the clnic would be of any help >please excuse the typos and spelling, tis 2:15 am and I dont have my glasses on >2 more Q’s >does this newsgrp have chat on MIRC or else where? >is there a FAQ? >thank you >ensoul >What difference does it make to the dead, the orphans and the homeless, whether >the mad destruction is wrought under the name of totalitarianism or the holy >name of liberty or democracy? >  ~Mahatma Gandhi

Response:

Please contact me at- cuussa…@yahoo.com Anyway, you’ve tried all the drugs and nothing is really working.  Are you dysfunctional as a result of the sleep problem. In other words, because you are so exhausted, are you not able to hold down a job, or be social,etc,etc. WHat sleep clinics have you been to? Here is my list of sleep drugs that I have taken throughout many years- trazodone, neurontin, dalmane, ambien, xanax, klonipin, sonata, chloral hydrate, halcion, meprobomate, alcohol, valerian, hops, sodium seconal (very hard to get), phenobarbital, doxepin, etc Whats this new drug that should have come out last year but still not available called- ESTORRA heard anything about DEEP BRAIN STIMULATION? jeff cuussa…@yahoo.com

Response:

I tried to write back to you but the e-mail was rejected. (to cl perrin) – Hide quoted text — Show quoted text -> On 04 Sep 2004 06:14:07 GMT, Ensoul100 wrote: > >Chronic insomnia here, you know all the routine… > >ambien was great, for abt 2 months then pooped out > >restorial, worked temp. dose was doubled and again worked temp > You and your doctor may have to cycle the effective drugs to keep them > effective… that darn brain has a tendency to downregulate/upregulate > and make them ineffective. :-(

Response:

On 25 Sep 2004 10:37:25 -0700, jeff wrote: >I tried to write back to you but the e-mail was rejected. (to cl perrin)

You have to delete the part of my E-mail address that’s in capital letters. It always stumps spambots, and sometimes stumps people. ;-)

Response:

The valerium root just wasn’t giving me enough sleep so I went to a new doctor and he gave me Clonazepam 0.5mg and I have had a good nights sleep every night. Nothing less than 6 hours and usually 8 hours. I don’t use alcohol or caffeine of course. The only trouble is that the doctors seem obsessed with getting me off the prescription. The first time I sought help for insomnia they suggested I take Benadryl !! Good luck. – Hide quoted text — Show quoted text ->Chronic insomnia here, you know all the routine… >I’ve tried herbal; valerian root & melatonin— didn’t work at all >trazadone even at lowest dose made me a zombie the next day >sonata — was not a, didnt work all >ambien was great, for abt 2 months then pooped out >restorial, worked temp. dose was doubled and again worked temp >I’m at my wits end, no I do not have sleep apnea >lack of sleep, take hrs to get to sleep then I wake up in 2-3 hrs I’m wide >awake >plus wake up early, can be up till 6am and I’m up by 10am >they have a sleep dsiorder clinic here, but get this they don’t treat insomnia! >and the doc told he doubted very much that the clnic would be of any help >please excuse the typos and spelling, tis 2:15 am and I dont have my glasses on >2 more Q’s >does this newsgrp have chat on MIRC or else where? >is there a FAQ? >thank you >ensoul >What difference does it make to the dead, the orphans and the homeless, whether >the mad destruction is wrought under the name of totalitarianism or the holy >name of liberty or democracy? >  ~Mahatma Gandhi

Response:

On Sat, 02 Oct 2004 15:09:10 GMT, 9th Commandment wrote: >The valerium root just wasn’t giving me enough sleep so I went to a >new doctor and he gave me Clonazepam 0.5mg and I have had a good >nights sleep every night. Nothing less than 6 hours and usually 8 >hours. >The only trouble is that the doctors seem obsessed with getting me off >the prescription.

I had concerns about that when I last took benzos a while back. My doctor told me, "The first thing you’ll notice is that they stop working. That’s an indication to come in and talk. That’s NOT an indication to increase the dose on your own. Patients basically don’t wake up and want to swallow the whole bottle." Even with a chronic low to moderate dose, patients still generally function quite well on benzos. >The first time I sought help for insomnia they suggested I take Benadryl !!

The time my doctor gave me a drug that made me overstimulated and unable to sleep, she suggested that I try a double dose of Benadryl. It worked but I’m only rarely troubled with insomnia.

Response:

Soft sounds to induce dream sleep?

Question:

I’m currently on CPAP, and have noticed something strange. I seem to feel a bit worse after having changed to a different mask, despite the fact that the new mask seals *much* better than my previous one. I have measured the pressure at the mask while it’s on, and there’s nothing wrong with the pressure. With the previous mask, I would often find that the seal had become much worse the next morning, with a noticably louder "hissing" sound from the leaks. This doesn’t happen with the new mask – the seal remains exactly the same as it was when I put it on the night before. So, why do I feel worse, despite the fact that the new mask seems superior? I have this crazy theory that perhaps the sound of the older mask was inducing dream sleep. I do notice that when I dream, I feel considerably better during the day. I’m trying a silly experiment at the moment, which is to set my clock radio alarm to come on quite early (well before I want to wake up), but VERY VERY softly. (on the radio, not the beeper) It’s early days yet, but so far I feel that I am dreaming more often when I set the alarm, and I do feel better! When I stop doing this trick, I start to slowly get worse. But it’s too early to make any conclusions. Is there any precedence for this kind of issue at all? I do know that my specialist wasn’t at all sure that CPAP would help me. As I’ve said in here before, I don’t actually stop breathing – I merely have some kind of apnea event which may be arousing me and preventing me from entering a really deep sleep. But he didn’t seem definite about anything, and suggested I try CPAP as an experiment. Overall I do feel like CPAP is helping me, but I just have to wonder whether it’s the root of my problems. Btw – I did *definitely* dream on the night of my initial study (without the mask).  (not only do I remember dreaming, but the nurse told me I was dreaming when she woke me). The second study (with the mask) I didn’t get to sleep until about 20 minutes before the *end* of the study period. ;^ ;^) so that was a writeoff. :) (the nurse told me I was a complete failure – jokingly of course) Greg.

Response:

"Still Lurking" <n…@invalid.com> wrote in message

news:iTTRc.14960$9Y6.2043@newsread1.news.pas.earthlink.net… > Are you treating with a pulminologist? Did the term UARS ever get

mentioned? I don’t know the qualifications of my specialist, however he’s one of the main ones in my region. UARS was mentioned to me here in this forum when I first gave some details of my report, but I don’t think the specialist has ever mentioned this – I think I did enquire with them once about this, and they may have agreed that yes, it could be that, but I  don’t think they were very definite. I’ll ask again. :) > She wasn’t joking. It usually takes about 90 minutes for an adult to > complete a full cycle of sleep stage changes. If you had less sleep than > that, the study was, in fact, invalid.  They might have been able to > pull off a semi reasonable guess at titration pressure in 20 minutes, > but there is no way that they got valid complete EEG tracings.

Oh, yes, I understand that, and I didn’t mean to imply that the study was valid. She definitely made it clear to me that it was not possible to give me a proper prescription, but, during that short 20 minute stint, they did determine a pressure that eliminated my symptoms, and so they allowed me to try CPAP with that pressure.  Had I not put some pressure on them to allow me to try CPAP, I get the feeling they would have preferred to wait until I had completed another study.  Anyway, I’m having another study next week (accompanied by a MWT the next day), so that’ll be helpful.  NB: I had written recently that my appointment would be in October – there was a cancellation, which has allowed me to get in next week – how often does *that* happen? :) > Was your sleep study done with a APAP machine, or were you manually > titrated?

Not sure. > Are you currently treating with a sleep medicine trained neurologist?

I don’t think so. > Did you see your sleep study report? Were there any mention of > abnormalities in the EEG tracings that would indicate the one sleep > stage was intruding into another sleep stage?

I didn’t see it myself, but they definitely didn’t mention anything like that to me. > IMHO, and personal experience, since you do not present as a "simple" > case of OSA, you might do better in a medical facility that takes a > multidisciplinary approach to your sleep disorder(s).  This would be a > larger sleep clinic where you would have specialists from several > disciplines of sleep medicine evaluate your situation, and consult on a > diagnosis and treatment plan. Usually, these clinic are found in Medical > University teaching hospitals.

Thanks. I don’t know whether we have a place like that here in Sydney, Australia though. (does anyone know?) Thanks for all your help/advice. Greg.

Response:

"Still Lurking" <n…@invalid.com> wrote in message

news:FLXRc.15648$9Y6.14125@newsread1.news.pas.earthlink.net… > BTW: Was RLS AND PLMD ruled out for you?  These would have shown up in > your EEG.

Again – absolutely no idea but will try to find out. > It sounds like your doctor isn’t quite sure what your EXACT problem(s)

are. Indeed. .I also sort of get the impression that he doesn’t think my symptoms are very severe. > Did they slowly increase your titration pressure slightly beyond optimum > levels to overcome your OSA, to see if you showed any CSA symptoms at > increased pressure?

I don’t know. Perhaps that’s one reason they were a bit reluctant to let me try the CPAP – perhaps they were worried that they had no idea whether or not I would show CSA symptoms, even at the pressure they ended up "prescribing". > Have you had a complete physical and blood work recently?  if not, it > wouldn’t hurt to have one. Again, it will eliminate a lot of possible > problems. If you have blood work done, be sure to get the "complete" > thyroid panel .  Thyroid malfunctions can sometimes cause some rather > elusive sleep problems.

I’ve had various blood tests over the recent years. Little things have popped out here and there. E.g my testosterone levels were a bit outside the normal range on the low side, and I went on TRT for about 18 months or so. Cutting a long story short, all the doctors bar the original GP that got me to try the TRT agreed that my levels weren’t low enough to warrant treatment. So I came off it. It made me feel a lot better at first, but the effect wore off, despite the dosage being increased a few times – I would always feel great when the dosage was increased, but it would always wear off. I think they’re right that it’s not my problem. Once some thyroid level was borderline, and a few times some liver related levels were just a tad high, and I notice that my red blood cell count was slightly below the range a couple of times as well. But overall I don’t think they think there’s anything to worry about.  Oh – my triglycerides are often quite high too – that’s being monitored – they’re getting me to lose a bit of weight to see if that helps. (I was just slightly overweight, and now that I have lost a few kg, the level has come down, apparently. Still high-ish though) Greg.

Response:

Sleep aid starts with D?

Question:

Dromias, that’s it.  Thanks for all the help. Brad On 17 Jul 2004 21:30:30 -0700, brad1…@swbell.net (Brad in DFW) wrote: – Hide quoted text — Show quoted text ->I was watching Discovery Health channel tonight and they advertised a >sleep aid that started with a D.  Something like Dromasil or Dormasil. > Anyone heard of or tried an aid with a name like this? >Thanks, >Brad

Response:

On Sun, 18 Jul 2004 09:23:19 -0400, "Gary Rimar" <m…@garyrimar.com> wrote: >Charlie!  Who do you think you’re kidding <wink>? >Bear in mind that I do like you, so see this as a gentle guy-to-guy >shoulder punch to remind you that all folks with sleeping disorders >(of whatever stripe) are welcome here.

OK, let me rephrase that to clarify my intended meaning: "Sleeping isn’t generally a problem in my bedroom." <wink> – Hide quoted text — Show quoted text ->"Charlie Perrin" wrote: >> Haven’t tried it, sleeping isn’t generally a problem around here.

Response:

Walt Hanks <waltha…@comcast.net> wrote: > And then there are those of us with apnea and RLS/PLMD who need a sleep aid > to stay asleep.  I’m guessing a lot of us use a sleep aid.  Am I right > folks?

I use 5-HTP to help me sleep more deeply, in part because I have both fibromyalgia (a stage 4 sleep disorder) and sleep apnea. — _Deirdre  web: http://deirdre.net    blog: http://deirdre.org/blog/ "Memes are a hoax! Pass it on!"

Response:

I was watching Discovery Health channel tonight and they advertised a sleep aid that started with a D.  Something like Dromasil or Dormasil.  Anyone heard of or tried an aid with a name like this? Thanks, Brad

Response:

On 17 Jul 2004 21:30:30 -0700, (Brad in DFW) wrote: >I was watching Discovery Health channel tonight and they advertised a >sleep aid that started with a D.  Something like Dromasil or Dormasil. > Anyone heard of or tried an aid with a name like this?

Maybe "DROMIAS?" Haven’t tried it, sleeping isn’t generally a problem around here.

Response:

Charlie!  Who do you think you’re kidding <wink>? This group has it’s insomniacs, as well as it’s folks with sleep apnea, as well as it’s folks with night terrors, narcolepsy, RLS, and the list goes on and on…… Bear in mind that I do like you, so see this as a gentle guy-to-guy shoulder punch to remind you that all folks with sleeping disorders (of whatever stripe) are welcome here.     Gary (not that anyone ever thought for a second that I was in charge, mind you) Rimar "Charlie Perrin" <c.l.perrin@SPAMBOTS_DIEatt.net> wrote in message

news:ao5kf0tjm8d3idumruhcig5dk1t0hqdqek@4ax.com… – Hide quoted text — Show quoted text -> On 17 Jul 2004 21:30:30 -0700, (Brad in DFW) wrote: > >I was watching Discovery Health channel tonight and they advertised a > >sleep aid that started with a D.  Something like Dromasil or Dormasil. > > Anyone heard of or tried an aid with a name like this? > Maybe "DROMIAS?" > Haven’t tried it, sleeping isn’t generally a problem around here.

Response:

On 17 Jul 2004 21:30:30 -0700, brad1…@swbell.net (Brad in DFW) wrote: >I was watching Discovery Health channel tonight and they advertised a >sleep aid that started with a D.  Something like Dromasil or Dormasil. > Anyone heard of or tried an aid with a name like this? >Thanks, >Brad

They seem to hve a orgettable name. I tried to Google on the name several times and kept getting it wrong. It is Dromias. Check their website at http://www.4dromias.us/  It is apparently a blend of a magnesium compound, valerian root, and wilde jujube something or other. I’ve never tried it. I hope someone whose tried it will speak up here..

Response:

And then there are those of us with apnea and RLS/PLMD who need a sleep aid to stay asleep.  I’m guessing a lot of us use a sleep aid.  Am I right folks? Walt (who, BTW, is getting 4-5 hours on average now – YESSS!!) – Hide quoted text — Show quoted text -> From: "Gary Rimar" <m…@garyrimar.com> > Reply-To: "Gary Rimar" <m…@garyrimar.com> > Newsgroups: alt.support.sleep-disorder > Date: Sun, 18 Jul 2004 09:23:19 -0400 > Subject: Re: Sleep aid starts with D? > Charlie!  Who do you think you’re kidding <wink>? > This group has it’s insomniacs, as well as it’s folks with sleep apnea, as > well as it’s folks with night terrors, narcolepsy, RLS, and the list goes on > and on…… > Bear in mind that I do like you, so see this as a gentle guy-to-guy shoulder > punch to remind you that all folks with sleeping disorders (of whatever > stripe) are welcome here. > Gary (not that anyone ever thought for a second that I was in charge, > mind you) Rimar > "Charlie Perrin" <c.l.perrin@SPAMBOTS_DIEatt.net> wrote in message > news:ao5kf0tjm8d3idumruhcig5dk1t0hqdqek@4ax.com… >> On 17 Jul 2004 21:30:30 -0700, (Brad in DFW) wrote: >>> I was watching Discovery Health channel tonight and they advertised a >>> sleep aid that started with a D.  Something like Dromasil or Dormasil. >>> Anyone heard of or tried an aid with a name like this? >> Maybe "DROMIAS?" >> Haven’t tried it, sleeping isn’t generally a problem around here.

Response:

Hello. I’ve taken sleep aids since I started with CPAP and they seem to backfire and don’t keep me asleep. Since I joined this list, I’ve learned a few things and am now resting a bit easier with CPAP and my mask configuration, but I still wake up in the middle of the night and take off the mask to sleep without it the rest of the night. I’d like to get past that point. Bertrand in Ohio "Walt Hanks" <waltha…@comcast.net> wrote in message

news:BD1FF5BC.2E53%walthanks@comcast.net… – Hide quoted text — Show quoted text -> And then there are those of us with apnea and RLS/PLMD who need a sleep aid > to stay asleep.  I’m guessing a lot of us use a sleep aid.  Am I right > folks? > Walt > (who, BTW, is getting 4-5 hours on average now – YESSS!!) > > From: "Gary Rimar" <m…@garyrimar.com> > > Reply-To: "Gary Rimar" <m…@garyrimar.com> > > Newsgroups: alt.support.sleep-disorder > > Date: Sun, 18 Jul 2004 09:23:19 -0400 > > Subject: Re: Sleep aid starts with D? > > Charlie!  Who do you think you’re kidding <wink>? > > This group has it’s insomniacs, as well as it’s folks with sleep apnea, as > > well as it’s folks with night terrors, narcolepsy, RLS, and the list goes on > > and on…… > > Bear in mind that I do like you, so see this as a gentle guy-to-guy shoulder > > punch to remind you that all folks with sleeping disorders (of whatever > > stripe) are welcome here. > > Gary (not that anyone ever thought for a second that I was in charge, > > mind you) Rimar > > "Charlie Perrin" <c.l.perrin@SPAMBOTS_DIEatt.net> wrote in message > > news:ao5kf0tjm8d3idumruhcig5dk1t0hqdqek@4ax.com… > >> On 17 Jul 2004 21:30:30 -0700, (Brad in DFW) wrote: > >>> I was watching Discovery Health channel tonight and they advertised a > >>> sleep aid that started with a D.  Something like Dromasil or Dormasil. > >>> Anyone heard of or tried an aid with a name like this? > >> Maybe "DROMIAS?" > >> Haven’t tried it, sleeping isn’t generally a problem around here.

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Response:

Trazadone Hangover

Question:

My neurologist is concerned that I’m not sleeping enough (so am I; 3-4 hours a night doesn’t cut it), so she suggested I try increasing the dose of the Trazadone I use to get to sleep.  She wrote a new script for up to 4 of the 50 mg tabs per night. Well, I took 3 last night and still only slept for 4 hours.  But now, some 20 hours later, I feel like I’m still heavily drugged.  I can fall asleep now for 20 or 30 minutes at a time, but that’s all.  As always, my pain really limits my sleep. So, my question is, what do you folks do when you’re in a cycle like this? My new study is still a month off, so I won’t have my xPAP back for a while yet.  Any ideas would be appreciated. BTW, she gave me Provigil to use during the day, but I really hate that stuff. Walt

Response:

You have been using xPAP but you don’t have it right now……….is that what I’m hearing?  why’s that?? "Walt Hanks" <waltha…@verizon.net> wrote in message

news:BCD68B01.1269%walthanks@verizon.net… – Hide quoted text — Show quoted text -> My neurologist is concerned that I’m not sleeping enough (so am I; 3-4 > hours > a night doesn’t cut it), so she suggested I try increasing the dose of the > Trazadone I use to get to sleep.  She wrote a new script for up to 4 of > the > 50 mg tabs per night. > Well, I took 3 last night and still only slept for 4 hours.  But now, some > 20 hours later, I feel like I’m still heavily drugged.  I can fall asleep > now for 20 or 30 minutes at a time, but that’s all.  As always, my pain > really limits my sleep. > So, my question is, what do you folks do when you’re in a cycle like this? > My new study is still a month off, so I won’t have my xPAP back for a > while > yet.  Any ideas would be appreciated. > BTW, she gave me Provigil to use during the day, but I really hate that > stuff. > Walt

Response:

> From: "Tal" <goer…@hotmail.com> > Newsgroups: alt.support.sleep-disorder > Date: Mon, 24 May 2004 12:12:45 +1000 > Subject: Re: Trazadone Hangover > You have been using xPAP but you don’t have it right now……….is that > what I’m hearing?  why’s that??

I had a UPPP (Tonsils, uvula, and soft palate) two months ago and the settings are too strong now.  I have a new study scheduled for next month, but I am having to do without the xpap until then. I am snoring much less since the surgery, and my PLMD is under good control (thank you Mirapex), but I still have apnea.  I also have RA, with cervical involvement, which has lead to occipital neuralgia.  So my scalp is very tender.  That also limits how I use the machine, as I really can’t tolerate head gear. Basically, I’m an exhausted mess, and my neuro thought she would try to help by adding the Topomax and Provigil.  But I am just feeling way too drugged up.  I’m thinking I will drop them both.  Or maybe just use the Topomax at a low dose.  I definitely hate the Provigil. Any ideas would be appreciated! Walt

Response:

Sleep Clinics & Support Groups in Toronto

Question:

No idea about Toronto support groups.My clinic experience was via  Dr. Bradley at Toronto General, they have 2 clinics. Was pleased with my treatment in each clinic. Ask if you have more questions. . . . . Mike On Wed, 05 May 2004 19:02:05 GMT, "Brian" <bd1…@rogers.com> wrote: >Can anyone recommend a sleep clinic in the Toronto area that they are really >pleased with? I’d like to have a second opinion and don’t know where to go. >Is anyone aware of and support groups in the area as well? >Thanks >Brian

Thanx, I have had good luck engrailing it!

Response:

Hi, Sorry to hear you had a bad experience. Mine has been excellent. I saw Dr. Muller. I was expecting to have sleep apnea but they found out I had PLMD and Restless Legs Syndrome. Was waking me up about every 15 mins, therefore not getting any deep sleep. I am now on medication which works well.Dr. Muller has been great. I see him every six months. He will do a sleep test every year to see how I am responding to the medication. He has also given me his telephone number and e-mail address in case  I have any questions or problems. I have been going to him for over two years now. Liz. "J*O*d*Y" <"jodeez(TRASH)stuff"@sympatico.ca> wrote in message

news:409C4689.7E58C353@sympatico.ca… – Hide quoted text — Show quoted text -> I went to Toronto Western too, and I was not the least bit impressed.  I will > never go back there again for testing. > JP > Liz & Martin Walton wrote: > > Hi Brian, > > I went to the sleep clinic at Toronto Western Hospital. They are very good. > > I was very impressed. I have no complaints and I have not heard of any > > complaints.They have some excellent sleep specialists there. I do not know > > of any support groups locally though. I have never tried to find any! > > Hope all goes well > > Liz. > > "Brian" <bd1…@rogers.com> wrote in message > > news:xPamc.409908$2oI1.407305@twister01.bloor.is.net.cable.rogers.com… > > > Can anyone recommend a sleep clinic in the Toronto area that they are > > really > > > please with? > > > I’d like to have a second opinion and don’t know where to go. > > > Is anyone aware of and support groups in the area as well? > > > Thanks > > > Brian > — > "Sorry for the inconvenience, but I’ve inserted a spam-filter in my email > address. > When you hit ‘reply’ to email me, you must "Take out the TRASH…." or your > email > will bounce back to you…"

Response:

Can anyone recommend a sleep clinic in the Toronto area that they are really please with? I’d like to have a second opinion and don’t know where to go. Is anyone aware of and support groups in the area as well? Thanks Brian

Response:

Can anyone recommend a sleep clinic in the Toronto area that they are really pleased with? I’d like to have a second opinion and don’t know where to go. Is anyone aware of and support groups in the area as well? Thanks Brian

Response:

Hi Brian, I went to the sleep clinic at Toronto Western Hospital. They are very good. I was very impressed. I have no complaints and I have not heard of any complaints.They have some excellent sleep specialists there. I do not know of any support groups locally though. I have never tried to find any! Hope all goes well Liz. "Brian" <bd1…@rogers.com> wrote in message

news:xPamc.409908$2oI1.407305@twister01.bloor.is.net.cable.rogers.com… – Hide quoted text — Show quoted text -> Can anyone recommend a sleep clinic in the Toronto area that they are really > please with? > I’d like to have a second opinion and don’t know where to go. > Is anyone aware of and support groups in the area as well? > Thanks > Brian

Response:

I went to Toronto Western too, and I was not the least bit impressed.  I will never go back there again for testing. JP Liz & Martin Walton wrote: – Hide quoted text — Show quoted text -> Hi Brian, > I went to the sleep clinic at Toronto Western Hospital. They are very good. > I was very impressed. I have no complaints and I have not heard of any > complaints.They have some excellent sleep specialists there. I do not know > of any support groups locally though. I have never tried to find any! > Hope all goes well > Liz. > "Brian" <bd1…@rogers.com> wrote in message > news:xPamc.409908$2oI1.407305@twister01.bloor.is.net.cable.rogers.com… > > Can anyone recommend a sleep clinic in the Toronto area that they are > really > > please with? > > I’d like to have a second opinion and don’t know where to go. > > Is anyone aware of and support groups in the area as well? > > Thanks > > Brian

– "Sorry for the inconvenience, but I’ve inserted a spam-filter in my email address. When you hit ‘reply’ to email me, you must "Take out the TRASH…." or your email will bounce back to you…"

Response:

Diary of a newbie apnea sufferer. (long)

Question:

On 5 Mar 2004 21:56:28 -0800, mchas…@nmsu.edu (EtherGnat) wrote: – Hide quoted text — Show quoted text ->Introduction >————————– >I suppose I should start by pointing out the subject line is not >entirely accurate. I suspect from childhood memories and recollections >of family members that I have suffered at least partially from apnea >my entire life. "Diary of a person who has always suffered from apnea >and was too dense to figure it out until he was 31" did not fit on the >subject line though. It’s long and I suppose there’s not much of a >point to it. Tonight will be my first night on therapy and I suppose >my perspective may change completely by tomorrow. I thought it was >important to get my thoughts down now. >I’d love to hear any feedback. If anybody is finding it helpful I will >try and continue it and maybe revise what I’ve written. I could >probably use some encouragement too. We’ll see how tonight goes.

Try visiting the Chronic Fatigue Syndrome discussion group.  You’ll find a lot of soulmates there suffering from exactly the same complaints.  I had your problem all my life and when younger I could get by on sheer willpower.  But the sleep problems eventually did me in – can’t hold a job for long and domestic life problems.  I wasn’t even aware that sleep disorders was the problem and put it off as stress and depression.  They feed on each other.  Since I had no obvious health problems that’s what the doc said too although I wasn’t the type who would harbor such thoughts. I discovered I had food intolerance problem when in my 50s and by being careful with what I eat (too long an explanation) I managed to fix my sleep problem.  I am still not as energetic as I like to be but I don’t suffer the headaches and other sleep disorders that used to plague me.

Response:

EtherGnat wrote:

LOL My wife and I have the same personality set as you and yours. Maybe THAT’s whats causing the apnea, heheh. Just the other day, my wife was telling me that I didn’t need to bring my PDA everywhere I go. I reminder her (for the billionth time) that I have ADD and I needed it to help run my life. In line with her type: "You don’t need a PDA. I will run your life for you" hehe. Sojo

Response:

Introduction ————————– I suppose I should start by pointing out the subject line is not entirely accurate. I suspect from childhood memories and recollections of family members that I have suffered at least partially from apnea my entire life. "Diary of a person who has always suffered from apnea and was too dense to figure it out until he was 31" did not fit on the subject line though. It’s long and I suppose there’s not much of a point to it. Tonight will be my first night on therapy and I suppose my perspective may change completely by tomorrow. I thought it was important to get my thoughts down now. I’d love to hear any feedback. If anybody is finding it helpful I will try and continue it and maybe revise what I’ve written. I could probably use some encouragement too. We’ll see how tonight goes. Why am I writing this? ————————– I hope that my writing–as incoherent and jumbled as it might be–will be able to help somebody else. Reading the postings to this group has been a great help to me, both in providing information and helping me feel less alone. I’ll even admit to being a sadistic SOB and taking some twisted comfort in the fact that there are poor shmucks suffering even more than I am. I know its not a flattering thing to admit but it’s that same feeling you get when you watch the police officer pull over the person in front of you. It’s not that you’re happy they’re getting a ticket, you’re just thrilled it’s not YOU. My final reason is selfish. I hope that by writing this I can put my own feelings in perspective. I was going to write that it has been an emotional rollercoaster with ups and downs, but in fact it’s been more of a train wreck. Worry and hope, irritation and appreciation all coming at once until I don’t know what I’m feeling any more. Anyway, we’ve established that I’m a sadistic, selfish, emotional wreck. Other than that I promise I am a very sweet, normal guy (note to self: if wife ever reads this edit out the "normal" part to prevent death by laughter). Who am I? ————————– I’m one lazy bum. That’s always the way I’ve thought of my self. The way many others have seen me too I’m sure. Half the time I can’t even drag my ass out of bed in the morning despite sleeping 8 or 10 hours. I am the proverbial gifted child who never lives up to his potential. God… how many times have I heard that word in my life? I hate the word potential with a passion! Am I truly lazy or has it been the apnea? If it was the apnea am I too set in my ways to change now? Hopefully I will know soon. Of course I’m a million other things than an apnea sufferer. For the past few weeks I’ve felt like the apnea defines who I am even though I know it is only a very small part. For starters I am a loving husband to a wonderful woman who has been graced with the inconceivable ability to put up with me on a daily basis. I try and be loving and caring and supportive but frequently fail. I keep trying though, and on balance I think I do a passable job more often than not. For those familiar with the Myers-Briggs personality test I am a strong INTP (http://www.typelogic.com/intp.html). This means I’m Introverted, iNtuitive, Thinking, and Perceiving. My wife is a strong ESFJ (Extroverted, Sensing, Feeling, Judging). I guess it’s true that opposites attract. So do masochists I imagine. That intense scream of pain you just heard was my wife smacking me as she reads this. Goes to prove my point I suppose. By trade I’m a technology coordinator for a small department at a university. I do planning, training, support, web sites, you name it. I mostly work on my own without supervision which suits me well. I’m a 31 year old male white mutt American. I was born overseas to an Air Force dad in Viet Nam and a mom who couldn’t stand to be so far away who frequently threatens to have "Made in Taiwan" tattooed on his butt. My sleep history ————————– There’s always been something not quite right about my sleep. Ever since I was a child I’ve had trouble getting to sleep and even more trouble getting up in the morning. Over the past 10 years it has seemed these symptoms have been getting rapidly worse. I have gotten to the point where it is a battle getting out of bed every morning. I thought it was just lack of sleep. Over the past 4 years I started to unravel my sleep problems. First I found out about restless leg syndrome, and received treatment for that. I managed to get mild insomnia under control. We replaced our mattress that had me waking up with back pain. I started going to bed at a reasonable hour. I lost 75 pounds and got in better shape. Finally I discovered myself getting what seemed to be 8 hours of what seemed to be halfway decent sleep and still feeling awful in the morning. There seemed to be no reasonable cause left. The only other thing I could think of was depression. Many of the symptoms seemed to fit so I asked my doctor about antidepressants. That’s when things started to get interesting. My first sleep study ————————– Before trying antidepressants my doctor wanted me to take a sleep study to rule out sleep apnea. I knew what it was–we had even had my wife tested–but I couldn’t be suffering from sleep apnea. I DON’T EVEN SNORE! I promptly tossed the prescription in my nightstand drawer and left it there for nearly 6 months. Still feeling awful in the morning I gave the idea more thought. *Obviously* I didn’t have apnea but maybe they would find something else. I asked my wife to schedule the appointment because I knew I never would. I dreaded the upcoming event with a passion. I can’t even hardly sleep in a motel room much less in a doctors office wired up like a Borg. It turned out to be even worse than I could have imagined. The sleep lab recommended I not take any of the medication to help me sleep, including my restless leg medication (Quinine Sulfate) and melatonin. I don’t know if it was the stress or what but I had the worst case of RLS I’ve ever had in my life. I felt like a marionette being controlled by a sadistic puppet master as my legs flung around seeking comfort. Finally they allowed me to take my medication and through sheer willpower I managed 3 and a half hours of sleep. Without a doubt the most miserable night I’ve ever spent, but hopefully they would find SOMETHING! Several days later they called with a short announcement: I suffered from PLMD and apnea and I would need to come in for a second sleep study. Whaaaaaaaaaaat? That couldn’t be right. Fortunately I had an appointment with my primary physician. We’ll get to the bottom of this. Upon reviewing my sleep study he confirmed not only that I had apnea but that I had severe apnea. In 220 minutes of sleep I had 241 events–an apnea index of 65. I felt like I had been hit with a ton of bricks! I did what any good geek would do and hit the Internet looking for information. After a bit of web surfing I hit the newsgroups and soon stumbled upon alt.support.sleep-disorder. I hit the mother lode! I really can’t say enough to the people who have taken the time to post to the group. It made life so much easier to read the experiences of others and know that there was life after apnea. My second sleep study ————————– Another sleep study another miserable night. Surprisingly, the CPAP machine wasn’t as bad as I had dreaded.  The nasal mask they gave me would become increasingly uncomfortable throughout the night however. Just how bad it was I didn’t realize at the time. Another night of horrible (but almost manageable) RLS. I laid there for hours not going to sleep. Once again I worried that they wouldn’t have anything to base their assessment on and all this misery would be for nothing. Once again, I managed to get about 3 hours sleep. Hmm, three hours sleep and I felt surprisingly good. Not too surprising, because I often find that the less sleep I get the better I feel in the morning. I was sure to get dead tired later in the day. Ugh! A huge bruise on my nose from the mask. That’s not promising. By evening hour, I’m bouncing off the walls and feeling like somebody slipped me some speed. It was a feeling of euphoria as some report when first using CPAP. Now I’ve got some excitement to go along with the fear. This is going to be a GREAT thing. My excitement dimmed a bit when I woke up the next morning with huge zits covering the area of my nose that had bruised. The bruise wouldn’t go away for a week. Getting my first CPAP ————————– A few days later they call me to let me know my prescription is ready. CPAP with a passover humidifier and a pressure setting of 6 (hey, not bad at all!). Now I have to choose from a seemingly endless array of CPAP machines, masks, and DMEs. It dawns on me that I will be using this machine for THE REST OF MY LIFE. I find myself very depressed. Loved ones trying to cheer me up and encourage me only irritate me at this point. I *KNOW* in my head it is a good thing for me, but all I feel is the frustration of knowing I’m going to sleep hooked up to a @#$% machine for the rest of my life. That’s what old people do! *sigh* Reading horror stories of DMEs on this group does nothing to encourage me, but I have to choose one anyway. I make a tentative list based on comments I read on this board with Lincare at the top and Apria at the bottom. I make a list of questions to ask each DME and start with Lincare. The conversation with their respiratory therapist does not go well. Do you deliver and set up the equipment?    No What kind of follow up checks do you do?    Not too too much. You can call us if something goes wrong. Can I try different masks on?    No What equipment do you offer?    Just Respironics. The interview got progressively worse. He seemed to resent me even asking questions and gave incorrect information for many of them. He told me all the equipment was the same and … read more »

Response:

My sleep diagnostic results, interesting!

Question:

I was afraid that my sleep diagnostic results would have me wearing a CPAP. Well, once I went to see my doctor, he said that even though I snore, my breathing restriction was at 6.5 times / hour, which he said a normal person was at about 5 (something like that, I don’t remember the particulars). He did mention that I suffer from restless leg syndrome!!!!!!! VOILA!! Now I get a full night of sleep, and it has NOTHING to do with my snoring, breathing or anything.  I kick my freakin’ legs so hard I wake up!! (even more noticeable, because I just broke my leg and without taking the pill to help this, I wake up in severe pain from just have kicked my broken leg!! which is in a cast). Thanks

Response:

On Sun, 15 Feb 2004 13:17:56 -0500, Davis Redding wrote: >I was afraid that my sleep diagnostic results would have me wearing a CPAP. >He did mention that I suffer from restless leg syndrome!!!!!!!

That’ll mess things up, too. You get to take a pill instead of wearing a CPAP.

Response:

- Hide quoted text — Show quoted text -> I was afraid that my sleep diagnostic results would have me wearing a CPAP. > Well, once I went to see my doctor, he said that even though I snore, my breathing > restriction was at 6.5 times / hour, which he said a normal person was at about 5 > (something like that, I don’t remember the particulars). > He did mention that I suffer from restless leg syndrome!!!!!!! > VOILA!! > Now I get a full night of sleep, and it has NOTHING to do with my snoring, breathing or > anything.  I kick my freakin’ legs so hard I wake up!! > (even more noticeable, because I just broke my leg and without taking the pill to help > this, I wake up in severe pain from just have kicked my broken leg!! which

is in a cast). ouch….. sorry about the broken leg. Glad you’ve found some answers – here’s to a good night’s sleep!  Feel free to share your RLS experiences….. what meds you use that you find helpful……or alternatives that help – there’s some info on our RLS FAQ page but not a lot at this point – anything you would like to contribute would be helpful http://talhost.net/sleep/rls.htm — Beth in Australia (I am not a medical professional and anything stated in my posts is my opinion only unless specified otherwise) =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles

Response:

I have PLMD  There are treatments for it.  Go to http://www.rlshelp.org This is the web page of the southern RLS support group.  Their medical advisor is a top RLS doctor.  They also treat PLMD.  Two medications that work for most people are Mirapex and Requip.  They will generally control leg kicks.  There is also a index of patient letters>  I use Mirapex and Nuerontin.  I will try to provide you with specific  patient letters.  Right now I can not get to my reference files. best wishes. "Davis Redding" <clubkidd_toro…@hotmail.com> wrote in message

news:HJOXb.463$w65.52685@news20.bellglobal.com… – Hide quoted text — Show quoted text -> I was afraid that my sleep diagnostic results would have me wearing a CPAP. > Well, once I went to see my doctor, he said that even though I snore, my breathing > restriction was at 6.5 times / hour, which he said a normal person was at about 5 > (something like that, I don’t remember the particulars). > He did mention that I suffer from restless leg syndrome!!!!!!! > VOILA!! > Now I get a full night of sleep, and it has NOTHING to do with my snoring, breathing or > anything.  I kick my freakin’ legs so hard I wake up!! > (even more noticeable, because I just broke my leg and without taking the pill to help > this, I wake up in severe pain from just have kicked my broken leg!! which is in a cast). > Thanks

Response: