Machine/Mask Role Call
Question:
I really appreciate the support you who are experienced in OSA recovery so generously give. I was just wondering if we could have a brief thread on your experiences with your equipment. If, because of my limited experience with the terminology involved you have a better way to word something, please feel free. You could cut & paste the following. Thank you!! Barb 1. Time since diagnosis: 2. Machine using now: 3. Mask using now: 4. Additionals: (humidifer,gadges,etc) 5. List of equipment less effective for you: 6. List of equipment not at all effective: 7. What advice were you given in the beginning that was the most helpful to you: 8. Your favorite Sleep Disorder Web page:
Response:
Barb <Agape…@concentric.net> wrote: >I really appreciate the support you who are experienced in OSA recovery so >generously give. > I was just wondering if we could have a brief thread on your experiences with >your equipment. If, because of my limited experience with the terminology involved >you have a better way to word something, please feel free. You could cut & paste >the following. Thank you!! Barb >1. Time since diagnosis:
January, 1991 >2. Machine using now:
Respironics BiPAP-S >3. Mask using now:
Respironics >4. Additionals: (humidifer,gadges,etc)
None >5. List of equipment less effective for you:
I tried several other masks, but I had gotten used to the Respironics. The others lost their seal when I changed position (back to side), and didn’t have the rotating "whisper swivel" that gave the hose more mobility. Some of the masks had air outlets (round holes in the mask) that blew air on my arm. >6. List of equipment not at all effective: >7. What advice were you given in the beginning that was the most helpful to you: >8. Your favorite Sleep Disorder Web page:
————————————- Michael A. Quinlan mi…@primenet.com http://www.primenet.com/~mikeq "If it doesn’t fit, you must acquit!" ————————————-
Response:
Barb <Agape…@concentric.net> wrote: > I was just wondering if we could have a brief thread on your experiences with >your equipment. >1. Time since diagnosis:
Approximately 1 year. >2. Machine using now:
Healthdyne Tranquility Plus >3. Mask using now:
I have a couple of different ones but I mostly use the Respironics mask. The swivel is a big help because I sleep on my side and it helps keep the weight of the hose from pulling on the mask. I also use the nasal pillows which I actually like better, but can only use for a few days at a time before my nose gets irritated and I have to switch back to the mask and give it a rest. >4. Additionals: (humidifer,gadges,etc)
None. I have read a lot about humidifiers but have hesitated to try one, especially heated, as being hot is a problem for me.One of the reasons I prefer the pillows is that I feel hot with the mask on my face. >5. List of equipment less effective for you:
I had a big problem with the healthdyne mask. The clips kept popping off and when I bent them for a tighter fit, they broke off. I also had problems with the solid attachment pulling the mask to the side when I rolled over. >6. List of equipment not at all effective: didn’t try anything else. >7. What advice were you given in the beginning that was the most helpful to you: 1) I had a lot of trouble accomodating to the ma=
sk. I was advised to try holding it against my face, nothing attached and sitting up, and practising breathing into it. Then I gradu= ally added the headpiece, then some air, and only then was I able to lie down and try to sleep. It took almost a week to get to that= point. 2.) A great trick for washing the hose. Take it into the shower with you! You can let water from the shower head flow thru it and not worry about getting water all over the floor. >8. Your favorite Sleep Disorder Web page: The links on Bill’s page are great!! I got to some terr=
ific sites from there. Hope this helps someone…… Susan
Response:
Barb wrote: > I really appreciate the support you who are experienced in OSA recovery so > generously give. > I was just wondering if we could have a brief thread on your experiences with > your equipment. If, because of my limited experience with the terminology involved > you have a better way to word something, please feel free. You could cut & paste > the following. Thank you!! Barb > 1. Time since diagnosis:
8 months > 2. Machine using now: > sullian v plus > 3. Mask using now: > sullivan bubble and nasal pillows (switch every few days) > 4. Additionals: (humidifer,gadges,etc) > 5. List of equipment less effective for you: > 6. List of equipment not at all effective: > 7. What advice were you given in the beginning that was the most helpful to you:
Trial and error in mask adjustment – Hide quoted text — Show quoted text -> 8. Your favorite Sleep Disorder Web page:
Response:
In article <32743806.5…@concentric.net>, Agape…@concentric.net says… >1. Time since diagnosis:
1990–first sleep test in Ohio, refused getting machine–hated the thought of it and couldn’t afford it even though the insurance company was going to pay 80%. January 1996, second sleep test, still refused treatment– too stubborn but then the license bureau of Ontario stepped in and canceled my driver’s license privileges (even though I don’t even have an Ontario driver’s license; I have a valid U.S. one) July 1996, had the CPAP sleep test and got the machine about two weeks later (still waiting for my driver’s privileges to be reinstated and it’s been 3 months; I’m pissed but driving anyway) >2. Machine using now:
Respironics with 15 min. or 30 min. ramp >3. Mask using now:
Monarch, but it really does leak too much; want to get another but again–the nasty expense of it >4. Additionals: (humidifer,gadges,etc)
A humidifier, non-heated >5. List of equipment less effective for you:
Don’t know since I haven’t used any thing else >6. List of equipment not at all effective:
Don’t know either >7. What advice were you given in the beginning that was the most
helpful to you: From this newsgroup: That the air was leaking into my eyes while I was sleeping and causing the extreme fatigue and burning I was experiencing. I have since been using adhesive skin tape over my nose and the upper part of the mask; solved that problem >8. Your favorite Sleep Disorder Web page:
Hmm, don’t have one — -Jo- quo…@ionsys.com ~~~========~~~ Heads up! It’s fall…
