Category: Sleep Disorder Treatment

I sleep consciously

Question:

"Frankie" <MfrankieY5SP0LE…@blueyonder.co.uk> wrote in message

news:c05epl$135h00$1@ID-182270.news.uni-berlin.de… > "Ian" <ianbradley@@ntlworld.com> wrote in message > news:yi7Vb.863$vo1.198@newsfep4-winn.server.ntli.net… > > "PMartin555" <pmartin…@aol.com> wrote in message > > news:20040206153017.28408.00001646@mb-m01.aol.com… > > <snip> > Hi Ian > I am surmising from your post that you are aware of what OSA is > and that you feel you a sufferer …

Yep > Surgical tape is not a good idea for various reasons …wouldn’t want > you to suffocate or choke yourself  ;-)

I wondered why the wife was so keen I tried it :) it did actually help a bit but I gave up as my nasal airways are a bit clogged at the moment. <snip> Thanks for the info, this is all rather new to me but previous experience with the NHS has left me somewhat pessimistic, at least I now have more of an idea what to expect from the GP onwards. Ian

Response:

"Andy Hall" <an…@hall.nospam> wrote in message

news:nigc209s0aoov8817ra4u72eg35e2j4eks@4ax.com… > On Sun, 8 Feb 2004 13:49:48 -0000, "Frankie" > <MfrankieY5SP0LE…@blueyonder.co.uk> wrote: > >"Ian" <ianbradley@@ntlworld.com> wrote in message > >news:yi7Vb.863$vo1.198@newsfep4-winn.server.ntli.net… > >> "PMartin555" <pmartin…@aol.com> wrote in message > >> news:20040206153017.28408.00001646@mb-m01.aol.com… > >> <snip> > If you spend a couple of hours looking on the web about sleep > disordered breathing and sleep apnoea, you will know more than the > average GP, which is quite frightening really.    They are the > gatekeeper to secondary care.

That is something of a worry, I’ll have to see how clued up my GP is. Thanks for the info Andy, I’m glad your experience had a swift conclusion and I hope my own won’t be too frustrating. Ian.

Response:

On Sun, 8 Feb 2004 18:46:57 -0000, "Ian" <ianbradley@@ntlworld.com> wrote: – Hide quoted text — Show quoted text ->"Andy Hall" <an…@hall.nospam> wrote in message >news:nigc209s0aoov8817ra4u72eg35e2j4eks@4ax.com… >> On Sun, 8 Feb 2004 13:49:48 -0000, "Frankie" >> <MfrankieY5SP0LE…@blueyonder.co.uk> wrote: >> >"Ian" <ianbradley@@ntlworld.com> wrote in message >> >news:yi7Vb.863$vo1.198@newsfep4-winn.server.ntli.net… >> >> "PMartin555" <pmartin…@aol.com> wrote in message >> >> news:20040206153017.28408.00001646@mb-m01.aol.com… >> >> <snip> >> If you spend a couple of hours looking on the web about sleep >> disordered breathing and sleep apnoea, you will know more than the >> average GP, which is quite frightening really.    They are the >> gatekeeper to secondary care. >That is something of a worry, I’ll have to see how clued up my GP is. >Thanks for the info Andy, I’m glad your experience had a swift >conclusion and I hope my own won’t be too frustrating. >Ian.

Remember though that the first target is to gain access to the appropriate consultant.   As far as the GP is concerned, it’s really a case of describing the symptoms accurately and taking partner along as well to corroborate the story of breathing cessation, snoring, etc. There are numerous correlating factors with obstructive apnoea and hyponoea.  Some also correlate for central apnoea. They are indicators though, not absolutes: – snoring – weight.   Calculate your body mass index.   If it’s tending towards obesity or more then that’s an indicator – neck size. Greater than about 17 inches. – daytime sleepiness – lack of energy – sweating during the night – regular toilet trips during the night. THese are the main ones, there are more.   Equally, there are people who have apnoea who don’r snore, aren’t overweight and so on. Another thing that you can do yourself regarding assessing daytime sleepiness is the Epworth test. This is used internationally as a rough yardstick to assess whether a sleep disorder may be present – not just breathing related. There’s a copy of the questionnaire at http://www.stanford.edu/~dement/epworth.html You need to go through the questions and answer them honestly and again check with partner for agreement.    It seems all rather arbitrary but is not a bad indicator.  You might even find that the GP and almost certainly a specialist will ask you to do this. Scores of 9 and above generally indicate that there is a sleep issue of some sort. To give you an idea , prior to treatment, I had a typical score of about 15-18.    Now it’s 1-3.   Obviously mileages vary. A typical referral will be to a pulmonologist, sleep specialist or possibly neurologist if a nervous system related sleep disorder is suspected.   Tread vary warily if there is a suggestion of an ENT consultation.   You may have some ENT issues, of course, but at least one typical ENT surgical treatment used to be common for obstructive apneoa and has now been virtually abandoned (certainly in the UK as I understand it) because the success rate is so poor.  One additional problem was that this (UPPP) surgery would often leave patients unable to use CPAP afterwards.    If I ever got into the recommended surgery scenario, I would want a minimum of three opinions. .andy To email, substitute .nospam with .gl

Response:

Hi, Looking back, I’ve always been a light sleeper, but now I sleep, but I don’t!  I seem to be conscious, I don’t get deep sleep.  I am now so sleep deprived that I’m depressed, anxious, but above all just plain TIRED.  Doctors just tell me I’m depressed.  True, wouldn’t they be?  I have been refered to ENT in 20 weeks time !!  I have asked for sleeping tablets (I’ve had them before so i’m aware), but I’m not being given any.  Apnea is suspect, but I don’t snore, but I have woken with a jolt!, and I have woken feeling very ill, and collapsed twice.  I’m told its just a feint!!  My blood sugar is low but acceptable I’m told (within normal limits).  I have a demanding job which I enjoy, I’m NOT clinically depressed, just tired of being tired.  I have just found your group, can anyone offer me any insight, a twig to grasp at? Martin

Response:

The "woken up with  a jolt" part may be sleep apnea.  When you don’t breath (apnea), your oxygen level drops.  There is a section of the brain dedicated to sending out a wakeup signal in this case.  It works.  When you woke up, you started breathing again.  You will stop breathing sometime before you hit the deep stage sleep.  Since you wake up shortly thereafter, you aren’t getting the right rest you need to go about things. Sleeping pills aren’t a good idea here.  If you suppress the "wake up call", you could be in serious trouble. 20 weeks is too long.  Ask your doctor for a sleep test. Michael "PMartin555" <pmartin…@aol.com> wrote in message

news:20040205082529.18989.00001581@mb-m28.aol.com… – Hide quoted text — Show quoted text -> Hi, Looking back, I’ve always been a light sleeper, but now I sleep, but I > don’t!  I seem to be conscious, I don’t get deep sleep.  I am now so sleep > deprived that I’m depressed, anxious, but above all just plain TIRED. Doctors > just tell me I’m depressed.  True, wouldn’t they be?  I have been refered to > ENT in 20 weeks time !!  I have asked for sleeping tablets (I’ve had them > before so i’m aware), but I’m not being given any.  Apnea is suspect, but I > don’t snore, but I have woken with a jolt!, and I have woken feeling very ill, > and collapsed twice.  I’m told its just a feint!!  My blood sugar is low but > acceptable I’m told (within normal limits).  I have a demanding job which I > enjoy, I’m NOT clinically depressed, just tired of being tired.  I have just > found your group, can anyone offer me any insight, a twig to grasp at? > Martin

Response:

Thanks for the reply Michael.  I neglected to say I live in The U.K., I have to wait 20 weeks, unless I pay.  I just paid a considerable sum to see a specialist who diagnosed me as probably undiagnosable, FROM HIS CHAIR.  With our National System, waiting lists are bad news, so people are kept off the lists, but in this limbo state for 6 months or so, when they are given 5 minutes from a specialist who is ‘dancing’ between maybe 20 patients before lunch, then you’re back in limbo land again for a few months.  I’m an intelligent being, a qualified audiologist, and I’ve been round the track a while. Anyway, in the interim period, how can I get some sleep, are there any DIY alternatives.  Any help would be a big help. Thanks, Martin.

Response:

Oh, and as an add on, you mention Oxy levels dropping, would I be correct in assuming something is going to happen with CO2 as well?  Could this be why I have woken feeling very unwell, and collapsed (blacked out for 20 seconds) a couple of times.  I’m complicated I know, but I do have a logical approach to things.  What is happening to me is NOT in my imagination, it is real and tangible.  The last time I passed out, I split my head open on the bath. Martin

Response:

PMartin555 wrote: > Thanks for the reply Michael.  I neglected to say I live in The U.K., I have to > wait 20 weeks, unless I pay.  I just paid a considerable sum to see a > specialist who diagnosed me as probably undiagnosable, FROM HIS CHAIR.  With > our National System, waiting lists are bad news, so people are kept off the > lists, but in this limbo state for 6 months or so, when they are given 5 > minutes from a specialist who is ‘dancing’ between maybe 20 patients before > lunch, then you’re back in limbo land again for a few months.  I’m an > intelligent being, a qualified audiologist, and I’ve been round the track a > while. > Anyway, in the interim period, how can I get some sleep, are there any DIY > alternatives.  Any help would be a big help. > Thanks, Martin.

If you can provide test data, both mental/written and physiological, does that make a difference in your treatment in the UK? If so, there are some mental tests at: http://www.silentpartners.org/sleep/patients/epworth.htm http://www.newtechpub.com/phantom/question/quiz.html and a physiological tester at: http://www.newtechpub.com/phantom/question/quiz.html And there are other physiological testers, I think.  You might want to try a GOOGLE.

Response:

On 05 Feb 2004 20:16:15 GMT, PMartin555 wrote: >Anyway, in the interim period, how can I get some sleep, are there any DIY >alternatives.  Any help would be a big help.

Some people with OSA have fewer events when they sleep partially upright in a reclining chair or on their side. One well-known trick to force side-sleeping is fastening a tennis ball to the back of a shirt.

Response:

you mention you don’t snore. maybe the strips you place across your nose might help. my neurologist says they do improve the situation for some people. maybe try homeopathics too? –donna "PMartin555" <pmartin…@aol.com> wrote in message

news:20040205151615.28384.00001363@mb-m15.aol.com… – Hide quoted text — Show quoted text -> Thanks for the reply Michael.  I neglected to say I live in The U.K., I have to > wait 20 weeks, unless I pay.  I just paid a considerable sum to see a > specialist who diagnosed me as probably undiagnosable, FROM HIS CHAIR. With > our National System, waiting lists are bad news, so people are kept off the > lists, but in this limbo state for 6 months or so, when they are given 5 > minutes from a specialist who is ‘dancing’ between maybe 20 patients before > lunch, then you’re back in limbo land again for a few months.  I’m an > intelligent being, a qualified audiologist, and I’ve been round the track a > while. > Anyway, in the interim period, how can I get some sleep, are there any DIY > alternatives.  Any help would be a big help. > Thanks, Martin.

Response:

> you mention you don’t snore. maybe the strips you place across your nose > might help. my neurologist says they do improve the situation for some > people. maybe try homeopathics too?

they’re more likely to be useless……if one has apnea (whether they snore or not) a strip across the nose isn’t going to stop the blockage which is usually at the back of the throat — Beth in Australia (I am not a medical professional and anything stated in my posts is my opinion only unless specified otherwise) =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles

Response:

Thankyou to everybody who has replied.  I have tried the nasal strips, they do help a little, but despite ‘de-greasing’ I can’t make them stick for more than a couple of hours. Last night was interesting.  Firstly, I was aware of ”jolting awake’ just as my semi-awareness said I was just about to fall asleep.  Can anyone relate to this?  You ”jump’ awake, just as you are about to fall asleep.  You seem to have that micro-second of a window of awareness, when you know that something just ’scared you back awake’ its really annoying. Also I was aware of my shall I say ‘disordered breathing’  It may be of interest to someone reading, I first complained of not sleeping, and what I called breathlessness, when I was 10 yrs old.  I’m now 50!  I’ve tried Valerian tablets by the ton, but they have no effect other than I feel like a zombie all the next day.  Going to search the web for a sleep centre here in the U.K.  I appreciate all your input.  If anyone wants to ask me questions, feel free.  I do have a warped sense of humour!!  I do have low thyroid, but again, just within normal limits.  Martin

Response:

pmartin…@aol.com (PMartin555) wrote: >Thankyou to everybody who has replied.  I have tried the nasal strips, they do >help a little, but despite ‘de-greasing’ I can’t make them stick for more than >a couple of hours. Last night was interesting.  Firstly, I was aware of >”jolting awake’ just as my semi-awareness said I was just about to fall >asleep.  Can anyone relate to this?

Oh yeah. I liken it to a SWAT team kicking open the door to my brain. Dick Evans

Response:

On Sat, 7 Feb 2004 01:23:19 +1100, Tal wrote: >> you mention you don’t snore. maybe the strips you place across >> your nose might help. my neurologist says they do improve the >> situation for some people. >they’re more likely to be useless……if one has apnea (whether >they snore or not) a strip across the nose isn’t going to stop the >blockage which is usually at the back of the throat

They have found some some effectiveness with nose strips in reducing upper airway blockage: Acoustic Rhinometric Assessment of an External Nasal Dilator (Laryngoscope 105:275-81, 1995). External Nasal Dilator Strips Increase Maximum Inspiratory Flow Rates (Proc Thorac Soc Austral NZ P100, 1998). FWIW, that one was done with Aussie noses. My SWAG is that it would improve UARS.

Response:

"PMartin555" <pmartin…@aol.com> wrote in message

news:20040206153017.28408.00001646@mb-m01.aol.com… <snip> Hi, I’m another Brit with sleep problems, though as I’ve only just become aware of sleep apnea I’ve yet to begin the fun experience of getting something sorted on the NHS. My initial efforts to alleviate the problem involved Micropore surgical tape to keep my jaw closed, which was fine right up until I took it off in the morning together with a several nice bits of soft and sensitive cheek skin. It’s scabbed over now and as I look like I’ve been brawling, I’m having to answer all sorts of questions from concerned parties :) Do you have any idea what the chances of getting a CPAP machine are over here? I suspect it involves joining a waiting list and if lucky you might receive some ancient, battered unit just before you die of old age.

Response:

- Hide quoted text — Show quoted text -Ian wrote: > "PMartin555" <pmartin…@aol.com> wrote in message > news:20040206153017.28408.00001646@mb-m01.aol.com… > <snip> > Hi, I’m another Brit with sleep problems, though as I’ve only just > become aware of sleep apnea I’ve yet to begin the fun experience of > getting something sorted on the NHS. > My initial efforts to alleviate the problem involved Micropore surgical > tape to keep my jaw closed, which was fine right up until I took it off in > the morning together with a several nice bits of soft and sensitive cheek > skin. > It’s scabbed over now and as I look like I’ve been brawling, I’m having > to answer all sorts of questions from concerned parties :) > Do you have any idea what the chances of getting a CPAP machine are over > here? I suspect it involves joining a waiting list and if lucky you > might receive some ancient, battered unit just before you die of old age.

I’ll let your fellow Brits give you first hand info, but if you GOOGLE the archives of this newsgroup, you’ll find the experiences of a number of others in the UK NHS. The only id I can recall is Frankie.  She is an example of someone who had a lot of problems, and many months, of feeling lousy, as a result of the system. Try searching on NHS and/or UK.

Response:

"Ian" <ianbradley@@ntlworld.com> wrote in message

news:yi7Vb.863$vo1.198@newsfep4-winn.server.ntli.net… – Hide quoted text — Show quoted text -> "PMartin555" <pmartin…@aol.com> wrote in message > news:20040206153017.28408.00001646@mb-m01.aol.com… > <snip> > Hi, I’m another Brit with sleep problems, though as I’ve only just > become aware of sleep apnea I’ve yet to begin the fun experience of > getting something sorted on the NHS. > My initial efforts to alleviate the problem involved Micropore surgical > tape to keep my jaw closed, which was fine right up until I took it off in > the morning together with a several nice bits of soft and sensitive cheek > skin. > It’s scabbed over now and as I look like I’ve been brawling, I’m having > to answer all sorts of questions from concerned parties :) > Do you have any idea what the chances of getting a CPAP machine are over > here? I suspect it involves joining a waiting list and if lucky you > might receive some ancient, battered unit just before you die of old age.

Hi Ian I am surmising from your post that you are aware of what OSA is and that you feel you a sufferer … Surgical tape is not a good idea for various reasons …wouldn’t want you to suffocate or choke yourself  ;-) I am also based in the UK (Scotland). My experiance of getting through the NHS system has not been plain sailing but could have been alot worse. My GP (primary Doc) was convinced that I had sleep apnea but I found convincing the hospital (General Hospital/Pulmonary Doc) a lot harder despite the fact that my hubby was clearly telling them of my regular stop / starts when asleep. I had 2, sleepless, home studies done one by the NHS which showed 8.3 events pr hour (not enough to warrent further investigation) and the other done privatly which was equally sleepless and showing a similar result and to confuse matters further threw CSA into the equation. In the UK diagnosis seems to consist off 1/ See GP who refers you to pulmonary Doc…Wait 2/ See Pulmonary Doc who should then arrange a Home Sleep Study…Wait 3/ Get Home Study Done ..Wait For results 4/ If Home Study throws up possible Sleep Apnea get referred to Sleep Clinic….Wait 5/ Attend Sleep Clinic for initial appointment where you will be advised of the next step …full sleep study(PSG) or, which is now becoming more popular, invited to take an Auto Titrating machine away with you for a couple of nights but of course you will have to WAIT for one to become available. In my case I was auto titrated in hospital overnight. 6/ Get Study /Titration done As you can gather there is a lot of waiting involved …In my case from start to finish it was 12 months. Dependent on where you are based YMMV. I have spoke to others who have only waited for only three months  while some have had to wait 2+ years. I should have been one of the latter but got to hear of another sleep clinic with a much shorter wait list (3 months compared to 2 years) and asked for a referral to that one. I ended up waiting under 2 months After my titration I was given a pristine Rem Star Plus to take home with me but I have heard of others who are not so fortunate and end up with older machines but thankfully this seems to be rare. The important thing is that if you need to be very pro active as regards your health concerns with the doctors and go well armed with all info …take your ”bed partner” with you… they could prove invaluable. The major hurdle is convincing the docs at first/second base… this is where the system could fail you. So be firm with your convictions …It’s your health you are fighting for. Good luck and keep us posted on how it goes — Frankie To Reply By E-Mail Remove  ’MY SPLEEN’ http://uk.msnusers.com/LivingWithSleepApnea ————————————————————————- FIGHT BACK AGAINST SPAM! Download Spam Inspector, the Award Winning Anti-Spam Filter http://mail.giantcompany.com

Response:

On Sun, 8 Feb 2004 13:49:48 -0000, "Frankie" – Hide quoted text — Show quoted text -<MfrankieY5SP0LE…@blueyonder.co.uk> wrote: >"Ian" <ianbradley@@ntlworld.com> wrote in message >news:yi7Vb.863$vo1.198@newsfep4-winn.server.ntli.net… >> "PMartin555" <pmartin…@aol.com> wrote in message >> news:20040206153017.28408.00001646@mb-m01.aol.com… >> <snip> >> Hi, I’m another Brit with sleep problems, though as I’ve only just >> become aware of sleep apnea I’ve yet to begin the fun experience of >> getting something sorted on the NHS. >> My initial efforts to alleviate the problem involved Micropore surgical >> tape to keep my jaw closed, which was fine right up until I took it off in >> the morning together with a several nice bits of soft and sensitive cheek >> skin. >> It’s scabbed over now and as I look like I’ve been brawling, I’m having >> to answer all sorts of questions from concerned parties :) >> Do you have any idea what the chances of getting a CPAP machine are over >> here? I suspect it involves joining a waiting list and if lucky you >> might receive some ancient, battered unit just before you die of old age. >Hi Ian >I am surmising from your post that you are aware of what OSA is and that you >feel you a sufferer … >Surgical tape is not a good idea for various reasons …wouldn’t want you to >suffocate or choke yourself  ;-) >I am also based in the UK (Scotland). My experiance of getting through the >NHS system has not been plain sailing but could have been alot worse. My GP >(primary Doc) was convinced that I had sleep apnea but I found convincing >the hospital (General Hospital/Pulmonary Doc) a lot harder despite the fact >that my hubby was clearly telling them of my regular stop / starts when >asleep. I had 2, sleepless, home studies done one by the NHS which showed >8.3 events pr hour (not enough to warrent further investigation) and the >other done privatly which was equally sleepless and showing a similar result >and to confuse matters further threw CSA into the equation. >In the UK diagnosis seems to consist off >1/ See GP who refers you to pulmonary Doc…Wait >2/ See Pulmonary Doc who should then arrange a Home Sleep Study…Wait >3/ Get Home Study Done ..Wait For results >4/ If Home Study throws up possible Sleep Apnea get referred to Sleep >Clinic….Wait >5/ Attend Sleep Clinic for initial appointment where you will be advised of >the next step …full sleep study(PSG) or, which is now becoming more >popular, invited to take an Auto Titrating machine away with you for a >couple of nights but of course you will have to WAIT for one to become >available. In my case I was auto titrated in hospital overnight. >6/ Get Study /Titration done >As you can gather there is a lot of waiting involved …In my case from >start to finish it was 12 months. Dependent on where you are based YMMV. I >have spoke to others who have only waited for only three months  while some >have had to wait 2+ years. I should have been one of the latter but got to >hear of another sleep clinic with a much shorter wait list (3 months >compared to 2 years) and asked for a referral to that one. I ended up >waiting under 2 months

This pattern is true of NHS treatment, but varies a bit by area. Using private consultation and study, I saw the consultant in 2 weeks after initial GP discussion and had a sleep study done the following week.   The type of instrumentation done depends on what is required but can include the full range of oximetry with a finger monitor, video and audio imaging and analysis for movement and snore monitoring, PTT and if necessary EEG monitoring.   In my case, the insurance paid for that. The follow up consultation was a few days later with OSA diagnosis confirmed.    At that point I could have elected to use the NHS to supply equipment with the attendent messing around.  The problem is that in the UK, it is illegal to drive if you have a diagnosed sleep disorder such as OSA and are not being treated for it. I was loaned a CPAP machine for a week and the data was downloaded for analysis to determine compliance and efficacy as well as suitability for autotitrating equipment if I preferred the advantages of that. I then bought my own PAP machine with the consultant’s prescription. THis one can also be downloaded to obtain statistical information about treatment over a period of time, which is useful to the consultant as well. The total time from GP visit to final equipment was under 4 weeks and I didn’t have the issue of having to decide about driving illegally or not because treatment commenced on the day of official diagnosis. >After my titration I was given a pristine Rem Star Plus to take home with me >but I have heard of others who are not so fortunate and end up with older >machines but thankfully this seems to be rare. >The important thing is that if you need to be very pro active as regards >your health concerns with the doctors and go well armed with all info >…take your ”bed partner” with you… they could prove invaluable. The >major hurdle is convincing the docs at first/second base… this is where >the system could fail you. So be firm with your convictions …It’s your >health you are fighting for.

I completely agree.   If you spend a couple of hours looking on the web about sleep disordered breathing and sleep apnoea, you will know more than the average GP, which is quite frightening really.    They are the gatekeeper to secondary care. For the first consultation, taking the partner is really important. >Good luck and keep us posted on how it goes

.andy To email, substitute .nospam with .gl

Response:

website

Question:

On Thu, 22 Jan 2004 20:00:01 -0700, "Tiger Lily" <m…@privacy.com> wrote: >and fuck you too

charming :>) Is Elizabeths pathetic bitch having a relapse then?

Response:

"jake" <inva…@invalid.com> wrote in message

news:sa5510tvffj4jdd8hlilihspool6hh1b6p@4ax.com… ><snip> > >Hey "Norm", > >    I don’t know who to be more sorry for you and the "not getting help" for > >your apnea (been there) or the child that your about to bring into this > >world and the hatefulness you express in your post’s. > oh?

Yes, and your point is? I’ve been suffering from sleep apnea for years and not get help for it and I have kids and know how sleep apnea can effect them. You dont beleave I can be conserned for her or the childs health and walfare? > I saw no comment on the hatred and bile spewed out by the socalled > "christian" fanatical control freak and her hangers-on that the poster > reacts to..?

I’m assuming you refer to my post not saying anything to the others about the "hate" in the other post’s. As I said in the text of my post, my intent was not to flame so I didnt say anythign to them. It was to express a common ground of support in not having help with apnea. Do you have sleep apnea? DO you know wht it’s like to sleep for hours and get up feeling like you havent slept in day’s? I further feel that to say "hey, i’ve been that way also" and that during that time I know I was not as nice as I should be might help her look at how she respond’s to to the others. I also didnt feel any further comment tword the others was required. It would be nothign more than flame. > >Baby’s are very receptive.

Poisinous comment? By what possable error could you judge this a hatefull comment? Call your local hopsital emergancy room, speak to any of the nurse’s or doctors. Look up some of the local mental health agency’s and ask them if this isnt true. It’s clear that you’ ve never had children. They feel and often respond to the mood around the house wither it’s is good or bad. Especially when they are small. I speak from direct experiance here, having been father to 5 daughter and a son. I can tell you that this is so. > that poisonous comment is WAY up there > with hateful posts..

My post was "No" such thing. It was a common ground responce saying I’ve been there. > dont kid yourself..

About what? These things I know from my years of living with sleep apnea and kids. You saying that the kids and this 3 inches of steel (trach) in my neck are wrong". When the youngest knows I’m feeling better and she can come sit in my lap to watch a movie when before she couldnt. (granted she is having a problem with Dad’s new necklace). >  <passive-aggressive bullshit clipped>

What are you talking about? I’ve been tested by professionals and there’s no passive aggressive to it. You have read my post with a pre misconception and thus your "take" on it is wrong. My intent of the original question (being the original post in this string) was to find a place to share my experiences with sleep apnea and living life over the years with others. ME

Response:

"jake" <inva…@invalid.com> wrote in message

news:i455101rfkb6pnnvolefp4l0v7hio5lnpf@4ax.com… > People are strongly advised to NOT to send personal information or > bank account details to mebers of this self-appointed clique

I totally agree, *never* send personal information over the net. However, As far as this "mebers of this self-apponited clique" stuff. I take it this should be ‘members’ but I have no idea about any clique or group here. ME

Response:

On Sat, 24 Jan 2004 17:02:52 GMT, "ME" <dontbot…@nospam.com> wrote: >"jake" <inva…@invalid.com> wrote in message >news:i455101rfkb6pnnvolefp4l0v7hio5lnpf@4ax.com… >> People are strongly advised to NOT to send personal information or >> bank account details to mebers of this self-appointed clique >I totally agree, *never* send personal information over the net. >However, As far as this "mebers of this self-apponited clique" stuff. >I take it this should be ‘members’ but I have no idea about any clique or >group here.

you will find out soon enough if you ever say anything  "Tal" AKA Elizabeth Harris disagrees with or if she takes  a personal dislike to you.. then YOU will be called a troll and abusive comments made about you and your family and children..to try to drive you out >ME

– The reasonable man adapts himself to the world; the unreasonable one persists in trying to adapt the world to himself.  Therefore all progress depends on the unreasonable man.          - George Bernard Shaw

Response:

On Sat, 24 Jan 2004 17:02:52 GMT, "ME" <dontbot…@nospam.com> wrote: >"jake" <inva…@invalid.com> wrote in message >news:sa5510tvffj4jdd8hlilihspool6hh1b6p@4ax.com… >><snip> >> >Hey "Norm", >> >    I don’t know who to be more sorry for you and the "not getting help" >for >> >your apnea (been there) or the child that your about to bring into this >> >world and the hatefulness you express in your post’s. >> oh? >Yes, and your point is?

the point is you seem to be joining in a pack attack >I’ve been suffering from sleep apnea for years and >not get help for it and I have kids and know how sleep apnea can effect >them. You dont beleave I can be conserned for her or the childs health and >walfare?

I believe its a real cheap shot..and is simply a pale echo of the vile tactics >> I saw no comment on the hatred and bile spewed out by the socalled >> "christian" fanatical control freak and her hangers-on that the poster >> reacts to..? >I’m assuming you refer to my post not saying anything to the others about >the "hate" in the other post’s.

precisely.. >As I said in the text of my post, my intent >was not to flame so I didnt say anythign to them.

no..you did not but you chose to talk about hateful posts to the poster they were attacking..as if people kicked were not allowed to say ouch.. there is a history here that perhaps you are unaware of.. > It was to express a common >ground of support in not having help with apnea. Do you have sleep apnea? DO >you know wht it’s like to sleep for hours and get up feeling like you havent >slept in day’s? I further feel that to say "hey, i’ve been that way also" >and that during that time I know I was not as nice as I should be might help >her look at how she respond’s to to the others. I also didnt feel any >further comment tword the others was required. It would be nothign more than >flame. >> >Baby’s are very receptive. >Poisinous comment? By what possable error could you judge this a hatefull >comment?

you dont think sly negative assumptions that then poster would be hateful to the baby inflaming? >Call your local hopsital emergancy room, speak to any of the >nurse’s or doctors. Look up some of the local mental health agency’s and ask >them if this isnt true. It’s clear that you’ ve never had children.

what is "clear " to you and reality are two different things >They feel and often respond to the mood around the house wither it’s is good or >bad. Especially when they are small. I speak from direct experiance here, >having been father to 5 daughter and a son. I can tell you that this is so.

that is as patronizing as your facile and erroneous assumption that others have not had the same experience.. >> that poisonous comment is WAY up there >> with hateful posts.. >My post was "No" such thing. It was a common ground responce saying I’ve >been there.

saying you dont know whether to feel more sorry for the Mom or the baby was poisonous and spiteful.. >> dont kid yourself.. >About what?

about your passive-aggressive post.. It was hostile and part of a pack attack but quite predictably here you are claiming you were trying to be "supportive" >These things I know from my years of living with sleep apnea and >kids. You saying that the kids and this 3 inches of steel (trach) in my neck >are wrong". When the youngest knows I’m feeling better and she can come sit >in my lap to watch a movie when before she couldnt. (granted she is having a >problem with Dad’s new necklace).

of course not.. sorry to hear this.. >>  <passive-aggressive bullshit clipped> >What are you talking about? I’ve been tested by professionals and there’s no >passive aggressive to it.

passive agressiveness a style of communicating hostility under the guise of being helpful.. nothing to do with sleep apnea.. >You have read my post with a pre misconception and >thus your "take" on it is wrong.

that would be nice to believe.. >My intent of the original question (being >the original post in this string) was to find a place to share my >experiences with sleep apnea and living life over the years with others.

well despite the best efforts of this clique you have failed to notice this is a support group for sleep disorders in general not just Australians with sleep apnea.. that was all the poster they are trying to drive off wanted too.. The bogus FAQ on the private website is altered to suit the owners current "hit list" as you have attacked one of her marked victims I imagine you will be able to post free of personal attacks from her or her cronies..

Response:

"Tal" <goer…@hotmail.com> wrote in message

news:buq0ar$kieet$1@ID-148111.news.uni-berlin.de… > > Sleepnet has forums for all kinds of sleep disorders >SNIP<

Yes, this is the site I was thinking about, thanks. > my point was, the original poster was askign about a place specific place to > post his story on a website, NOT to put it in a discussion thread……he > was specifically referring to the page on the FAQ of this newsgroup where > there is a section for people to submit their personal stories that he’d > seen reference to in the past.

I would actually post it here if the group generally didnt mind, it might be long winded. > if he’d just wanted to post his story in a discussion thread, he’d likely > have done that right here instead of asking where the specific webpage

was! Been a reguler on the internet since 1989, I’ve seen a lot of people go ape over a large post, especially one that would be a long one. Plus I have to edit it a bit over some detail’s I’ve been advise not to include. ME – Hide quoted text — Show quoted text -> — > Beth in Australia > (I am not a medical professional and anything stated in my posts is my > opinion only unless specified otherwise) > =================== > FAQ for alt.support.sleep-disorder can be found here > http://talhost.net/sleep > Newsgroup Archives http://talhost.net/sleep/archives.htm > this site is a work in progress – feel free to submit info/articles > Remove my name to reply

Response:

<N…@nospam.com> wrote in message

news:nu7010dlc8525dekec1qqnvqfgu9fteiu9@4ax.com… > Yes I have been nice.. too bad you are so damn nasty.. you’re one of Tal’s

groupies that ruins the NG. > I’m 35 weeks pregnant suffering from apena and can not get any help.

Having home pulse oximetry test next week.  But no point in trying to get support from people like you. > Here you are resorting to name calling and obscenities.. yeah you’re a real sweet heart. > Say bye bye to your group.

Hey "Norm",     I don’t know who to be more sorry for you and the "not getting help" for your apnea (been there) or the child that your about to bring into this world and the hatefulness you express in your post’s. Baby’s are very receptive. Yea, I have sleep apnea, been unable to tolerate the cpap, (now I got one to sell) finally after over 8 years of trying I had a trach. Two adjusting surgery’s later and it’s taken a lot of adjusting and it’s not very pretty especially with the bronchitis like now. It suck’s to cough and shoot blood all over the place. Anyway, I now have people telling me how much fun I am to be around, I feel better, wake up like a guy should. I don’t know, maybe your consider this just a flame and allow your mood to respond but I am only observing and hoping a person can point out something to help. Get you to stop for a minute and maybe consider this: I’ve seen more name calling from you "Norm" than the others. A big "Ditto" on the obscenities part. You seam to feel that the use of some words is proper sentence structure. What would you think to the first word spoken by your kid was an obscenities? I didn’t know that Tiger Lily had a group what is it about? Why do you think she will lose it? ME

Response:

- Hide quoted text — Show quoted text -ME wrote: > <N…@nospam.com> wrote in message > news:nu7010dlc8525dekec1qqnvqfgu9fteiu9@4ax.com… >>Yes I have been nice.. too bad you are so damn nasty.. you’re one of Tal’s > groupies that ruins the NG. >>I’m 35 weeks pregnant suffering from apena and can not get any help. > Having home pulse oximetry test next week.  But no point in trying to get > support from people like you. >>Here you are resorting to name calling and obscenities.. yeah you’re a > real sweet heart. >>Say bye bye to your group. > Hey "Norm", >     I don’t know who to be more sorry for you and the "not getting help" for > your apnea (been there) or the child that your about to bring into this > world and the hatefulness you express in your post’s. Baby’s are very > receptive. Yea, I have sleep apnea, been unable to tolerate the cpap, (now I > got one to sell) finally after over 8 years of trying I had a trach. Two > adjusting surgery’s later and it’s taken a lot of adjusting and it’s not > very pretty especially with the bronchitis like now. It suck’s to cough and > shoot blood all over the place. Anyway, I now have people telling me how > much fun I am to be around, I feel better, wake up like a guy should. I > don’t know, maybe your consider this just a flame and allow your mood to > respond but I am only observing and hoping a person can point out something > to help. Get you to stop for a minute and maybe consider this: I’ve seen > more name calling from you "Norm" than the others. A big "Ditto" on the > obscenities part. You seam to feel that the use of some words is proper > sentence structure. What would you think to the first word spoken by your > kid was an obscenities? I didn’t know that Tiger Lily had a group what is it > about? Why do you think she will lose it? > ME

If you want more information, send your email address to me at nor…@socal.rr.com.  This is a mailbox I open and close, as required.

Response:

"jake" <inva…@invalid.com> wrote in message

news:rq95105bfjvico9nqnb7njn6i3jbkmrfhe@4ax.com… <snip> > the point is you seem to be joining in a pack attack

Well, I’m not, if you reread my original post I even said it was not intended as an attack, If so, I am attacking myself because I’ve been like she seams to be while my sleep apnea was untreated. > I believe its a real cheap shot..and is simply a pale echo of the vile > tactics

The truth is a cheap shot? In this case it was simply an observation of how she was acting. The intent behind my post, what you seam to think you can judge and assume I am attacking her. Well I’m not. > >I’m assuming you refer to my post not saying anything to the others about > >the "hate" in the other post’s.

I saw no reason to make my post a "flame" of the whole group or even note the others attack (It wouldnt do any good anyway, if as you say, it’s a clique with plans to get her to leave) when I felt her problem and her child’s health more important. Especially since I have been there and done that. > no..you did not

So this group have a rule that the post must include a responce to every attack or such? I think not. You are trying to require I post as you see fit as well as make a judgement call of my motives and plans. Wont work. > but you chose to talk about hateful posts to the poster they were > attacking..as if people kicked were not allowed to say ouch.. > there is a history here that perhaps you are unaware of..

Again, re read the post. I said no such thing. my post was to "norm" about it was not to talk about her post’s it was to point out the content of them and how they sound familure. Nothing else. To complain about all the negativity was not my point nor my in my needs, if you want to make it yours fine, go ahead feel free to judge the others but leave me out of it. There’s enought to flame about beside’s personal differences. I wanted to offer a little support to norm, in an attempt to help,(a reason why this group is here) from someone going thru what I have been thru myself. That’s all there is to it. I’ve made this clear before. > > It was to express a common > >ground of support in not having help with apnea. Do you have sleep apnea? DO > >you know wht it’s like to sleep for hours and get up feeling like you havent > >slept in day’s? I further feel that to say "hey, i’ve been that way also" > >and that during that time I know I was not as nice as I should be might help > >her look at how she respond’s to to the others. I also didnt feel any > >further comment tword the others was required. It would be nothign more than > >flame.

I noticed you don’t respond to my questions here…so how can you judge this matter with no knowledge to base on? > >> >Baby’s are very receptive. > >Poisinous comment? By what possible error could you judge this a hatefull > >comment? > you dont think sly negative assumptions that then poster would be > hateful to the baby inflaming?

Again, your comment assumes fact’s not in evidence. "norm" has posted a number of times and been very negative and hateful. I feel that she might be doing this due to the untreated sleep apnea, since I’ve been this way myself. There was no "sly negative assumptions" in the fact that baby’s do feel the world around them and as a parent I would feel it important to keep my baby from that. I hope "norm" does also. I *never* accused norm of any such thing as being hateful to her baby. If you will read her post she hasn’t even deliver it yet. > >Call your local hopsital emergancy room, speak to any of the > >nurse’s or doctors. Look up some of the local mental health agency’s and ask > >them if this isnt true. It’s clear that you’ ve never had children. > what is "clear " to you and reality are two different things

Then why do you try to turn my post into a bad thing? Make barb questiing of the satements. Your even ignoring my admission to being the same before my treatment? You make claim that my statements where meant as something else. > >They feel and often respond to the mood around the house wither it’s is good or > >bad. Especially when they are small. I speak from direct experiance here, > >having been father to 5 daughter and a son. I can tell you that this is so. > that is as patronizing as your facile and erroneous assumption that > others have not had the same experience..

It is not my post that has been patronizing. Your quickly turning into a flame’ing troll and getting close to the plonked button. I said nothing of "others", only that *your* assumptions of my intent behind my post is wrong. Clearly so since I’ve made an attempt to clarify my statements and you still feel necessary to question it and put a negative twist to it. The simple truth is you dont know what I was intending or planning in the post, you have no evidence as to a plan of the clique and myself to pack attack her and your wrong to continue this string under this idea. > saying you dont know whether to feel more sorry for the Mom or the > baby was poisonous and spiteful..

So, since you feel your so able to judge my heart & intent in this matter, which should I feel more sorry for? Mom or baby? Mom has untreated sleep apnea with all that that involves, the baby will be dependant on her for all of her needs. You dont think that’s a reason to be conserned? Having been there myself it’s easy to say that you can miss a lot of things and just that can hurt the kids. An example, I’ve been in a bad mood and missed chances to plan outside with my kids on the swingset. > >> dont kid yourself.. > >About what? > about your passive-aggressive post.. > It was hostile and part of a pack attack but quite predictably here > you are claiming you were trying to be "supportive"

I am very supportive! I am not part of any pack. You assume in error. OH, one other point on this "pack attack" idea, your idea of a pack attack assumes there’s a motive and group plan behind the post. After all that’s what a pack attack is. I don’t know any of the group and there was no contact prior or after this post out of the newsgroup so such an idea is again false. > >These things I know from my years of living with sleep apnea and > >kids. You saying that the kids and this 3 inches of steel (trach) in my neck > >are wrong". When the youngest knows I’m feeling better and she can come sit > >in my lap to watch a movie when before she couldnt. (granted she is having a > >problem with Dad’s new necklace). > of course not.. > sorry to hear this..

No reason to feel sorry for me, I’m getting treatment and seeing the kids smile again was worth it. I hope some day to heal the wounds in the relationship from the past. I’d rather have a different thing than the necklace but to see my daughters smile is better than the "mood" that went on in the house before. I do *feel* for "norm" as I’ve been there. > passive agressiveness a style of communicating hostility under the > guise of being helpful.. > nothing to do with sleep apnea..

You are wrong, I’ve explained myself and pointed out your mistake in "reading" my post. The "aggressive" of the passive aggressive refer’s to what? Gaining control of something, right. Well there’s nothing here to gain control of. If norm were to respond in kind to my post my only hope was to get her to consider a trach as treatment for her Apnea and thus make life better for her and her child. Nothing to control. > >You have read my post with a pre misconception and > >thus your "take" on it is wrong. > that would be nice to believe..

It’s the truth and your comment below proves this. > >My intent of the original question (being > >the original post in this string) was to find a place to share my > >experiences with sleep apnea and living life over the years with others. > well despite the best efforts of this clique you have failed to notice > this is a support group for sleep disorders in general not just > Australians with sleep apnea..

I did notice the other post’s of an attacking nature, so what? I’ve been online long enough to know what "alt.support.sleep-disorder" is for and unlike you I decided to leave the "clique" as you called it alone. Even if you could do something about this one, a new one would take it’s place. I am not part of it, don’t know who is, I don’t care. I wont be part of it. I have bad news for you, little clique’s are just a part of the world. And for the record I’m not Australian and I’ve never lived in Australia. Check my headers. I never posted anything saying I am or anything about that for that matter. You have an issue, valid or not about this clique and have flamed/attacked me and my post for it. > that was all the poster they are trying to drive off wanted too..

A sad waist of time as it will never happen. This group is clealry for all the world with sleep disorders and for support. If they really want a group just for Austrailians then they have to go form one. It would ahve to have that in the title to make it happen. > The bogus FAQ on the private website is altered to suit the owners > current "hit list"

Well, I’ve never read any FAQ for this group so I cant address that point. As far as I know most FAQ’s are kept on a private website since they dont fit the format of a normal newsgroup server, so what? Beside’s I don’t live by the FAQ’s of a newsgroup, they are to often written with personal agenda’s nor do I post by a FAQ. I live by a guideline of net edicate/the golden rule with a little of Jesus’ own "walk a mile in his shoes" before you make a judgment of someone. > as you have attacked one of her marked victims I imagine you will be > able to post free of personal attacks from her or her cronies..

I did not attack anyone. If i did it was norm and she has the right to say something about it not you. But, since I didnt attack her it’s a mute point. I can resolve any personal attack’s easily and no one will ever stop me from posting. Since … read more »

Response:

Sorry I was just trying to be helpful. It won’t happen again. Carolyn – Hide quoted text — Show quoted text -Tal wrote: > my point was, the original poster was askign about a place specific place to > post his story on a website, NOT to put it in a discussion thread……he > was specifically referring to the page on the FAQ of this newsgroup where > there is a section for people to submit their personal stories that he’d > seen reference to in the past.

Response:

"The real Norm" <"The real Norm"@socal.rr.com> wrote: ><snip> > If you want more information, send your email address to me at > nor…@socal.rr.com.  This is a mailbox I open and close, as required.

Well, if you intend this for me…no thanks! ME

Response:

Me….. this is the real Norm, not the troll Norm that posts here gives some background into the Norm@Nospam poster here "ME" <dontbot…@nospam.com> wrote in message

news:yFbQb.105881$sv6.506316@attbi_s52… – Hide quoted text — Show quoted text -> "The real Norm" <"The real Norm"@socal.rr.com> wrote: > ><snip> > > If you want more information, send your email address to me at > > nor…@socal.rr.com.  This is a mailbox I open and close, as required. > Well, if you intend this for me…no thanks! > ME

Response:

Tiger Lily" <m…@privacy.com> wrote in message

news:burm8p$l3ap5$1@ID-181334.news.uni-berlin.de… > Me….. this is the real Norm, not the troll Norm that posts here > gives some background into the Norm@Nospam poster here

Well, I "called it" in my post from what I’ve actually seen in the posting’s, beyond that I don’t think it needs to get into a direct email "gossip" type thing. This "troll Norm" as you called has been a bit to quick to "anger & cuss" from the start. I don’t consider it as troll issue as I have suffered from "untreated" Sleep apnea for years and I know it can make you like her. It may be beyond her control, example, just as the daytime sleepiness for some apnea sufferer’s can put them right to "sleep" no matter how hard they fight it. I lost my drivers license because my doctor couldn’t get this handled. A 10 year career as a truck driver over. If this is the case I feel sorry for her and the child. So should we all, I hope she get’s some sort of help soon. I feel the trach saved my life, as well as others around me because of sleep apnea’s effect’s. ME.

Response:

On Fri, 23 Jan 2004 13:21:46 +1100, "Tal" <goer…@hotmail.com> wrote: >well why don’t you stay there and go away from here *smile*

just who the hell do you think you are to tell people suffering from sleep disorders not to post to a public unmoderated group for suffers from sleep disorder? you want a moderated group you can control? get off your fat arse and create one!! you cant con anyone but newbies into thinking your private vanity website is anything but a private website. — The reasonable man adapts himself to the world; the unreasonable one persists in trying to adapt the world to himself.  Therefore all progress depends on the unreasonable man.          - George Bernard Shaw

Response:

On Fri, 23 Jan 2004 05:41:43 GMT, "The real Norm" <"The real – Hide quoted text — Show quoted text -Norm"@socal.rr.com> wrote: >ME wrote: >> <N…@nospam.com> wrote in message >> news:nu7010dlc8525dekec1qqnvqfgu9fteiu9@4ax.com… >>>Yes I have been nice.. too bad you are so damn nasty.. you’re one of Tal’s >> groupies that ruins the NG. >>>I’m 35 weeks pregnant suffering from apena and can not get any help. >> Having home pulse oximetry test next week.  But no point in trying to get >> support from people like you. >>>Here you are resorting to name calling and obscenities.. yeah you’re a >> real sweet heart. >>>Say bye bye to your group. >> Hey "Norm", >>     I don’t know who to be more sorry for you and the "not getting help" for >> your apnea (been there) or the child that your about to bring into this >> world and the hatefulness you express in your post’s. Baby’s are very >> receptive. Yea, I have sleep apnea, been unable to tolerate the cpap, (now I >> got one to sell) finally after over 8 years of trying I had a trach. Two >> adjusting surgery’s later and it’s taken a lot of adjusting and it’s not >> very pretty especially with the bronchitis like now. It suck’s to cough and >> shoot blood all over the place. Anyway, I now have people telling me how >> much fun I am to be around, I feel better, wake up like a guy should. I >> don’t know, maybe your consider this just a flame and allow your mood to >> respond but I am only observing and hoping a person can point out something >> to help. Get you to stop for a minute and maybe consider this: I’ve seen >> more name calling from you "Norm" than the others. A big "Ditto" on the >> obscenities part. You seam to feel that the use of some words is proper >> sentence structure. What would you think to the first word spoken by your >> kid was an obscenities? I didn’t know that Tiger Lily had a group what is it >> about? Why do you think she will lose it? >> ME >If you want more information, send your email address to me at >nor…@socal.rr.com.  This is a mailbox I open and close, as required.

People are strongly advised to NOT to send personal information or bank account details to mebers of this self-appointed clique – Hide quoted text — Show quoted text –

Response:

- Hide quoted text — Show quoted text -On Fri, 23 Jan 2004 04:49:34 GMT, "ME" <dontbot…@nospam.com> wrote: ><N…@nospam.com> wrote in message >news:nu7010dlc8525dekec1qqnvqfgu9fteiu9@4ax.com… >> Yes I have been nice.. too bad you are so damn nasty.. you’re one of Tal’s >groupies that ruins the NG. >> I’m 35 weeks pregnant suffering from apena and can not get any help. >Having home pulse oximetry test next week.  But no point in trying to get >support from people like you. >> Here you are resorting to name calling and obscenities.. yeah you’re a >real sweet heart. >> Say bye bye to your group. >Hey "Norm", >    I don’t know who to be more sorry for you and the "not getting help" for >your apnea (been there) or the child that your about to bring into this >world and the hatefulness you express in your post’s.

oh? I saw no comment on the hatred and bile spewed out by the socalled "christian" fanatical control freak and her hangers-on that the poster reacts to..? >Baby’s are very receptive.

that poisonous comment is WAY up there with hateful posts.. dont kid yourself..  <passive-aggressive bullshit clipped>

Response:

yeah yeah yeah……..be your childish self, we all KNOW who you are……you’ve proved it over and over – you’re unstable and you have some serious problems – and i don’t mean with sleep. i don’t know where you get this rubbish about australians LOL…..there are only a couple of australians even around this newsgroup!  but again, you’re just proving how unstable and disturbed you are Any sane person would have left this group long ago if things are the way you claim they are.  If you were hurt, you wouldn’t have come back…..you’d have left and turned your back on the place, but no……you weren’t hurt, you enjoy what you do and the respose you get……you trive on it…..and i’m sure right now you’re really excited about what i’m saying cause you know you’ve got a reaction! and that’s just what you want. Tell ya what tho…..it was annoying for a while, but now you’re just plain boring — Beth in Australia (I am not a medical professional and anything stated in my posts is my opinion only unless specified otherwise) =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply <N…@nospam.com> wrote in message

news:5k50101cvblm778arrcpb30upa9q93ousm@4ax.com… > As much as you’d like it you and your groupies are not going to drive me

away.  It’s a fucking shame though that you have ruined this group for me with your nonsense about me being a troll simply because I did not understand all the CPAP terminolgy. > You don’t own this group, your webpage is not about this group and this is

an international group it’s not just for you and your Aussie friends. > Fuck it.. I’ve tried and tried to get support here and all I get is crap

from you.. fine I’m done playing nice. – Hide quoted text — Show quoted text -> Say bye bye to your little group. > On Fri, 23 Jan 2004 13:21:46 +1100, in alt.support.sleep-disorder "Tal" <goer…@hotmail.com> wrote: > :well why don’t you stay there and go away from here *smile* > : > :> I like sleepnet. > :

Response:

you’ve been nice?????????? well have this space all to yourself then love your name…… you sure don’t look like Norm but i guess you are getting your rocks off posting using Norms name were you born a bitch or do you have to work hard at it? and fuck you too <N…@nospam.com> wrote in message

news:5k50101cvblm778arrcpb30upa9q93ousm@4ax.com… > As much as you’d like it you and your groupies are not going to drive me

away.  It’s a fucking shame though that you have ruined this group for me with your nonsense about me being a troll simply because I did not understand all the CPAP terminolgy. > You don’t own this group, your webpage is not about this group and this is

an international group it’s not just for you and your Aussie friends. > Fuck it.. I’ve tried and tried to get support here and all I get is crap

from you.. fine I’m done playing nice. – Hide quoted text — Show quoted text -> Say bye bye to your little group. > On Fri, 23 Jan 2004 13:21:46 +1100, in alt.support.sleep-disorder "Tal" <goer…@hotmail.com> wrote: > :well why don’t you stay there and go away from here *smile* > : > :> I like sleepnet. > :

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well why don’t you stay there and go away from here *smile* – Hide quoted text — Show quoted text -> I like sleepnet.

Response:

> Sleepnet has forums for all kinds of sleep disorders >SNIP<

my point was, the original poster was askign about a place specific place to post his story on a website, NOT to put it in a discussion thread……he was specifically referring to the page on the FAQ of this newsgroup where there is a section for people to submit their personal stories that he’d seen reference to in the past. if he’d just wanted to post his story in a discussion thread, he’d likely have done that right here instead of asking where the specific webpage was! — Beth in Australia (I am not a medical professional and anything stated in my posts is my opinion only unless specified otherwise) =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

Tal, Sleepnet has forums for all kinds of sleep disorders. Sandman has one for people with sleep apnea where people can post information about CPAP’s mostly, other OSA devices–like oral appliances also general OSA information and question. If someone is having a problem with getting CPAP  or has other questions someone will answer them. The URL that I gave was for the nonCPAP postings. This would be asking information about UPPP or anyother of the different surgeries available. For the most part it is people asking questions because they are thinking about having one of the surgeries. The other posting are how successful or not the surgeries have been. Sometimes there are questions about OSA in relationship to other diseases. His post of having a trach for OSA is certainly within line for that forum. Granted posting on your site he could post his whole story in detail. On Sleepnet some posts go as long as a page or 1 1/2 pages but hardly ever more than that. Carolyn – Hide quoted text — Show quoted text -Tal wrote: > as far as i know, sleepnet has no section for people to submit their > personal stories > — > Beth in Australia > (I am not a medical professional and anything stated in my posts is my > opinion only unless specified otherwise) > =================== > FAQ for alt.support.sleep-disorder can be found here > http://talhost.net/sleep > Newsgroup Archives http://talhost.net/sleep/archives.htm > this site is a work in progress – feel free to submit info/articles > Remove my name to reply

Response:

This is the URL for Sleepnet. http://www.sleepnet.com/noncpap14/noncpap14.html Carolyn – Hide quoted text — Show quoted text -ME wrote: > Hello, >     I was considering posting a story about my own experience with OSA and > trach. Cant find the website, been posted here before, anyone got a url? > Thanks > ME

Response:

> >     I was considering posting a story about my own experience with OSA and > > trach. Cant find the website, been posted here before, anyone got a url? > > Thanks > This is the URL for Sleepnet. > http://www.sleepnet.com/noncpap14/noncpap14.html

as far as i know, sleepnet has no section for people to submit their personal stories — Beth in Australia (I am not a medical professional and anything stated in my posts is my opinion only unless specified otherwise) =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

> Hello, >     I was considering posting a story about my own experience with OSA and > trach. Cant find the website, been posted here before, anyone got a url? > Thanks > ME

http://talhost.net/sleep — Beth in Australia (I am not a medical professional and anything stated in my posts is my opinion only unless specified otherwise) =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles

Response:

Hello,     I was considering posting a story about my own experience with OSA and trach. Cant find the website, been posted here before, anyone got a url? Thanks ME

Response:

My hose and rain out

Question:

> Don Fischer, of SleepZone Australia (www.sleepzone.com.au) has a heated hose > which works well. > I have been using one for 12 months and I wouldn’t be without it :)

iv’e been wondering how tough it is, it’s an expensive hose to have to replace every couple of months  or so…..does it hold up to quality of a regular hose? i’ve pretty much resigned to the fact that i’m going to have to get one of these before next winter… — Beth in Australia (I am not a medical professional and anything stated in my posts is my opinion only unless specified otherwise) =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

> Re the heated tube, I have had mine for over 12 months now, and it is still > functioning A-OK > Don did say to be careful of the ends when removing the hose, as rough > treatment could break the wiring. > I’ve never had this problem (been careful, I guess), but I notice that the > latest model has reinforced silicon cuffs to prevent damage. > Happy New Year Tal :)

hi, thanks for the response – i had thought i’d missed it acutally because was kind of away myself for a bit! HNY to you too! — Beth in Australia (I am not a medical professional and anything stated in my posts is my opinion only unless specified otherwise) =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

Tal Are you after a hose? Pls email me off list… Thanks Kit "Tal" <goer…@hotmail.com> wrote in message

news:btgoir$741j3$1@ID-148111.news.uni-berlin.de… – Hide quoted text — Show quoted text -> > Re the heated tube, I have had mine for over 12 months now, and it is > still > > functioning A-OK > > Don did say to be careful of the ends when removing the hose, as rough > > treatment could break the wiring. > > I’ve never had this problem (been careful, I guess), but I notice that the > > latest model has reinforced silicon cuffs to prevent damage. > > Happy New Year Tal :) > hi, thanks for the response – i had thought i’d missed it acutally because > was kind of away myself for a bit! > HNY to you too! > — > Beth in Australia > (I am not a medical professional and anything stated in my posts is my > opinion only unless specified otherwise) > =================== > FAQ for alt.support.sleep-disorder can be found here > http://talhost.net/sleep > Newsgroup Archives http://talhost.net/sleep/archives.htm > this site is a work in progress – feel free to submit info/articles > Remove my name to reply

Response:

Hi Tal Sorry for the delay in replying – been outta the loop for a while :) Hope you had a great festive season. Re the heated tube, I have had mine for over 12 months now, and it is still functioning A-OK Don did say to be careful of the ends when removing the hose, as rough treatment could break the wiring. I’ve never had this problem (been careful, I guess), but I notice that the latest model has reinforced silicon cuffs to prevent damage. Happy New Year Tal :) Simon "Tal" <goer…@hotmail.com> wrote in message

news:bs1ba0$8m8rb$1@ID-148111.news.uni-berlin.de… – Hide quoted text — Show quoted text -> > Don Fischer, of SleepZone Australia (www.sleepzone.com.au) has a heated > hose > > which works well. > > I have been using one for 12 months and I wouldn’t be without it :) > iv’e been wondering how tough it is, it’s an expensive hose to have to > replace every couple of months  or so…..does it hold up to quality of a > regular hose? i’ve pretty much resigned to the fact that i’m going to have > to get one of these before next winter… > — > Beth in Australia > (I am not a medical professional and anything stated in my posts is my > opinion only unless specified otherwise) > =================== > FAQ for alt.support.sleep-disorder can be found here > http://talhost.net/sleep > Newsgroup Archives http://talhost.net/sleep/archives.htm > this site is a work in progress – feel free to submit info/articles > Remove my name to reply

Response:

"carmen" <> wrote in message .com… > Hi Norm, >    I’m not sure what you meen buy managing my hose! And my humidifier > is at same level as my bed pretty much, give or take an inch. >    I like to be able to sleep some where between 60 and 65 degrees. I > haven’t been able to do that in the winter since I got this machine. > Not to mention that I’m now doing the menepose thing and hot flashs. > Winter nights are like a hot summer day in Hawilli:( > Carmen

oh……. try lifting the mask off your face and letting the air blow over your face! sure beats a hot flash in a jiffy (or wherever the hot flash is bothering you the most :-) )

Response:

On Thu, 18 Dec 2003 20:07:37 +1100, "Tal" <goer…@hotmail.com> wrote: >> Seventy degrees?   That’s almost sauna temperature.   You shouldn’t >> have condensation anyway. >70 degrees is optimal temp for the body isn’t it?  assuming my memory is >correct in that 70f is about 21c?

Ah…  the OP meant Fahrenheit.   I thought that had gone out with feet, inches and gallons….. .andy To email, substitute .nospam with .gl

Response:

"carmen" <carmelitasc…@netscape.net> wrote in message

news:e33ac6e.0312181741.7f5e4795@posting.google.com… >    I like to be able to sleep some where between 60 and 65 degrees. I > haven’t been able to do that in the winter since I got this machine.

I don’t have much to offer, except sympathy. We put the heat pump at 68 degrees, my CPAP is lower than the bed, I have the CPAP-man’s insulating sleeve, and … still rainout! There’s no point in talking about hose under the covers, because I’m so hot I throw all the covers off, anyway. I’m resigned to getting up 2 or 3 times a night, taking the hose and mask into another room, emptying the moisture by whirling them around, and starting over. > Not to mention that I’m now doing the menepose thing and hot flashs.

Ditto. I’m  considering getting another CPAP, so I can go sleep for an hour or two in the unheated part of the house, in the middle of the night, without waking up my husband. R.

Response:

How you deal with/route your hose is often referred to as ‘hose management’. I live in the San Fernando Valley in California.  The nighttime outdoor temperatire ranges from 35F, in the winter, to 65F in the summer.  In the winter I keep the house at 66F durng the night, 69F during the summer. I have my integral unit located below my sleeping level.  I bring it up and around, behind my head, to the opposite side of my face.  I secure it to the brass headboard with rubber bands. I sleep on back and both sides, without leaks.  I take the hose off of the humidifier every morning to assure no accumulation of moisture.  I have never had rainout. – Hide quoted text — Show quoted text -carmen wrote: > Hi Carmen – How are you managing our hose?  Is the humidifier below > your >>sleeping level?  Etc. > Hi Norm, >    I’m not sure what you meen buy managing my hose! And my humidifier > is at same level as my bed pretty much, give or take an inch. >    I like to be able to sleep some where between 60 and 65 degrees. I > haven’t been able to do that in the winter since I got this machine. > Not to mention that I’m now doing the menepose thing and hot flashs. > Winter nights are like a hot summer day in Hawilli:( > Carmen > NormC <no…@socal.rr.com> wrote in message <news:3FE16847.6010208@socal.rr.com>… >>carmen wrote: >>>Hi everyone, >>>   It’s been a long time since I’ve posted. How has every one been.Or >>>at least the one’s who remember me. >>>   I had some one make me a cover for my hose to help prevent rain >>>out. It’s made out of fleece. The problem is that I’m still having >>>rain out unless I have my house at about seventy degrees at night. I >>>was hoping that the cover would let me sleep in a cooler house. I have >>>a humidifyer set at the lowest temp. The instructions for the >>>humidifyer say that the house temp. should always be warmer than the >>>humidifyer. Can anyone tell me how to deal with this problem? >>>Thanks, >>>   Carmen >>Hi Carmen – How are you managing our hose?  Is the humidifier below your >>sleeping level?  Etc.

Response:

bunched doesn’t add insulation……. a loose wrap of something that traps the air is what will make the insulation the insulation…… it’s a matter of trapped air all is not lost….. make another cover with some quilting batting so that you have "layers" to trap more air around the hose good luck "carmen" <carmelitasc…@netscape.net> wrote in message

news:e33ac6e.0312181731.70253594@posting.google.com… > It’s funny that you should say that because my sleeve is tight.I could > hardly get it on. But the lady made it extra long so it would bunch up > and possably add more insulation. What do you think? > "Tiger Lily" <m…@privacy.com> wrote in message

<news:brsce4$6ov56$1@ID-181334.news.uni-berlin.de>… – Hide quoted text — Show quoted text -> > Carmen…… i’ve read a bunch of good "possibles" and wanted to add one > > more to the list…….. if the sleeve you have made is tight, it won’t be > > as insulating as one that is "loose" > > "carmen" <carmelitasc…@netscape.net> wrote in message > > news:e33ac6e.0312172333.55573d48@posting.google.com… > > > Hi everyone, > > >    It’s been a long time since I’ve posted. How has every one been.Or > > > at least the one’s who remember me. > > >    I had some one make me a cover for my hose to help prevent rain > > > out. It’s made out of fleece. The problem is that I’m still having > > > rain out unless I have my house at about seventy degrees at night. I > > > was hoping that the cover would let me sleep in a cooler house. I have > > > a humidifyer set at the lowest temp. The instructions for the > > > humidifyer say that the house temp. should always be warmer than the > > > humidifyer. Can anyone tell me how to deal with this problem? > > > Thanks, > > >    Carmen

Response:

Hi everyone,    It’s been a long time since I’ve posted. How has every one been.Or at least the one’s who remember me.    I had some one make me a cover for my hose to help prevent rain out. It’s made out of fleece. The problem is that I’m still having rain out unless I have my house at about seventy degrees at night. I was hoping that the cover would let me sleep in a cooler house. I have a humidifyer set at the lowest temp. The instructions for the humidifyer say that the house temp. should always be warmer than the humidifyer. Can anyone tell me how to deal with this problem? Thanks,    Carmen

Response:

On 17 Dec 2003 23:33:50 -0800, carmelitasc…@netscape.net (carmen) wrote: >Hi everyone, >   It’s been a long time since I’ve posted. How has every one been.Or >at least the one’s who remember me. >   I had some one make me a cover for my hose to help prevent rain >out. It’s made out of fleece. The problem is that I’m still having >rain out unless I have my house at about seventy degrees at night. I >was hoping that the cover would let me sleep in a cooler house. I have >a humidifyer set at the lowest temp. The instructions for the >humidifyer say that the house temp. should always be warmer than the >humidifyer. Can anyone tell me how to deal with this problem? >Thanks, >   Carmen

Seventy degrees?   That’s almost sauna temperature.   You shouldn’t have condensation anyway. .andy To email, substitute .nospam with .gl

Response:

carmen wrote: > Hi everyone, >    It’s been a long time since I’ve posted. How has every one been.Or > at least the one’s who remember me. >    I had some one make me a cover for my hose to help prevent rain > out. It’s made out of fleece. The problem is that I’m still having > rain out unless I have my house at about seventy degrees at night. I > was hoping that the cover would let me sleep in a cooler house. I have > a humidifyer set at the lowest temp. The instructions for the > humidifyer say that the house temp. should always be warmer than the > humidifyer. Can anyone tell me how to deal with this problem? > Thanks, >    Carmen

Hi Carmen – How are you managing our hose?  Is the humidifier below your sleeping level?  Etc.

Response:

> Seventy degrees?   That’s almost sauna temperature.   You shouldn’t > have condensation anyway.

70 degrees is optimal temp for the body isn’t it?  assuming my memory is correct in that 70f is about 21c? — Beth in Australia (I am not a medical professional and anything stated in my posts is my opinion only unless specified otherwise) =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

>    It’s been a long time since I’ve posted. How has every one been.Or > at least the one’s who remember me. >    I had some one make me a cover for my hose to help prevent rain > out. It’s made out of fleece. The problem is that I’m still having > rain out unless I have my house at about seventy degrees at night. I > was hoping that the cover would let me sleep in a cooler house. I have > a humidifyer set at the lowest temp. The instructions for the > humidifyer say that the house temp. should always be warmer than the > humidifyer. Can anyone tell me how to deal with this problem?

Hi, welcome back :) if you don’t suspend your hose you can run it under the bed covers – that tends to work quite well – suspending the hose however creates more of a problem – only way i overcame it myself (i require the humidifier set quite high) was to warm up the room at night – which it sounds like you’re already doing — Beth in Australia (I am not a medical professional and anything stated in my posts is my opinion only unless specified otherwise) =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

carmen wrote: > humidifyer. Can anyone tell me how to deal with this problem?

I solved my rainout problem by using an electronically controlled humdifier in the room to keep the room at an even 50%. There are many models, I am using a LASKO, the latest model mught be 1150, it is capable of putting 12 gallons in the air in 24 hours, with the room humididty higher, I need less from the cpap humdidifier. Prior to this, my wife made a sleeve out of a material called "warm window" it is a little bulky but helped a lot, however for the last year or so I needed nothing. My bedroom gets cool at night and many time I need to crawl under the blankets to keep warm – but I don’t keep track of the actual temperature. joe

Response:

Carmen, I suggest you call the cpapman and ask him about your problem.  www. cpapman.com.   1-877-272-7626 x-201. He is a internet  DME and a registered , certified respiratory Tec.  He tries to help everyone that calls.  I had rainout and I am now using the insulated cover which he sells.  - no more rain out. "carmen" <carmelitasc…@netscape.net> wrote in message

news:e33ac6e.0312172333.55573d48@posting.google.com… – Hide quoted text — Show quoted text -> Hi everyone, >    It’s been a long time since I’ve posted. How has every one been.Or > at least the one’s who remember me. >    I had some one make me a cover for my hose to help prevent rain > out. It’s made out of fleece. The problem is that I’m still having > rain out unless I have my house at about seventy degrees at night. I > was hoping that the cover would let me sleep in a cooler house. I have > a humidifyer set at the lowest temp. The instructions for the > humidifyer say that the house temp. should always be warmer than the > humidifyer. Can anyone tell me how to deal with this problem? > Thanks, >    Carmen

Response:

Carmen…… i’ve read a bunch of good "possibles" and wanted to add one more to the list…….. if the sleeve you have made is tight, it won’t be as insulating as one that is "loose" "carmen" <carmelitasc…@netscape.net> wrote in message

news:e33ac6e.0312172333.55573d48@posting.google.com… – Hide quoted text — Show quoted text -> Hi everyone, >    It’s been a long time since I’ve posted. How has every one been.Or > at least the one’s who remember me. >    I had some one make me a cover for my hose to help prevent rain > out. It’s made out of fleece. The problem is that I’m still having > rain out unless I have my house at about seventy degrees at night. I > was hoping that the cover would let me sleep in a cooler house. I have > a humidifyer set at the lowest temp. The instructions for the > humidifyer say that the house temp. should always be warmer than the > humidifyer. Can anyone tell me how to deal with this problem? > Thanks, >    Carmen

Response:

I have a ResMed Sullivan heated humidifier.  I also use the snuggle hose to cover the 6 foot hose.  I have added a small thermometer which registers both high and low temperature over the previous 24 hours.  My overnight low reads 68 degrees. I believe the settings 1 through 8 come close to the heated dew point temperature.  If I keep my humidifier set at 7, I don’t get rained out often.  My CPAP pressure is 20.  If I set the humidifier to 6.5 (65 degree dew point), I get blood in my nose. This works for me.  YMMV. Robert L. Claeson rclae…@earthlink.net Respironics Synchrony S/T ResMed Sullivan Humidifier Respironics ProfileLite M/S mask IPAP    20 cm EPAP    20 cm

Response:

On 17 Dec 2003 23:33:50 -0800, carmelitasc…@netscape.net (carmen) wrote: >Hi everyone, >   It’s been a long time since I’ve posted. How has every one been.Or >at least the one’s who remember me. >   I had some one make me a cover for my hose to help prevent rain >out. It’s made out of fleece. The problem is that I’m still having >rain out unless I have my house at about seventy degrees at night. I >was hoping that the cover would let me sleep in a cooler house. I have >a humidifyer set at the lowest temp. The instructions for the >humidifyer say that the house temp. should always be warmer than the >humidifyer. Can anyone tell me how to deal with this problem? >Thanks, >   Carmen

I keep my house at 68 F. What I’ve taken to doing (with sleep doc’s knowledge) is to start using two hoses connected to each other. I put the CPAP machine at the foot of the bed and run the hose up underneath the covers to me. That way, the hose stays nice and warm under the covers with me. I have the NasalAire, so the hose is headed towards the foot of the bed anyway. — Kiyoshi – The reverse side also has a reverse side

Response:

Hi Carmen Don Fischer, of SleepZone Australia (www.sleepzone.com.au) has a heated hose which works well. I have been using one for 12 months and I wouldn’t be without it :) The Australian model comes with a standard 12 Volt plug pack, but I understand that overseas purchasers can buy the hose without the plug pack. You can then buy a plug pack locally to suit your mains voltage (saves on freight, too). Hope this helps :) Simon "carmen" <carmelitasc…@netscape.net> wrote in message

news:e33ac6e.0312172333.55573d48@posting.google.com… – Hide quoted text — Show quoted text -> Hi everyone, >    It’s been a long time since I’ve posted. How has every one been.Or > at least the one’s who remember me. >    I had some one make me a cover for my hose to help prevent rain > out. It’s made out of fleece. The problem is that I’m still having > rain out unless I have my house at about seventy degrees at night. I > was hoping that the cover would let me sleep in a cooler house. I have > a humidifyer set at the lowest temp. The instructions for the > humidifyer say that the house temp. should always be warmer than the > humidifyer. Can anyone tell me how to deal with this problem? > Thanks, >    Carmen

Response:

It’s funny that you should say that because my sleeve is tight.I could hardly get it on. But the lady made it extra long so it would bunch up and possably add more insulation. What do you think? – Hide quoted text — Show quoted text -"Tiger Lily" <m…@privacy.com> wrote in message <news:brsce4$6ov56$1@ID-181334.news.uni-berlin.de>… > Carmen…… i’ve read a bunch of good "possibles" and wanted to add one > more to the list…….. if the sleeve you have made is tight, it won’t be > as insulating as one that is "loose" > "carmen" <carmelitasc…@netscape.net> wrote in message > news:e33ac6e.0312172333.55573d48@posting.google.com… > > Hi everyone, > >    It’s been a long time since I’ve posted. How has every one been.Or > > at least the one’s who remember me. > >    I had some one make me a cover for my hose to help prevent rain > > out. It’s made out of fleece. The problem is that I’m still having > > rain out unless I have my house at about seventy degrees at night. I > > was hoping that the cover would let me sleep in a cooler house. I have > > a humidifyer set at the lowest temp. The instructions for the > > humidifyer say that the house temp. should always be warmer than the > > humidifyer. Can anyone tell me how to deal with this problem? > > Thanks, > >    Carmen

Response:

Hi Carmen – How are you managing our hose?  Is the humidifier below your > sleeping level?  Etc.

Hi Norm,    I’m not sure what you meen buy managing my hose! And my humidifier is at same level as my bed pretty much, give or take an inch.    I like to be able to sleep some where between 60 and 65 degrees. I haven’t been able to do that in the winter since I got this machine. Not to mention that I’m now doing the menepose thing and hot flashs. Winter nights are like a hot summer day in Hawilli:( Carmen – Hide quoted text — Show quoted text -NormC <no…@socal.rr.com> wrote in message <news:3FE16847.6010208@socal.rr.com>… > carmen wrote: > > Hi everyone, > >    It’s been a long time since I’ve posted. How has every one been.Or > > at least the one’s who remember me. > >    I had some one make me a cover for my hose to help prevent rain > > out. It’s made out of fleece. The problem is that I’m still having > > rain out unless I have my house at about seventy degrees at night. I > > was hoping that the cover would let me sleep in a cooler house. I have > > a humidifyer set at the lowest temp. The instructions for the > > humidifyer say that the house temp. should always be warmer than the > > humidifyer. Can anyone tell me how to deal with this problem? > > Thanks, > >    Carmen > Hi Carmen – How are you managing our hose?  Is the humidifier below your > sleeping level?  Etc.

Response:

aussie TV – Central Apnea

Question:

"Tal" <sleepbethdisord…@softhome.net> wrote in message

news:bmm4b2$o4bjm$1@ID-148111.news.uni-berlin.de… – Hide quoted text — Show quoted text -> Well…..it was an interesting story.  The guy’s wife reported he stopped > breathing throughout the night, smoetiems for more than a minute. > during the sleep study they recorded 20 events per hour – all central. Was > interesting to see on the graph how they determin if an event is central or > obstructive. > To my disappointment, they never even brought up the issue of Bi-level > PAP…..the titrated him on regular CPAP and were suprised that they got his > events down to less than 10/hr (not good enough in my book) and they sent > him home for a 1mth trial of cpap. > End of program they stated that after 3mths on cpap he was seeing some > improvment but not a lot… interesting they didn’t seem to consider any > treatment options but CPAP

More worrying than interesting….I thought the aim was for there to be no apneas per hr??? or as close to as possable. 10 still seems pretty far off that….but then again I am still only a beginner in such things ;-) — Frankie      (Remove MYSPLEEN to reply) You will also find me on http://uk.msnusers.com/LivingWithSleepApnea ————————————————————————- FIGHT BACK AGAINST SPAM! Download Spam Inspector, the Award Winning Anti-Spam Filter http://mail.giantcompany.com

Response:

> More worrying than interesting….I thought the aim was for there to be no > apneas per hr??? or as close to as possable. 10 still seems pretty far off > that….but then again I am still only a beginner in such things ;-)

yeah, that SHOULD be the aim.  I guess it’s a bit harder with central apnea… but from what i’ve learned here, they should have tried bi-pap — Beth in Australia (I am not a medical professional and anything stated in my posts is my opinion only unless specified otherwise) =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

Just saw preview for this week’s episode of RPA – looks like they’re doing a story on a guy with central apnea – saw them looking at a graph and doc saying "forgetting to breathe" Episode is on Thurs 9pm I think — Beth in Australia (I am not a medical professional and anything stated in my posts is my opinion only unless specified otherwise) =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

Well…..it was an interesting story.  The guy’s wife reported he stopped breathing throughout the night, smoetiems for more than a minute. during the sleep study they recorded 20 events per hour – all central.  Was interesting to see on the graph how they determin if an event is central or obstructive. To my disappointment, they never even brought up the issue of Bi-level PAP…..the titrated him on regular CPAP and were suprised that they got his events down to less than 10/hr (not good enough in my book) and they sent him home for a 1mth trial of cpap. End of program they stated that after 3mths on cpap he was seeing some improvment but not a lot… interesting they didn’t seem to consider any treatment options but CPAP — Beth in Australia (I am not a medical professional and anything stated in my posts is my opinion only unless specified otherwise) =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply "Tal" <sleepbethdisord…@softhome.net> wrote in message

news:bmj6lv$nd6j5$1@ID-148111.news.uni-berlin.de… – Hide quoted text — Show quoted text -> Just saw preview for this week’s episode of RPA – looks like they’re doing a > story on a guy with central apnea – saw them looking at a graph and doc > saying "forgetting to breathe" > Episode is on Thurs 9pm I think > — > Beth in Australia > (I am not a medical professional and anything stated in my posts is my > opinion only unless specified otherwise) > =================== > FAQ for alt.support.sleep-disorder can be found here > http://talhost.net/sleep > Newsgroup Archives http://talhost.net/sleep/archives.htm > this site is a work in progress – feel free to submit info/articles > Remove my name to reply

Response:

Self-h*tred . . .

Question:

Hi SofT – Don’t you think it’s strange that you and I have had such sharp differences in the past, and yet – it seems we are able to speak gently to one another now? I just thought I’d put that in. Life does change. People change. Relationships change. I’m glad ours did. Thanks for your concern, and for the question – it is a good one. I think, when I think about it, that there are a couple of answers. One: after having had a long talk w/a woman who had lots of encouraging and strengthening suggestions for me, I spent the entire next day sleeping – the day of the evening I wrote that self-h*tred post. And also – well, here is an obvious change: I am undergoing switch in meds. It’s pretty major. I am doing a number of things at once. I am getting off W*llbutrin (which is a drug I have enjoyed in that it has had so few side effects, or so I thought. But now I think that it has been creating a long standing sleep disorder – that I didn’t have until recently (as in – it seems that it might be related to the Wellbutrin, which can be known to cause sleep disorders – as can diabetes and obesity, and I have been gaining weight over the months and years). Okay, so I’m stepping down the W*llbutrin on an attempt to get off it. After a month, when I see my MD again, she and I will discuss starting me on Eff*xor – one of the thousand anti-d’s I haven’t tried yet. It’s supposed to have a weight loss effect – but then so is Pr*zac, at least for some people, and it didn’t for me. We’ll see. I’m also changing the way I am handling my chronic pain. I have been taking P*rcoset regularly – as well as V*lium – partly to control leg cramps. (I have bone spurs which impinge on my sciatic nerves, besides which, the nerves where damaged by my second disc herniation, which was left untreated for a year, even though I *knew* I needed surgery – MDs – you can’t tell them anything. Try this, try that. I know nerve pain when I feel it, and I knew I needed the stupid disc taken out. I feel smack down on my tailbone and popped a disc that had been bulging for years.) The V*lium also affects sleep, of course. Well, so does the P*rcoset. So, cutting down on both is part of an effort to deal differently w/the sleep disorder. C*tch-22: I am not an addictive personality or somatic type (thank goodness – my issue is food, not substances) – so I don’t have a psychological problem, or even much of a physical problem w/cutting down on the drugs, and ultimately, it will be good, because using less P*rcoset means that it will be more effective when I do use it. Anyhow – the C*tch-22 is that when I cut down on the narcs, I get two "w*thdrawal" effects: one is an occasional slight sore throat – almost too mild to notice. The other, though, is pretty painful – well, very painful – when it sets in: I get screamingly bad leg cramps, suddenly, in the night. So guess what? I have to keep a little box of V*lium by my bed, because it is the best muscle relaxant available, and it works right away. But – still – I am cutting back on everything, and I know from past experience that eventually, I won’t need the nighttime "fix." Oh – and I’ve starting using lots of Gl*cosamine/Ch*ndroitin/MSM as part of the new pain management routine. I also have not much cartilege in my knees, and have started taking a new anti-inflammatory developed esp. for people who can’t take the ones that rough up the stomach – and I can’t, because of all the other drugs I take that are rough on the stomach. I’m fine until I add the anti-inflam. So – behold: B[e]xtra the wonder drug!!! When I take it, the improvement in my knees is fantastic With the onset of the cold weather, I am in pretty much pain again, so now I’m doing the G-C-MSM thing. Even after a few days I can feel it – like tonight we were doing kn*fe self-defense in karate, and a lot of it involves being thrown on the floor by the one defending. I am working w/a great street fighter type (a sw**tie of a guy, but he knows what he’s doing – so it’s super-great working w/him – and he respects me, says I have good moves – it’s going to work out – another post on that in a bit). Anyhow, he helps me up off the floor w/a pull-up (as the guys do w/each other, even – it’s a thing, you know, you even see football players do it) – but before, even w/that, my knees used to hurt. Well, tonight, we had a pretty hard work-out in class, and then we had instructors’ class afterward, where we usually stand in a circle for half an hour and discuss things and sometimes run through things physically – and I often find myself having to sit down because my knees or back hurt – but tonight I only sat down for a very few minutes. So: long answer to short question – why? Well, because I slept, so I felt like I had messed up – like – fallen down coming out of the starting gate (but – but – I’m trying to deal w/a sleep disorder!!). And, then, the change in meds is bound to be messing w/my head, yes? Oh, yeah: and my son’s b’day is Sunday. He will be 12. I used not to trigger for holidays, but now I do, because I feel them to be opportunities for failure. Now that I am writing this – I can tell myself not to be ridiculous – I can make this an opportunity for success. (After all – I have lots under my control.) Thanks for the question, SofT. And thanks for caring – Beauty. – Hide quoted text — Show quoted text – Hello Beauty, *sad*  :O(  Wish you weren’t feeling so badly about yourself yet understand.   Has anything happened recently that triggered this bout of self-hatred?  I’m listening if you want to talk about this some more. SofT Again. Completely enveloped in it. Swamped. I can’t take the up and down anymore – I say I can’t but I know I have to, and that’s even worse. Each down makes me h*te myself more. I’ve never been so horrible – I’ve never been in so bad a spot – worse and worse and worse, even when lifted momentarily. I h*te myself worse than my own worst enemy. Okay, I know the standard answer: it’s safer to h*te myself. So? Does that make me feel any better? It just makes me feel more stupid, to even *know* better and to succumb. Just makes me feel morally lazy for allowing myself to be overcome. Ick. Can’t write anymore because where it goes from here is sewer-worthy. Beauty.

Response:

you are not the ichor inside you. you are the innocent human being, forced to suffer needlessly. think of a b*by, newborn into the world – soft and wriggling, mewling adorably…innocent. that innocence was you, and still is you.  that sweet, pure innocence was sullied by rotten, stinking filth. the first handful of dirt thrown onto a gleaming c*sket feels profane, wrong.  the soul shrieks at the sight, gasps in horror that someone would so deliberately dirty something so pristine. it wasn’t dirt thrown onto your pristine innocence, Beauty.  it was worse. that a soul as beautiful as yours was profaned so horribly is a crime without measure, beyond any comprehension. grieve with me, please, that the world suffered such an offense – the loss of the joy that should have emanated from you all of your life to this point, reaching out to others and aiding them to be joyous, too. rejoice with me, please, that you still live, that hope is real, that you *DO* reach out to others and share what you have made of yourself: a woman of strength and courage, dedication and compassion.  You may not see this, but I do.  You teach.  You mother.  You comfort those in need.  You are a living, breathing testament to the truth that hope *IS* real. for as much as the world needs joy, perhaps it needs hope more.  Without it, none of us *could* reach the point of emanating joy radiantly. my goal in life is to increase the level of positives in the world.  it’s a little bit fuzzy, this concept.  but essentially "positives" can be seen to equal "warm fuzzies".  it’s an extrapolation on "leave the world a better place", ya know?  (sorry – blue switched in a bit ago.)  being able to smile at someone, and have that smile brighten their day lessens the negatives in the world and increases the positives, you know? because there are so many wounded souls in the world, people *need* to know that it’s *not* foolish to have hope.  for every wounded soul that heals, that’s one more person able to increase the joy-quotient in the world, you see?  so helping one person reach the point of being a joyous presence in the world is worth all of the joy-plusses that *that* person will be able to achieve.  see the math? see, i sing, and bring a sense of wonder to the people who hear me – most of the time.  ok, sometimes.  ;)  some ppl just want me to sh*t up.  :)  and sometimes i’m not on my game, as it were.  but i work at expressing joy when i sing, so others can feel it with me.  i work at singing from the solid foundation of hope i feel inside of me, so that others might be able to hear me and say "the world just can’t be that bad a place if someone can sing like that" <sheesh, what an ego… ;) .  and i work with people, to whatever extent i’m able, trying to help them however i can. in real life, i’m a fat, unemployed woman with a *LOT* of mental problems and not a lot of prospects for a career or whatever.  but that’s only what some people might see.  in truth, I’m right on track with my life-goals.  :) … it wasn’t your fault, beauty.  you did nothing wrong.  everything that happened after that was a reaction to the original badstuff.  forgive yourself for being human.  that’s not your fault, either.  ;) jt (several of us, most notably Socrates and blue)

– Hide quoted text — Show quoted text – Again. Completely enveloped in it. Swamped. I can’t take the up and down anymore – I say I can’t but I know I have to, and that’s even worse. Each down makes me h*te myself more. I’ve never been so horrible – I’ve never been in so bad a spot – worse and worse and worse, even when lifted momentarily. I h*te myself worse than my own worst enemy. Okay, I know the standard answer: it’s safer to h*te myself. So? Does that make me feel any better? It just makes me feel more stupid, to even *know* better and to succumb. Just makes me feel morally lazy for allowing myself to be overcome. Ick. Can’t write anymore because where it goes from here is sewer-worthy. Beauty.

Response:

Hello Beauty, *sad*  :O(  Wish you weren’t feeling so badly about yourself yet understand.   Has anything happened recently that triggered this bout of self-hatred?  I’m listening if you want to talk about this some more. SofT

– Hide quoted text — Show quoted text – Again. Completely enveloped in it. Swamped. I can’t take the up and down anymore – I say I can’t but I know I have to, and that’s even worse. Each down makes me h*te myself more. I’ve never been so horrible – I’ve never been in so bad a spot – worse and worse and worse, even when lifted momentarily. I h*te myself worse than my own worst enemy. Okay, I know the standard answer: it’s safer to h*te myself. So? Does that make me feel any better? It just makes me feel more stupid, to even *know* better and to succumb. Just makes me feel morally lazy for allowing myself to be overcome. Ick. Can’t write anymore because where it goes from here is sewer-worthy. Beauty.

Response:

Again. Completely enveloped in it. Swamped. I can’t take the up and down anymore – I say I can’t but I know I have to, and that’s even worse. Each down makes me h*te myself more. I’ve never been so horrible – I’ve never been in so bad a spot – worse and worse and worse, even when lifted momentarily. I h*te myself worse than my own worst enemy. Okay, I know the standard answer: it’s safer to h*te myself. So? Does that make me feel any better? It just makes me feel more stupid, to even *know* better and to succumb. Just makes me feel morally lazy for allowing myself to be overcome. Ick. Can’t write anymore because where it goes from here is sewer-worthy. Beauty.

Response:

Fleahhh! Now there’s a word for you: ichor! Hadn’t run across that one for a while. Hey – you a big reader? Think you are. The fthr instroduced us to a period in US lit that connects us to him, and that contains a lot of forgotten and stupendous prose stylists and chroniclers of the American scene – same era as St*inbeck & H*mingway, pretty much, though we don’t care for the latter at all (don’t think of him as a stylist dislike his point of view and his, um, stories, pretty much). However, are you familiar w/John d[o]s Passos? Absolutely lyrical prose stylist, pretty well known . . . And we borrowed, while we were down in KY, a paperback containing three novels by a contemporary named D[a]wn P[o]well. Incredible writing – such craft in her choice of words, in her astute eye for the social scene – types, social strata, interactions (personal, social, business, etc.) – and of course, all the romantic/sxl stuff interlaced w/all of it. Her most famous is called *Ang*ls on T*ast* (yeah, the stuff you put marmalade on). It’s also the best one of the three in the QPB vol. In each book, there is an echo of the child she was – her mthr d**d when she was a little child and she was shunted from farm to gritty little town in the Midwest until she broke free into the art scene in Greenwich Village and – well – it would be completely untrue to say she never looked back, because all of her books are about how the "innocent" from the "corn belt" assimilates herself/himself into the City. Highly recommended. I am offended to have come to the end of the final novel. Onward – you are not the ichor inside you.

Hmm. Well if not, then what? you are the innocent human being, forced to suffer needlessly.

Ain’t that life? Doesn’t life make us who we are? think of a b*by, newborn into the world – soft and wriggling, mewling adorably…innocent.

Yes, innocent – and mewling. that innocence was you, and still is you.  that sweet, pure innocence was sullied by rotten, stinking filth.

Eh. the first handful of dirt thrown onto a gleaming c*sket feels profane, wrong.  the soul shrieks at the sight, gasps in horror that someone would so deliberately dirty something so pristine.

I dunno. Have always felt that moment to be – a kind of reverence – a last act of service to a beloved one. it wasn’t dirt thrown onto your pristine innocence, Beauty.  it was worse.

Well, dunno. It was life. And – innocence – well, yeah. But pristine? Ain’t nothing exactly pristine about a baby, who is just as human as anyone, w/incredible demands, scathing habits of behavior (yes, innocent, because born of pure need and not malice) – but – just human, not pristine. that a soul as beautiful as yours was profaned so horribly is a crime without measure, beyond any comprehension.

Well, thank you for your measure of my soul as beautiful. I happen to think that all souls (if that is the word one chooses) are equally beautiful, for that is the nature of souls – and the actual nature of the living being gets messed up by life. And I agree – that to harm a child, and esp. in the name of anything that is supposedly good, is the worst of all possible crimes. grieve with me, please, that the world suffered such an offense – the loss of the joy that should have emanated from you all of your life to this point, reaching out to others and aiding them to be joyous, too.

Dunno how to grieve about this. I grieve about being unhappy – and that feels self-focused and has so far led nowhere. rejoice with me, please, that you still live,

Well, I’ll try. I mean, obviously, somehow, there is need for me to be here, if not only for my son (who needs me to be his mother), then also for a few other people who do need to know I am there for them (such as my friend who has no "family" to speak of, except me). that hope is real,

I hate that hope is real – because as long as hope is real, so is disappointment and despair. Sorry – I really am *not* trying to be negative, only honest. that you *DO* reach out to others and share what you have made of yourself:

Well, yes, I do reach out – sometimes in pain and sometimes in compassion and sometimes in exuberance, and sometimes in just plain interest. a woman of strength and courage, dedication and compassion.  You may not see this, but I do.

Okay, you’re right. I don’t see the strength and courage part. The dedication: limited and failed. The compassion: flawed.  You teach.

Yes. And I love that.  You mother.

Yes, and I love that.  You comfort those in need.

Yes, and I do love that.  You are a living, breathing testament to the truth that hope *IS* real.

Um – well – if you say so. Don’t feel like it to me. for as much as the world needs joy, perhaps it needs hope more.  Without it, none of us *could* reach the point of emanating joy radiantly.

Friend of mine has "hope" tatooed on her ankle. Yes, I believe that the best and strongest thing we can do is to emanate light into a world of darkness. And yet – so often, I am sucked into the dark, and I end up feeling as if I am part of the dark, contributing to it by succumbing to it, making it stronger – all the more strong because of the possibility of light (yes, I *know* of my possibility, my potential) that I might in theory shed. my goal in life is to increase the level of positives in the world.

Mine too, exactly.  it’s a little bit fuzzy, this concept.  but essentially "positives" can be seen to equal "warm fuzzies".  it’s an extrapolation on "leave the world a better place", ya know?  (sorry – blue switched in a bit ago.)  being able to smile at someone, and have that smile brighten their day lessens the negatives in the world and increases the positives, you know?

Oh, definitely, and my words almost exactly – as you’ve read here, I’m sure. So we’re on the same wavelength here, for sure. because there are so many wounded souls in the world, people *need* to know that it’s *not* foolish to have hope.

Well, here we are back at hope again. I dunno about hope. I do know about light and about giving light into the world. I don’t know what that amounts to except the only gesture that is worth anything.  for every wounded soul that heals, that’s one more person able to increase the joy-quotient in the world, you see?  so helping one person reach the point of being a joyous presence in the world is worth all of the joy-plusses that *that* person will be able to achieve.  see the math?

Ooooohhhhh. Okay. I was always horrible at math. Thanks for the remedial lesson. I think I get it. Duh. (Still stumbling over the word "hope" so it’s good you switched to numbers, even though I have to struggle to add and subtract.) see, i sing, and bring a sense of wonder to the people who hear me – most of the time.  ok, sometimes.  ;)  some ppl just want me to sh*t up.  :)  and sometimes i’m not on my game, as it were.  but i work at expressing joy when i sing, so others can feel it with me.  i work at singing from the solid foundation of hope i feel inside of me, so that others might be able to hear me and say "the world just can’t be that bad a place if someone can sing like that" <sheesh, what an ego… ;) .  and i work with people, to whatever extent i’m able, trying to help them however i can.

Singing is good. It heals me, opens me, too. I mean, doing it. Should do it more. Have thought for years of taking voice lessons, just to see if my voice can do even more than it has been doing – because it took about 30 years to discover I am actually a mezzo-soprano and not a contralto! And boy does that feel incredible – just letting the pipes open and letting the sound soar out. It was the husb. who gave me the clue: don’t sing "pretty," sing "loud." (The beauty follows the power.) in real life, i’m a fat, unemployed woman with a *LOT* of mental problems and not a lot of prospects for a career or whatever.  but that’s only what some people might see.  in truth, I’m right on track with my life-goals.  :) …

I hear you. it wasn’t your fault, beauty.  you did nothing wrong.  everything that happened after that was a reaction to the original badstuff.  forgive yourself for being human.  that’s not your fault, either.  ;)

Don’t have a clue as to how to forgive myself. I know that’s the answer – I’m still looking for the way to do it. And this time – in case there is any doubt – I *am* looking for advice. Thanks for taking the time and care to write this – Beauty. – Hide quoted text — Show quoted text – jt (several of us, most notably Socrates and blue) Again. Completely enveloped in it. Swamped. I can’t take the up and down anymore – I say I can’t but I know I have to, and that’s even worse. Each down makes me h*te myself more. I’ve never been so horrible – I’ve never been in so bad a spot – worse and worse and worse, even when lifted momentarily. I h*te myself worse than my own worst enemy. Okay, I know the standard answer: it’s safer to h*te myself. So? Does that make me feel any better? It just makes me feel more stupid, to even *know* better and to succumb. Just makes me feel morally lazy for allowing myself to be overcome. Ick. Can’t write anymore because where it goes from here is sewer-worthy. Beauty.

Response:

P.S. – How on earch could I forget one of the most important factors in how I am feeling right now? My whole psyche is struggling around re-arranging a habitual coping mechanism: comfort eating. I am working on getting rid of an excess 60 lbs. or so – yes, my MD knows, and she knows my plan for doing it. I am a diabetic, so it’s even more important for me to keep at it. I can do it. It was the getting started that was hard. But – it’s bound to affect my feelings a lot, at least at first, isn’t it? I’ve lost 8 lbs. so far in about 3 weeks. That’s good progress in my estimation. Speaking of which – I need an (allowed) snack. Beauty. – Hide quoted text — Show quoted text – Hello Beauty, *sad*  :O(  Wish you weren’t feeling so badly about yourself yet understand.   Has anything happened recently that triggered this bout of self-hatred?  I’m listening if you want to talk about this some more. SofT Again. Completely enveloped in it. Swamped. I can’t take the up and down anymore – I say I can’t but I know I have to, and that’s even worse. Each down makes me h*te myself more. I’ve never been so horrible – I’ve never been in so bad a spot – worse and worse and worse, even when lifted momentarily. I h*te myself worse than my own worst enemy. Okay, I know the standard answer: it’s safer to h*te myself. So? Does that make me feel any better? It just makes me feel more stupid, to even *know* better and to succumb. Just makes me feel morally lazy for allowing myself to be overcome. Ick. Can’t write anymore because where it goes from here is sewer-worthy. Beauty.

Response:

Just something to look into. I can’t remember which mineral it is but if you are deficient in one (or if your balance of minerals is off) you can get leg cramps. The choices are potassium, magnesium, sodium, and calcium. It has something to do with balancing things and I’m pretty sure it isn’t as simple as a calcium deficiency. It is a common problem with women who are preg so you can find the mineral at preg websites (one that comes to mind is babycenter.com) and I know that vitamin/health food stores know about it. Maybe if you can get a balance of these minerals your cramps will lessen. Rainbow Colors (Jill) – Hide quoted text — Show quoted text – Hi SofT – Don’t you think it’s strange that you and I have had such sharp differences in the past, and yet – it seems we are able to speak gently to one another now? I just thought I’d put that in. Life does change. People change. Relationships change. I’m glad ours did. Thanks for your concern, and for the question – it is a good one. I think, when I think about it, that there are a couple of answers. One: after having had a long talk w/a woman who had lots of encouraging and strengthening suggestions for me, I spent the entire next day sleeping – the day of the evening I wrote that self-h*tred post. And also – well, here is an obvious change: I am undergoing switch in meds. It’s pretty major. I am doing a number of things at once. I am getting off W*llbutrin (which is a drug I have enjoyed in that it has had so few side effects, or so I thought. But now I think that it has been creating a long standing sleep disorder – that I didn’t have until recently (as in – it seems that it might be related to the Wellbutrin, which can be known to cause sleep disorders – as can diabetes and obesity, and I have been gaining weight over the months and years). Okay, so I’m stepping down the W*llbutrin on an attempt to get off it. After a month, when I see my MD again, she and I will discuss starting me on Eff*xor – one of the thousand anti-d’s I haven’t tried yet. It’s supposed to have a weight loss effect – but then so is Pr*zac, at least for some people, and it didn’t for me. We’ll see. I’m also changing the way I am handling my chronic pain. I have been taking P*rcoset regularly – as well as V*lium – partly to control leg cramps. (I have bone spurs which impinge on my sciatic nerves, besides which, the nerves where damaged by my second disc herniation, which was left untreated for a year, even though I *knew* I needed surgery – MDs – you can’t tell them anything. Try this, try that. I know nerve pain when I feel it, and I knew I needed the stupid disc taken out. I feel smack down on my tailbone and popped a disc that had been bulging for years.) The V*lium also affects sleep, of course. Well, so does the P*rcoset. So, cutting down on both is part of an effort to deal differently w/the sleep disorder. C*tch-22: I am not an addictive personality or somatic type (thank goodness – my issue is food, not substances) – so I don’t have a psychological problem, or even much of a physical problem w/cutting down on the drugs, and ultimately, it will be good, because using less P*rcoset means that it will be more effective when I do use it. Anyhow – the C*tch-22 is that when I cut down on the narcs, I get two "w*thdrawal" effects: one is an occasional slight sore throat – almost too mild to notice. The other, though, is pretty painful – well, very painful – when it sets in: I get screamingly bad leg cramps, suddenly, in the night. So guess what? I have to keep a little box of V*lium by my bed, because it is the best muscle relaxant available, and it works right away. But – still – I am cutting back on everything, and I know from past experience that eventually, I won’t need the nighttime "fix." Oh – and I’ve starting using lots of Gl*cosamine/Ch*ndroitin/MSM as part of the new pain management routine. I also have not much cartilege in my knees, and have started taking a new anti-inflammatory developed esp. for people who can’t take the ones that rough up the stomach – and I can’t, because of all the other drugs I take that are rough on the stomach. I’m fine until I add the anti-inflam. So – behold: B[e]xtra the wonder drug!!! When I take it, the improvement in my knees is fantastic With the onset of the cold weather, I am in pretty much pain again, so now I’m doing the G-C-MSM thing. Even after a few days I can feel it – like tonight we were doing kn*fe self-defense in karate, and a lot of it involves being thrown on the floor by the one defending. I am working w/a great street fighter type (a sw**tie of a guy, but he knows what he’s doing – so it’s super-great working w/him – and he respects me, says I have good moves – it’s going to work out – another post on that in a bit). Anyhow, he helps me up off the floor w/a pull-up (as the guys do w/each other, even – it’s a thing, you know, you even see football players do it) – but before, even w/that, my knees used to hurt. Well, tonight, we had a pretty hard work-out in class, and then we had instructors’ class afterward, where we usually stand in a circle for half an hour and discuss things and sometimes run through things physically – and I often find myself having to sit down because my knees or back hurt – but tonight I only sat down for a very few minutes. So: long answer to short question – why? Well, because I slept, so I felt like I had messed up – like – fallen down coming out of the starting gate (but – but – I’m trying to deal w/a sleep disorder!!). And, then, the change in meds is bound to be messing w/my head, yes? Oh, yeah: and my son’s b’day is Sunday. He will be 12. I used not to trigger for holidays, but now I do, because I feel them to be opportunities for failure. Now that I am writing this – I can tell myself not to be ridiculous – I can make this an opportunity for success. (After all – I have lots under my control.) Thanks for the question, SofT. And thanks for caring – Beauty. Hello Beauty, *sad*  :O(  Wish you weren’t feeling so badly about yourself yet understand.   Has anything happened recently that triggered this bout of self-hatred?  I’m listening if you want to talk about this some more. SofT Again. Completely enveloped in it. Swamped. I can’t take the up and down anymore – I say I can’t but I know I have to, and that’s even worse. Each down makes me h*te myself more. I’ve never been so horrible – I’ve never been in so bad a spot – worse and worse and worse, even when lifted momentarily. I h*te myself worse than my own worst enemy. Okay, I know the standard answer: it’s safer to h*te myself. So? Does that make me feel any better? It just makes me feel more stupid, to even *know* better and to succumb. Just makes me feel morally lazy for allowing myself to be overcome. Ick. Can’t write anymore because where it goes from here is sewer-worthy. Beauty.

–      The colors blend, the edges soften. Swirling and mixing                    we are becoming white light.

Response:

potassium.  drink quinine. — astri – Hide quoted text — Show quoted text – Just something to look into. I can’t remember which mineral it is but if you are deficient in one (or if your balance of minerals is off) you can get leg cramps. The choices are potassium, magnesium, sodium, and calcium. It has something to do with balancing things and I’m pretty sure it isn’t as simple as a calcium deficiency. It is a common problem with women who are preg so you can find the mineral at preg websites (one that comes to mind is babycenter.com) and I know that vitamin/health food stores know about it. Maybe if you can get a balance of these minerals your cramps will lessen. Rainbow Colors (Jill) Hi SofT – Don’t you think it’s strange that you and I have had such sharp differences in the past, and yet – it seems we are able to speak gently to one another now? I just thought I’d put that in. Life does change. People change. Relationships change. I’m glad ours did. Thanks for your concern, and for the question – it is a good one. I think, when I think about it, that there are a couple of answers. One: after having had a long talk w/a woman who had lots of encouraging and strengthening suggestions for me, I spent the entire next day sleeping – the day of the evening I wrote that self-h*tred post. And also – well, here is an obvious change: I am undergoing switch in meds. It’s pretty major. I am doing a number of things at once. I am getting off W*llbutrin (which is a drug I have enjoyed in that it has had so few side effects, or so I thought. But now I think that it has been creating a long standing sleep disorder – that I didn’t have until recently (as in – it seems that it might be related to the Wellbutrin, which can be known to cause sleep disorders – as can diabetes and obesity, and I have been gaining weight over the months and years). Okay, so I’m stepping down the W*llbutrin on an attempt to get off it. After a month, when I see my MD again, she and I will discuss starting me on Eff*xor – one of the thousand anti-d’s I haven’t tried yet. It’s supposed to have a weight loss effect – but then so is Pr*zac, at least for some people, and it didn’t for me. We’ll see. I’m also changing the way I am handling my chronic pain. I have been taking P*rcoset regularly – as well as V*lium – partly to control leg cramps. (I have bone spurs which impinge on my sciatic nerves, besides which, the nerves where damaged by my second disc herniation, which was left untreated for a year, even though I *knew* I needed surgery – MDs – you can’t tell them anything. Try this, try that. I know nerve pain when I feel it, and I knew I needed the stupid disc taken out. I feel smack down on my tailbone and popped a disc that had been bulging for years.) The V*lium also affects sleep, of course. Well, so does the P*rcoset. So, cutting down on both is part of an effort to deal differently w/the sleep disorder. C*tch-22: I am not an addictive personality or somatic type (thank goodness – my issue is food, not substances) – so I don’t have a psychological problem, or even much of a physical problem w/cutting down on the drugs, and ultimately, it will be good, because using less P*rcoset means that it will be more effective when I do use it. Anyhow – the C*tch-22 is that when I cut down on the narcs, I get two "w*thdrawal" effects: one is an occasional slight sore throat – almost too mild to notice. The other, though, is pretty painful – well, very painful – when it sets in: I get screamingly bad leg cramps, suddenly, in the night. So guess what? I have to keep a little box of V*lium by my bed, because it is the best muscle relaxant available, and it works right away. But – still – I am cutting back on everything, and I know from past experience that eventually, I won’t need the nighttime "fix." Oh – and I’ve starting using lots of Gl*cosamine/Ch*ndroitin/MSM as part of the new pain management routine. I also have not much cartilege in my knees, and have started taking a new anti-inflammatory developed esp. for people who can’t take the ones that rough up the stomach – and I can’t, because of all the other drugs I take that are rough on the stomach. I’m fine until I add the anti-inflam. So – behold: B[e]xtra the wonder drug!!! When I take it, the improvement in my knees is fantastic With the onset of the cold weather, I am in pretty much pain again, so now I’m doing the G-C-MSM thing. Even after a few days I can feel it – like tonight we were doing kn*fe self-defense in karate, and a lot of it involves being thrown on the floor by the one defending. I am working w/a great street fighter type (a sw**tie of a guy, but he knows what he’s doing – so it’s super-great working w/him – and he respects me, says I have good moves – it’s going to work out – another post on that in a bit). Anyhow, he helps me up off the floor w/a pull-up (as the guys do w/each other, even – it’s a thing, you know, you even see football players do it) – but before, even w/that, my knees used to hurt. Well, tonight, we had a pretty hard work-out in class, and then we had instructors’ class afterward, where we usually stand in a circle for half an hour and discuss things and sometimes run through things physically – and I often find myself having to sit down because my knees or back hurt – but tonight I only sat down for a very few minutes. So: long answer to short question – why? Well, because I slept, so I felt like I had messed up – like – fallen down coming out of the starting gate (but – but – I’m trying to deal w/a sleep disorder!!). And, then, the change in meds is bound to be messing w/my head, yes? Oh, yeah: and my son’s b’day is Sunday. He will be 12. I used not to trigger for holidays, but now I do, because I feel them to be opportunities for failure. Now that I am writing this – I can tell myself not to be ridiculous – I can make this an opportunity for success. (After all – I have lots under my control.) Thanks for the question, SofT. And thanks for caring – Beauty. Hello Beauty, *sad*  :O(  Wish you weren’t feeling so badly about yourself yet understand.   Has anything happened recently that triggered this bout of self-hatred?  I’m listening if you want to talk about this some more. SofT Again. Completely enveloped in it. Swamped. I can’t take the up and down anymore – I say I can’t but I know I have to, and that’s even worse. Each down makes me h*te myself more. I’ve never been so horrible – I’ve never been in so bad a spot – worse and worse and worse, even when lifted momentarily. I h*te myself worse than my own worst enemy. Okay, I know the standard answer: it’s safer to h*te myself. So? Does that make me feel any better? It just makes me feel more stupid, to even *know* better and to succumb. Just makes me feel morally lazy for allowing myself to be overcome. Ick. Can’t write anymore because where it goes from here is sewer-worthy. Beauty.

Response:

Hello Beauty, Yer welcome for the caring.  :O) *smiling*   And, thank you for your responses … see, I told you I would be listening *g*.   And yes, I too appreciate the direction, place and changes in our relationship and it only took us years to get here too!  Oh how I love taking lengthy journeys for short paths.   <vbg And hey, congrats on the weigh loss you’ve achieved so far! I know how hard it is to deal with food-weight issues … kinda been a focus for me these past two years and I’ve made great strides so I really do hope you continued successes.  :O) *clearing throat*  As to the med changes.  It may be possible that the changes you’re making might bring on some depression, and you might want to check with your Dr as to what you might expect to experience during these changes and report to hir what you are presently experiencing.  I’m not clear on the half-life to what you’ve been taking nor the specific side-effects associated with withdrawal that one might tend to see, so might be a good idea to do a check-in.  You can also call a pharmacist as they tend to know a whole lot more about stuff like this. As to what Jill suggested regarding a possible dietary deficiency and supplements to address leg spasms … low levels of certain minerals as electrolytes (magnesium, potassium, calcium and sodium) has been linked to leg spasms.  And here are some possible remedies you might employ to see if they help … Drink more water and consider regular supplements as calcium (esp calcium), magnesium, potassium and sodium but only if your sodium intake is low or if you sweat a lot.   Other things you can do is try stretching your calves regularly during the day and at night. You can often prevent night cramps by exhausting the stretch reflex before you go to bed by stretching your calf muscles with wall pushups and applying a heating pad for 10 minutes before going to bed.  Also, keeping blankets loose at the foot of the bed may help prevent unnatural positioning of your feet and toes which may also cause night time cramping. Switching focus … Ever hear the adage that what a person tends to say last may be the most telling?  Well, this came up for me as I finished reading both of your posts.  I found myself wondering if the last things you said in your posts are the most telling to what has recently happened that may have triggered this recent bout of self-hatred.   I don’t know if it is or not, so I’ll paste and snip the parts to which this came up for me and perhaps you might reread them to see if perhaps the bulk of the ‘energy source’ to this bout of self-hatred might lie more here than in the recent medication changes. (1st quote) Oh, yeah: and my son’s b’day is Sunday. He will be 12. I used not to trigger for holidays, but now I do, because I feel them to be opportunities for failure.  Now that I am writing this – I can tell myself not to be ridiculous – I can make this an opportunity for success. (After all – I have lots under my control.)

(2nd quote) How on earch could I forget one of the most important factors in how I am feeling right now? My whole psyche is struggling around re-arranging a habitual coping mechanism: comfort eating. [snip] It was the getting started that was hard. But – it’s bound to affect my feelings a lot, at least at first, isn’t it?

Wondering if perhaps exploring the feelings around the "opportunities for failure" and food as it pertains to weight gain, weight loss, depression and self-hatred?  Just a thought. SofT

Response:

Guess what? Just filled a week’s worth of morning and night plastic pill boxes w/mineral supplements. Potassium is great, but it just flushes through your system like crazy. Magnesium, on the other hand, up to way high doses, so long as it is chelated, is medically recognized as a treatment for pain and cramps. (A friend w/FM told me about that.) And I put some other stuff – incl. calcium (w/C for absorption) in there, too, for other things, and for good measure. Thanks. Beauty. – Hide quoted text — Show quoted text – Just something to look into. I can’t remember which mineral it is but if you are deficient in one (or if your balance of minerals is off) you can get leg cramps. The choices are potassium, magnesium, sodium, and calcium. It has something to do with balancing things and I’m pretty sure it isn’t as simple as a calcium deficiency. It is a common problem with women who are preg so you can find the mineral at preg websites (one that comes to mind is babycenter.com) and I know that vitamin/health food stores know about it. Maybe if you can get a balance of these minerals your cramps will lessen. Rainbow Colors (Jill) Hi SofT – Don’t you think it’s strange that you and I have had such sharp differences in the past, and yet – it seems we are able to speak gently to one another now? I just thought I’d put that in. Life does change. People change. Relationships change. I’m glad ours did. Thanks for your concern, and for the question – it is a good one. I think, when I think about it, that there are a couple of answers. One: after having had a long talk w/a woman who had lots of encouraging and strengthening suggestions for me, I spent the entire next day sleeping – the day of the evening I wrote that self-h*tred post. And also – well, here is an obvious change: I am undergoing switch in meds. It’s pretty major. I am doing a number of things at once. I am getting off W*llbutrin (which is a drug I have enjoyed in that it has had so few side effects, or so I thought. But now I think that it has been creating a long standing sleep disorder – that I didn’t have until recently (as in – it seems that it might be related to the Wellbutrin, which can be known to cause sleep disorders – as can diabetes and obesity, and I have been gaining weight over the months and years). Okay, so I’m stepping down the W*llbutrin on an attempt to get off it. After a month, when I see my MD again, she and I will discuss starting me on Eff*xor – one of the thousand anti-d’s I haven’t tried yet. It’s supposed to have a weight loss effect – but then so is Pr*zac, at least for some people, and it didn’t for me. We’ll see. I’m also changing the way I am handling my chronic pain. I have been taking P*rcoset regularly – as well as V*lium – partly to control leg cramps. (I have bone spurs which impinge on my sciatic nerves, besides which, the nerves where damaged by my second disc herniation, which was left untreated for a year, even though I *knew* I needed surgery – MDs – you can’t tell them anything. Try this, try that. I know nerve pain when I feel it, and I knew I needed the stupid disc taken out. I feel smack down on my tailbone and popped a disc that had been bulging for years.) The V*lium also affects sleep, of course. Well, so does the P*rcoset. So, cutting down on both is part of an effort to deal differently w/the sleep disorder. C*tch-22: I am not an addictive personality or somatic type (thank goodness – my issue is food, not substances) – so I don’t have a psychological problem, or even much of a physical problem w/cutting down on the drugs, and ultimately, it will be good, because using less P*rcoset means that it will be more effective when I do use it. Anyhow – the C*tch-22 is that when I cut down on the narcs, I get two "w*thdrawal" effects: one is an occasional slight sore throat – almost too mild to notice. The other, though, is pretty painful – well, very painful – when it sets in: I get screamingly bad leg cramps, suddenly, in the night. So guess what? I have to keep a little box of V*lium by my bed, because it is the best muscle relaxant available, and it works right away. But – still – I am cutting back on everything, and I know from past experience that eventually, I won’t need the nighttime "fix." Oh – and I’ve starting using lots of Gl*cosamine/Ch*ndroitin/MSM as part of the new pain management routine. I also have not much cartilege in my knees, and have started taking a new anti-inflammatory developed esp. for people who can’t take the ones that rough up the stomach – and I can’t, because of all the other drugs I take that are rough on the stomach. I’m fine until I add the anti-inflam. So – behold: B[e]xtra the wonder drug!!! When I take it, the improvement in my knees is fantastic With the onset of the cold weather, I am in pretty much pain again, so now I’m doing the G-C-MSM thing. Even after a few days I can feel it – like tonight we were doing kn*fe self-defense in karate, and a lot of it involves being thrown on the floor by the one defending. I am working w/a great street fighter type (a sw**tie of a guy, but he knows what he’s doing – so it’s super-great working w/him – and he respects me, says I have good moves – it’s going to work out – another post on that in a bit). Anyhow, he helps me up off the floor w/a pull-up (as the guys do w/each other, even – it’s a thing, you know, you even see football players do it) – but before, even w/that, my knees used to hurt. Well, tonight, we had a pretty hard work-out in class, and then we had instructors’ class afterward, where we usually stand in a circle for half an hour and discuss things and sometimes run through things physically – and I often find myself having to sit down because my knees or back hurt – but tonight I only sat down for a very few minutes. So: long answer to short question – why? Well, because I slept, so I felt like I had messed up – like – fallen down coming out of the starting gate (but – but – I’m trying to deal w/a sleep disorder!!). And, then, the change in meds is bound to be messing w/my head, yes? Oh, yeah: and my son’s b’day is Sunday. He will be 12. I used not to trigger for holidays, but now I do, because I feel them to be opportunities for failure. Now that I am writing this – I can tell myself not to be ridiculous – I can make this an opportunity for success. (After all – I have lots under my control.) Thanks for the question, SofT. And thanks for caring – Beauty. Hello Beauty, *sad*  :O(  Wish you weren’t feeling so badly about yourself yet understand.   Has anything happened recently that triggered this bout of self-hatred?  I’m listening if you want to talk about this some more. SofT Again. Completely enveloped in it. Swamped. I can’t take the up and down anymore – I say I can’t but I know I have to, and that’s even worse. Each down makes me h*te myself more. I’ve never been so horrible – I’ve never been in so bad a spot – worse and worse and worse, even when lifted momentarily. I h*te myself worse than my own worst enemy. Okay, I know the standard answer: it’s safer to h*te myself. So? Does that make me feel any better? It just makes me feel more stupid, to even *know* better and to succumb. Just makes me feel morally lazy for allowing myself to be overcome. Ick. Can’t write anymore because where it goes from here is sewer-worthy. Beauty.

Response:

You’d have to keep drinking it continually. As I said: potassium flushes out of the body pretty quickly. But, yeah, quinine is great – and w/a squeeze of lemon feels quite decadent: a good touch, as I am 9 lbs. into losing 60, and am supposed to be funneling lots of H2O. Beauty. – Hide quoted text — Show quoted text – potassium.  drink quinine. — astri Just something to look into. I can’t remember which mineral it is but if you are deficient in one (or if your balance of minerals is off) you can get leg cramps. The choices are potassium, magnesium, sodium, and calcium. It has something to do with balancing things and I’m pretty sure it isn’t as simple as a calcium deficiency. It is a common problem with women who are preg so you can find the mineral at preg websites (one that comes to mind is babycenter.com) and I know that vitamin/health food stores know about it. Maybe if you can get a balance of these minerals your cramps will lessen. Rainbow Colors (Jill) Hi SofT – Don’t you think it’s strange that you and I have had such sharp differences in the past, and yet – it seems we are able to speak gently to one another now? I just thought I’d put that in. Life does change. People change. Relationships change. I’m glad ours did. Thanks for your concern, and for the question – it is a good one. I think, when I think about it, that there are a couple of answers. One: after having had a long talk w/a woman who had lots of encouraging and strengthening suggestions for me, I spent the entire next day sleeping – the day of the evening I wrote that self-h*tred post. And also – well, here is an obvious change: I am undergoing switch in meds. It’s pretty major. I am doing a number of things at once. I am getting off W*llbutrin (which is a drug I have enjoyed in that it has had so few side effects, or so I thought. But now I think that it has been creating a long standing sleep disorder – that I didn’t have until recently (as in – it seems that it might be related to the Wellbutrin, which can be known to cause sleep disorders – as can diabetes and obesity, and I have been gaining weight over the months and years). Okay, so I’m stepping down the W*llbutrin on an attempt to get off it. After a month, when I see my MD again, she and I will discuss starting me on Eff*xor – one of the thousand anti-d’s I haven’t tried yet. It’s supposed to have a weight loss effect – but then so is Pr*zac, at least for some people, and it didn’t for me. We’ll see. I’m also changing the way I am handling my chronic pain. I have been taking P*rcoset regularly – as well as V*lium – partly to control leg cramps. (I have bone spurs which impinge on my sciatic nerves, besides which, the nerves where damaged by my second disc herniation, which was left untreated for a year, even though I *knew* I needed surgery – MDs – you can’t tell them anything. Try this, try that. I know nerve pain when I feel it, and I knew I needed the stupid disc taken out. I feel smack down on my tailbone and popped a disc that had been bulging for years.) The V*lium also affects sleep, of course. Well, so does the P*rcoset. So, cutting down on both is part of an effort to deal differently w/the sleep disorder. C*tch-22: I am not an addictive personality or somatic type (thank goodness – my issue is food, not substances) – so I don’t have a psychological problem, or even much of a physical problem w/cutting down on the drugs, and ultimately, it will be good, because using less P*rcoset means that it will be more effective when I do use it. Anyhow – the C*tch-22 is that when I cut down on the narcs, I get two "w*thdrawal" effects: one is an occasional slight sore throat – almost too mild to notice. The other, though, is pretty painful – well, very painful – when it sets in: I get screamingly bad leg cramps, suddenly, in the night. So guess what? I have to keep a little box of V*lium by my bed, because it is the best muscle relaxant available, and it works right away. But – still – I am cutting back on everything, and I know from past experience that eventually, I won’t need the nighttime "fix." Oh – and I’ve starting using lots of Gl*cosamine/Ch*ndroitin/MSM as part of the new pain management routine. I also have not much cartilege in my knees, and have started taking a new anti-inflammatory developed esp. for people who can’t take the ones that rough up the stomach – and I can’t, because of all the other drugs I take that are rough on the stomach. I’m fine until I add the anti-inflam. So – behold: B[e]xtra the wonder drug!!! When I take it, the improvement in my knees is fantastic With the onset of the cold weather, I am in pretty much pain again, so now I’m doing the G-C-MSM thing. Even after a few days I can feel it – like tonight we were doing kn*fe self-defense in karate, and a lot of it involves being thrown on the floor by the one defending. I am working w/a great street fighter type (a sw**tie of a guy, but he knows what he’s doing – so it’s super-great working w/him – and he respects me, says I have good moves – it’s going to work out – another post on that in a bit). Anyhow, he helps me up off the floor w/a pull-up (as the guys do w/each other, even – it’s a thing, you know, you even see football players do it) – but before, even w/that, my knees used to hurt. Well, tonight, we had a pretty hard work-out in class, and then we had instructors’ class afterward, where we usually stand in a circle for half an hour and discuss things and sometimes run through things physically – and I often find myself having to sit down because my knees or back hurt – but tonight I only sat down for a very few minutes. So: long answer to short question – why? Well, because I slept, so I felt like I had messed up – like – fallen down coming out of the starting gate (but – but – I’m trying to deal w/a sleep disorder!!). And, then, the change in meds is bound to be messing w/my head, yes? Oh, yeah: and my son’s b’day is Sunday. He will be 12. I used not to trigger for holidays, but now I do, because I feel them to be opportunities for failure. Now that I am writing this – I can tell myself not to be ridiculous – I can make this an opportunity for success. (After all – I have lots under my control.) Thanks for the question, SofT. And thanks for caring – Beauty. Hello Beauty, *sad*  :O(  Wish you weren’t feeling so badly about yourself yet understand.   Has anything happened recently that triggered this bout of self-hatred?  I’m listening if you want to talk about this some more. SofT Again. Completely enveloped in it. Swamped. I can’t take the up and down anymore – I say I can’t but I know I have to, and that’s even worse. Each down makes me h*te myself more. I’ve never been so horrible – I’ve never been in so bad a spot – worse and worse and worse, even when lifted momentarily. I h*te myself worse than my own worst enemy. Okay, I know the standard answer: it’s safer to h*te myself. So? Does that make me feel any better? It just makes me feel more stupid, to even *know* better and to succumb. Just makes me feel morally lazy for allowing myself to be overcome. Ick. Can’t write anymore because where it goes from here is sewer-worthy. Beauty.

Response:

Let me keep this short and simple: Bingo. You’ve hit on all the right spots, and, no I hadn’t heard the adage, but in this case it is probably spot-on – and I’ll look for it in other cases as well. Heh. Only took years. Heh. Beauty. – Hide quoted text — Show quoted text – Hello Beauty, Yer welcome for the caring.  :O) *smiling*   And, thank you for your responses … see, I told you I would be listening *g*.   And yes, I too appreciate the direction, place and changes in our relationship and it only took us years to get here too!  Oh how I love taking lengthy journeys for short paths.   <vbg And hey, congrats on the weigh loss you’ve achieved so far! I know how hard it is to deal with food-weight issues … kinda been a focus for me these past two years and I’ve made great strides so I really do hope you continued successes.  :O) *clearing throat*  As to the med changes.  It may be possible that the changes you’re making might bring on some depression, and you might want to check with your Dr as to what you might expect to experience during these changes and report to hir what you are presently experiencing.  I’m not clear on the half-life to what you’ve been taking nor the specific side-effects associated with withdrawal that one might tend to see, so might be a good idea to do a check-in.  You can also call a pharmacist as they tend to know a whole lot more about stuff like this. As to what Jill suggested regarding a possible dietary deficiency and supplements to address leg spasms … low levels of certain minerals as electrolytes (magnesium, potassium, calcium and sodium) has been linked to leg spasms.  And here are some possible remedies you might employ to see if they help … Drink more water and consider regular supplements as calcium (esp calcium), magnesium, potassium and sodium but only if your sodium intake is low or if you sweat a lot.   Other things you can do is try stretching your calves regularly during the day and at night. You can often prevent night cramps by exhausting the stretch reflex before you go to bed by stretching your calf muscles with wall pushups and applying a heating pad for 10 minutes before going to bed.  Also, keeping blankets loose at the foot of the bed may help prevent unnatural positioning of your feet and toes which may also cause night time cramping. Switching focus … Ever hear the adage that what a person tends to say last may be the most telling?  Well, this came up for me as I finished reading both of your posts.  I found myself wondering if the last things you said in your posts are the most telling to what has recently happened that may have triggered this recent bout of self-hatred.   I don’t know if it is or not, so I’ll paste and snip the parts to which this came up for me and perhaps you might reread them to see if perhaps the bulk of the ‘energy source’ to this bout of self-hatred might lie more here than in the recent medication changes. (1st quote) Oh, yeah: and my son’s b’day is Sunday. He will be 12. I used not to trigger for holidays, but now I do, because I feel them to be opportunities for failure.  Now that I am writing this – I can tell myself not to be ridiculous – I can make this an opportunity for success. (After all – I have lots under my control.) (2nd quote) How on earch could I forget one of the most important factors in how I am feeling right now? My whole psyche is struggling around re-arranging a habitual coping mechanism: comfort eating. [snip] It was the getting started that was hard. But – it’s bound to affect my feelings a lot, at least at first, isn’t it? Wondering if perhaps exploring the feelings around the "opportunities for failure" and food as it pertains to weight gain, weight loss, depression and self-hatred?  Just a thought. SofT

Response:

That’s right cause one of the preg suggestions was a banana at bedtime :) Quinine is also good cause then you won’t get malaria *grin* Rainbow Colors (Jill) – Hide quoted text — Show quoted text – potassium.  drink quinine. — astri Just something to look into. I can’t remember which mineral it is but if you are deficient in one (or if your balance of minerals is off) you can get leg cramps. The choices are potassium, magnesium, sodium, and calcium. It has something to do with balancing things and I’m pretty sure it isn’t as simple as a calcium deficiency. It is a common problem with women who are preg so you can find the mineral at preg websites (one that comes to mind is babycenter.com) and I know that vitamin/health food stores know about it. Maybe if you can get a balance of these minerals your cramps will lessen. Rainbow Colors (Jill) Hi SofT – Don’t you think it’s strange that you and I have had such sharp differences in the past, and yet – it seems we are able to speak gently to one another now? I just thought I’d put that in. Life does change. People change. Relationships change. I’m glad ours did. Thanks for your concern, and for the question – it is a good one. I think, when I think about it, that there are a couple of answers. One: after having had a long talk w/a woman who had lots of encouraging and strengthening suggestions for me, I spent the entire next day sleeping – the day of the evening I wrote that self-h*tred post. And also – well, here is an obvious change: I am undergoing switch in meds. It’s pretty major. I am doing a number of things at once. I am getting off W*llbutrin (which is a drug I have enjoyed in that it has had so few side effects, or so I thought. But now I think that it has been creating a long standing sleep disorder – that I didn’t have until recently (as in – it seems that it might be related to the Wellbutrin, which can be known to cause sleep disorders – as can diabetes and obesity, and I have been gaining weight over the months and years). Okay, so I’m stepping down the W*llbutrin on an attempt to get off it. After a month, when I see my MD again, she and I will discuss starting me on Eff*xor – one of the thousand anti-d’s I haven’t tried yet. It’s supposed to have a weight loss effect – but then so is Pr*zac, at least for some people, and it didn’t for me. We’ll see. I’m also changing the way I am handling my chronic pain. I have been taking P*rcoset regularly – as well as V*lium – partly to control leg cramps. (I have bone spurs which impinge on my sciatic nerves, besides which, the nerves where damaged by my second disc herniation, which was left untreated for a year, even though I *knew* I needed surgery – MDs – you can’t tell them anything. Try this, try that. I know nerve pain when I feel it, and I knew I needed the stupid disc taken out. I feel smack down on my tailbone and popped a disc that had been bulging for years.) The V*lium also affects sleep, of course. Well, so does the P*rcoset. So, cutting down on both is part of an effort to deal differently w/the sleep disorder. C*tch-22: I am not an addictive personality or somatic type (thank goodness – my issue is food, not substances) – so I don’t have a psychological problem, or even much of a physical problem w/cutting down on the drugs, and ultimately, it will be good, because using less P*rcoset means that it will be more effective when I do use it. Anyhow – the C*tch-22 is that when I cut down on the narcs, I get two "w*thdrawal" effects: one is an occasional slight sore throat – almost too mild to notice. The other, though, is pretty painful – well, very painful – when it sets in: I get screamingly bad leg cramps, suddenly, in the night. So guess what? I have to keep a little box of V*lium by my bed, because it is the best muscle relaxant available, and it works right away. But – still – I am cutting back on everything, and I know from past experience that eventually, I won’t need the nighttime "fix." Oh – and I’ve starting using lots of Gl*cosamine/Ch*ndroitin/MSM as part of the new pain management routine. I also have not much cartilege in my knees, and have started taking a new anti-inflammatory developed esp. for people who can’t take the ones that rough up the stomach – and I can’t, because of all the other drugs I take that are rough on the stomach. I’m fine until I add the anti-inflam. So – behold: B[e]xtra the wonder drug!!! When I take it, the improvement in my knees is fantastic With the onset of the cold weather, I am in pretty much pain again, so now I’m doing the G-C-MSM thing. Even after a few days I can feel it – like tonight we were doing kn*fe self-defense in karate, and a lot of it involves being thrown on the floor by the one defending. I am working w/a great street fighter type (a sw**tie of a guy, but he knows what he’s doing – so it’s super-great working w/him – and he respects me, says I have good moves – it’s going to work out – another post on that in a bit). Anyhow, he helps me up off the floor w/a pull-up (as the guys do w/each other, even – it’s a thing, you know, you even see football players do it) – but before, even w/that, my knees used to hurt. Well, tonight, we had a pretty hard work-out in class, and then we had instructors’ class afterward, where we usually stand in a circle for half an hour and discuss things and sometimes run through things physically – and I often find myself having to sit down because my knees or back hurt – but tonight I only sat down for a very few minutes. So: long answer to short question – why? Well, because I slept, so I felt like I had messed up – like – fallen down coming out of the starting gate (but – but – I’m trying to deal w/a sleep disorder!!). And, then, the change in meds is bound to be messing w/my head, yes? Oh, yeah: and my son’s b’day is Sunday. He will be 12. I used not to trigger for holidays, but now I do, because I feel them to be opportunities for failure. Now that I am writing this – I can tell myself not to be ridiculous – I can make this an opportunity for success. (After all – I have lots under my control.) Thanks for the question, SofT. And thanks for caring – Beauty. Hello Beauty, *sad*  :O(  Wish you weren’t feeling so badly about yourself yet understand.   Has anything happened recently that triggered this bout of self-hatred?  I’m listening if you want to talk about this some more. SofT Again. Completely enveloped in it. Swamped. I can’t take the up and down anymore – I say I can’t but I know I have to, and that’s even worse. Each down makes me h*te myself more. I’ve never been so horrible – I’ve never been in so bad a spot – worse and worse and worse, even when lifted momentarily. I h*te myself worse than my own worst enemy. Okay, I know the standard answer: it’s safer to h*te myself. So? Does that make me feel any better? It just makes me feel more stupid, to even *know* better and to succumb. Just makes me feel morally lazy for allowing myself to be overcome. Ick. Can’t write anymore because where it goes from here is sewer-worthy. Beauty.

–      The colors blend, the edges soften. Swirling and mixing                    we are becoming white light.

Response:

Hello Beauty, If you want to talk some more, I’m still listening and I will be online for a bit longer and then I’d better get some sleep as I sorely need some as well.  Pls know that I was mostly laughing at myself for having taken years to cultivate a relationship with you that I like and am comfortable with, feels nice and well earned-deserved.   Sorry for the wording, didn’t mean to include-insinuate you in the "us" but rather "us" as in me and others in TN.  Later, after I’ve gotten some sleep, I’ll read here some more, I hope you’ll post more.  I got off of a 15.5 hour shift 6.5 hours ago and I’m totally wiped out.  Take care. SofT – Hide quoted text — Show quoted text – Let me keep this short and simple: Bingo. You’ve hit on all the right spots, and, no I hadn’t heard the adage, but in this case it is probably spot-on – and I’ll look for it in other cases as well. Heh. Only took years. Heh. Beauty. Hello Beauty, Yer welcome for the caring.  :O) *smiling*   And, thank you for your responses … see, I told you I would be listening *g*.   And yes, I too appreciate the direction, place and changes in our relationship and it only took us years to get here too!  Oh how I love taking lengthy journeys for short paths.   <vbg And hey, congrats on the weigh loss you’ve achieved so far! I know how hard it is to deal with food-weight issues … kinda been a focus for me these past two years and I’ve made great strides so I really do hope you continued successes.  :O) *clearing throat*  As to the med changes.  It may be possible that the changes you’re making might bring on some depression, and you might want to check with your Dr as to what you might expect to experience during these changes and report to hir what you are presently experiencing.  I’m not clear on the half-life to what you’ve been taking nor the specific side-effects associated with withdrawal that one might tend to see, so might be a good idea to do a check-in.  You can also call a pharmacist as they tend to know a whole lot more about stuff like this. As to what Jill suggested regarding a possible dietary deficiency and supplements to address leg spasms … low levels of certain minerals as electrolytes (magnesium, potassium, calcium and sodium) has been linked to leg spasms.  And here are some possible remedies you might employ to see if they help … Drink more water and consider regular supplements as calcium (esp calcium), magnesium, potassium and sodium but only if your sodium intake is low or if you sweat a lot.   Other things you can do is try stretching your calves regularly during the day and at night. You can often prevent night cramps by exhausting the stretch reflex before you go to bed by stretching your calf muscles with wall pushups and applying a heating pad for 10 minutes before going to bed.  Also, keeping blankets loose at the foot of the bed may help prevent unnatural positioning of your feet and toes which may also cause night time cramping. Switching focus … Ever hear the adage that what a person tends to say last may be the most telling?  Well, this came up for me as I finished reading both of your posts.  I found myself wondering if the last things you said in your posts are the most telling to what has recently happened that may have triggered this recent bout of self-hatred.   I don’t know if it is or not, so I’ll paste and snip the parts to which this came up for me and perhaps you might reread them to see if perhaps the bulk of the ‘energy source’ to this bout of self-hatred might lie more here than in the recent medication changes. (1st quote) Oh, yeah: and my son’s b’day is Sunday. He will be 12. I used not to trigger for holidays, but now I do, because I feel them to be opportunities for failure.  Now that I am writing this – I can tell myself not to be ridiculous – I can make this an opportunity for success. (After all – I have lots under my control.) (2nd quote) How on earch could I forget one of the most important factors in how I am feeling right now? My whole psyche is struggling around re-arranging a habitual coping mechanism: comfort eating. [snip] It was the getting started that was hard. But – it’s bound to affect my feelings a lot, at least at first, isn’t it? Wondering if perhaps exploring the feelings around the "opportunities for failure" and food as it pertains to weight gain, weight loss, depression and self-hatred?  Just a thought. SofT

Response:

I *love* bananas, but they are disallowed for the present on my weight-loss thingie – lots and lots of sugary carbs. (Diabetics are only   supposed to eat half at a time, once a day, anyhow. Bleah.) As for quinine: well – did you hear? The latest Nobel in chemistry was a shared one – one being for the discovery of certain kinds of – um – proteins? molecules? cells? – that help move water around in living things. There happen to be a ton of different kinds of them, now that someone has thought to accidentally find them, and one of the clinical results may be progress toward a cure for malaria. Beauty. – Hide quoted text — Show quoted text – That’s right cause one of the preg suggestions was a banana at bedtime :) Quinine is also good cause then you won’t get malaria *grin* Rainbow Colors (Jill) potassium.  drink quinine. — astri Just something to look into. I can’t remember which mineral it is but if you are deficient in one (or if your balance of minerals is off) you can get leg cramps. The choices are potassium, magnesium, sodium, and calcium. It has something to do with balancing things and I’m pretty sure it isn’t as simple as a calcium deficiency. It is a common problem with women who are preg so you can find the mineral at preg websites (one that comes to mind is babycenter.com) and I know that vitamin/health food stores know about it. Maybe if you can get a balance of these minerals your cramps will lessen. Rainbow Colors (Jill) Hi SofT – Don’t you think it’s strange that you and I have had such sharp differences in the past, and yet – it seems we are able to speak gently to one another now? I just thought I’d put that in. Life does change. People change. Relationships change. I’m glad ours did. Thanks for your concern, and for the question – it is a good one. I think, when I think about it, that there are a couple of answers. One: after having had a long talk w/a woman who had lots of encouraging and strengthening suggestions for me, I spent the entire next day sleeping – the day of the evening I wrote that self-h*tred post. And also – well, here is an obvious change: I am undergoing switch in meds. It’s pretty major. I am doing a number of things at once. I am getting off W*llbutrin (which is a drug I have enjoyed in that it has had so few side effects, or so I thought. But now I think that it has been creating a long standing sleep disorder – that I didn’t have until recently (as in – it seems that it might be related to the Wellbutrin, which can be known to cause sleep disorders – as can diabetes and obesity, and I have been gaining weight over the months and years). Okay, so I’m stepping down the W*llbutrin on an attempt to get off it. After a month, when I see my MD again, she and I will discuss starting me on Eff*xor – one of the thousand anti-d’s I haven’t tried yet. It’s supposed to have a weight loss effect – but then so is Pr*zac, at least for some people, and it didn’t for me. We’ll see. I’m also changing the way I am handling my chronic pain. I have been taking P*rcoset regularly – as well as V*lium – partly to control leg cramps. (I have bone spurs which impinge on my sciatic nerves, besides which, the nerves where damaged by my second disc herniation, which was left untreated for a year, even though I *knew* I needed surgery – MDs – you can’t tell them anything. Try this, try that. I know nerve pain when I feel it, and I knew I needed the stupid disc taken out. I feel smack down on my tailbone and popped a disc that had been bulging for years.) The V*lium also affects sleep, of course. Well, so does the P*rcoset. So, cutting down on both is part of an effort to deal differently w/the sleep disorder. C*tch-22: I am not an addictive personality or somatic type (thank goodness – my issue is food, not substances) – so I don’t have a psychological problem, or even much of a physical problem w/cutting down on the drugs, and ultimately, it will be good, because using less P*rcoset means that it will be more effective when I do use it. Anyhow – the C*tch-22 is that when I cut down on the narcs, I get two "w*thdrawal" effects: one is an occasional slight sore throat – almost too mild to notice. The other, though, is pretty painful – well, very painful – when it sets in: I get screamingly bad leg cramps, suddenly, in the night. So guess what? I have to keep a little box of V*lium by my bed, because it is the best muscle relaxant available, and it works right away. But – still – I am cutting back on everything, and I know from past experience that eventually, I won’t need the nighttime "fix." Oh – and I’ve starting using lots of Gl*cosamine/Ch*ndroitin/MSM as part of the new pain management routine. I also have not much cartilege in my knees, and have started taking a new anti-inflammatory developed esp. for people who can’t take the ones that rough up the stomach – and I can’t, because of all the other drugs I take that are rough on the stomach. I’m fine until I add the anti-inflam. So – behold: B[e]xtra the wonder drug!!! When I take it, the improvement in my knees is fantastic With the onset of the cold weather, I am in pretty much pain again, so now I’m doing the G-C-MSM thing. Even after a few days I can feel it – like tonight we were doing kn*fe self-defense in karate, and a lot of it involves being thrown on the floor by the one defending. I am working w/a great street fighter type (a sw**tie of a guy, but he knows what he’s doing – so it’s super-great working w/him – and he respects me, says I have good moves – it’s going to work out – another post on that in a bit). Anyhow, he helps me up off the floor w/a pull-up (as the guys do w/each other, even – it’s a thing, you know, you even see football players do it) – but before, even w/that, my knees used to hurt. Well, tonight, we had a pretty hard work-out in class, and then we had instructors’ class afterward, where we usually stand in a circle for half an hour and discuss things and sometimes run through things physically – and I often find myself having to sit down because my knees or back hurt – but tonight I only sat down for a very few minutes. So: long answer to short question – why? Well, because I slept, so I felt like I had messed up – like – fallen down coming out of the starting gate (but – but – I’m trying to deal w/a sleep disorder!!). And, then, the change in meds is bound to be messing w/my head, yes? Oh, yeah: and my son’s b’day is Sunday. He will be 12. I used not to trigger for holidays, but now I do, because I feel them to be opportunities for failure. Now that I am writing this – I can tell myself not to be ridiculous – I can make this an opportunity for success. (After all – I have lots under my control.) Thanks for the question, SofT. And thanks for caring – Beauty. Hello Beauty, *sad*  :O(  Wish you weren’t feeling so badly about yourself yet understand.   Has anything happened recently that triggered this bout of self-hatred?  I’m listening if you want to talk about this some more. SofT Again. Completely enveloped in it. Swamped. I can’t take the up and down anymore – I say I can’t but I know I have to, and that’s even worse. Each down makes me h*te myself more. I’ve never been so horrible – I’ve never been in so bad a spot – worse and worse and worse, even when lifted momentarily. I h*te myself worse than my own worst enemy. Okay, I know the standard answer: it’s safer to h*te myself. So? Does that make me feel any better? It just makes me feel more stupid, to even *know* better and to succumb. Just makes me feel morally lazy for allowing myself to be overcome. Ick. Can’t write anymore because where it goes from here is sewer-worthy. Beauty.

Response:

P. S.  - well, you might get or have malaria, but the symptoms won’t be as bad – or you may be less likely to get it. That’s true of the supposed "anti-malarial" drugs they have as Rx versions, too, so far as I know – at least that was the case when I went to Kenya. You took your At*brine and you took your chances. And the thing about carrying babies, as you know, is that it completely redistributes (as well as adding to) the body  weight of the mthr – so there can be different stresses on the spine, and sometimes the baby is inconsiderate enough to decide to lie right on the sciatic nerve. Bananas ain’t gonna help that, unless you can somehow convince the baby to take them as a pay-on-demand bribe. Oh well. Meanwhile, I guess, you can enjoy eating them yummy fruits anyhow. I think potatoes have a lot of potassium, too, or am I just suffering from deceit by alliteration? Beauty. – Hide quoted text — Show quoted text – That’s right cause one of the preg suggestions was a banana at bedtime :) Quinine is also good cause then you won’t get malaria *grin* Rainbow Colors (Jill) potassium.  drink quinine. — astri Just something to look into. I can’t remember which mineral it is but if you are deficient in one (or if your balance of minerals is off) you can get leg cramps. The choices are potassium, magnesium, sodium, and calcium. It has something to do with balancing things and I’m pretty sure it isn’t as simple as a calcium deficiency. It is a common problem with women who are preg so you can find the mineral at preg websites (one that comes to mind is babycenter.com) and I know that vitamin/health food stores know about it. Maybe if you can get a balance of these minerals your cramps will lessen. Rainbow Colors (Jill) Hi SofT – Don’t you think it’s strange that you and I have had such sharp differences in the past, and yet – it seems we are able to speak gently to one another now? I just thought I’d put that in. Life does change. People change. Relationships change. I’m glad ours did. Thanks for your concern, and for the question – it is a good one. I think, when I think about it, that there are a couple of answers. One: after having had a long talk w/a woman who had lots of encouraging and strengthening suggestions for me, I spent the entire next day sleeping – the day of the evening I wrote that self-h*tred post. And also – well, here is an obvious change: I am undergoing switch in meds. It’s pretty major. I am doing a number of things at once. I am getting off W*llbutrin (which is a drug I have enjoyed in that it has had so few side effects, or so I thought. But now I think that it has been creating a long standing sleep disorder – that I didn’t have until recently (as in – it seems that it might be related to the Wellbutrin, which can be known to cause sleep disorders – as can diabetes and t: Isity, and I have been gaining weight over the months and years). Okay, so I’m stepping down the W*llbutrin on an attempt to get off it. After a month, when I see my MD again, she and I will discuss starting me on Eff*xor – one of the thousand anti-d’s I haven’t tried yet. It’s supposed to have a weight loss effect – but then so is Pr*zac, at least for some people, and it didn’t for me. We’ll see. I’m also changing the way I am handling my chronic pain. I have been taking P*rcoset regularly – as well as V*lium – partly to control leg cramps. (I have bone spurs which impinge on my sciatic nerves, besides which, the nerves where damaged by my second disc herniation, which was left untreated for a year, even though I *knew* I needed surgery – MDs – you can’t tell them anything. Try this, try that. I know nerve pain when I feel it, and I knew I needed the stupid disc taken out. I feel smack down on my tailbone and popped a disc that had been bulging for years.) The V*lium also affects sleep, of course. Well, so does the P*rcoset. So, cutting down on both is part of an effort to deal differently w/the sleep disorder. C*tch-22: I am not an addictive personality or somatic type (thank goodness – my issue is food, not substances) – so I don’t have a psychological problem, or even much of a physical problem w/cutting down on the drugs, and ultimately, it will be good, because using less P*rcoset means that it will be more effective when I do use it. Anyhow – the C*tch-22 is that when I cut down on the narcs, I get two "w*thdrawal" effects: one is an occasional slight sore throat – almost too mild to notice. The other, though, is pretty painful – well, very painful – when it sets in: I get screamingly bad leg cramps, suddenly, in the night. So guess what? I have to keep a little box of V*lium by my bed, because it is the best muscle relaxant available, and it works right away. But – still – I am cutting back on everything, and I know from past experience that eventually, I won’t need the nighttime "fix." Oh – and I’ve starting using lots of Gl*cosamine/Ch*ndroitin/MSM as part of the new pain management routine. I also have not much cartilege in my knees, and have started taking a new anti-inflammatory developed esp. for people who can’t take the ones that rough up the stomach – and I can’t, because of all the other drugs I take that are rough on the stomach. I’m fine until I add the anti-inflam. So – behold: B[e]xtra the wonder drug!!! When I take it, the improvement in my knees is fantastic With the onset of the cold weather, I am in pretty much pain again, so now I’m doing the G-C-MSM thing. Even after a few days I can feel it – like tonight we were doing kn*fe self-defense in karate, and a lot of it involves being thrown on the floor by the one defending. I am working w/a great street fighter type (a sw**tie of a guy, but he knows what he’s doing – so it’s super-great working w/him – and he respects me, says I have good moves – it’s going to work out – another post on that in a bit). Anyhow, he helps me up off the floor w/a pull-up (as the guys do w/each other, even – it’s a thing, you know, you even see football players do it) – but before, even w/that, my knees used to hurt. Well, tonight, we had a pretty hard work-out in class, and then we had instructors’ class afterward, where we usually stand in a circle for half an hour and discuss things and sometimes run through things physically – and I often find myself having to sit down because my knees or back hurt – but tonight I only sat down for a very few minutes. So: long answer to short question – why? Well, because I slept, so I felt like I had messed up – like – fallen down coming out of the starting gate (but – but – I’m trying to deal w/a sleep disorder!!). And, then, the change in meds is bound to be messing w/my head, yes? Oh, yeah: and my son’s b’day is Sunday. He will be 12. I used not to trigger for holidays, but now I do, because I feel them to be opportunities for failure. Now that I am writing this – I can tell myself not to be ridiculous – I can make this an opportunity for success. (After all – I have lots under my control.) Thanks for the question, SofT. And thanks for caring – Beauty. Hello Beauty, *sad*  :O(  Wish you weren’t feeling so badly about yourself yet understand.   Has anything happened recently that triggered this bout of self-hatred?  I’m listening if you want to talk about this some more. SofT Again. Completely enveloped in it. Swamped. I can’t take the up and down anymore – I say I can’t but I know I have to, and that’s even worse. Each down makes me h*te myself more. I’ve never been so horrible – I’ve never been in so bad a spot – worse and worse and worse, even when lifted momentarily. I h*te myself worse than my own worst enemy. Okay, I know the standard answer: it’s safer to h*te myself. So? Does that make me feel any better? It just makes me feel more stupid, to even *know* better and to succumb. Just makes me feel morally lazy for allowing myself to be overcome. Ick. Can’t write anymore because where it goes from here is sewer-worthy. Beauty.

Response:

You have no reason to be sorry for seeming to include me in the "us." Me was in the "us" too, even if it wasn’t in your "us." Yes, I would like to talk more about things – the two things you mentioned my having written about at the end – about my son’s b’day (and opportunity for failure) and about the food stuff (also opportunity for failure, incidentally). But, like you, I haven’t the energy quite now, so perhaps in the nearish future –  but things are going to get b’day busy, so it might even end up being after the b’day (which is the 12th). On the other hand – on the 11th, I’ll be on my own, because my son doesn’t want "M*m" tagging along to a trip to a huge, exciting amusement park, when he is just turning twelve and trying to "hang out" casually w/a new thirteen year old friend, w/out seeming to be "supervised" too obviously by "D*d" – who will "blend in" better than I will, I guess, and – very importantly – can be counted on not to get lost on the way there or back. Rest up. We’ll talk later. Beauty. – Hide quoted text — Show quoted text – Hello Beauty, If you want to talk some more, I’m still listening and I will be online for a bit longer and then I’d better get some sleep as I sorely need some as well.  Pls know that I was mostly laughing at myself for having taken years to cultivate a relationship with you that I like and am comfortable with, feels nice and well earned-deserved.   Sorry for the wording, didn’t mean to include-insinuate you in the "us" but rather "us" as in me and others in TN.  Later, after I’ve gotten some sleep, I’ll read here some more, I hope you’ll post more.  I got off of a 15.5 hour shift 6.5 hours ago and I’m totally wiped out.  Take care. SofT Let me keep this short and simple: Bingo. You’ve hit on all the right spots, and, no I hadn’t heard the adage, but in this case it is probably spot-on – and I’ll look for it in other cases as well. Heh. Only took years. Heh. Beauty. Hello Beauty, Yer welcome for the caring.  :O) *smiling*   And, thank you for your responses … see, I told you I would be listening *g*.   And yes, I too appreciate the direction, place and changes in our relationship and it only took us years to get here too!  Oh how I love taking lengthy journeys for short paths.   <vbg And hey, congrats on the weigh loss you’ve achieved so far! I know how hard it is to deal with food-weight issues … kinda been a focus for me these past two years and I’ve made great strides so I really do hope you continued successes.  :O) *clearing throat*  As to the med changes.  It may be possible that the changes you’re making might bring on some depression, and you might want to check with your Dr as to what you might expect to experience during these changes and report to hir what you are presently experiencing.  I’m not clear on the half-life to what you’ve been taking nor the specific side-effects associated with withdrawal that one might tend to see, so might be a good idea to do a check-in.  You can also call a pharmacist as they tend to know a whole lot more about stuff like this. As to what Jill suggested regarding a possible dietary deficiency and supplements to address leg spasms … low levels of certain minerals as electrolytes (magnesium, potassium, calcium and sodium) has been linked to leg spasms.  And here are some possible remedies you might employ to see if they help … Drink more water and consider regular supplements as calcium (esp calcium), magnesium, potassium and sodium but only if your sodium intake is low or if you sweat a lot.   Other things you can do is try stretching your calves regularly during the day and at night. You can often prevent night cramps by exhausting the stretch reflex before you go to bed by stretching your calf muscles with wall pushups and applying a heating pad for 10 minutes before going to bed.  Also, keeping blankets loose at the foot of the bed may help prevent unnatural positioning of your feet and toes which may also cause night time cramping. Switching focus … Ever hear the adage that what a person tends to say last may be the most telling?  Well, this came up for me as I finished reading both of your posts.  I found myself wondering if the last things you said in your posts are the most telling to what has recently happened that may have triggered this recent bout of self-hatred.   I don’t know if it is or not, so I’ll paste and snip the parts to which this came up for me and perhaps you might reread them to see if perhaps the bulk of the ‘energy source’ to this bout of self-hatred might lie more here than in the recent medication changes. (1st quote) Oh, yeah: and my son’s b’day is Sunday. He will be 12. I used not to trigger for holidays, but now I do, because I feel them to be opportunities for failure.  Now that I am writing this – I can tell myself not to be ridiculous – I can make this an opportunity for success. (After all – I have lots under my control.) (2nd quote) How on earch could I forget one of the most important factors in how I am feeling right now? My whole psyche is struggling around re-arranging a habitual coping mechanism: comfort eating. [snip] It was the getting started that was hard. But – it’s bound to affect my feelings a lot, at least at first, isn’t it? Wondering if perhaps exploring the feelings around the "opportunities for failure" and food as it pertains to weight gain, weight loss, depression and self-hatred?  Just a thought. SofT

Response:

Beauty, i wish i could have been able to express myself as well as jt(socrates n blue) here. altho this is still triggery (for me at least) im moved by the words, and wish i could somehow have got a similar message to you with the same point. thankfuly jts crew was able to do a much better job n i thank them for being able to say more of the right thing than i am for you. its not your fault.  your special and i believe you have the strength n power to work thru this. nuff said. Celeste.

– Hide quoted text — Show quoted text – you are not the ichor inside you. you are the innocent human being, forced to suffer needlessly. think of a b*by, newborn into the world – soft and wriggling, mewling adorably…innocent. that innocence was you, and still is you.  that sweet, pure innocence was sullied by rotten, stinking filth. the first handful of dirt thrown onto a gleaming c*sket feels profane, wrong.  the soul shrieks at the sight, gasps in horror that someone would so deliberately dirty something so pristine. it wasn’t dirt thrown onto your pristine innocence, Beauty.  it was worse. that a soul as beautiful as yours was profaned so horribly is a crime without measure, beyond any comprehension. grieve with me, please, that the world suffered such an offense – the loss of the joy that should have emanated from you all of your life to this point, reaching out to others and aiding them to be joyous, too. rejoice with me, please, that you still live, that hope is real, that you *DO* reach out to others and share what you have made of yourself: a woman of strength and courage, dedication and compassion.  You may not see this, but I do.  You teach.  You mother.  You comfort those in need.  You are a living, breathing testament to the truth that hope *IS* real. for as much as the world needs joy, perhaps it needs hope more.  Without it, none of us *could* reach the point of emanating joy radiantly. my goal in life is to increase the level of positives in the world.  it’s a little bit fuzzy, this concept.  but essentially "positives" can be seen to equal "warm fuzzies".  it’s an extrapolation on "leave the world a better place", ya know?  (sorry – blue switched in a bit ago.)  being able to smile at someone, and have that smile brighten their day lessens the negatives in the world and increases the positives, you know? because there are so many wounded souls in the world, people *need* to know that it’s *not* foolish to have hope.  for every wounded soul that heals, that’s one more person able to increase the joy-quotient in the world, you see?  so helping one person reach the point of being a joyous presence in the world is worth all of the joy-plusses that *that* person will be able to achieve.  see the math? see, i sing, and bring a sense of wonder to the people who hear me – most of the time.  ok, sometimes.  ;)  some ppl just want me to sh*t up.  :)  and sometimes i’m not on my game, as it were.  but i work at expressing joy when i sing, so others can feel it with me.  i work at singing from the solid foundation of hope i feel inside of me, so that others might be able to hear me and say "the world just can’t be that bad a place if someone can sing like that" <sheesh, what an ego… ;) .  and i work with people, to whatever extent i’m able, trying to help them however i can. in real life, i’m a fat, unemployed woman with a *LOT* of mental problems and not a lot of prospects for a career or whatever.  but that’s only what some people might see.  in truth, I’m right on track with my life-goals. :) … it wasn’t your fault, beauty.  you did nothing wrong.  everything that happened after that was a reaction to the original badstuff.  forgive yourself for being human.  that’s not your fault, either.  ;) jt (several of us, most notably Socrates and blue) Again. Completely enveloped in it. Swamped. I can’t take the up and down anymore – I say I can’t but I know I have to, and that’s even worse. Each down makes me h*te myself more. I’ve never been so horrible – I’ve never been in so bad a spot – worse and worse and worse, even when lifted momentarily. I h*te myself worse than my own worst enemy. Okay, I know the standard answer: it’s safer to h*te myself. So? Does that make me feel any better? It just makes me feel more stupid, to even *know* better and to succumb. Just makes me feel morally lazy for allowing myself to be overcome. Ick. Can’t write anymore because where it goes from here is sewer-worthy. Beauty.

Response:

Thanks. As you will note, as much great effort went into jt’s response, I remain unconvinced. I’m a tough case. Thus, I am sooooo glad that you are moved by jt’s words, and hope that maybe they can do you some good, if that’s the kind of good you need – sometimes words sink in for me and sometimes I’m just so coated in my own duck-grease that I float on my own lake of melancholy w/out a hope of anything warm getting through (well, I mean, I hear it and believe in the warmth and true belief of the person who said it – but can’t believe that it really applies to me). Best – Beauty. – Hide quoted text — Show quoted text – Beauty, i wish i could have been able to express myself as well as jt(socrates n blue) here. altho this is still triggery (for me at least) im moved by the words, and wish i could somehow have got a similar message to you with the same point. thankfuly jts crew was able to do a much better job n i thank them for being able to say more of the right thing than i am for you. its not your fault.  your special and i believe you have the strength n power to work thru this. nuff said. Celeste. you are not the ichor inside you. you are the innocent human being, forced to suffer needlessly. think of a b*by, newborn into the world – soft and wriggling, mewling adorably…innocent. that innocence was you, and still is you.  that sweet, pure innocence was sullied by rotten, stinking filth. the first handful of dirt thrown onto a gleaming c*sket feels profane, wrong.  the soul shrieks at the sight, gasps in horror that someone would so deliberately dirty something so pristine. it wasn’t dirt thrown onto your pristine innocence, Beauty.  it was worse. that a soul as beautiful as yours was profaned so horribly is a crime without measure, beyond any comprehension. grieve with me, please, that the world suffered such an offense – the loss of the joy that should have emanated from you all of your life to this point, reaching out to others and aiding them to be joyous, too. rejoice with me, please, that you still live, that hope is real, that you *DO* reach out to others and share what you have made of yourself: a woman of strength and courage, dedication and compassion.  You may not see this, but I do.  You teach.  You mother.  You comfort those in need.  You are a living, breathing testament to the truth that hope *IS* real. for as much as the world needs joy, perhaps it needs hope more.  Without it, none of us *could* reach the point of emanating joy radiantly. my goal in life is to increase the level of positives in the world.  it’s a little bit fuzzy, this concept.  but essentially "positives" can be seen to equal "warm fuzzies".  it’s an extrapolation on "leave the world a better place", ya know?  (sorry – blue switched in a bit ago.)  being able to smile at someone, and have that smile brighten their day lessens the negatives in the world and increases the positives, you know? because there are so many wounded souls in the world, people *need* to know that it’s *not* foolish to have hope.  for every wounded soul that heals, that’s one more person able to increase the joy-quotient in the world, you see?  so helping one person reach the point of being a joyous presence in the world is worth all of the joy-plusses that *that* person will be able to achieve.  see the math? see, i sing, and bring a sense of wonder to the people who hear me – most of the time.  ok, sometimes.  ;)  some ppl just want me to sh*t up.  :)  and sometimes i’m not on my game, as it were.  but i work at expressing joy when i sing, so others can feel it with me.  i work at singing from the solid foundation of hope i feel inside of me, so that others might be able to hear me and say "the world just can’t be that bad a place if someone can sing like that" <sheesh, what an ego… ;) .  and i work with people, to whatever extent i’m able, trying to help them however i can. in real life, i’m a fat, unemployed woman with a *LOT* of mental problems and not a lot of prospects for a career or whatever.  but that’s only what some people might see.  in truth, I’m right on track with my life-goals. :) … it wasn’t your fault, beauty.  you did nothing wrong.  everything that happened after that was a reaction to the original badstuff.  forgive yourself for being human.  that’s not your fault, either.  ;) jt (several of us, most notably Socrates and blue) Again. Completely enveloped in it. Swamped. I can’t take the up and down anymore – I say I can’t but I know I have to, and that’s even worse. Each down makes me h*te myself more. I’ve never been so horrible – I’ve never been in so bad a spot – worse and worse and worse, even when lifted momentarily. I h*te myself worse than my own worst enemy. Okay, I know the standard answer: it’s safer to h*te myself. So? Does that make me feel any better? It just makes me feel more stupid, to even *know* better and to succumb. Just makes me feel morally lazy for allowing myself to be overcome. Ick. Can’t write anymore because where it goes from here is sewer-worthy. Beauty.

Response:

hey – that duck-grease keeps ya floatin, at least. that’s something.  ;) jt

– Hide quoted text — Show quoted text – Thanks. As you will note, as much great effort went into jt’s response, I remain unconvinced. I’m a tough case. Thus, I am sooooo glad that you are moved by jt’s words, and hope that maybe they can do you some good, if that’s the kind of good you need – sometimes words sink in for me and sometimes I’m just so coated in my own duck-grease that I float on my own lake of melancholy w/out a hope of anything warm getting through (well, I mean, I hear it and believe in the warmth and true belief of the person who said it – but can’t believe that it really applies to me). Best – Beauty. Beauty, i wish i could have been able to express myself as well as jt(socrates n blue) here. altho this is still triggery (for me at least) im moved by the words, and wish i could somehow have got a similar message to you with the same

point. thankfuly jts crew was able to do a much better job n i thank them for

being able to say more – Hide quoted text — Show quoted text – of the right thing than i am for you. its not your fault.  your special and i believe you have the strength n power to work thru this. nuff said. Celeste. you are not the ichor inside you. you are the innocent human being, forced to suffer needlessly. think of a b*by, newborn into the world – soft and wriggling, mewling adorably…innocent. that innocence was you, and still is you.  that sweet, pure innocence was sullied by rotten, stinking filth. the first handful of dirt thrown onto a gleaming c*sket feels profane, wrong.  the soul shrieks at the sight, gasps in horror that someone would so deliberately dirty something so pristine. it wasn’t dirt thrown onto your pristine innocence,

Beauty.  it was worse. – Hide quoted text — Show quoted text – that a soul as beautiful as yours was profaned so horribly is a crime without measure, beyond any comprehension. grieve with me, please, that the world suffered such an offense – the loss of the joy that should have emanated from you all of your life to this point, reaching out to others and aiding them to be joyous, too. rejoice with me, please, that you still live, that hope is real, that you *DO* reach out to others and share what you have made of yourself: a woman of strength and courage, dedication and compassion.  You may not see this, but I do.  You teach.  You mother.  You comfort those in need.  You are a living, breathing testament to the truth that hope *IS* real. for as much as the world needs joy, perhaps it needs hope more.  Without it, none of us *could* reach the point of emanating joy radiantly. my goal in life is to increase the level of positives in the world.  it’s a little bit fuzzy, this concept.  but essentially

"positives" can be seen to equal "warm fuzzies".  it’s an extrapolation on "leave the world a better place", ya know?  (sorry – blue switched in a bit ago.) being able to smile at someone, and have that smile brighten their day

lessens the negatives – Hide quoted text — Show quoted text – in the world and increases the positives, you know? because there are so many wounded souls in the world, people *need* to know that it’s *not* foolish to have hope.  for every wounded soul that heals, that’s one more person able to increase the joy-quotient in the world, you see?  so helping one person reach the point of being a joyous presence in the world is worth all of the joy-plusses that *that* person will be able to achieve.  see the math? see, i sing, and bring a sense of wonder to the people who hear me – most of the time.  ok, sometimes.  ;)  some ppl just want me to sh*t up.  :)  and sometimes i’m not on my game, as it were.  but i work at expressing joy when i sing, so others can feel it with me.  i work at

singing from the solid foundation of hope i feel inside of me, so that others might be able to hear me and say "the world just can’t be that bad a place if someone can sing like that" <sheesh, what an ego… ;) .  and i work with people, to whatever extent i’m able, trying to help them however i can. in real life, i’m a fat, unemployed woman with a *LOT* of mental problems and not a lot of prospects for a career or whatever.

but that’s only what – Hide quoted text — Show quoted text – some people might see.  in truth, I’m right on track with my life-goals. :) … it wasn’t your fault, beauty.  you did nothing wrong. everything that happened after that was a reaction to the original badstuff.  forgive yourself for being human.  that’s not your fault, either.  ;) jt (several of us, most notably Socrates and blue) Again. Completely enveloped in it. Swamped. I can’t

take the up and down anymore – I say I can’t but I know I have to, and that’s even worse. Each down makes me h*te myself more. I’ve never been so horrible – I’ve never been in so bad a spot – worse and worse and worse, even when lifted momentarily. I h*te myself worse than my own

worst enemy. Okay, I – Hide quoted text — Show quoted text – know the standard answer: it’s safer to h*te myself. So? Does that make me feel any better? It just makes me feel more stupid, to even *know* better and to succumb. Just makes me feel morally lazy for allowing myself to be overcome. Ick. Can’t write anymore because where it goes from here is sewer-worthy. Beauty.

Response:

and don’t sweat it, beauts.  i know ya l*ve me.  :) jt

– Hide quoted text — Show quoted text – Thanks. As you will note, as much great effort went into jt’s response, I remain unconvinced. I’m a tough case. Thus, I am sooooo glad that you are moved by jt’s words, and hope that maybe they can do you some good, if that’s the kind of good you need – sometimes words sink in for me and sometimes I’m just so coated in my own duck-grease that I float on my own lake of melancholy w/out a hope of anything warm getting through (well, I mean, I hear it and believe in the warmth and true belief of the person who said it – but can’t believe that it really applies to me). Best – Beauty. Beauty, i wish i could have been able to express myself as well as jt(socrates n blue) here. altho this is still triggery (for me at least) im moved by the words, and wish i could somehow have got a similar message to you with the same

point. thankfuly jts crew was able to do a much better job n i thank them for

being able to say more – Hide quoted text — Show quoted text – of the right thing than i am for you. its not your fault.  your special and i believe you have the strength n power to work thru this. nuff said. Celeste. you are not the ichor inside you. you are the innocent human being, forced to suffer needlessly. think of a b*by, newborn into the world – soft and wriggling, mewling adorably…innocent. that innocence was you, and still is you.  that sweet, pure innocence was sullied by rotten, stinking filth. the first handful of dirt thrown onto a gleaming c*sket feels profane, wrong.  the soul shrieks at the sight, gasps in horror that someone would so deliberately dirty something so pristine. it wasn’t dirt thrown onto your pristine innocence,

Beauty.  it was worse. – Hide quoted text — Show quoted text – that a soul as beautiful as yours was profaned so horribly is a crime without measure, beyond any comprehension. grieve with me, please, that the world suffered such an offense – the loss of the joy that should have emanated from you all of your life to this point, reaching out to others and aiding them to be joyous, too. rejoice with me, please, that you still live, that hope is real, that you *DO* reach out to others and share what you have made of yourself: a woman of strength and courage, dedication and compassion.  You may not see this, but I do.  You teach.  You mother.  You comfort those in need.  You are a living, breathing testament to the truth that hope *IS* real. for as much as the world needs joy, perhaps it needs hope more.  Without it, none of us *could* reach the point of emanating joy radiantly. my goal in life is to increase the level of positives in the world.  it’s a little bit fuzzy, this concept.  but essentially

"positives" can be seen to equal "warm fuzzies".  it’s an extrapolation on "leave the world a better place", ya know?  (sorry – blue switched in a bit ago.) being able to smile at someone, and have that smile brighten their day

lessens the negatives – Hide quoted text — Show quoted text – in the world and increases the positives, you know? because there are so many wounded souls in the world, people *need* to know that it’s *not* foolish to have hope.  for every wounded soul that heals, that’s one more person able to increase the joy-quotient in the world, you see?  so helping one person reach the point of being a joyous presence in the world is worth all of the joy-plusses that *that* person will be able to achieve.  see the math? see, i sing, and bring a sense of wonder to the people who hear me – most of the time.  ok, sometimes.  ;)  some ppl just want me to sh*t up.  :)  and sometimes i’m not on my game, as it were.  but i work at expressing joy when i sing, so others can feel it with me.  i work at

singing from the solid foundation of hope i feel inside of me, so that others might be able to hear me and say "the world just can’t be that bad a place if someone can sing like that" <sheesh, what an ego… ;) .  and i work with people, to whatever extent i’m able, trying to help them however i can. in real life, i’m a fat, unemployed woman with a *LOT* of mental problems and not a lot of prospects for a career or whatever.

but that’s only what – Hide quoted text — Show quoted text – some people might see.  in truth, I’m right on track with my life-goals. :) … it wasn’t your fault, beauty.  you did nothing wrong. everything that happened after that was a reaction to the original badstuff.  forgive yourself for being human.  that’s not your fault, either.  ;) jt (several of us, most notably Socrates and blue) Again. Completely enveloped in it. Swamped. I can’t

take the up and down anymore – I say I can’t but I know I have to, and that’s even worse. Each down makes me h*te myself more. I’ve never been so horrible – I’ve never been in so bad a spot – worse and worse and worse, even when lifted momentarily. I h*te myself worse than my own

worst enemy. Okay, I – Hide quoted text — Show quoted text – know the standard answer: it’s safer to h*te myself. So? Does that make me feel any better? It just makes me feel more stupid, to even *know* better and to succumb. Just makes me feel morally lazy for allowing myself to be overcome. Ick. Can’t write anymore because where it goes from here is sewer-worthy. Beauty.

Response:

– well – okay – I sweat like a horse at the slightest provocation.  So what does that tell you about me, except that  -   hmmm – maybe I prefer and am closer kin to the noble horse than the sniffy lady???? Oh I am in rare form today. As in – underdone. Beauty. – Hide quoted text — Show quoted text – and don’t sweat it, beauts.  i know ya l*ve me.  :) jt Thanks. As you will note, as much great effort went into jt’s response, I remain unconvinced. I’m a tough case. Thus, I am sooooo glad that you are moved by jt’s words, and hope that maybe they can do you some good, if that’s the kind of good you need – sometimes words sink in for me and sometimes I’m just so coated in my own duck-grease that I float on my own lake of melancholy w/out a hope of anything warm getting through (well, I mean, I hear it and believe in the warmth and true belief of the person who said it – but can’t believe that it really applies to me). Best – Beauty. Beauty, i wish i could have been able to express myself as well as jt(socrates n blue) here. altho this is still triggery (for me at least) im moved by the words, and wish i could somehow have got a similar message to you with the same point. thankfuly jts crew was able to do a much better job n i thank them for being able to say more of the right thing than i am for you. its not your fault.  your special and i believe you have the strength n power to work thru this. nuff said. Celeste. you are not the ichor inside you. you are the innocent human being, forced to suffer needlessly. think of a b*by, newborn into the world – soft and wriggling, mewling adorably…innocent. that innocence was you, and still is you.  that sweet, pure innocence was sullied by rotten, stinking filth. the first handful of dirt thrown onto a gleaming c*sket feels profane, wrong.  the soul shrieks at the sight, gasps in horror that someone would so deliberately dirty something so pristine. it wasn’t dirt thrown onto your pristine innocence, Beauty.  it was worse. that a soul as beautiful as yours was profaned so horribly is a crime without measure, beyond any comprehension. grieve with me, please, that the world suffered such an offense – the loss of the joy that should have emanated from you all of your life to this point, reaching out to others and aiding them to be joyous, too. rejoice with me, please, that you still live, that hope is real, that you *DO* reach out to others and share what you have made of yourself: a woman of strength and courage, dedication and compassion.  You may not see this, but I do.  You teach.  You mother.  You comfort those in need.  You are a living, breathing testament to the truth that hope *IS* real. for as much as the world needs joy, perhaps it needs hope more.  Without it, none of us *could* reach the point of emanating joy radiantly. my goal in life is to increase the level of positives in the world.  it’s a little bit fuzzy, this concept.  but essentially "positives" can be seen to equal "warm fuzzies".  it’s an extrapolation on "leave the world a better place", ya know?  (sorry – blue switched in a bit ago.) being able to smile at someone, and have that smile brighten their day lessens the negatives in the world and increases the positives, you know? because there are so many wounded souls in the world, people *need* to know that it’s *not* foolish to have hope.  for every wounded soul that heals, that’s one more person able to increase the joy-quotient in the world, you see?  so helping one person reach the point of being a joyous presence in the world is worth all of the joy-plusses that *that* person will be able to achieve.  see the math? see, i sing, and bring a sense of wonder to the people who hear me – most of the time.  ok, sometimes.  ;)  some ppl just want me to sh*t up.  :)  and sometimes i’m not on my game, as it were.  but i work at expressing joy when i sing, so others can feel it with me.  i work at singing from the solid foundation of hope i feel inside of me, so that others might be able to hear me and say "the world just can’t be that bad a place if someone can sing like that" <sheesh, what an ego… ;) .  and i work with people, to whatever extent i’m able, trying to help them however i can. in real life, i’m a fat, unemployed woman with a *LOT* of mental problems and not a lot of prospects for a career or whatever. but that’s only what some people might see.  in truth, I’m right on track with my life-goals. :) … it wasn’t your fault, beauty.  you did nothing wrong. everything that happened after that was a reaction to the original badstuff.  forgive yourself for being human.  that’s not your fault, either.  ;) jt (several of us, most notably Socrates and blue) Again. Completely enveloped in it. Swamped. I can’t take the up and down anymore – I say I can’t but I know I have to, and that’s even worse. Each down makes me h*te myself more. I’ve never been so horrible – I’ve never been in so bad a spot – worse and worse and worse, even when lifted momentarily. I h*te myself worse than my own worst enemy. Okay, I know the standard answer: it’s safer to h*te myself. So? Does that make me feel any better? It just makes me feel more stupid, to even *know* better and to succumb. Just makes me feel morally lazy for allowing myself to be overcome. Ick. Can’t write anymore because where it goes from here is sewer-worthy. Beauty.

Response:

sometimes I wonder; might be better down under (don’t take that too seriously – it’s just a toss-off) Beauty – Hide quoted text — Show quoted text – hey – that duck-grease keeps ya floatin, at least. that’s something.  ;) jt Thanks. As you will note, as much great effort went into jt’s response, I remain unconvinced. I’m a tough case. Thus, I am sooooo glad that you are moved by jt’s words, and hope that maybe they can do you some good, if that’s the kind of good you need – sometimes words sink in for me and sometimes I’m just so coated in my own duck-grease that I float on my own lake of melancholy w/out a hope of anything warm getting through (well, I mean, I hear it and believe in the warmth and true belief of the person who said it – but can’t believe that it really applies to me). Best – Beauty. Beauty, i wish i could have been able to express myself as well as jt(socrates n blue) here. altho this is still triggery (for me at least) im moved by the words, and wish i could somehow have got a similar message to you with the same point. thankfuly jts crew was able to do a much better job n i thank them for being able to say more of the right thing than i am for you. its not your fault.  your special and i believe you have the strength n power to work thru this. nuff said. Celeste. you are not the ichor inside you. you are the innocent human being, forced to suffer needlessly. think of a b*by, newborn into the world – soft and wriggling, mewling adorably…innocent. that innocence was you, and still is you.  that sweet, pure innocence was sullied by rotten, stinking filth. the first handful of dirt thrown onto a gleaming c*sket feels profane, wrong.  the soul shrieks at the sight, gasps in horror that someone would so deliberately dirty something so pristine. it wasn’t dirt thrown onto your pristine innocence, Beauty.  it was worse. that a soul as beautiful as yours was profaned so horribly is a crime without measure, beyond any comprehension. grieve with me, please, that the world suffered such an offense – the loss of the joy that should have emanated from you all of your life to this point, reaching out to others and aiding them to be joyous, too. rejoice with me, please, that you still live, that hope is real, that you *DO* reach out to others and share what you have made of yourself: a woman of strength and courage, dedication and compassion.  You may not see this, but I do.  You teach.  You mother.  You comfort those in need.  You are a living, breathing testament to the truth that hope *IS* real. for as much as the world needs joy, perhaps it needs hope more.  Without it, none of us *could* reach the point of emanating joy radiantly. my goal in life is to increase the level of positives in the world.  it’s a little bit fuzzy, this concept.  but essentially "positives" can be seen to equal "warm fuzzies".  it’s an extrapolation on "leave the world a better place", ya know?  (sorry – blue switched in a bit ago.) being able to smile at someone, and have that smile brighten their day lessens the negatives in the world and increases the positives, you know? because there are so many wounded souls in the world, people *need* to know that it’s *not* foolish to have hope.  for every wounded soul that heals, that’s one more person able to increase the joy-quotient in the world, you see?  so helping one person reach the point of being a joyous presence in the world is worth all of the joy-plusses that *that* person will be able to achieve.  see the math? see, i sing, and bring a sense of wonder to the people who hear me – most of the time.  ok, sometimes.  ;)  some ppl just want me to sh*t up.  :)  and sometimes i’m not on my game, as it were.  but i work at expressing joy when i sing, so others can feel it with me.  i work at singing from the solid foundation of hope i feel inside of me, so that others might be able to hear me and say "the world just can’t be that bad a place if someone can sing like that" <sheesh, what an ego… ;) .  and i work with people, to whatever extent i’m able, trying to help them however i can. in real life, i’m a fat, unemployed woman with a *LOT* of mental problems and not a lot of prospects for a career or whatever. but that’s only what some people might see.  in truth, I’m right on track with my life-goals. :) … it wasn’t your fault, beauty.  you did nothing wrong. everything that happened after that was a reaction to the original badstuff.  forgive yourself for being human.  that’s not your fault, either.  ;) jt (several of us, most notably Socrates and blue) Again. Completely enveloped in it. Swamped. I can’t take the up and down anymore – I say I can’t but I know I have to, and that’s even worse. Each down makes me h*te myself more. I’ve never been so horrible – I’ve never been in so bad a spot – worse and worse and worse, even when lifted momentarily. I h*te myself worse than my own worst enemy. Okay, I know the standard answer: it’s safer to h*te myself. So? Does that make me feel any better? It just makes me feel more stupid, to even *know* better and to succumb. Just makes me feel morally lazy for allowing myself to be overcome. Ick. Can’t write anymore because where it goes from here is sewer-worthy. Beauty.

Response:

::sings::  she’s come undone…she climbed a mountain that was much too high…and when she found out she couldn’t fly…it was too laaayaayaaayeeyaayeeyate! ;) wait – i thought we agreed you were a donkey??  *scratches head in confusion*  :) jt – Hide quoted text — Show quoted text – – well – okay – I sweat like a horse at the slightest provocation.  So what does that tell you about me, except that  -   hmmm – maybe I prefer and am closer kin to the noble horse than the sniffy lady???? Oh I am in rare form today. As in – underdone. Beauty. and don’t sweat it, beauts.  i know ya l*ve me.  :) jt

Response:

Thanks. No really. that’s always been one of my favorite, favorite ooky-identification songs, but I never even listened to the words except for "she’s come undone" And – there was a poem I wrote when I was 13 or so about a Princess Dove, other poems about birds – flying too high (slightly, only slightly different) – Thank you. Nope. Not tonight a donkey. A bird. Good night, tucking head under downy wing – at some point anyway – But wow – where word associations do get us, eh? Beauty. – Hide quoted text — Show quoted text – ::sings::  she’s come undone…she climbed a mountain that was much too high…and when she found out she couldn’t fly…it was too laaayaayaaayeeyaayeeyate! ;) wait – i thought we agreed you were a donkey??  *scratches head in confusion*  :) jt – well – okay – I sweat like a horse at the slightest provocation.  So what does that tell you about me, except that  -   hmmm – maybe I prefer and am closer kin to the noble horse than the sniffy lady???? Oh I am in rare form today. As in – underdone. Beauty. and don’t sweat it, beauts.  i know ya l*ve me.  :) jt

Response:

Apnea test can be wrong !!!!!

Question:

"Scotsman" <d…@d.com> wrote in news:sZpdb.12$TP3.4@news- binary.blueyonder.co.uk: > At the begining of this year I was diagnosed with OSA, I had 52 events > per hour.

An apneoa event almost every second? When did you find time to breath? I think you may have misunderstood the initial diagnosis. > Based on this information I then stopped using CPAP and demanded another > sleep test. (result of second sleep test was 4 apneas per hour) now it > looks like I’m cured but I’m still tired every day.

4 events per hour still means you are having your sleep disturbed every 15 minutes. I would say that this is not "cured". For comparison, I have sleep apneoa, and, untreated, I generally have an event every 40 minutes or so – a third of the events you are suffering from. Chris

Response:

> > At the begining of this year I was diagnosed with OSA, I had 52 events > > per hour. > An apneoa event almost every second? When did you find time to breath? I > think you may have misunderstood the initial diagnosis.

nope, that would be 52 events per hour as the post said…..not per second…as you seem to have somehow read? There are people out there with much greater RDIs than 52 per hour, some people have more than 100 If you’re personally only having one event every 40 minutes,  you seeem to have very mild apnea… — Beth in Australia (I am not a medical professional and anything stated in my posts is my opinion only unless specified otherwise) =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

"Tal" <sleepbethdisord…@softhome.net> wrote in news:bloucs$en4p8$1@ID-148111.news.uni-berlin.de: > > > At the begining of this year I was diagnosed with OSA, I had 52 > > > events per hour. > > An apneoa event almost every second? When did you find time to > > breath? I think you may have misunderstood the initial diagnosis. > nope, that would be 52 events per hour as the post said…..not per > second…as you seem to have somehow read?

Apologies. Couldn’t have been too awake when I posted that. > If you’re personally only having one event every 40 minutes,  you seeem > to have very mild apnea…

In comparison to many, that is true, and I am aware of that. Nevertheless, it was sufficient to wreck my life for several years before I was diagnosed, and I would still say that having four events an hour is far from being cured. Chris

Response:

> > If you’re personally only having one event every 40 minutes,  you seeem > > to have very mild apnea… > In comparison to many, that is true, and I am aware of that. > Nevertheless, it was sufficient to wreck my life for several years before I > was diagnosed, and I would still say that having four events an hour is far > from being cured.

you’re right, any regular disturbance to our sleep is going to affect our lives. 4 events per hour isn’t "cured" for sure…..but it does put someone within what’s called the "normal" range — Beth in Australia (I am not a medical professional and anything stated in my posts is my opinion only unless specified otherwise) =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

In article <Xns940B93B56F081spin…@130.133.1.4>, Chris wrote: > "Tal" <sleepbethdisord…@softhome.net> wrote in > news:bloucs$en4p8$1@ID-148111.news.uni-berlin.de: >> If you’re personally only having one event every 40 minutes,  you seeem >> to have very mild apnea… > In comparison to many, that is true, and I am aware of that. > Nevertheless, it was sufficient to wreck my life for several years before I > was diagnosed, and I would still say that having four events an hour is far > from being cured. > Chris

From what I understand having an Apnea Index of 5 or less per hour is not any concern.  For an AI of 6-20 (?) you need a dental appliance.   For greater than 20 per hour you need CPAP treatment.

Response:

On 5 Oct 2003 10:27:33 GMT, Chris wrote: >"Scotsman" <d…@d.com> wrote: >> At the begining of this year I was diagnosed with OSA, I had 52 events >> per hour. >An apneoa event almost every second?

That’s "almost every minute." I had an RDI of 87 and there have been people who have reported RDIs in excess of 100. >When did you find time to breath?

3600 seconds in an hour less 520 seconds in apnea (10 seconds per event) leaves quite a bit of time to breathe. Even 20 seconds per event leaves quite a bit of time to breathe. — October is National Breast Cancer Awareness Month: http://www.nbcam.org/

Response:

> From what I understand having an Apnea Index of 5 or less per hour > is not any concern.  For an AI of 6-20 (?) you need a dental appliance. > For greater than 20 per hour you need CPAP treatment.

I’m afraid your understanding isn’t very correct "For an AI of 6-20 (?) you need a dental appliance" ???  where’d you get your info?  there are plenty people in this category who do NOT need a dental appliance, rather, they need CPAP to be effectively treated.  Dental applicances, for a variety of reasons, don’t work for a lot of people. ……and for you to say that anything below 6 is nothing….. you’ve not been reading here very well, we’ve had a number of people with an AHI of under 10 who’ve benefitted greatly from treatment – if less than 6 is nothing… try telling THEM that — Beth in Australia (I am not a medical professional and anything stated in my posts is my opinion only unless specified otherwise) =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

- Hide quoted text — Show quoted text ->.  For an AI of 6-20 (?) you need a dental appliance. > > For greater than 20 per hour you need CPAP treatment. > I’m afraid your understanding isn’t very correct > "For an AI of 6-20 (?) you need a dental appliance" ???  where’d you get > your info?  there are plenty people in this category who do NOT need a > dental appliance, rather, they need CPAP to be effectively treated. Dental > applicances, for a variety of reasons, don’t work for a lot of people. > ……and for you to say that anything below 6 is nothing….. you’ve not > been reading here very well, we’ve had a number of people with an AHI of > under 10 who’ve benefitted greatly from treatment – if less than 6 is > nothing… try telling THEM that

What you mean by Apnoea Index. Is this the number of times per hour breathing stops for 10 seconds found with a finger probe. My results are 26 hour and OSA is completely eliminated with CPAP and I don’t need a dental appliance. The consultant I saw said that anything above 5 was a concern and would recommend CPAP above 5 to 10 which is a bit vague. Bear in mind the sleep unit I go to has only just opened and all the doctors and nurses are very new to this. Martin

Response:

"Tal" <sleepbethdisord…@softhome.net> wrote in news:blp8ss$eq54g$1@ID-148111.news.uni-berlin.de: > > > If you’re personally only having one event every 40 minutes,  you > > > seeem to have very mild apnea… > > In comparison to many, that is true, and I am aware of that. > > Nevertheless, it was sufficient to wreck my life for several years > > before I was diagnosed, and I would still say that having four events > > an hour is  far from being cured. > you’re right, any regular disturbance to our sleep is going to affect > our lives. > 4 events per hour isn’t "cured" for sure…..but it does put someone > within what’s called the "normal" range

Actually, having done a little web browse, I believe my confusion may be down to my using the term "apneoa event" in a different, and probably completely wrong, manner – in my defence, this is only what I had got from my own sleep clinic. What my clinic described to me as an "apneoa event" – of which I was having an average of one every 40 minutes – was an episode that actually had me waking up – usually, sitting up coughing and spluttering, and trying to catch my breath. You can probably appreciate my puzzlement how any incidence of this could be considered "normal" – let alone 4 an hour. Whether this difference in terminology is a UK/US thing, or specific to my clinic, or simply a clinician "dumbing down" to a patient, I don’t know – but I suspect the latter. How many incidences of apneoa I suffered without it being so extreme as to wake me, I do not know. Chris

Response:

> How many incidences of apneoa I suffered without it being so extreme as to > wake me, I do not know.

that’s the kind of info you really SHOULD know….. call your doc’s office or sleep lab and ask for a copy of your sleep study summary.  It’s good to know, and even better to keep on file. — Beth in Australia (I am not a medical professional and anything stated in my posts is my opinion only unless specified otherwise) =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

>From: "Tal" sleepbethdisord…@softhome.net >……and for you to say that anything below 6 is nothing….. you’ve not >been reading here very well,

Some people don’t make it career

Response:

> You see I never had OSA, the test showed that I did. All I had was swollen > sinuses due to rhinitis (caused by allergies no doubt). Now the treatment > for rhinitis is not CPAP, it’s allergy treatment. Swollen sinuses and > congestion are not helped by CPAP.

are you saying it was the swollen sinuses that made your oxygen levels drop or made you stop breathing during your test?  hate to tell you this, but regardless of the cause that’s STILL sleep apnea – sleep apnea is absense of breathing while you sleep…..  just what DID your first test show?  why was it about the results that made them think you had apnea?  as far as i can tell you DID have apnea…..but the cause may have been rhinitis, in which case you’ve had an easy treatment solution……of course that’s IF it’s really sucessfully treated, which you’ll never know unless you have a full sleep study done. > The surgery I had was to cut a hole in my middle inferior turbinate as there > was a physical blockage there, this surgery wasn’t to correct OSA it was to > help me breathe, but after a while my rhinitis flared up again and so I > still could not breathe. The only thing that works for me is allergy sprays > which reduce the swelling and open up the air way. Now CPAP could never do > that.

again, i think you’re a little confussed by what apnea acutally is….. removing obstructions to the airways, even if it’s caused by allergies and swelling, is STILL a way of treating the apnea – as appears in your case – so…..if your allergies were causing you breathing problems at night, your allergies were causing apnea, and the surgery/nasal sprays you had was to help that…whether you realised it or not.  If you read the archives you’ll also notice how some people have found great improvement in allergies since cpap treatment…..i don’t think i’ve every mentioned it here myself, but i used to suffer from really bad heyfever…..but interestingly not since i started wtih cpap. > And so my point is that could other OSA’rs who have rhinitis and have only > gone for a small apnea study really have OSA?

most likely yes, but the CAUSE of that OSA may be allergies…. there’s no denying that, but it’s still apnea and can still be sucessfully treated wtih the appropriate cpap treatment – importantly, using a heated humidifier (at least that’s what i believe has helped in my case) — Beth in Australia (I am not a medical professional and anything stated in my posts is my opinion only unless specified otherwise) =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

- Hide quoted text — Show quoted text -Tal wrote: >>You see I never had OSA, the test showed that I did. All I had was swollen >>sinuses due to rhinitis (caused by allergies no doubt). Now the treatment >>for rhinitis is not CPAP, it’s allergy treatment. Swollen sinuses and >>congestion are not helped by CPAP. > are you saying it was the swollen sinuses that made your oxygen levels drop > or made you stop breathing during your test?  hate to tell you this, but > regardless of the cause that’s STILL sleep apnea – sleep apnea is absense of > breathing while you sleep…..  just what DID your first test show?  why was > it about the results that made them think you had apnea?  as far as i can > tell you DID have apnea…..but the cause may have been rhinitis, in which > case you’ve had an easy treatment solution……of course that’s IF it’s > really sucessfully treated, which you’ll never know unless you have a full > sleep study done. >>The surgery I had was to cut a hole in my middle inferior turbinate as > there >>was a physical blockage there, this surgery wasn’t to correct OSA it was > to >>help me breathe, but after a while my rhinitis flared up again and so I >>still could not breathe. The only thing that works for me is allergy > sprays >>which reduce the swelling and open up the air way. Now CPAP could never do >>that. > again, i think you’re a little confussed by what apnea acutally is….. > removing obstructions to the airways, even if it’s caused by allergies and > swelling, is STILL a way of treating the apnea – as appears in your case – > so…..if your allergies were causing you breathing problems at night, your > allergies were causing apnea, and the surgery/nasal sprays you had was to > help that…whether you realised it or not.  If you read the archives you’ll > also notice how some people have found great improvement in allergies since > cpap treatment…..i don’t think i’ve every mentioned it here myself, but i > used to suffer from really bad heyfever…..but interestingly not since i > started wtih cpap. >>And so my point is that could other OSA’rs who have rhinitis and have only >>gone for a small apnea study really have OSA? > most likely yes, but the CAUSE of that OSA may be allergies…. there’s no > denying that, but it’s still apnea and can still be sucessfully treated wtih > the appropriate cpap treatment – importantly, using a heated humidifier (at > least that’s what i believe has helped in my case)

Seems like a useful thread for the website.

Response:

Greetings from Canada’s National Capitol ; I can identify full with you and your plight.  Why?  Well, listen to this . . . . Dating back to early childhood – I had this nasty habit of falling to sleep at the dinner table.  My parents would ‘cart’ me to bed – now please do not loose sight of this "without" an evening meal.  Of course, this caused me to wake very early; i.e. 3h. AM and very, very hungry.  I am now 55 yrs. of age and still have the ongoing need to drift of to bed (or anywhere quiet) immediately after eating, at night.  By  8h. PM – I am completely ready to collapse.  But, wait there’s more. Five (5) back, I was referred to a sleep lab.  Tests were incomplete due to faulty equipment and no immediate follow-up was sought.  Two (2) years (approx.) ago.,  I was then referred to a different lab and the completed test revealed Apnea.  I got the machine and following a short adjustment period did use it for about one (1) year.  To complicate matters, I got this sinus condition plus a case of seasonal allergy(ies) and a deviated septum, to boot.  Sad, but true. Now, picture this, please.  I saw these Nasal Strips for nasal congestion relief at the drug store.  It comes in a box of ten (10) and states ‘ Reduces snoring ‘ along with ‘Cold & Allergy Relief’.  Bottom line is I still have my CPAP plugged in and ready to go – but never use it now.  Why? The sleep specialist (at my last visit) who initially prescribed it referred me to an ENT doc – who, in turn, said I did not need a ‘Scotsman’ type operation.  Now, if I don’t collapse – watching TV, etc. I use an over-the-counter allergy spray, apply a Breathe Right@ nasal strip and ‘volia’! Oh, I still wake up too, too early most mornings – however I don’t have the puffy eyes from wearing a mask and sleep enough to survive the daylight hours.  I now know everyone sleeps differently and some techniques work better then others.  "Good night – good day"!! "Scotsman" <d…@d.com> wrote in message

news:sZpdb.12$TP3.4@news-binary.blueyonder.co.uk… – Hide quoted text — Show quoted text -> Hi folks, > At the begining of this year I was diagnosed with OSA, I had 52 events per > hour which was found by the basic apnea test (snore and breath sensors,oxi > meter, chest sensors). And so began the great OSA trek, trying different > masks, CPAP’s, many postings yada..yada…yada…. During all this I was > seeing another doctor and as a result got an operation on my sinuses > (septoplasty and pnuematisation of middle turbinates). Now after about 7 > months I still can’t handle CPAP very well and although it makes me feel > more awake I found I never got a solid nights sleep. So after my op I went > back to an ENT doc to see about my congestion (allergy related ???, who > knows) and he said I have rhinitis. Based on this information I then stopped > using CPAP and demanded another sleep test. (result of second sleep test was > 4 apneas per hour) now it looks like I’m cured but I’m still tired every > day. So to combat the rhinitis I start taking drops and nasonex spray and I > now feel a lot better. I’m more awake and have generally become a more > energised person. > My reason for this story is that during my time finding information for OSA > I noticed that a lot of OSA’ers have congestion problems and so could > possibly be suffering from the same simptoms as myself and possibly had a > false postive apnea test. One thing I would like to get straight though is > that I’m no doctor and I’m only bringing this up as an observation on my own > part. What do you think??? > To give you a hint I always had congestion in the morning and felt like I > was breathing through a straw all day (if nasal breathing). Oh by the way if > some of you think that me breathing through my mouth would resolve my > problems then think again, it’s only when I breathe through my mouth that I > get a bad night’s sleep. Another thing is that I can relate my congestion > directly with tiredness (the more congestion in the morning the more tired I > feel during the day). > Do any of you suspect that you are the same and have not had body look at > your sinuses either allergy or ent? > The sole reason I’m posting this is that I wouldn’t want others to go > through all the rubbish I put up with only to find out you don’t have OSA > anyway. > Any replies or questions would be welcome.

Response:

- Hide quoted text — Show quoted text -Dan Smyth wrote: > Hi Dave, > "Dave" <david.hodg…@vianet.co.uk> wrote in message > news:bl9ab1$nt6$1@hercules.btinternet.com… >>Hi Normc >>Cheers for the comments. I maybe should have spent more time on my initial >>post but I was tired and grumpy and needed to let off some steam. Sorry > for >>any confusion. >>I did not receive a Poly, in the UK the first apnea test you get is what I >>said "snore and breath sensors,oxi meter, chest sensors". No doubt a full >>poly would have saved time and showed that I did not have OSA. > A polysomnogram is THE ONLY way to diagnose sleep apnoea. >>You see I never had OSA, the test showed that I did. All I had was swollen >>sinuses due to rhinitis (caused by allergies no doubt). Now the treatment >>for rhinitis is not CPAP, it’s allergy treatment. Swollen sinuses and >>congestion are not helped by CPAP. >>The surgery I had was to cut a hole in my middle inferior turbinate as > there >>was a physical blockage there, this surgery wasn’t to correct OSA it was > to >>help me breathe, but after a while my rhinitis flared up again and so I >>still could not breathe. The only thing that works for me is allergy > sprays >>which reduce the swelling and open up the air way. Now CPAP could never do >>that. CPAP is for splinting the airway open if muscles in the upper airway >>"fall" shut. CPAP did work a little but that was because it was forcing >>extra air through my nasal passages into my lungs, not keeping the airway >>open which is it’s whole point. >>And so my point is that could other OSA’rs who have rhinitis and have only >>gone for a small apnea study really have OSA? > Going back to my earlier statement. There is only one way to diagnose sleep > apnoea and that is with a polysomnogram. In some cases a home study can be > used to give an indication, particularly where the sleep clinic use a triage > system to move ‘more deserving’ cases up the queue. > I am aware that in the UK and here in Ireland a number of > respiratory/pulmonory specialists, who are not trained in sleep medicine, > have been using these ‘mini tests’, and to add insult to injury they > prescribe CPAP on these ‘mini results’………….which flies in the face > of acceptable practice. > As you said yourself, a polysomnogram in the first instance would have cut > out all the messing. > Dan.

Dan – Thanks for your input.  These days it is with great reluctance that I tell anyone in the UK, what I consider to be, bad news.  The ‘news’ has much more meaning when it comes from someone else in the UK. It appears to me that Scotsman (Dave) may have gone through some unnecessary surgery.  I hope he sticks around this, and any other, sleep-disorders newsgroup to tell his story. However, I think he will have to change the subject to "Surgery/treatment for apnea may be wrong".

Response:

Hi Dave, "Dave" <david.hodg…@vianet.co.uk> wrote in message

news:bl9ab1$nt6$1@hercules.btinternet.com… > Hi Normc > Cheers for the comments. I maybe should have spent more time on my initial > post but I was tired and grumpy and needed to let off some steam. Sorry for > any confusion. > I did not receive a Poly, in the UK the first apnea test you get is what I > said "snore and breath sensors,oxi meter, chest sensors". No doubt a full > poly would have saved time and showed that I did not have OSA.

A polysomnogram is THE ONLY way to diagnose sleep apnoea. – Hide quoted text — Show quoted text -> You see I never had OSA, the test showed that I did. All I had was swollen > sinuses due to rhinitis (caused by allergies no doubt). Now the treatment > for rhinitis is not CPAP, it’s allergy treatment. Swollen sinuses and > congestion are not helped by CPAP. > The surgery I had was to cut a hole in my middle inferior turbinate as there > was a physical blockage there, this surgery wasn’t to correct OSA it was to > help me breathe, but after a while my rhinitis flared up again and so I > still could not breathe. The only thing that works for me is allergy sprays > which reduce the swelling and open up the air way. Now CPAP could never do > that. CPAP is for splinting the airway open if muscles in the upper airway > "fall" shut. CPAP did work a little but that was because it was forcing > extra air through my nasal passages into my lungs, not keeping the airway > open which is it’s whole point. > And so my point is that could other OSA’rs who have rhinitis and have only > gone for a small apnea study really have OSA?

Going back to my earlier statement. There is only one way to diagnose sleep apnoea and that is with a polysomnogram. In some cases a home study can be used to give an indication, particularly where the sleep clinic use a triage system to move ‘more deserving’ cases up the queue. I am aware that in the UK and here in Ireland a number of respiratory/pulmonory specialists, who are not trained in sleep medicine, have been using these ‘mini tests’, and to add insult to injury they prescribe CPAP on these ‘mini results’………….which flies in the face of acceptable practice. As you said yourself, a polysomnogram in the first instance would have cut out all the messing. Dan.

Response:

Hi Normc Cheers for the comments. I maybe should have spent more time on my initial post but I was tired and grumpy and needed to let off some steam. Sorry for any confusion. I did not receive a Poly, in the UK the first apnea test you get is what I said "snore and breath sensors,oxi meter, chest sensors". No doubt a full poly would have saved time and showed that I did not have OSA. You see I never had OSA, the test showed that I did. All I had was swollen sinuses due to rhinitis (caused by allergies no doubt). Now the treatment for rhinitis is not CPAP, it’s allergy treatment. Swollen sinuses and congestion are not helped by CPAP. The surgery I had was to cut a hole in my middle inferior turbinate as there was a physical blockage there, this surgery wasn’t to correct OSA it was to help me breathe, but after a while my rhinitis flared up again and so I still could not breathe. The only thing that works for me is allergy sprays which reduce the swelling and open up the air way. Now CPAP could never do that. CPAP is for splinting the airway open if muscles in the upper airway "fall" shut. CPAP did work a little but that was because it was forcing extra air through my nasal passages into my lungs, not keeping the airway open which is it’s whole point. And so my point is that could other OSA’rs who have rhinitis and have only gone for a small apnea study really have OSA? And yes I had a home titration while on nasal sprays and it showed that I didn’t require any pressure to keep my airway open, (as there was no air shutting) rgds "NormC" <no…@socal.rr.com> wrote in message

news:3F763B50.7000905@socal.rr.com… – Hide quoted text — Show quoted text -> Scotsman wrote: > > Hi folks, > > At the begining of this year I was diagnosed with OSA, I had 52 events per > > hour which was found by the basic apnea test (snore and breath sensors,oxi > > meter, chest sensors). > The following is for newbies, like you were at the beginning of > the year. > How about head sensors?  The basic apnea test is called a PSG > (Polysomnogram).  You can find out all about it by GOOGLEing the web. > And you said nothing about whether you had a manual titration in > a sleep lab.  Some might say it doesn’t matter if it was with an > autopap at home or manually in a lab.  And it doesn’t…. if you > don’t have any problems with your treatment. > Are you saying that even your basic apnea test was wrong?  What > was wrong about it? > > And so began the great OSA trek, trying different > > masks, CPAP’s, many postings yada..yada…yada…. During all this I was > > seeing another doctor > For what reason?  The next step after a PSG is a written summary > of the PSG and a diagnosis.  Then a titration to determine how > much pressure is needed to clear the obstructions. > Then, if you want to know why you have OSA, which many people > don’t seem to care about or can’t afford to find out, you get an > endoscopy done.  Did you receive an endoscopy, or any other > diagnostic testing? > > and as a result got an operation on my sinuses > > (septoplasty and pnuematisation of middle turbinates). > Without an endoscopy? > > Now after about 7 > > months I still can’t handle CPAP very well and although it makes me feel > > more awake I found I never got a solid nights sleep. > This is what I meant by ‘problems’.  You’ve had them.  If you > weren’t properly titrated, you may not be receiving proper > treatment from cpap.  Too low a pressure could mean obstructional > apneas are occurring. Too high a pressure could cause central > apneas to occur. > If you did not receive a PSG, you may be having unrecognized, > endogenous central apneas.  All the surgeries in the world won’t > fix central apnea(s). > > So after my op I went > > back to an ENT doc to see about my congestion (allergy related ???, who > > knows) and he said I have rhinitis. Based on this information I then stopped > > using CPAP and demanded another sleep test. (result of second sleep test was > > 4 apneas per hour) now it looks like I’m cured but I’m still tired every > > day. > What kinds of apnea?  Obstructional, central, mixed? > > So to combat the rhinitis I start taking drops and nasonex spray and I > > now feel a lot better. I’m more awake and have generally become a more > > energised person. > I’ve gotten the impression that there are others who found that > there primary problem(s) related to allergies.  This is why I saw > a pulmonologist in addition to a neurologist. > > My reason for this story is that during my time finding information for OSA > > I noticed that a lot of OSA’ers have congestion problems and so could > > possibly be suffering from the same simptoms as myself and possibly had a > > false postive apnea test. > So you didn’t really need the surgery?  There’s no way to know > now.  You should have been tested after the surgery. > > One thing I would like to get straight though is > > that I’m no doctor > Neither am I. > > and I’m only bringing this up as an observation on my own > > part. What do you think??? > See above. > > To give you a hint I always had congestion in the morning and felt like I > > was breathing through a straw all day (if nasal breathing). Oh by the way if > > some of you think that me breathing through my mouth would resolve my > > problems then think again, it’s only when I breathe through my mouth that I > > get a bad night’s sleep. > Isn’t this what one would expect, if they can’t breath through > their nose…. or other parts of the nasal airway? > > Another thing is that I can relate my congestion > > directly with tiredness (the more congestion in the morning the more tired I > > feel during the day). > > Do any of you suspect that you are the same and have not had body look at > > your sinuses either allergy or ent? > If a PSG shows you are having OSAs, you are having OSAs.  If it > doesn’t tell you anything about CSAs, you may be  having CSAs. > > The sole reason I’m posting this is that I wouldn’t want others to go > > through all the rubbish I put up with only to find out you don’t have OSA > > anyway. > Can’t quite figure out what you mean here.  You did have OSA that > required cpap treatment.  You had surgery, which may or may not > have helped.  How was the test wrong?  In addition, you now have > OSA that doesn’t require treatment, but what do you know about > the central component, if any? > > Any replies or questions would be welcome. > In closing, let me say, I have gotten the impression from other > UK posters that the NHS doesn’t provide the best of treatment for > apnea.  I, personally, don’t think much of your diagnosis and > treatment; however, maybe you haven’t told us the complete story. > Are you aware of the UK MSN apnea message board?  If not you > might want to search it out. > HTH

Response:

Scotsman wrote: > Hi folks, > At the begining of this year I was diagnosed with OSA, I had 52 events per > hour which was found by the basic apnea test (snore and breath sensors,oxi > meter, chest sensors).

The following is for newbies, like you were at the beginning of the year. How about head sensors?  The basic apnea test is called a PSG (Polysomnogram).  You can find out all about it by GOOGLEing the web. And you said nothing about whether you had a manual titration in a sleep lab.  Some might say it doesn’t matter if it was with an autopap at home or manually in a lab.  And it doesn’t…. if you don’t have any problems with your treatment. Are you saying that even your basic apnea test was wrong?  What was wrong about it? > And so began the great OSA trek, trying different > masks, CPAP’s, many postings yada..yada…yada…. During all this I was > seeing another doctor

For what reason?  The next step after a PSG is a written summary of the PSG and a diagnosis.  Then a titration to determine how much pressure is needed to clear the obstructions. Then, if you want to know why you have OSA, which many people don’t seem to care about or can’t afford to find out, you get an endoscopy done.  Did you receive an endoscopy, or any other diagnostic testing? > and as a result got an operation on my sinuses > (septoplasty and pnuematisation of middle turbinates).

Without an endoscopy? > Now after about 7 > months I still can’t handle CPAP very well and although it makes me feel > more awake I found I never got a solid nights sleep.

This is what I meant by ‘problems’.  You’ve had them.  If you weren’t properly titrated, you may not be receiving proper treatment from cpap.  Too low a pressure could mean obstructional apneas are occurring. Too high a pressure could cause central apneas to occur. If you did not receive a PSG, you may be having unrecognized, endogenous central apneas.  All the surgeries in the world won’t fix central apnea(s). > So after my op I went > back to an ENT doc to see about my congestion (allergy related ???, who > knows) and he said I have rhinitis. Based on this information I then stopped > using CPAP and demanded another sleep test. (result of second sleep test was > 4 apneas per hour) now it looks like I’m cured but I’m still tired every > day.

What kinds of apnea?  Obstructional, central, mixed? > So to combat the rhinitis I start taking drops and nasonex spray and I > now feel a lot better. I’m more awake and have generally become a more > energised person.

I’ve gotten the impression that there are others who found that there primary problem(s) related to allergies.  This is why I saw a pulmonologist in addition to a neurologist. > My reason for this story is that during my time finding information for OSA > I noticed that a lot of OSA’ers have congestion problems and so could > possibly be suffering from the same simptoms as myself and possibly had a > false postive apnea test.

So you didn’t really need the surgery?  There’s no way to know now.  You should have been tested after the surgery. > One thing I would like to get straight though is > that I’m no doctor

Neither am I. > and I’m only bringing this up as an observation on my own > part. What do you think???

See above. > To give you a hint I always had congestion in the morning and felt like I > was breathing through a straw all day (if nasal breathing). Oh by the way if > some of you think that me breathing through my mouth would resolve my > problems then think again, it’s only when I breathe through my mouth that I > get a bad night’s sleep.

Isn’t this what one would expect, if they can’t breath through their nose…. or other parts of the nasal airway? > Another thing is that I can relate my congestion > directly with tiredness (the more congestion in the morning the more tired I > feel during the day). > Do any of you suspect that you are the same and have not had body look at > your sinuses either allergy or ent?

If a PSG shows you are having OSAs, you are having OSAs.  If it doesn’t tell you anything about CSAs, you may be  having CSAs. > The sole reason I’m posting this is that I wouldn’t want others to go > through all the rubbish I put up with only to find out you don’t have OSA > anyway.

Can’t quite figure out what you mean here.  You did have OSA that required cpap treatment.  You had surgery, which may or may not have helped.  How was the test wrong?  In addition, you now have OSA that doesn’t require treatment, but what do you know about the central component, if any? > Any replies or questions would be welcome.

In closing, let me say, I have gotten the impression from other UK posters that the NHS doesn’t provide the best of treatment for apnea.  I, personally, don’t think much of your diagnosis and treatment; however, maybe you haven’t told us the complete story. Are you aware of the UK MSN apnea message board?  If not you might want to search it out. HTH

Response:

Hi folks, At the begining of this year I was diagnosed with OSA, I had 52 events per hour which was found by the basic apnea test (snore and breath sensors,oxi meter, chest sensors). And so began the great OSA trek, trying different masks, CPAP’s, many postings yada..yada…yada…. During all this I was seeing another doctor and as a result got an operation on my sinuses (septoplasty and pnuematisation of middle turbinates). Now after about 7 months I still can’t handle CPAP very well and although it makes me feel more awake I found I never got a solid nights sleep. So after my op I went back to an ENT doc to see about my congestion (allergy related ???, who knows) and he said I have rhinitis. Based on this information I then stopped using CPAP and demanded another sleep test. (result of second sleep test was 4 apneas per hour) now it looks like I’m cured but I’m still tired every day. So to combat the rhinitis I start taking drops and nasonex spray and I now feel a lot better. I’m more awake and have generally become a more energised person. My reason for this story is that during my time finding information for OSA I noticed that a lot of OSA’ers have congestion problems and so could possibly be suffering from the same simptoms as myself and possibly had a false postive apnea test. One thing I would like to get straight though is that I’m no doctor and I’m only bringing this up as an observation on my own part. What do you think??? To give you a hint I always had congestion in the morning and felt like I was breathing through a straw all day (if nasal breathing). Oh by the way if some of you think that me breathing through my mouth would resolve my problems then think again, it’s only when I breathe through my mouth that I get a bad night’s sleep. Another thing is that I can relate my congestion directly with tiredness (the more congestion in the morning the more tired I feel during the day). Do any of you suspect that you are the same and have not had body look at your sinuses either allergy or ent? The sole reason I’m posting this is that I wouldn’t want others to go through all the rubbish I put up with only to find out you don’t have OSA anyway. Any replies or questions would be welcome.

Response:

I'm confused

Question:

Thanks for pasting Norm’s reply, Beth. And thank you Norm for the enlightening responses. Seems I probably should have persevered with the CPAP. I will ask for a reassessment along the lines you suggest. Whether I will get one is another matter! Better dust off the boxing gloves… Regards Tom "Tal" <sleepbethdisord…@softhome.net> wrote in message

news:bl5upd$8f2pu$1@ID-148111.news.uni-berlin.de… – Hide quoted text — Show quoted text -> im’ not sure why you haven’t seen Norm’s response to your post but i’ve > pasted his post below > .– > Beth in Australia > (I am not a medical professional and anything stated in my posts is my > opinion only unless specified otherwise) > =================== > FAQ for alt.support.sleep-disorder can be found here > http://talhost.net/sleep > Newsgroup Archives http://talhost.net/sleep/archives.htm > this site is a work in progress – feel free to submit info/articles > Remove my name to reply > So was I, under somethat the same circumstances > merk99 wrote: > > Hi folks > > You were all kind enough to help me a year ago and I return now for more, > > having lurked since then! > > Basically, I was diagnosed with mild apnea (index of 21, nearly all > > hypopneas)  > and issued with a CPAP set at 5cms. I tolerated it quite > well > > once I found the right headgear (nasal pillows suited me best). But > although > > I felt maybe 5% better after a week, I still felt more tired in the > morning > > than when I went to bed, and that 5% soon became indiscernible. > I felt better for three weeks and then regressed. > > I used the CPAP for 6 months but quite honestly it didn’t seem to help. > IMHO, wrong, and bad, move for the following reasons.  First of > all, you didn’t indicate how your pressure requirements were > determined.  If you were manually titrated, were you present when > your pressure blower pressure was set?  Did you check the > pressure before you gave it up? > The best plan for a situation like yours and mine is to use an > appropriate autopap and recording finger oximeter at home. This > will determine if your pressure is correct and what is happening > to your blood oxgen saturation level.  If your pressure is OK, > but your O2 drops, this would be evidence of central apneas occuring. > > My > > sleep doc then put me on Modafinil to make me more alert during the day, > in > > the hope that I would then crash out better at night. > Doesn’t sound like he is a diplomated sleep doc.  Is he? > > That had a slight > > effect on my daytime alertness, but otherwise didn’t help the overall > > tiredness, and it was a damned expensive treatment! > Yes, it was! > > I stopped using both > > because there seemed to be no benefit. > Pretty much the same for me EXCEPT my diplomated neurologist > sleep doc had me use it only while we were determining what the > problem was with cpap treatment, as described above.  It didn’t > work for me either. >   I have mild hypertension and am 50yrs > > old with a pretty stressful job. > > Started going to the gym – that helped a bit. > > I have no trouble getting to sleep, and I do snore, quite loudly at times. > > Sometimes the tiredness is so bad in the daytime that I feel "desperate" > in > > the chest and stomach – I am sure those who have had that know what I > mean. > Indeed. > > It feels like I am way too tired to sleep and there seems no way out. > Demand a week with appropriate autopap and at least two nights > with recording finger oximeter. > > I > > have suffered from depression over the years, > Cognitive losses and depression often occurs from not getting > quality sleep because of occuring apneas. > > off and on, but usually manage > > to climb back to a relatively normal life. I have found that a "power nap" > > mid-morning helps a little. > > Sometimes I think it’s maybe a mid-life thing, but I just know that at my > > age I should NOT feel this way. I am generally a happy, intelligent guy > with > > a great sense of humour, but I just can’t kick the tiredness and it gets > to > > me. Due to see the sleep doc in 3 months and will have to confess to > > stopping the CPAP. Don’t know what that will precipitate! > > Would appreciate any observations you might want to make… > Demand a week with appropriate autopap and at least two nights > with recording finger oximeter. > > Thanks for listening, > > Tom

Response:

good luck…be sure to let us know how things go — Beth in Australia (I am not a medical professional and anything stated in my posts is my opinion only unless specified otherwise) =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply "merk99" <mer…@tiscali.co.uk> wrote in message

news:3f774b20_1@mk-nntp-2.news.uk.tiscali.com… – Hide quoted text — Show quoted text -> Thanks for pasting Norm’s reply, Beth. And thank you Norm for the > enlightening responses. > Seems I probably should have persevered with the CPAP. > I will ask for a reassessment along the lines you suggest. Whether I will > get one is another matter! Better dust off the boxing gloves… > Regards > Tom > "Tal" <sleepbethdisord…@softhome.net> wrote in message > news:bl5upd$8f2pu$1@ID-148111.news.uni-berlin.de… > > im’ not sure why you haven’t seen Norm’s response to your post but i’ve > > pasted his post below > > .– > > Beth in Australia > > (I am not a medical professional and anything stated in my posts is my > > opinion only unless specified otherwise) > > =================== > > FAQ for alt.support.sleep-disorder can be found here > > http://talhost.net/sleep > > Newsgroup Archives http://talhost.net/sleep/archives.htm > > this site is a work in progress – feel free to submit info/articles > > Remove my name to reply > > So was I, under somethat the same circumstances > > merk99 wrote: > > > Hi folks > > > You were all kind enough to help me a year ago and I return now for > more, > > > having lurked since then! > > > Basically, I was diagnosed with mild apnea (index of 21, nearly all > > > hypopneas)  > and issued with a CPAP set at 5cms. I tolerated it quite > > well > > > once I found the right headgear (nasal pillows suited me best). But > > although > > > I felt maybe 5% better after a week, I still felt more tired in the > > morning > > > than when I went to bed, and that 5% soon became indiscernible. > > I felt better for three weeks and then regressed. > > > I used the CPAP for 6 months but quite honestly it didn’t seem to help. > > IMHO, wrong, and bad, move for the following reasons.  First of > > all, you didn’t indicate how your pressure requirements were > > determined.  If you were manually titrated, were you present when > > your pressure blower pressure was set?  Did you check the > > pressure before you gave it up? > > The best plan for a situation like yours and mine is to use an > > appropriate autopap and recording finger oximeter at home. This > > will determine if your pressure is correct and what is happening > > to your blood oxgen saturation level.  If your pressure is OK, > > but your O2 drops, this would be evidence of central apneas occuring. > > > My > > > sleep doc then put me on Modafinil to make me more alert during the day, > > in > > > the hope that I would then crash out better at night. > > Doesn’t sound like he is a diplomated sleep doc.  Is he? > > > That had a slight > > > effect on my daytime alertness, but otherwise didn’t help the overall > > > tiredness, and it was a damned expensive treatment! > > Yes, it was! > > > I stopped using both > > > because there seemed to be no benefit. > > Pretty much the same for me EXCEPT my diplomated neurologist > > sleep doc had me use it only while we were determining what the > > problem was with cpap treatment, as described above.  It didn’t > > work for me either. > >   I have mild hypertension and am 50yrs > > > old with a pretty stressful job. > > > Started going to the gym – that helped a bit. > > > I have no trouble getting to sleep, and I do snore, quite loudly at > times. > > > Sometimes the tiredness is so bad in the daytime that I feel "desperate" > > in > > > the chest and stomach – I am sure those who have had that know what I > > mean. > > Indeed. > > > It feels like I am way too tired to sleep and there seems no way out. > > Demand a week with appropriate autopap and at least two nights > > with recording finger oximeter. > > > I > > > have suffered from depression over the years, > > Cognitive losses and depression often occurs from not getting > > quality sleep because of occuring apneas. > > > off and on, but usually manage > > > to climb back to a relatively normal life. I have found that a "power > nap" > > > mid-morning helps a little. > > > Sometimes I think it’s maybe a mid-life thing, but I just know that at > my > > > age I should NOT feel this way. I am generally a happy, intelligent guy > > with > > > a great sense of humour, but I just can’t kick the tiredness and it gets > > to > > > me. Due to see the sleep doc in 3 months and will have to confess to > > > stopping the CPAP. Don’t know what that will precipitate! > > > Would appreciate any observations you might want to make… > > Demand a week with appropriate autopap and at least two nights > > with recording finger oximeter. > > > Thanks for listening, > > > Tom

Response:

im’ not sure why you haven’t seen Norm’s response to your post but i’ve pasted his post below .– Beth in Australia (I am not a medical professional and anything stated in my posts is my opinion only unless specified otherwise) =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply So was I, under somethat the same circumstances merk99 wrote: > Hi folks > You were all kind enough to help me a year ago and I return now for more, > having lurked since then! > Basically, I was diagnosed with mild apnea (index of 21, nearly all > hypopneas)  > and issued with a CPAP set at 5cms. I tolerated it quite well > once I found the right headgear (nasal pillows suited me best). But although > I felt maybe 5% better after a week, I still felt more tired in the morning > than when I went to bed, and that 5% soon became indiscernible.

I felt better for three weeks and then regressed. > I used the CPAP for 6 months but quite honestly it didn’t seem to help.

IMHO, wrong, and bad, move for the following reasons.  First of all, you didn’t indicate how your pressure requirements were determined.  If you were manually titrated, were you present when your pressure blower pressure was set?  Did you check the pressure before you gave it up? The best plan for a situation like yours and mine is to use an appropriate autopap and recording finger oximeter at home. This will determine if your pressure is correct and what is happening to your blood oxgen saturation level.  If your pressure is OK, but your O2 drops, this would be evidence of central apneas occuring. > My > sleep doc then put me on Modafinil to make me more alert during the day, in > the hope that I would then crash out better at night.

Doesn’t sound like he is a diplomated sleep doc.  Is he? > That had a slight > effect on my daytime alertness, but otherwise didn’t help the overall > tiredness, and it was a damned expensive treatment!

Yes, it was! > I stopped using both > because there seemed to be no benefit.

Pretty much the same for me EXCEPT my diplomated neurologist sleep doc had me use it only while we were determining what the problem was with cpap treatment, as described above.  It didn’t work for me either.   I have mild hypertension and am 50yrs > old with a pretty stressful job. > Started going to the gym – that helped a bit. > I have no trouble getting to sleep, and I do snore, quite loudly at times. > Sometimes the tiredness is so bad in the daytime that I feel "desperate" in > the chest and stomach – I am sure those who have had that know what I

mean. Indeed. > It feels like I am way too tired to sleep and there seems no way out.

Demand a week with appropriate autopap and at least two nights with recording finger oximeter. > I > have suffered from depression over the years,

Cognitive losses and depression often occurs from not getting quality sleep because of occuring apneas. > off and on, but usually manage > to climb back to a relatively normal life. I have found that a "power nap" > mid-morning helps a little. > Sometimes I think it’s maybe a mid-life thing, but I just know that at my > age I should NOT feel this way. I am generally a happy, intelligent guy with > a great sense of humour, but I just can’t kick the tiredness and it gets to > me. Due to see the sleep doc in 3 months and will have to confess to > stopping the CPAP. Don’t know what that will precipitate! > Would appreciate any observations you might want to make…

Demand a week with appropriate autopap and at least two nights with recording finger oximeter. – Hide quoted text — Show quoted text -> Thanks for listening, > Tom

Response:

Hi folks You were all kind enough to help me a year ago and I return now for more, having lurked since then! Basically, I was diagnosed with mild apnea (index of 21, nearly all hypopneas) and issued with a CPAP set at 5cms. I tolerated it quite well once I found the right headgear (nasal pillows suited me best). But although I felt maybe 5% better after a week, I still felt more tired in the morning than when I went to bed, and that 5% soon became indiscernible. I used the CPAP for 6 months but quite honestly it didn’t seem to help. My sleep doc then put me on Modafinil to make me more alert during the day, in the hope that I would then crash out better at night. That had a slight effect on my daytime alertness, but otherwise didn’t help the overall tiredness, and it was a damned expensive treatment!  I stopped using both because there seemed to be no benefit. I have mild hypertension and am 50yrs old with a pretty stressful job. Started going to the gym – that helped a bit. I have no trouble getting to sleep, and I do snore, quite loudly at times. Sometimes the tiredness is so bad in the daytime that I feel "desperate" in the chest and stomach – I am sure those who have had that know what I mean. It feels like I am way too tired to sleep and there seems no way out.  I have suffered from depression over the years, off and on, but usually manage to climb back to a relatively normal life. I have found that a "power nap" mid-morning helps a little. Sometimes I think it’s maybe a mid-life thing, but I just know that at my age I should NOT feel this way. I am generally a happy, intelligent guy with a great sense of humour, but I just can’t kick the tiredness and it gets to me. Due to see the sleep doc in 3 months and will have to confess to stopping the CPAP. Don’t know what that will precipitate! Would appreciate any observations you might want to make… Thanks for listening, Tom

Response:

So was I, under somethat the same circumstances merk99 wrote: > Hi folks > You were all kind enough to help me a year ago and I return now for more, > having lurked since then! > Basically, I was diagnosed with mild apnea (index of 21, nearly all > hypopneas)  > and issued with a CPAP set at 5cms. I tolerated it quite well > once I found the right headgear (nasal pillows suited me best). But although > I felt maybe 5% better after a week, I still felt more tired in the morning > than when I went to bed, and that 5% soon became indiscernible.

I felt better for three weeks and then regressed. > I used the CPAP for 6 months but quite honestly it didn’t seem to help.

IMHO, wrong, and bad, move for the following reasons.  First of all, you didn’t indicate how your pressure requirements were determined.  If you were manually titrated, were you present when your pressure blower pressure was set?  Did you check the pressure before you gave it up? The best plan for a situation like yours and mine is to use an appropriate autopap and recording finger oximeter at home. This will determine if your pressure is correct and what is happening to your blood oxgen saturation level.  If your pressure is OK, but your O2 drops, this would be evidence of central apneas occuring. > My > sleep doc then put me on Modafinil to make me more alert during the day, in > the hope that I would then crash out better at night.

Doesn’t sound like he is a diplomated sleep doc.  Is he? > That had a slight > effect on my daytime alertness, but otherwise didn’t help the overall > tiredness, and it was a damned expensive treatment!  

Yes, it was! > I stopped using both > because there seemed to be no benefit.

Pretty much the same for me EXCEPT my diplomated neurologist sleep doc had me use it only while we were determining what the problem was with cpap treatment, as described above.  It didn’t work for me either.   I have mild hypertension and am 50yrs > old with a pretty stressful job. > Started going to the gym – that helped a bit. > I have no trouble getting to sleep, and I do snore, quite loudly at times. > Sometimes the tiredness is so bad in the daytime that I feel "desperate" in > the chest and stomach – I am sure those who have had that know what I mean.

Indeed. > It feels like I am way too tired to sleep and there seems no way out.

Demand a week with appropriate autopap and at least two nights with recording finger oximeter. > I > have suffered from depression over the years,

Cognitive losses and depression often occurs from not getting quality sleep because of occuring apneas. > off and on, but usually manage > to climb back to a relatively normal life. I have found that a "power nap" > mid-morning helps a little. > Sometimes I think it’s maybe a mid-life thing, but I just know that at my > age I should NOT feel this way. I am generally a happy, intelligent guy with > a great sense of humour, but I just can’t kick the tiredness and it gets to > me. Due to see the sleep doc in 3 months and will have to confess to > stopping the CPAP. Don’t know what that will precipitate! > Would appreciate any observations you might want to make…

Demand a week with appropriate autopap and at least two nights with recording finger oximeter. – Hide quoted text — Show quoted text -> Thanks for listening, > Tom

Response:

Thanks for the input, Beth. I know it wasn’t the smartest move, but I felt no benefit at the time and my first priority was to feel better at the time rather than concern myself with the future, but I do understand your comment and I can’t disagree with your logic. My O2 saturation level in the sleep test fell to a min of 94% with a mean of 97.5%, which I didn’t consider to be too bad, or am I wrong? Heart rate stayed rock steady all night at 97, which seems high for sleeping. I think I will ask the doc for a deeper investigation into what’s happening. Tom P.S. Who is norm? And when did he suggest this? I have no NG message from him. "Tal" <sleepbethdisord…@softhome.net> wrote in message

news:bl3crn$7n2kr$2@ID-148111.news.uni-berlin.de… – Hide quoted text — Show quoted text -> > Basically, I was diagnosed with mild apnea (index of 21, nearly all > > hypopneas) and issued with a CPAP set at 5cms. I tolerated it quite well > > once I found the right headgear (nasal pillows suited me best). But > although > > I felt maybe 5% better after a week, I still felt more tired in the > morning > > than when I went to bed, and that 5% soon became indiscernible. > > I used the CPAP for 6 months but quite honestly it didn’t seem to help. > stopping using the cpap probably wasn’t the smartest move….more than > anything, for the same reason I continue to use it even though i’m not > feeling any less tired for it.  It’s preventing long term damage from oxygen > deprevation……very important in my book, i’m only 31 and don’t want to > find in ten years time that i have severe heart probs etc! > There are many things that could be preventing you from getting more benefit > from cpap, you need to investigate those things and take action wherever > appropriate.  As norm suggested, when you see your doc, explain that you’ve > been advised to use a finger recording oxymeter to see what your oxygen > levels are doing throughout the night, and find out if you can loan/rent an > autopap machine to see if you can determine if your pressure needs are being > met. > Don’t give up on it, having apnea is much more than just being tired…. > — > Beth in Australia > (I am not a medical professional and anything stated in my posts is my > opinion only unless specified otherwise) > =================== > FAQ for alt.support.sleep-disorder can be found here > http://talhost.net/sleep > Newsgroup Archives http://talhost.net/sleep/archives.htm > this site is a work in progress – feel free to submit info/articles > Remove my name to reply

Response:

> Basically, I was diagnosed with mild apnea (index of 21, nearly all > hypopneas) and issued with a CPAP set at 5cms. I tolerated it quite well > once I found the right headgear (nasal pillows suited me best). But although > I felt maybe 5% better after a week, I still felt more tired in the morning > than when I went to bed, and that 5% soon became indiscernible. > I used the CPAP for 6 months but quite honestly it didn’t seem to help.

stopping using the cpap probably wasn’t the smartest move….more than anything, for the same reason I continue to use it even though i’m not feeling any less tired for it.  It’s preventing long term damage from oxygen deprevation……very important in my book, i’m only 31 and don’t want to find in ten years time that i have severe heart probs etc! There are many things that could be preventing you from getting more benefit from cpap, you need to investigate those things and take action wherever appropriate.  As norm suggested, when you see your doc, explain that you’ve been advised to use a finger recording oxymeter to see what your oxygen levels are doing throughout the night, and find out if you can loan/rent an autopap machine to see if you can determine if your pressure needs are being met. Don’t give up on it, having apnea is much more than just being tired…. — Beth in Australia (I am not a medical professional and anything stated in my posts is my opinion only unless specified otherwise) =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

Arnold Chiari Malformation & Sleep Disordered Breathing

Question:

Article below I came across in another group I thought some of you may be interested in. — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply ============================================== New Article at Medscape for those interested, included the summary, take care, http://www.medscape.com/viewarticle/458614_3 Arnold-Chiari Malformation Type I and Sleep-Disordered Breathing from Journal of Pediatric Health Care Summary This article has defined Arnold-Chiari malformation type I and its relationship to sleep-disordered breathing. A case study of a 47-month-old girl with sleep apnea as the chief complaint who was diagnosed with Arnold-Chiari malformation type I was presented. The need to include questions about sleep-disordered breathing as part of a health history was discussed. Several questionnaires with good validity exist and can be used in a primary care setting and completed by parents while waiting to see the primary care provider. Practitioners should remember that patients with craniocervical disorders present a higher probability of displaying sleep-disordered breathing (Botelho et al., 2000). Practitioners should pay close attention to complaints of sleep disturbances and refer patients to pediatric sleep centers to identify specific problems. Use of sleep questionnaires can help identify sleep-disordered breathing patterns, thus resulting in early diagnosis and treatment and improving the patient’s clinical outcome. Information on Arnold Chiari malformation can be obtained from the World Arnold-Chiari Malformation (ACM) Association, 31 Newtown Woods Rd, Newtown Square, Philadelphia, PA 19073, or on the World Wide Web at http://www.pressenter

Response:

Have you been to an ENT??? Blocked sinus’ may make you snore. I snore too but hubby just moves to the guest reoom when it gets to bad. Eileen

Response:

Newbie Hoser

Question:

"NormC" <no…@socal.rr.com> wrote in message

news:3F2A2796.1010300@socal.rr.com… > Joe wrote: > > Norm, > > Thanks – yes, now I have more awareness. I’m still curious to know what the > > risk is regarding coughing. > Sorry.  Can’t help you there.

FWIW, I tried coughing, and it was totally fine. The air just came out my nose and it didn’t feel at all painful or awkard. (but my nose was clear at the time) Sneezing definitely doesn’t work well though and it did feel like it could be dangerous. (even with a clear nose) > (CPAP seems to be keeping > > my nose clearer than normal, which I’ve found a welcome side benefit) > This has been reported often.

The benefit persists during the day too. It seems to have some overall positive effect. I do have dust mite allergy so perhaps breathing the filtered air at night is helping somewhat. Thanks, Joe.

Response:

Joe wrote: > Norm, > Thanks – yes, now I have more awareness. I’m still curious to know what the > risk is regarding coughing.

Sorry.  Can’t help you there. > If there is a risk of damaging my ears, that’s > what I would be most concerned about, although I take it one’s nose would > also have to be very blocked for that to happen?  (CPAP seems to be keeping > my nose clearer than normal, which I’ve found a welcome side benefit)

This has been reported often. – Hide quoted text — Show quoted text -> Joe. > "NormC" <no…@socal.rr.com> wrote in message > news:3F288F77.3090700@socal.rr.com… >>Joe wrote: >>>"Tal" <sleepbethdisord…@SoftHome.net> wrote in message >>>news:bg9hvc$ma0gv$1@ID-148111.news.uni-berlin.de… >>>>>How is this any different to a CPAP machine going off while one is >>>asleep, >>>>>say, due to a power failure? >>>>>Isn’t it the case that we will wake up naturally? Wouldn’t we wake up > if >>>>our >>>>>nose became so blocked that it became too difficult to breath? When I >>>was >>>>>younger and not having any treatment whatsoever for my nocturnal > asthma, >>>I >>>>>would always wake during the night when it became too difficult to >>>breath. >>>>it’s very different because every mask has an exhalation port…meaning >>>you >>>>can always breathe through either your mouth or your nose if you have >>>>problem with one or the other – the other difference being that tape not >>>>only prevents you from breathing through, but also opening your mouth. >>>You >>>>are right in that we SHOULD wake up should a problem occur, but by that >>>>stage it could be getting dangerously late in the situation. >>>>As i stated, breathing is not the only issue, coughing and vomiting can >>>>cause serious problems if you can’t open your mouth >>>Thanks Beth. When I wrote "how does this differ from the CPAP machine > going >>>off", I had in my mind that it was a given that we wanted to seal our >>>mouths, to maintain CPAP pressure, but that wasn’t the issue at hand – > sorry >>>about that. >>>Are you saying that a chin strap is designed to allow the mouth to open, > if >>>we run into a problem such as you describe? I.e, a chin strap is a > "gentle >>>persuasion" to hold our mouths closed, but that if a problem occurs, we > will >>>still be able to open our mouths and breath through it, contrary to > tape, >>>which is too difficult to overcome?  Or, is it the case that even a chin >>>strap is not recommended for long term use? >>>I’m actually slightly more worried about the CPAP machine going off > (with my >>>mouth taped shut) than my nose being blocked, although my concern may > not be >>>warranted. The reason I have this concern is that I’ve tried breathing >>>through the machine while it’s turned off, and I did get short of breath >>>very quickly, but I’m not sure that it would be enough to wake me.  I’m > a >>>bit worried that I might slowly starve of oxygen, and gradually die of >>>suffocation in my sleep. I kind of doubt that this would happen if my > nose >>>were blocked – I think it’s a different condition and my body would > notice >>>this very quickly and wake up.  (like I always did with my nocturnal > asthma) >>>For the time being, I’ve set up my PDA to sound an alarm if the power > goes >>>off though. Currently there is no delay between the power going off to > the >>>alarm being raised – I’m going to try to set up a delay so that I know >>>whether I will waken naturally when the power goes off, or not. >>>In any case, my hospital said that even with my mouth sealed, I won’t >>>suffocate – I’ll wake up if the power goes off. This contradicts the > warning >>>in the CPAP machine documentation. Perhaps it’s mainly a risk for very > sick >>>people, and they have to put this warning in for legal reasons, or >>>something? >>>I’m not very worried about vomiting. I’ve never vomited in my sleep, at >>>least, not a substantial quantity. Normally if I’m going to have a full >>>blown vomit, I would have been awake for a long time beforehand, feeling >>>sick.  I have had small quantities of reflux, but even without the CPAP >>>machine,  I have breathed it back in because I have not awoken quickly >>>enough. I don’t think the CPAP will have much effect on this with me. >>>What are the main risks with coughing? Is the main risk ear drum damage? >>>For me, all of these risks seem quite minor and entirely acceptable, > given >>>that I’ve had my health problems for a very long time, and that I now > have >>>something which may help me significantly.  I feel that I am much more > at >>>risk simply driving on public roads to something terrible happening from >>>using CPAP with my mouth sealed. >>>Just by the way, it is possible to breath through Micropore anyway, a > bit. >>>It’s porous. >>>I have a chin strap, but I haven’t felt the need to give it a serious go >>>yet, because I like the Micropore solution so much.  Due to your > warnings >>>though I will give it a second look. Thanks. >>>Regards, >>>Joe. >>In my first post to your inquiry, I asked, "Are you aware of the >>the potential hazards of using tape?"  Well, you are now. >>I didn’t quit using Micropore because I was concerned about the >>consequences; I stopped because I have a full beard and I didn’t >>like pulling it off in the morning.  And I never bothered with a >>’handle’ on the tape for emergencies.  Good, ultraconservative >>measure. >>With your first post, my concern was that you didn’t know of the >>hazards, so you couldn’t consider them in your decisions.  Now >>you know.  I don’t see any problem using it if it is comfortable, >>does the job, and you know all the potential problems. >>I chose a full face mask instead.  That’s what it was designed for.

Response:

there may be another way hypnotism can help though…..I know that some people say that hypnotherapy can help with weight loss……so if weight is a contributing factor in your apnea…..maybe you could think about that if you think it’d help… don’t give up on cpap during the process though…that’d be a bad idea — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply "Tal" <sleepbethdisord…@SoftHome.net> wrote in message

news:bgafeu$mahf3$1@ID-148111.news.uni-berlin.de… – Hide quoted text — Show quoted text -> > Are you saying that a chin strap is designed to allow the mouth to open, > if > > we run into a problem such as you describe? I.e, a chin strap is a "gentle > > persuasion" to hold our mouths closed, but that if a problem occurs, we > will > > still be able to open our mouths and breath through it, contrary to tape, > > which is too difficult to overcome?  Or, is it the case that even a chin > > strap is not recommended for long term use? > Nope, not at all, even with a chin strap on you can open your mouth with a > little more effort than it would normally take…..with tape over your > mouth, you can’t without extreem effort > — > Beth in Australia > =================== > FAQ for alt.support.sleep-disorder can be found here > http://talhost.net/sleep > Newsgroup Archives http://talhost.net/sleep/archives.htm > this site is a work in progress – feel free to submit info/articles > Remove my name to reply

Response:

Norm, Thanks – yes, now I have more awareness. I’m still curious to know what the risk is regarding coughing. If there is a risk of damaging my ears, that’s what I would be most concerned about, although I take it one’s nose would also have to be very blocked for that to happen?  (CPAP seems to be keeping my nose clearer than normal, which I’ve found a welcome side benefit) Joe. "NormC" <no…@socal.rr.com> wrote in message

news:3F288F77.3090700@socal.rr.com… – Hide quoted text — Show quoted text -> Joe wrote: > > "Tal" <sleepbethdisord…@SoftHome.net> wrote in message > > news:bg9hvc$ma0gv$1@ID-148111.news.uni-berlin.de… > >>>How is this any different to a CPAP machine going off while one is > > asleep, > >>>say, due to a power failure? > >>>Isn’t it the case that we will wake up naturally? Wouldn’t we wake up if > >>our > >>>nose became so blocked that it became too difficult to breath? When I > > was > >>>younger and not having any treatment whatsoever for my nocturnal asthma, > > I > >>>would always wake during the night when it became too difficult to > > breath. > >>it’s very different because every mask has an exhalation port…meaning > > you > >>can always breathe through either your mouth or your nose if you have > >>problem with one or the other – the other difference being that tape not > >>only prevents you from breathing through, but also opening your mouth. > > You > >>are right in that we SHOULD wake up should a problem occur, but by that > >>stage it could be getting dangerously late in the situation. > >>As i stated, breathing is not the only issue, coughing and vomiting can > >>cause serious problems if you can’t open your mouth > > Thanks Beth. When I wrote "how does this differ from the CPAP machine going > > off", I had in my mind that it was a given that we wanted to seal our > > mouths, to maintain CPAP pressure, but that wasn’t the issue at hand – sorry > > about that. > > Are you saying that a chin strap is designed to allow the mouth to open, if > > we run into a problem such as you describe? I.e, a chin strap is a "gentle > > persuasion" to hold our mouths closed, but that if a problem occurs, we will > > still be able to open our mouths and breath through it, contrary to tape, > > which is too difficult to overcome?  Or, is it the case that even a chin > > strap is not recommended for long term use? > > I’m actually slightly more worried about the CPAP machine going off (with my > > mouth taped shut) than my nose being blocked, although my concern may not be > > warranted. The reason I have this concern is that I’ve tried breathing > > through the machine while it’s turned off, and I did get short of breath > > very quickly, but I’m not sure that it would be enough to wake me.  I’m a > > bit worried that I might slowly starve of oxygen, and gradually die of > > suffocation in my sleep. I kind of doubt that this would happen if my nose > > were blocked – I think it’s a different condition and my body would notice > > this very quickly and wake up.  (like I always did with my nocturnal asthma) > > For the time being, I’ve set up my PDA to sound an alarm if the power goes > > off though. Currently there is no delay between the power going off to the > > alarm being raised – I’m going to try to set up a delay so that I know > > whether I will waken naturally when the power goes off, or not. > > In any case, my hospital said that even with my mouth sealed, I won’t > > suffocate – I’ll wake up if the power goes off. This contradicts the warning > > in the CPAP machine documentation. Perhaps it’s mainly a risk for very sick > > people, and they have to put this warning in for legal reasons, or > > something? > > I’m not very worried about vomiting. I’ve never vomited in my sleep, at > > least, not a substantial quantity. Normally if I’m going to have a full > > blown vomit, I would have been awake for a long time beforehand, feeling > > sick.  I have had small quantities of reflux, but even without the CPAP > > machine,  I have breathed it back in because I have not awoken quickly > > enough. I don’t think the CPAP will have much effect on this with me. > > What are the main risks with coughing? Is the main risk ear drum damage? > > For me, all of these risks seem quite minor and entirely acceptable, given > > that I’ve had my health problems for a very long time, and that I now have > > something which may help me significantly.  I feel that I am much more at > > risk simply driving on public roads to something terrible happening from > > using CPAP with my mouth sealed. > > Just by the way, it is possible to breath through Micropore anyway, a bit. > > It’s porous. > > I have a chin strap, but I haven’t felt the need to give it a serious go > > yet, because I like the Micropore solution so much.  Due to your warnings > > though I will give it a second look. Thanks. > > Regards, > > Joe. > In my first post to your inquiry, I asked, "Are you aware of the > the potential hazards of using tape?"  Well, you are now. > I didn’t quit using Micropore because I was concerned about the > consequences; I stopped because I have a full beard and I didn’t > like pulling it off in the morning.  And I never bothered with a > ‘handle’ on the tape for emergencies.  Good, ultraconservative > measure. > With your first post, my concern was that you didn’t know of the > hazards, so you couldn’t consider them in your decisions.  Now > you know.  I don’t see any problem using it if it is comfortable, > does the job, and you know all the potential problems. > I chose a full face mask instead.  That’s what it was designed for.

Response:

If the machine stops, you *WILL*  wake unless you are heavily sedated or intoxicated nearly to the point of poisoning. regards, eric pearson db2e…@nospammindspring.com – Hide quoted text — Show quoted text -On Thu, 31 Jul 2003 03:05:53 GMT, "Joe" <j…@nowhere.com> wrote: >"Tal" <sleepbethdisord…@SoftHome.net> wrote in message >news:bg9hvc$ma0gv$1@ID-148111.news.uni-berlin.de… >> > How is this any different to a CPAP machine going off while one is >asleep, >> > say, due to a power failure? >> > Isn’t it the case that we will wake up naturally? Wouldn’t we wake up if >> our >> > nose became so blocked that it became too difficult to breath? When I >was >> > younger and not having any treatment whatsoever for my nocturnal asthma, >I >> > would always wake during the night when it became too difficult to >breath. >> it’s very different because every mask has an exhalation port…meaning >you >> can always breathe through either your mouth or your nose if you have >> problem with one or the other – the other difference being that tape not >> only prevents you from breathing through, but also opening your mouth. >You >> are right in that we SHOULD wake up should a problem occur, but by that >> stage it could be getting dangerously late in the situation. >> As i stated, breathing is not the only issue, coughing and vomiting can >> cause serious problems if you can’t open your mouth >Thanks Beth. When I wrote "how does this differ from the CPAP machine going >off", I had in my mind that it was a given that we wanted to seal our >mouths, to maintain CPAP pressure, but that wasn’t the issue at hand – sorry >about that. >Are you saying that a chin strap is designed to allow the mouth to open, if >we run into a problem such as you describe? I.e, a chin strap is a "gentle >persuasion" to hold our mouths closed, but that if a problem occurs, we will >still be able to open our mouths and breath through it, contrary to tape, >which is too difficult to overcome?  Or, is it the case that even a chin >strap is not recommended for long term use? >I’m actually slightly more worried about the CPAP machine going off (with my >mouth taped shut) than my nose being blocked, although my concern may not be >warranted. The reason I have this concern is that I’ve tried breathing >through the machine while it’s turned off, and I did get short of breath >very quickly, but I’m not sure that it would be enough to wake me.  I’m a >bit worried that I might slowly starve of oxygen, and gradually die of >suffocation in my sleep. I kind of doubt that this would happen if my nose >were blocked – I think it’s a different condition and my body would notice >this very quickly and wake up.  (like I always did with my nocturnal asthma) >For the time being, I’ve set up my PDA to sound an alarm if the power goes >off though. Currently there is no delay between the power going off to the >alarm being raised – I’m going to try to set up a delay so that I know >whether I will waken naturally when the power goes off, or not. >In any case, my hospital said that even with my mouth sealed, I won’t >suffocate – I’ll wake up if the power goes off. This contradicts the warning >in the CPAP machine documentation. Perhaps it’s mainly a risk for very sick >people, and they have to put this warning in for legal reasons, or >something? >I’m not very worried about vomiting. I’ve never vomited in my sleep, at >least, not a substantial quantity. Normally if I’m going to have a full >blown vomit, I would have been awake for a long time beforehand, feeling >sick.  I have had small quantities of reflux, but even without the CPAP >machine,  I have breathed it back in because I have not awoken quickly >enough. I don’t think the CPAP will have much effect on this with me. >What are the main risks with coughing? Is the main risk ear drum damage? >For me, all of these risks seem quite minor and entirely acceptable, given >that I’ve had my health problems for a very long time, and that I now have >something which may help me significantly.  I feel that I am much more at >risk simply driving on public roads to something terrible happening from >using CPAP with my mouth sealed. >Just by the way, it is possible to breath through Micropore anyway, a bit. >It’s porous. >I have a chin strap, but I haven’t felt the need to give it a serious go >yet, because I like the Micropore solution so much.  Due to your warnings >though I will give it a second look. Thanks. >Regards, >Joe.

Response:

> Are you saying that a chin strap is designed to allow the mouth to open, if > we run into a problem such as you describe? I.e, a chin strap is a "gentle > persuasion" to hold our mouths closed, but that if a problem occurs, we will > still be able to open our mouths and breath through it, contrary to tape, > which is too difficult to overcome?  Or, is it the case that even a chin > strap is not recommended for long term use?

Nope, not at all, even with a chin strap on you can open your mouth with a little more effort than it would normally take…..with tape over your mouth, you can’t without extreem effort — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

Chris, That’s good news that the chin strap works. I’m going to give it a proper go, and will keep what you said in mind. Thanks. Regarding the air coming out, I do very occasionally have that problem too, but only when I let my mouth "balloon" out, totally relaxing, and even then, only when the Micropore is not  in the right position. For me, I have found that I need to stick it on slightly below centre, such that slightly more tape is over my bottom lip than the top. (I now seem to get this right every time without any trouble at all. Slightly wider tape would make this even easier again). The fact that I am on a lower pressure may make the tape seal work better for me, too. I’m surprised that I have never woken with my cheeks in the ballooned out state. (i.e, mouth totally relaxed) Joe. " Chris" <trigger…@hotmail.com> wrote in message

news:oK%Va.4284$BY2.243@fe02.atl2.webusenet.com… – Hide quoted text — Show quoted text -> Joe, >      I have the chin strap now. I’ve tried the tape over the mouth, but it > seems that I still slip air through the tape or around it if the case may > be. The Chin strap seems to work better if it’s placed on a little bit > "tighter" than usual on me, and most importantly, UNDER the cpap mask > headgear. It seems to hold it in place longer. > -Chris

Response:

- Hide quoted text — Show quoted text -Joe wrote: > "Tal" <sleepbethdisord…@SoftHome.net> wrote in message > news:bg9hvc$ma0gv$1@ID-148111.news.uni-berlin.de… >>>How is this any different to a CPAP machine going off while one is > asleep, >>>say, due to a power failure? >>>Isn’t it the case that we will wake up naturally? Wouldn’t we wake up if >>our >>>nose became so blocked that it became too difficult to breath? When I > was >>>younger and not having any treatment whatsoever for my nocturnal asthma, > I >>>would always wake during the night when it became too difficult to > breath. >>it’s very different because every mask has an exhalation port…meaning > you >>can always breathe through either your mouth or your nose if you have >>problem with one or the other – the other difference being that tape not >>only prevents you from breathing through, but also opening your mouth. > You >>are right in that we SHOULD wake up should a problem occur, but by that >>stage it could be getting dangerously late in the situation. >>As i stated, breathing is not the only issue, coughing and vomiting can >>cause serious problems if you can’t open your mouth > Thanks Beth. When I wrote "how does this differ from the CPAP machine going > off", I had in my mind that it was a given that we wanted to seal our > mouths, to maintain CPAP pressure, but that wasn’t the issue at hand – sorry > about that. > Are you saying that a chin strap is designed to allow the mouth to open, if > we run into a problem such as you describe? I.e, a chin strap is a "gentle > persuasion" to hold our mouths closed, but that if a problem occurs, we will > still be able to open our mouths and breath through it, contrary to tape, > which is too difficult to overcome?  Or, is it the case that even a chin > strap is not recommended for long term use? > I’m actually slightly more worried about the CPAP machine going off (with my > mouth taped shut) than my nose being blocked, although my concern may not be > warranted. The reason I have this concern is that I’ve tried breathing > through the machine while it’s turned off, and I did get short of breath > very quickly, but I’m not sure that it would be enough to wake me.  I’m a > bit worried that I might slowly starve of oxygen, and gradually die of > suffocation in my sleep. I kind of doubt that this would happen if my nose > were blocked – I think it’s a different condition and my body would notice > this very quickly and wake up.  (like I always did with my nocturnal asthma) > For the time being, I’ve set up my PDA to sound an alarm if the power goes > off though. Currently there is no delay between the power going off to the > alarm being raised – I’m going to try to set up a delay so that I know > whether I will waken naturally when the power goes off, or not. > In any case, my hospital said that even with my mouth sealed, I won’t > suffocate – I’ll wake up if the power goes off. This contradicts the warning > in the CPAP machine documentation. Perhaps it’s mainly a risk for very sick > people, and they have to put this warning in for legal reasons, or > something? > I’m not very worried about vomiting. I’ve never vomited in my sleep, at > least, not a substantial quantity. Normally if I’m going to have a full > blown vomit, I would have been awake for a long time beforehand, feeling > sick.  I have had small quantities of reflux, but even without the CPAP > machine,  I have breathed it back in because I have not awoken quickly > enough. I don’t think the CPAP will have much effect on this with me. > What are the main risks with coughing? Is the main risk ear drum damage? > For me, all of these risks seem quite minor and entirely acceptable, given > that I’ve had my health problems for a very long time, and that I now have > something which may help me significantly.  I feel that I am much more at > risk simply driving on public roads to something terrible happening from > using CPAP with my mouth sealed. > Just by the way, it is possible to breath through Micropore anyway, a bit. > It’s porous. > I have a chin strap, but I haven’t felt the need to give it a serious go > yet, because I like the Micropore solution so much.  Due to your warnings > though I will give it a second look. Thanks. > Regards, > Joe.

In my first post to your inquiry, I asked, "Are you aware of the the potential hazards of using tape?"  Well, you are now. I didn’t quit using Micropore because I was concerned about the consequences; I stopped because I have a full beard and I didn’t like pulling it off in the morning.  And I never bothered with a ‘handle’ on the tape for emergencies.  Good, ultraconservative measure. With your first post, my concern was that you didn’t know of the hazards, so you couldn’t consider them in your decisions.  Now you know.  I don’t see any problem using it if it is comfortable, does the job, and you know all the potential problems. I chose a full face mask instead.  That’s what it was designed for.

Response:

Chris – Try this little experiment: close your jaw, take a breath (inhale), pinch your nose, try to exhale.  If you are able to do so, I doubt that a chipstrap could help you? You either need a full face mask or some kind of specially designed ‘xstrap’ that will keep your lips closed.    Chris wrote: – Hide quoted text — Show quoted text -> Joe, >      I have the chin strap now. I’ve tried the tape over the mouth, but it > seems that I still slip air through the tape or around it if the case may > be. The Chin strap seems to work better if it’s placed on a little bit > "tighter" than usual on me, and most importantly, UNDER the cpap mask > headgear. It seems to hold it in place longer. > -Chris > "Joe" <j…@nowhere.com> wrote in message > news:lI%Va.1163$xg4.249@news.cpqcorp.net… >>"Tal" <sleepbethdisord…@SoftHome.net> wrote in message >>news:bg9hvc$ma0gv$1@ID-148111.news.uni-berlin.de… >>>>How is this any different to a CPAP machine going off while one is >>asleep, >>>>say, due to a power failure? >>>>Isn’t it the case that we will wake up naturally? Wouldn’t we wake up > if >>>our >>>>nose became so blocked that it became too difficult to breath? When I >>was >>>>younger and not having any treatment whatsoever for my nocturnal > asthma, >>I >>>>would always wake during the night when it became too difficult to >>breath. >>>it’s very different because every mask has an exhalation port…meaning >>you >>>can always breathe through either your mouth or your nose if you have >>>problem with one or the other – the other difference being that tape not >>>only prevents you from breathing through, but also opening your mouth. >>You >>>are right in that we SHOULD wake up should a problem occur, but by that >>>stage it could be getting dangerously late in the situation. >>>As i stated, breathing is not the only issue, coughing and vomiting can >>>cause serious problems if you can’t open your mouth >>Thanks Beth. When I wrote "how does this differ from the CPAP machine > going >>off", I had in my mind that it was a given that we wanted to seal our >>mouths, to maintain CPAP pressure, but that wasn’t the issue at hand – > sorry >>about that. >>Are you saying that a chin strap is designed to allow the mouth to open, > if >>we run into a problem such as you describe? I.e, a chin strap is a "gentle >>persuasion" to hold our mouths closed, but that if a problem occurs, we > will >>still be able to open our mouths and breath through it, contrary to tape, >>which is too difficult to overcome?  Or, is it the case that even a chin >>strap is not recommended for long term use? >>I’m actually slightly more worried about the CPAP machine going off (with > my >>mouth taped shut) than my nose being blocked, although my concern may not > be >>warranted. The reason I have this concern is that I’ve tried breathing >>through the machine while it’s turned off, and I did get short of breath >>very quickly, but I’m not sure that it would be enough to wake me.  I’m a >>bit worried that I might slowly starve of oxygen, and gradually die of >>suffocation in my sleep. I kind of doubt that this would happen if my nose >>were blocked – I think it’s a different condition and my body would notice >>this very quickly and wake up.  (like I always did with my nocturnal > asthma) >>For the time being, I’ve set up my PDA to sound an alarm if the power goes >>off though. Currently there is no delay between the power going off to the >>alarm being raised – I’m going to try to set up a delay so that I know >>whether I will waken naturally when the power goes off, or not. >>In any case, my hospital said that even with my mouth sealed, I won’t >>suffocate – I’ll wake up if the power goes off. This contradicts the > warning >>in the CPAP machine documentation. Perhaps it’s mainly a risk for very > sick >>people, and they have to put this warning in for legal reasons, or >>something? >>I’m not very worried about vomiting. I’ve never vomited in my sleep, at >>least, not a substantial quantity. Normally if I’m going to have a full >>blown vomit, I would have been awake for a long time beforehand, feeling >>sick.  I have had small quantities of reflux, but even without the CPAP >>machine,  I have breathed it back in because I have not awoken quickly >>enough. I don’t think the CPAP will have much effect on this with me. >>What are the main risks with coughing? Is the main risk ear drum damage? >>For me, all of these risks seem quite minor and entirely acceptable, given >>that I’ve had my health problems for a very long time, and that I now have >>something which may help me significantly.  I feel that I am much more at >>risk simply driving on public roads to something terrible happening from >>using CPAP with my mouth sealed. >>Just by the way, it is possible to breath through Micropore anyway, a bit. >>It’s porous. >>I have a chin strap, but I haven’t felt the need to give it a serious go >>yet, because I like the Micropore solution so much.  Due to your warnings >>though I will give it a second look. Thanks. >>Regards, >>Joe.

Response:

Joe,      I have the chin strap now. I’ve tried the tape over the mouth, but it seems that I still slip air through the tape or around it if the case may be. The Chin strap seems to work better if it’s placed on a little bit "tighter" than usual on me, and most importantly, UNDER the cpap mask headgear. It seems to hold it in place longer. -Chris "Joe" <j…@nowhere.com> wrote in message

news:lI%Va.1163$xg4.249@news.cpqcorp.net… – Hide quoted text — Show quoted text -> "Tal" <sleepbethdisord…@SoftHome.net> wrote in message > news:bg9hvc$ma0gv$1@ID-148111.news.uni-berlin.de… > > > How is this any different to a CPAP machine going off while one is > asleep, > > > say, due to a power failure? > > > Isn’t it the case that we will wake up naturally? Wouldn’t we wake up if > > our > > > nose became so blocked that it became too difficult to breath? When I > was > > > younger and not having any treatment whatsoever for my nocturnal asthma, > I > > > would always wake during the night when it became too difficult to > breath. > > it’s very different because every mask has an exhalation port…meaning > you > > can always breathe through either your mouth or your nose if you have > > problem with one or the other – the other difference being that tape not > > only prevents you from breathing through, but also opening your mouth. > You > > are right in that we SHOULD wake up should a problem occur, but by that > > stage it could be getting dangerously late in the situation. > > As i stated, breathing is not the only issue, coughing and vomiting can > > cause serious problems if you can’t open your mouth > Thanks Beth. When I wrote "how does this differ from the CPAP machine going > off", I had in my mind that it was a given that we wanted to seal our > mouths, to maintain CPAP pressure, but that wasn’t the issue at hand – sorry > about that. > Are you saying that a chin strap is designed to allow the mouth to open, if > we run into a problem such as you describe? I.e, a chin strap is a "gentle > persuasion" to hold our mouths closed, but that if a problem occurs, we will > still be able to open our mouths and breath through it, contrary to tape, > which is too difficult to overcome?  Or, is it the case that even a chin > strap is not recommended for long term use? > I’m actually slightly more worried about the CPAP machine going off (with my > mouth taped shut) than my nose being blocked, although my concern may not be > warranted. The reason I have this concern is that I’ve tried breathing > through the machine while it’s turned off, and I did get short of breath > very quickly, but I’m not sure that it would be enough to wake me.  I’m a > bit worried that I might slowly starve of oxygen, and gradually die of > suffocation in my sleep. I kind of doubt that this would happen if my nose > were blocked – I think it’s a different condition and my body would notice > this very quickly and wake up.  (like I always did with my nocturnal asthma) > For the time being, I’ve set up my PDA to sound an alarm if the power goes > off though. Currently there is no delay between the power going off to the > alarm being raised – I’m going to try to set up a delay so that I know > whether I will waken naturally when the power goes off, or not. > In any case, my hospital said that even with my mouth sealed, I won’t > suffocate – I’ll wake up if the power goes off. This contradicts the warning > in the CPAP machine documentation. Perhaps it’s mainly a risk for very sick > people, and they have to put this warning in for legal reasons, or > something? > I’m not very worried about vomiting. I’ve never vomited in my sleep, at > least, not a substantial quantity. Normally if I’m going to have a full > blown vomit, I would have been awake for a long time beforehand, feeling > sick.  I have had small quantities of reflux, but even without the CPAP > machine,  I have breathed it back in because I have not awoken quickly > enough. I don’t think the CPAP will have much effect on this with me. > What are the main risks with coughing? Is the main risk ear drum damage? > For me, all of these risks seem quite minor and entirely acceptable, given > that I’ve had my health problems for a very long time, and that I now have > something which may help me significantly.  I feel that I am much more at > risk simply driving on public roads to something terrible happening from > using CPAP with my mouth sealed. > Just by the way, it is possible to breath through Micropore anyway, a bit. > It’s porous. > I have a chin strap, but I haven’t felt the need to give it a serious go > yet, because I like the Micropore solution so much.  Due to your warnings > though I will give it a second look. Thanks. > Regards, > Joe.

Response:

> I had the problem with the lips parting and the air rushing out, waking me > up. I’m simply taping my lips together with Micropore. > This is very quick and easy to do, and has completely fixed my problem. I’m > only on 11cm though.

please be  VERY careful doing this…and dont’ think of it as a long term solution. Taping your mouth shut can be dangerous.  OUr bodies will naturally try to breathe through our mouth if for some reason our nasal passages become blocked, it’s not wise to cut off this defense mechanism Also, if something causes you to vomit during the night, you may choke – not a good idea. you DON’T want to experience the pressure resulting from coughing wtih cpap on and mouth taped shut…..trust me on that one, it’s not pleasant. while you can say if you were going to vomit or cough you could just take the mask of…..but when you’re sleeping, that’s not necessarily going to happen…. I’m not saying dont’ do it, it’s your own risk to take, just letting you know i think you need to be careful if trying this option — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

"Tal" <sleepbethdisord…@SoftHome.net> wrote in message

news:bg844r$ln7ti$1@ID-148111.news.uni-berlin.de… > Taping your mouth shut can be dangerous.  OUr bodies will naturally try to > breathe through our mouth if for some reason our nasal passages become > blocked, it’s not wise to cut off this defense mechanism

How is this any different to a CPAP machine going off while one is asleep, say, due to a power failure? Isn’t it the case that we will wake up naturally? Wouldn’t we wake up if our nose became so blocked that it became too difficult to breath? When I was younger and not having any treatment whatsoever for my nocturnal asthma, I would always wake during the night when it became too difficult to breath. > Also, if something causes you to vomit during the night, you may choke – not > a good idea.

I’ve already had some reflux, and it certainly wasn’t a nice experience. However, so far I seem to wake just before anything comes all the way up. :) > you DON’T want to experience the pressure resulting from coughing wtih cpap > on and mouth taped shut…..trust me on that one, it’s not pleasant.

I haven’t coughed yet, but I have sneezed, and that wasn’t fun. :) > while you can say if you were going to vomit or cough you could just take > the mask of…..but when you’re sleeping, that’s not necessarily going to > happen…. > I’m not saying dont’ do it, it’s your own risk to take, just letting you > know i think you need to be careful if trying this option

Thanks for the heads up. I’m going to keep doing it though. I think it is easy for me to remove the tape –  I fold the end over, so that I have a tiny bit at the end which isn’t stuck to my skin. It’s very easy to grab that and pull the tape off quickly if required. Also, I checked with the sleep unit at my hospital, and they said it was ok. (in fact, it was them that put me onto the idea of Micropore – before that I was using thicker Leukoplast, which I can see now was overkill). Joe. (feeling alarmingly well on CPAP – if this is my "fix" it’s taken *decades* too long to disover!) – Hide quoted text — Show quoted text -> — > Beth in Australia > =================== > FAQ for alt.support.sleep-disorder can be found here > http://talhost.net/sleep > Newsgroup Archives http://talhost.net/sleep/archives.htm > this site is a work in progress – feel free to submit info/articles > Remove my name to reply

Response:

> How is this any different to a CPAP machine going off while one is asleep, > say, due to a power failure? > Isn’t it the case that we will wake up naturally? Wouldn’t we wake up if our > nose became so blocked that it became too difficult to breath? When I was > younger and not having any treatment whatsoever for my nocturnal asthma, I > would always wake during the night when it became too difficult to breath.

it’s very different because every mask has an exhalation port…meaning you can always breathe through either your mouth or your nose if you have problem with one or the other – the other difference being that tape not only prevents you from breathing through, but also opening your mouth.  You are right in that we SHOULD wake up should a problem occur, but by that stage it could be getting dangerously late in the situation. As i stated, breathing is not the only issue, coughing and vomiting can cause serious problems if you can’t open your mouth — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

I gotta tell ya, the first couple of nights with mine were HELL. And yes, I did find myself waking up with the mask off, and on the other side of the room still blowing out air from the mask. My Cocker found it interesting, (Found her with her face up against it. I wonder if they make em for dogs too??  :)  Yeah, I know, I got a weird dog… I upped the pressure 2 to 14, and that helped greatly. You might try upping the pressure by 1-2 MAX. I wouldn’t change it more than that without asking your doc. I gotta tell ya though, now that I’m used to it, I can’t sleep without it, and they can have my hose when they pry it from my cold dead fingers! :) -CHRIS "Ksdegilio" <ksdegi…@aol.com> wrote in message

news:20030729224400.07136.00000567@mb-m12.aol.com… – Hide quoted text — Show quoted text -> i just started using the cpap machine and hate it. i can only use a few hours a > nite and rip it off and go back to sleep without it.any suggestions on keeping > the mask on?

Response:

Joe,     I thought about the tape. Really the wifey thought of it one night after I had fell asleep without the mask (yes there was a LITTLE alcohol involved. :)  Only her idea due to my snoring had to do with Duck Tape and a full dace wrap for me. :) -Chris "Joe" <j…@nowhere.com> wrote in message

news:3f277b4d$1@duster.adelaide.on.net… – Hide quoted text — Show quoted text -> Hi Chris, > I had the problem with the lips parting and the air rushing out, waking me > up. I’m simply taping my lips together with Micropore. > This is very quick and easy to do, and has completely fixed my problem. I’m > only on 11cm though. > Joe. (also a new CPAP user)

Response:

Well, I have to say that I agree with the caution with the vomiting problem with the mouth taped shut thingy. But as far as the power failure thing, I’ve actually rolled in my sleep and pulled out the hose from the mask end, and slept through the night fine also. I’ve also reached over to hit the button to turn it on, thought I hit the right button, and missed apparently, (Yes, Alcohol was involved again), and slept for 3 or 4 hours before waking up realizing that my breathing wasn’t a "free flowing 14psi" as usual. The only thing that may have come close to choking me in my sleep was from the wifey due to my snoring before cpap. Have I mentioned that she has insomnia? Didn’t help much.. -Chris "Joe" <j…@nowhere.com> wrote in message

news:3f27bbbc$1@duster.adelaide.on.net… – Hide quoted text — Show quoted text -> "Tal" <sleepbethdisord…@SoftHome.net> wrote in message > news:bg844r$ln7ti$1@ID-148111.news.uni-berlin.de… > > Taping your mouth shut can be dangerous.  OUr bodies will naturally try to > > breathe through our mouth if for some reason our nasal passages become > > blocked, it’s not wise to cut off this defense mechanism > How is this any different to a CPAP machine going off while one is asleep, > say, due to a power failure? > Isn’t it the case that we will wake up naturally? Wouldn’t we wake up if our > nose became so blocked that it became too difficult to breath? When I was > younger and not having any treatment whatsoever for my nocturnal asthma, I > would always wake during the night when it became too difficult to breath. > > Also, if something causes you to vomit during the night, you may choke – > not > > a good idea. > I’ve already had some reflux, and it certainly wasn’t a nice experience. > However, so far I seem to wake just before anything comes all the way up. :) > > you DON’T want to experience the pressure resulting from coughing wtih > cpap > > on and mouth taped shut…..trust me on that one, it’s not pleasant. > I haven’t coughed yet, but I have sneezed, and that wasn’t fun. :) > > while you can say if you were going to vomit or cough you could just take > > the mask of…..but when you’re sleeping, that’s not necessarily going to > > happen…. > > I’m not saying dont’ do it, it’s your own risk to take, just letting you > > know i think you need to be careful if trying this option > Thanks for the heads up. I’m going to keep doing it though. I think it is > easy for me to remove the tape –  I fold the end over, so that I have a tiny > bit at the end which isn’t stuck to my skin. It’s very easy to grab that and > pull the tape off quickly if required. > Also, I checked with the sleep unit at my hospital, and they said it was ok. > (in fact, it was them that put me onto the idea of Micropore – before that I > was using thicker Leukoplast, which I can see now was overkill). > Joe. (feeling alarmingly well on CPAP – if this is my "fix" it’s taken > *decades* too long to disover!) > > — > > Beth in Australia > > =================== > > FAQ for alt.support.sleep-disorder can be found here > > http://talhost.net/sleep > > Newsgroup Archives http://talhost.net/sleep/archives.htm > > this site is a work in progress – feel free to submit info/articles > > Remove my name to reply

Response:

"Tal" <sleepbethdisord…@SoftHome.net> wrote in message

news:bg9hvc$ma0gv$1@ID-148111.news.uni-berlin.de… – Hide quoted text — Show quoted text -> > How is this any different to a CPAP machine going off while one is asleep, > > say, due to a power failure? > > Isn’t it the case that we will wake up naturally? Wouldn’t we wake up if > our > > nose became so blocked that it became too difficult to breath? When I was > > younger and not having any treatment whatsoever for my nocturnal asthma, I > > would always wake during the night when it became too difficult to breath. > it’s very different because every mask has an exhalation port…meaning you > can always breathe through either your mouth or your nose if you have > problem with one or the other – the other difference being that tape not > only prevents you from breathing through, but also opening your mouth. You > are right in that we SHOULD wake up should a problem occur, but by that > stage it could be getting dangerously late in the situation. > As i stated, breathing is not the only issue, coughing and vomiting can > cause serious problems if you can’t open your mouth

Thanks Beth. When I wrote "how does this differ from the CPAP machine going off", I had in my mind that it was a given that we wanted to seal our mouths, to maintain CPAP pressure, but that wasn’t the issue at hand – sorry about that. Are you saying that a chin strap is designed to allow the mouth to open, if we run into a problem such as you describe? I.e, a chin strap is a "gentle persuasion" to hold our mouths closed, but that if a problem occurs, we will still be able to open our mouths and breath through it, contrary to tape, which is too difficult to overcome?  Or, is it the case that even a chin strap is not recommended for long term use? I’m actually slightly more worried about the CPAP machine going off (with my mouth taped shut) than my nose being blocked, although my concern may not be warranted. The reason I have this concern is that I’ve tried breathing through the machine while it’s turned off, and I did get short of breath very quickly, but I’m not sure that it would be enough to wake me.  I’m a bit worried that I might slowly starve of oxygen, and gradually die of suffocation in my sleep. I kind of doubt that this would happen if my nose were blocked – I think it’s a different condition and my body would notice this very quickly and wake up.  (like I always did with my nocturnal asthma) For the time being, I’ve set up my PDA to sound an alarm if the power goes off though. Currently there is no delay between the power going off to the alarm being raised – I’m going to try to set up a delay so that I know whether I will waken naturally when the power goes off, or not. In any case, my hospital said that even with my mouth sealed, I won’t suffocate – I’ll wake up if the power goes off. This contradicts the warning in the CPAP machine documentation. Perhaps it’s mainly a risk for very sick people, and they have to put this warning in for legal reasons, or something? I’m not very worried about vomiting. I’ve never vomited in my sleep, at least, not a substantial quantity. Normally if I’m going to have a full blown vomit, I would have been awake for a long time beforehand, feeling sick.  I have had small quantities of reflux, but even without the CPAP machine,  I have breathed it back in because I have not awoken quickly enough. I don’t think the CPAP will have much effect on this with me. What are the main risks with coughing? Is the main risk ear drum damage? For me, all of these risks seem quite minor and entirely acceptable, given that I’ve had my health problems for a very long time, and that I now have something which may help me significantly.  I feel that I am much more at risk simply driving on public roads to something terrible happening from using CPAP with my mouth sealed. Just by the way, it is possible to breath through Micropore anyway, a bit. It’s porous. I have a chin strap, but I haven’t felt the need to give it a serious go yet, because I like the Micropore solution so much.  Due to your warnings though I will give it a second look. Thanks. Regards, Joe.

Response:

i just started using the cpap machine and hate it. i can only use a few hours a nite and rip it off and go back to sleep without it.any suggestions on keeping the mask on?

Response:

Hi Chris, I had the problem with the lips parting and the air rushing out, waking me up. I’m simply taping my lips together with Micropore. This is very quick and easy to do, and has completely fixed my problem.  I’m only on 11cm though. Joe. (also a new CPAP user)

Response:

Joe wrote: > Hi Chris, > I had the problem with the lips parting and the air rushing out, waking me > up. I’m simply taping my lips together with Micropore. > This is very quick and easy to do, and has completely fixed my problem.  I’m > only on 11cm though. > Joe. (also a new CPAP user)

I, too, have used Micropore tape.  So has Patrick Richards and a number of others, on a temporaty basis. Are you aware of the the potential hazards of using tape?

Response:

> i just started using the cpap machine and hate it. i can only use a few hours a > nite and rip it off and go back to sleep without it.any suggestions on keeping > the mask on?

there are some things here http://talhost.net/sleep/cpap.htm you might find helpful…… if you have any specific questions that aren’t mentioned on the webpage, be sure to ask here! It can take some time and patience to get used to the CPAP, but you won’t regret it. — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply

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   Chris wrote: > Another GREAT point about the CPAP machine that I love is the fact that it’s > knocked out my snoring!

Happens to many on CPAP. > It makes life SO much nicer around the house now > that I’m not keeping the wifey up with my snoring anymore! (Which I might ad > is what got me to go get the sleep study done in the first place.) > She says no matter how wierd the mask looks on me, if I quit using it and > start snoring again, she’s getting the frying pan out of the kitchen!! :) > -Chris

Nice to have someone new with a sense of humour.  REALLY!!! <VBG>

Response:

Another GREAT point about the CPAP machine that I love is the fact that it’s knocked out my snoring! It makes life SO much nicer around the house now that I’m not keeping the wifey up with my snoring anymore! (Which I might ad is what got me to go get the sleep study done in the first place.) She says no matter how wierd the mask looks on me, if I quit using it and start snoring again, she’s getting the frying pan out of the kitchen!! :) -Chris

Response:

   Chris wrote: – Hide quoted text — Show quoted text -> Hello everyone. I’m a newbie to the CPAP family. I went for my Sleep Test > about 3 months ago. I was diagnosed with Apnea, and RSL. (Restless Leg > Syndrome) They first started me out with the basic Cpap machine with > Humidifier, and a nose mask. (Sorry, don’t know the correct terminology > yet.) Since then I’ve received a new machine with a humidifier that plugs > onto the front of the machine. I was started out at a pressure of 12, and > have since moved up to 14. Doctor said my morning headaches were probably > due to the fact that my brain wasn’t getting enough O2. Problem one solved. > They’ve also switched me to the nose "Gel" type mask which fits better and > is more comfortable. I have developed a problem though. My lips keep > parting, all the air runs out, and my mouth gets EXTREMELY dry, and keeps > waking me up. They’ve sent me a chin strap to help keep my mouth closed but > it keeps sliding around, I lose the pressure on the lower chin and bingo! > The lips open again. She’s also put me on a prescription of CLONAZEPAM 1Mg. > Twice at bedtime. It’s definitely helped in my staying asleep and moving > around at night, which is keeping the chin strap on better. The doc is > shipping me a full face mask to try, but I’ve heard they don’t seal as well.

That is unadulterated bull crap.  I’ve been wearing a FFM ever since I started to experience the symptoms you describe.  That was about 19 months ago.  For 18 months I used the ResMed Series 2 FFM.  For the last month I have been using the new Respironics FFM.  And I have done this with a full beard from short to long. A FFM is the only way to assure that if your lips part, you will continue to get full CPAP treatment.  That is what it was designed for.  You may or may not have this success with a chinstrap.  I’m not real sure, anymore, what chinstraps were designed to do for the problem. Although I am still trying to figure out how to ‘properly’ use the ‘one size fits all’ headgear with the Respironics, it has a feature that I’m not sure they are even aware of. A FFM can make one’s mouth even drier, if the lips continue to part, because the PAP is being blown right into your mouth.  This was causing me a chronic, all day long, very sore, tongue. However, I realized the instant I put on the Respironics mask that it provided some upward/inward pressure at about my gumline.   This is keeping my lips closed….. no dry mouth, no sore tongue.  One more step for humanity. So be sure that your doctor is sending a Respironics.  They are by no means equivalent. > The Gel mask seems to leave a big red spot in my forehead, and a permanent > red spot on the bridge of my nose.

Many people have this problem.  It usually means the mask it too tight (i.e. not lose enough).  Same problem with FFM. Loosen the mask so that it won’t stay on when you are sitting up.   Then tighten each strap just enough to keep it on your face/head.    Start your blower, and lay down.  The air pressure helps to seal the mask. As you lay there, listen and check with your hand to determine if there are any leaks.  If there are, use both hands to symetrically lift the mask off your face and reseat it. If it still leaks, press on the area of the leak till it goes away.  This will give you some idea about how much you will have to tighten to eliminate that particular leak. If you sleep on your side, you may have tighten it a little more.   If you do it as I’ve described, you won’t ever overtighten it, and it will always be loose enough. > I also have GERD (Acid Reflux) which the > doc has had me on Prevacid 30mg once a day for the last 4 years. Now since > starting the CPAP, my need for the Prevacid has decreased greatly.

Happens to many when they get on CPAP. > Anyone > else ever used the gel mask and had problems with "pressure" marks on the > forehead and nose?

Happens often.  Mask is, obviously, too tight. HTH > I asked if they could just give me the machine my Dentist hooks me up to > with the Nitrous, but they just laughed…:)

hehehe – Hide quoted text — Show quoted text -> -Chris > Any comments but spam welcome.

Response:

Hello everyone. I’m a newbie to the CPAP family. I went for my Sleep Test about 3 months ago. I was diagnosed with Apnea, and RSL. (Restless Leg Syndrome) They first started me out with the basic Cpap machine with Humidifier, and a nose mask. (Sorry, don’t know the correct terminology yet.) Since then I’ve received a new machine with a humidifier that plugs onto the front of the machine. I was started out at a pressure of 12, and have since moved up to 14. Doctor said my morning headaches were probably due to the fact that my brain wasn’t getting enough O2. Problem one solved. They’ve also switched me to the nose "Gel" type mask which fits better and is more comfortable. I have developed a problem though. My lips keep parting, all the air runs out, and my mouth gets EXTREMELY dry, and keeps waking me up. They’ve sent me a chin strap to help keep my mouth closed but it keeps sliding around, I lose the pressure on the lower chin and bingo! The lips open again. She’s also put me on a prescription of CLONAZEPAM 1Mg. Twice at bedtime. It’s definitely helped in my staying asleep and moving around at night, which is keeping the chin strap on better. The doc is shipping me a full face mask to try, but I’ve heard they don’t seal as well. The Gel mask seems to leave a big red spot in my forehead, and a permanent red spot on the bridge of my nose. I also have GERD (Acid Reflux) which the doc has had me on Prevacid 30mg once a day for the last 4 years. Now since starting the CPAP, my need for the Prevacid has decreased greatly. Anyone else ever used the gel mask and had problems with "pressure" marks on the forehead and nose? I asked if they could just give me the machine my Dentist hooks me up to with the Nitrous, but they just laughed…:) -Chris Any comments but spam welcome.

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Surgery@@@

Question:

Do a search on Riley and Powell.  They have a 3 phase surgery that works in most cases.  I had 2 of the surgeries done. The jaw advvacement is the best choice for cutting back on sleep apnea.  The throat tissue alone is not good at all.   "GALD" <fresh_gr…@webtv.net> wrote in message news:1838-3F256FBF-319@storefull-2213.public.lawson.webtv.net…    I have a question that im hoping someone can answer, though i have a   feeling there isn’t going to be. I have OSA, that is moderatley severe.   Though i can’t tell you if the outcome was accurate b/c  i only got 5   hours of sleep for there sleep study. Not even a full night, with 2   sleeping pills they finally got me to sleep after, i don’t know how many   hours. My insomina  is pretty severe. Even without the Cpap. I can’t   fall or go into sleep. The machine which works fine for most is not   working for me. I get painful bloating and bleching from it, no matter   at what pressure. Its also give me sore throat and ear aches. And my   machine has a humitfulier. My skin also gets sore from using it and im   young i can’t imagane going another 40-50 years with that thing. The Dr.   agreed that machine is not working out and that there are other options.   I have 2 other illiness, that cause my weight to be problem or the meds   for them. So i can’t mantian my sysmtops through weight loss. Which i   lost 40 pounds. And made no difference on my breathing anyways. We were   looking at surgical, which i haven’t seen anyone in here disscuss. They   think most of my prob is my jaw. Which is underdeveolped scine birth. I   don’t think it looks bad. But it is the cause of my apnea. So there was   talk of UPPP surgery. Which is the tissue one. But i can’t see how that   help if its my jaw. Another is skrinking my tong. or suspenstion. But i   have dental problems from the jaw and don’t see a point in a surgery   that fixes the apnea with moving or shrinking the tong. and not using   one that will address both. And the one that would do that is   Mandibuliar Advancement. Moving both upper and lower jaw. It also has a   good success rate. For my disorder. But even though they know this they   are hesiant about having that one done. Which i don’t understand why. I   don’t want to have to go through a bunch of useless surgerys frist.   Which is dangroues for us anways. Can anyone osa person or Dr. tell me   any of there experiances with these surgeries. Good and bad. And   espcially the mandibuliar advancement. what to epexct. why doc choses   for you to have that one(surgery), what crteria did u meet that they   thought the jaw advanement would be better over all the other surgeries.   Are u mod-severe or severe. if severe what casuing your blockage. Is   anyone happy with there surgerys. ???? Thanks for the help! ————————————————————————— —   SultryRose Signatures

Response:

Surgery for apnea usually has poor results (except for tracheostomy). However, there are doctors who can do sort of a ‘motion MRI’ kind of thing while you are asleep. This can specifically identify the structural cause of the problem. If the doc can do this (identify the specific cause and prove conclusively that a specific surgery will fix that cause), surgery may be an answer. That is an exception. In most cases, the main result of the surgery is to buy the $urgeon a new Lexu$. regards, eric pearson db2e…@nospammindspring.com On Mon, 28 Jul 2003 13:47:27 -0500 (CDT), fresh_gr…@webtv.net (GALD) wrote: – Hide quoted text — Show quoted text -> I have a question that im hoping someone can answer, though i have a >feeling there isn’t going to be. I have OSA, that is moderatley severe. >Though i can’t tell you if the outcome was accurate b/c  i only got 5 >hours of sleep for there sleep study. Not even a full night, with 2 >sleeping pills they finally got me to sleep after, i don’t know how many >hours. My insomina  is pretty severe. Even without the Cpap. I can’t >fall or go into sleep. The machine which works fine for most is not >working for me. I get painful bloating and bleching from it, no matter >at what pressure. Its also give me sore throat and ear aches. And my >machine has a humitfulier. My skin also gets sore from using it and im >young i can’t imagane going another 40-50 years with that thing. The Dr. >agreed that machine is not working out and that there are other options. >I have 2 other illiness, that cause my weight to be problem or the meds >for them. So i can’t mantian my sysmtops through weight loss. Which i >lost 40 pounds. And made no difference on my breathing anyways. We were >looking at surgical, which i haven’t seen anyone in here disscuss. They >think most of my prob is my jaw. Which is underdeveolped scine birth. I >don’t think it looks bad. But it is the cause of my apnea. So there was >talk of UPPP surgery. Which is the tissue one. But i can’t see how that >help if its my jaw. Another is skrinking my tong. or suspenstion. But i >have dental problems from the jaw and don’t see a point in a surgery >that fixes the apnea with moving or shrinking the tong. and not using >one that will address both. And the one that would do that is >Mandibuliar Advancement. Moving both upper and lower jaw. It also has a >good success rate. For my disorder. But even though they know this they >are hesiant about having that one done. Which i don’t understand why. I >don’t want to have to go through a bunch of useless surgerys frist. >Which is dangroues for us anways. Can anyone osa person or Dr. tell me >any of there experiances with these surgeries. Good and bad. And >espcially the mandibuliar advancement. what to epexct. why doc choses >for you to have that one(surgery), what crteria did u meet that they >thought the jaw advanement would be better over all the other surgeries. >Are u mod-severe or severe. if severe what casuing your blockage. Is >anyone happy with there surgerys. ???? Thanks for the help!

Response:

eric wrote: >Surgery for apnea usually has poor results (except for tracheostomy).

  This is true of many surgeries ostensibly performed for Apnea, but the particular surgery the OP is referring to (MMA) is, to my knowledge, fairly successful (though extreme).   Can you provide a citation for poor results of this surgery? JGM

Response:

There are many, many, many posts in the archives.  Go to: http://groups.google.com/groups?oi=djq&as_ugroup=alt.support.sleep-di… Search for UPPP and/or surgery or any other keyword. I would suggest that you do this before you even consider surgery . – Hide quoted text — Show quoted text -GALD wrote: >  I have a question that im hoping someone can answer, though i have a > feeling there isn’t going to be. I have OSA, that is moderatley severe. > Though i can’t tell you if the outcome was accurate b/c  i only got 5 > hours of sleep for there sleep study. Not even a full night, with 2 > sleeping pills they finally got me to sleep after, i don’t know how many > hours. My insomina  is pretty severe. Even without the Cpap. I can’t > fall or go into sleep. The machine which works fine for most is not > working for me. I get painful bloating and bleching from it, no matter > at what pressure. Its also give me sore throat and ear aches. And my > machine has a humitfulier. My skin also gets sore from using it and im > young i can’t imagane going another 40-50 years with that thing. The Dr. > agreed that machine is not working out and that there are other options. > I have 2 other illiness, that cause my weight to be problem or the meds > for them. So i can’t mantian my sysmtops through weight loss. Which i > lost 40 pounds. And made no difference on my breathing anyways. We were > looking at surgical, which i haven’t seen anyone in here disscuss. They > think most of my prob is my jaw. Which is underdeveolped scine birth. I > don’t think it looks bad. But it is the cause of my apnea. So there was > talk of UPPP surgery. Which is the tissue one. But i can’t see how that > help if its my jaw. Another is skrinking my tong. or suspenstion. But i > have dental problems from the jaw and don’t see a point in a surgery > that fixes the apnea with moving or shrinking the tong. and not using > one that will address both. And the one that would do that is > Mandibuliar Advancement. Moving both upper and lower jaw. It also has a > good success rate. For my disorder. But even though they know this they > are hesiant about having that one done. Which i don’t understand why. I > don’t want to have to go through a bunch of useless surgerys frist. > Which is dangroues for us anways. Can anyone osa person or Dr. tell me > any of there experiances with these surgeries. Good and bad. And > espcially the mandibuliar advancement. what to epexct. why doc choses > for you to have that one(surgery), what crteria did u meet that they > thought the jaw advanement would be better over all the other surgeries. > Are u mod-severe or severe. if severe what casuing your blockage. Is > anyone happy with there surgerys. ???? Thanks for the help! > ———————————————————————— > SultryRose Signatures > <http://www.angelfire.com/tx4/SultryRoseSigs/email/index.html>

Response:

There are lots of very serious issues relating to surgery, and we’ve talked about them a lot here, just perhaps not in the last week or two… the archives contain most of the posts and it would be very wise of you to actually search for UPPP there – you’ll get a good idea of just what kind of risks you’d really be taking should you chose to go down that road.  The MMA surgery is also a really serious surgery, it’s not a walk in the park and there can be many concequences. Take a look at the FAQ website if you haven’t already, there are some suggestions there that talk about dealing with various issues you’re facing with CPAP treatment.  Also……don’t think of it as something you’ll have to do for the next 40-50 years, because the medical field is advancing at such a rate i’m confident they’ll have a better than CPAP (and DEFINATELY better than surgery) option for treating apnea. — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply "GALD" <fresh_gr…@webtv.net> wrote in message

news:1838-3F256FBF-319@storefull-2213.public.lawson.webtv.net…  I have a question that im hoping someone can answer, though i have a feeling there isn’t going to be. I have OSA, that is moderatley severe. Though i can’t tell you if the outcome was accurate b/c  i only got 5 hours of sleep for there sleep study. Not even a full night, with 2 sleeping pills they finally got me to sleep after, i don’t know how many hours. My insomina  is pretty severe. Even without the Cpap. I can’t fall or go into sleep. The machine which works fine for most is not working for me. I get painful bloating and bleching from it, no matter at what pressure. Its also give me sore throat and ear aches. And my machine has a humitfulier. My skin also gets sore from using it and im young i can’t imagane going another 40-50 years with that thing. The Dr. agreed that machine is not working out and that there are other options. I have 2 other illiness, that cause my weight to be problem or the meds for them. So i can’t mantian my sysmtops through weight loss. Which i lost 40 pounds. And made no difference on my breathing anyways. We were looking at surgical, which i haven’t seen anyone in here disscuss. They think most of my prob is my jaw. Which is underdeveolped scine birth. I don’t think it looks bad. But it is the cause of my apnea. So there was talk of UPPP surgery. Which is the tissue one. But i can’t see how that help if its my jaw. Another is skrinking my tong. or suspenstion. But i have dental problems from the jaw and don’t see a point in a surgery that fixes the apnea with moving or shrinking the tong. and not using one that will address both. And the one that would do that is Mandibuliar Advancement. Moving both upper and lower jaw. It also has a good success rate. For my disorder. But even though they know this they are hesiant about having that one done. Which i don’t understand why. I don’t want to have to go through a bunch of useless surgerys frist. Which is dangroues for us anways. Can anyone osa person or Dr. tell me any of there experiances with these surgeries. Good and bad. And espcially the mandibuliar advancement. what to epexct. why doc choses for you to have that one(surgery), what crteria did u meet that they thought the jaw advanement would be better over all the other surgeries. Are u mod-severe or severe. if severe what casuing your blockage. Is anyone happy with there surgerys. ???? Thanks for the help! SultryRose Signatures

Response:

 I have a question that im hoping someone can answer, though i have a feeling there isn’t going to be. I have OSA, that is moderatley severe. Though i can’t tell you if the outcome was accurate b/c  i only got 5 hours of sleep for there sleep study. Not even a full night, with 2 sleeping pills they finally got me to sleep after, i don’t know how many hours. My insomina  is pretty severe. Even without the Cpap. I can’t fall or go into sleep. The machine which works fine for most is not working for me. I get painful bloating and bleching from it, no matter at what pressure. Its also give me sore throat and ear aches. And my machine has a humitfulier. My skin also gets sore from using it and im young i can’t imagane going another 40-50 years with that thing. The Dr. agreed that machine is not working out and that there are other options. I have 2 other illiness, that cause my weight to be problem or the meds for them. So i can’t mantian my sysmtops through weight loss. Which i lost 40 pounds. And made no difference on my breathing anyways. We were looking at surgical, which i haven’t seen anyone in here disscuss. They think most of my prob is my jaw. Which is underdeveolped scine birth. I don’t think it looks bad. But it is the cause of my apnea. So there was talk of UPPP surgery. Which is the tissue one. But i can’t see how that help if its my jaw. Another is skrinking my tong. or suspenstion. But i have dental problems from the jaw and don’t see a point in a surgery that fixes the apnea with moving or shrinking the tong. and not using one that will address both. And the one that would do that is Mandibuliar Advancement. Moving both upper and lower jaw. It also has a good success rate. For my disorder. But even though they know this they are hesiant about having that one done. Which i don’t understand why. I don’t want to have to go through a bunch of useless surgerys frist. Which is dangroues for us anways. Can anyone osa person or Dr. tell me any of there experiances with these surgeries. Good and bad. And espcially the mandibuliar advancement. what to epexct. why doc choses for you to have that one(surgery), what crteria did u meet that they thought the jaw advanement would be better over all the other surgeries. Are u mod-severe or severe. if severe what casuing your blockage. Is anyone happy with there surgerys. ???? Thanks for the help!

SultryRoseSignatures

Response: