?????Looking for SF Area Sleep MD Referral?????

Question:

I had the UPPP surgery done in 2001. The doctor/surgeon that I used barely spent 15 minutes rushing me in and out of his office for the pre-surgery consultation. Earlier this year, I needed to go back for another sleep study. My PCP referred me to : California Institute of Sleep Medicine 500 E Remington Dr Suite 18, Sunnyvale, CA 94087 (408) 730-1268 The doctor that I dealt with there, spent more than an hour during the initial consultation and diagnosis. She was very knowledgeable, helpful, thorough. I would heartily recommend the clinic. Tim – Hide quoted text — Show quoted text -Rich wrote: > Does anyone have an awesome Sleep MD in the SF Bay Area.  I am > frustrated with my options so far.  I need someone that is highly > analytical and persistant. My Sleep Apnea seems to be somewhat unusual > and after 5 years I am getting worse all the time.  THanks.

Response:

Dr. Theresa Buckly at the Stanford Sleep Clinic. I *love* her! and, everyone at the lab has been great—really nice & knowledgeable. I’ve done sleep study there twice this year. She’s really *worked* to find a dx that works for me. As for DME, I’m so happy that I chose to work with SleepQuest—They’ve been great with changing out machines & masks to find what works for me.

Response:

Yes, Henry did my sleep study in Nov.  I agree with your assessment!

Response:

Does anyone have an awesome Sleep MD in the SF Bay Area.  I am frustrated with my options so far.  I need someone that is highly analytical and persistant. My Sleep Apnea seems to be somewhat unusual and after 5 years I am getting worse all the time.  THanks.

Response:

ENT who ordered my sleep study was an *#% hole.  I was much more impressed with the lab that did my sleep study.  Did not meet with her, but you might try Vivien C. Abad, MD, Medical Director of the Clinical Monitoring Sleep Disorders Center, Inc.  She is Diplomate, American Board of Sleep Medicine.  Works with Laughton E. Miles, MD,  also Diplomate, American Board of Sleep Medicine.  Their lab is accredited by American Academy of Sleep Medicine.

Response:

Sleepsearch wrote: > ENT who ordered my sleep study was an *#% hole.  I was > much more impressed with the lab that did my sleep study. > Did not meet with her, but you might try Vivien C. Abad, > MD, Medical Director of the Clinical Monitoring Sleep > Disorders Center, Inc.  She is Diplomate, American Board > of Sleep Medicine.  Works with Laughton E. Miles, MD, > also Diplomate, American Board of Sleep Medicine.  Their > lab is accredited by American Academy of Sleep Medicine.

I believe that Laughton Miles retired. I don’t know if he is still there but Henry Lu (?) is a most excellent sleep lab tech. -Quick

Response:

The guy who I use at the UCSF sleep lab at Mt. Zion wasn’t impressive either. I can’t eremember his name but he’s the head of the department. I went to him for both apnea as well as other pulmonary problems (he’s also a pulmonmologist) but he wasn’t remotely interested in anything else besides the apnea and ju sort of ignored the rest. The sleep tech for my polysomnography, however, was fine! He was, however, much better than Anstella Robinson who was the head of a sleep lab in San Francisco that was run by Stanford, I think. I think she went to another Stanford sleep lab in the south or east bay. she was just wierd. I hope there are some GOOD people identified! Susan – Hide quoted text — Show quoted text -Rich wrote: > Does anyone have an awesome Sleep MD in the SF Bay Area.  I am > frustrated with my options so far.  I need someone that is highly > analytical and persistant. My Sleep Apnea seems to be somewhat unusual > and after 5 years I am getting worse all the time.  THanks.

Response:

OT-Tips from insomniacs

Question:

- Hide quoted text — Show quoted text ->From: "Marilee" >"Frankenmel" <franken…@aol.comatose> wrote in message >news:20040719133658.24921.00000065@mb-m20.aol.com… >> >From: "Marilee" >> >"Susan " <suf…@aol.comnospam> wrote in message >> >news:20040719123156.14094.00000485@mb-m21.aol.com… >> >> My SIL (younger) used to create imaginary conversations between various >> >Jane >> >> Austen characters when she couldn’t sleep. >> >> Makes me feel like an inadequate insomniac, by comparison.  :-/ >> >The psychologist I saw years ago said she used to envision herself a >painter >> >in Paris, painting wonderful works of art on a public street where >> >passers-by would stop and admire her work. >> >I design/envision a completely off-the-wall dwelling, with any number of >> >rooms, nooks, crannied, labor saving devices, etc. >> gosh,I thought I was the only one who enjoyed doing that. When I was a >little >> girl,I’d spend hours designing cool houses on paper with all kinds of >> interesting details. I was hoping to find a software that would allow me >to do >> house designing on paper…a free program,that is….a game sort of thing. >Once >> when I was going through some stress,I imagined a sitting room with a huge >> sliding glass window that looked out on the most beautiful garden. And I >> invited in a grandmotherly sort who would give me soothing words. >Akron, beer, and Poor Thing?

Come again??? Sharon……..Don’t think of it as getting hot flashes. Think of it as your inner child playing with matches.

Response:

"Frankenmel" <franken…@aol.comatose> wrote in message

news:20040719143158.16860.00001227@mb-m20.aol.com… – Hide quoted text — Show quoted text -> >From: "Marilee" > >> gosh,I thought I was the only one who enjoyed doing that. When I was a > >little > >> girl,I’d spend hours designing cool houses on paper with all kinds of > >> interesting details. I was hoping to find a software that would allow me > >to do > >> house designing on paper…a free program,that is….a game sort of thing. > >Once > >> when I was going through some stress,I imagined a sitting room with a huge > >> sliding glass window that looked out on the most beautiful garden. And I > >> invited in a grandmotherly sort who would give me soothing words. > >Akron, beer, and Poor Thing? > Come again???

Obscure movie reference, I guess.  From the movie "Harvey". Marilee

Response:

- Hide quoted text — Show quoted text ->From: "Marilee" >"Frankenmel" <franken…@aol.comatose> wrote in message >news:20040719143158.16860.00001227@mb-m20.aol.com… >> >From: "Marilee" >> >> gosh,I thought I was the only one who enjoyed doing that. When I was a >> >little >> >> girl,I’d spend hours designing cool houses on paper with all kinds of >> >> interesting details. I was hoping to find a software that would allow >me >> >to do >> >> house designing on paper…a free program,that is….a game sort of >thing. >> >Once >> >> when I was going through some stress,I imagined a sitting room with a >huge >> >> sliding glass window that looked out on the most beautiful garden. And >I >> >> invited in a grandmotherly sort who would give me soothing words. >> >Akron, beer, and Poor Thing? >> Come again??? >Obscure movie reference, I guess.  From the movie "Harvey".

OH ok. I saw that as a child. Sharon……..Don’t think of it as getting hot flashes. Think of it as your inner child playing with matches.

Response:

"Frankenmel" <franken…@aol.comatose> wrote in message

news:20040719150727.16860.00001228@mb-m20.aol.com… – Hide quoted text — Show quoted text -> >From: "Marilee" > >"Frankenmel" <franken…@aol.comatose> wrote in message > >news:20040719143158.16860.00001227@mb-m20.aol.com… > >> >From: "Marilee" > >> >> gosh,I thought I was the only one who enjoyed doing that. When I was a > >> >little > >> >> girl,I’d spend hours designing cool houses on paper with all kinds of > >> >> interesting details. I was hoping to find a software that would allow > >me > >> >to do > >> >> house designing on paper…a free program,that is….a game sort of > >thing. > >> >Once > >> >> when I was going through some stress,I imagined a sitting room with a > >huge > >> >> sliding glass window that looked out on the most beautiful garden. And > >I > >> >> invited in a grandmotherly sort who would give me soothing words. > >> >Akron, beer, and Poor Thing? > >> Come again??? > >Obscure movie reference, I guess.  From the movie "Harvey". > OH ok. I saw that as a child.

So did I.  But it’s one of my favorites, so I’ve re-watched it many times. Ooooooo.  I feel another OT in the offing, perhaps. Marilee

Response:

In article <20040719123156.14094.00000…@mb-m21.aol.com>,  suf…@aol.comnospam (Susan ) wrote: > x-no-archive: yes > In article <20040719115525.26080.00000…@mb-m28.aol.com>, > franken…@aol.comatose (Frankenmel) writes: > >A tip I find helpful is to "play" a soothing song in my head. Also I > >sometimes > >imagine sitting by a stream in a forest and imagine birds twittering and the > >stream babbling. > My SIL (younger) used to create imaginary conversations between various Jane > Austen characters when she couldn’t sleep.

Hmmm.  Soporific pretension? > Makes me feel like an inadequate insomniac, by comparison.  :-/

Now stop that! Priscilla

Response:

In article <2m2bmnFhejp…@uni-berlin.de>,  "Marilee" <marilee_…@hotmail.com> wrote: > Or I play "The Minister’s Cat".

Que? Priscilla

Response:

In article <20040719125909.14094.00000…@mb-m21.aol.com>,  suf…@aol.comnospam (Susan ) wrote: > x-no-archive: yes > In article <vze23t8n-CFBEFA.12292819072…@news.verizon.net>, Priscilla Ballou > <vze23…@verizon.net> writes: > >On the contrary, I’ve used TV for years to distract my racing brain and > >allow myself to fall asleep.  Most modern TVs come with sleep timers, so > >when I feel drowsy I can set it to go off in 10 minutes, then roll over > >and be asleep (most of the time) before it clicks off. > My need to fall asleep with the TV on is a source of marital mayhem, since Tom > prefers to read.  If I know I’m trying to fall asleep, I can’t.  I have to > pretend I’m trying to watch TV, and just drift off.

I do that with reading books sometimes.  I often get drowsy when I read, so I’ll bring a book to bed and try to make myself read for a while.   Inevitably I get drowsy, and I let myself fall asleep with the light on and the book dropping from my hands.  Later in the night I wake up just enough to put the book aside and turn off the light. Which, along with the Asimov discussion (yes, I know the author I’m about to reference is Arthur C. Clarke) reminds me of two young men in my sister’s high school class.  One evening one called the other on the phone and asked him what he was doing.  "I’m reading _Against the Fall of Night_," the second replied.  "Ah!" returned the first.  "But *what* are you reading against the fall of night?"  Ba dum DUM! Priscilla

Response:

- Hide quoted text — Show quoted text ->From: "Marilee" >"Frankenmel" <franken…@aol.comatose> wrote in message >news:20040719150727.16860.00001228@mb-m20.aol.com… >> >From: "Marilee" >> >"Frankenmel" <franken…@aol.comatose> wrote in message >> >news:20040719143158.16860.00001227@mb-m20.aol.com… >> >> >From: "Marilee" >> >> >> gosh,I thought I was the only one who enjoyed doing that. When I was >a >> >> >little >> >> >> girl,I’d spend hours designing cool houses on paper with all kinds >of >> >> >> interesting details. I was hoping to find a software that would >allow >> >me >> >> >to do >> >> >> house designing on paper…a free program,that is….a game sort of >> >thing. >> >> >Once >> >> >> when I was going through some stress,I imagined a sitting room with >a >> >huge >> >> >> sliding glass window that looked out on the most beautiful garden. >And >> >I >> >> >> invited in a grandmotherly sort who would give me soothing words. >> >> >Akron, beer, and Poor Thing? >> >> Come again??? >> >Obscure movie reference, I guess.  From the movie "Harvey". >> OH ok. I saw that as a child. >So did I.  But it’s one of my favorites, so I’ve re-watched it many times. >Ooooooo.  I feel another OT in the offing, perhaps.

Go for it. Sharon……..Don’t think of it as getting hot flashes. Think of it as your inner child playing with matches.

Response:

"Priscilla Ballou" <vze23…@verizon.net> wrote in message

news:vze23t8n-3F51D8.15503819072004@news.verizon.net… > In article <2m2bmnFhejp…@uni-berlin.de>, >  "Marilee" <marilee_…@hotmail.com> wrote: > > Or I play "The Minister’s Cat". > Que? > Priscilla

"The Minister’s Cat is an angry cat with amber aunts. The Minister’s Cat is a big cat with bouncy beanbags. The Minster’s Cat is a calm cat with crazy credentials." etc. Actually, the "with" part is an extra that I added as sometimes my brain falls asleep while trying to think of a likely pair-up.  If you’re actually playing a game with little kids, you stop at the initial adjective. Marilee

Response:

- Hide quoted text — Show quoted text -Susan wrote: > x-no-archive: yes > In article <vze23t8n-CFBEFA.12292819072…@news.verizon.net>, Priscilla Ballou > <vze23…@verizon.net> writes: >>On the contrary, I’ve used TV for years to distract my racing brain and >>allow myself to fall asleep.  Most modern TVs come with sleep timers, so >>when I feel drowsy I can set it to go off in 10 minutes, then roll over >>and be asleep (most of the time) before it clicks off. > My need to fall asleep with the TV on is a source of marital mayhem, since Tom > prefers to read.  If I know I’m trying to fall asleep, I can’t.  I have to > pretend I’m trying to watch TV, and just drift off.

I snooze in front of the TV in the living room just about every day. It’s my favorite place to take a nap.  But at night, in deference to Hubster, I don’t put on the TV in the bedroom, and I like to read anyhow.  If I’m really wide awake and can’t fall asleep, I move to the LR and put on the TV. The problem with nighttime TV, of course, is the infomercials. Everywhere!  I’m _deathly_ afraid that if I sleep through these, I may wake up with a compelling desire to order an Elvis clock and napkin set.  And if I put on a movie, it’s like a good book – I may get too intrigued to fall asleep. FurPaw

Response:

"FurPaw" <furpawnews…@comcast.net> wrote in message

news:286dnXKOlOqtcGbdRVn-hQ@comcast.com… > For example, I’d add to the reading in bed one: read nothing too > intriguing that "captures" your imagination and interest.  That’s one of > my failings – I can read something of mild interest and be sleepy after > a few pages, but if I get caught up in a good novel, next thing I know > it’s 2 AM.

A good, or even decent, novel is and always has been a sure guarantee of insomnia for me.  Unless it was assigned reading when I was back in school, of course.  Didn’t matter how good it was or that the assignment was due the next day;  my body & mind both wanted to go to sleep.

Response:

In article <2m2oobFhuaj…@uni-berlin.de>, – Hide quoted text — Show quoted text - "Marilee" <marilee_…@hotmail.com> wrote: > "Priscilla Ballou" <vze23…@verizon.net> wrote in message > news:vze23t8n-3F51D8.15503819072004@news.verizon.net… > > In article <2m2bmnFhejp…@uni-berlin.de>, > >  "Marilee" <marilee_…@hotmail.com> wrote: > > > Or I play "The Minister’s Cat". > > Que? > > Priscilla > "The Minister’s Cat is an angry cat with amber aunts. > The Minister’s Cat is a big cat with bouncy beanbags. > The Minster’s Cat is a calm cat with crazy credentials." > etc. > Actually, the "with" part is an extra that I added as sometimes my brain > falls asleep while trying to think of a likely pair-up.  If you’re actually > playing a game with little kids, you stop at the initial adjective.

A-HA!  I’m going to have to play that with my niece!  Heh heh Priscilla

Response:

"Cathy Friedmann" <c…@adelphia.net> wrote in news:2m2aopFg8f11U1@uni- berlin.de: > I dislike drinking milk (as an adult) & just the *thought* of _warm_ milk > sounds awful to me – gag.  Otoh, sometimes tea – even regular tea – has > worked if I’m still awake at 2 or 3 am.

I always thought the idea of warm milk was awful.  Then once, many years ago, I was so desperate, I tried it.   It snapped me right back to my childhood.  See, it turns out that if you add cold milk to hot oatmeal, which I did every morning of my childhood, you get warm milk.  Oh, the taste isn’t *quite* the same, but close enough.   Especially if you add a little brown sugar to it.  :-) Chakolate — When people show you who they are, believe them.   –Maya Angelou

Response:

- Hide quoted text — Show quoted text ->From: "Marilee" >"Susan " <suf…@aol.comnospam> wrote in message >news:20040719123156.14094.00000485@mb-m21.aol.com… >> My SIL (younger) used to create imaginary conversations between various >Jane >> Austen characters when she couldn’t sleep. >> Makes me feel like an inadequate insomniac, by comparison.  :-/ >The psychologist I saw years ago said she used to envision herself a painter >in Paris, painting wonderful works of art on a public street where >passers-by would stop and admire her work. >I design/envision a completely off-the-wall dwelling, with any number of >rooms, nooks, crannied, labor saving devices, etc.

gosh,I thought I was the only one who enjoyed doing that. When I was a little girl,I’d spend hours designing cool houses on paper with all kinds of interesting details. I was hoping to find a software that would allow me to do house designing on paper…a free program,that is….a game sort of thing. Once when I was going through some stress,I imagined a sitting room with a huge sliding glass window that looked out on the most beautiful garden. And I invited in a grandmotherly sort who would give me soothing words. Sharon……..Don’t think of it as getting hot flashes. Think of it as your inner child playing with matches.

Response:

"Chakolate" <chakolateDeathToSpamm…@allvantage.com> wrote in message

news:Xns952B7C3794865chakolatehotmailcom@130.133.1.4… – Hide quoted text — Show quoted text -> "Cathy Friedmann" <c…@adelphia.net> wrote in news:2m2aopFg8f11U1@uni- > berlin.de: > > I dislike drinking milk (as an adult) & just the *thought* of _warm_ milk > > sounds awful to me – gag.  Otoh, sometimes tea – even regular tea – has > > worked if I’m still awake at 2 or 3 am. > I always thought the idea of warm milk was awful.  Then once, many years > ago, I was so desperate, I tried it. > It snapped me right back to my childhood.  See, it turns out that if you > add cold milk to hot oatmeal, which I did every morning of my childhood, > you get warm milk.  Oh, the taste isn’t *quite* the same, but close enough. > Especially if you add a little brown sugar to it.  :-) > Chakolate

I loved (cold) milk as a child. My grandmother, whenever she stayed w/ us, used to have warm milk before bedtime, & I thought the idea was awful even back then. I’ve never liked milk on my oatmeal, so that imagery wouldn’t work, either. Cathy

Response:

>From: Priscilla Ballou >I find both diphenhydramine (the sleep-inducing agent in most OTC sleep >aids) and melatonin to be reliable, safe, means of encouraging my brain >to go to sleep.  Melatonin works faster than diphenhydramine, but it can >raise my blood glucose. >Priscilla

Neither DH nor I found any help from melatonin. Sharon……..Don’t think of it as getting hot flashes. Think of it as your inner child playing with matches.

Response:

"Frankenmel" <franken…@aol.comatose> wrote in message

news:20040719133658.24921.00000065@mb-m20.aol.com… – Hide quoted text — Show quoted text -> >From: "Marilee" > >"Susan " <suf…@aol.comnospam> wrote in message > >news:20040719123156.14094.00000485@mb-m21.aol.com… > >> My SIL (younger) used to create imaginary conversations between various > >Jane > >> Austen characters when she couldn’t sleep. > >> Makes me feel like an inadequate insomniac, by comparison.  :-/ > >The psychologist I saw years ago said she used to envision herself a painter > >in Paris, painting wonderful works of art on a public street where > >passers-by would stop and admire her work. > >I design/envision a completely off-the-wall dwelling, with any number of > >rooms, nooks, crannied, labor saving devices, etc. > gosh,I thought I was the only one who enjoyed doing that. When I was a little > girl,I’d spend hours designing cool houses on paper with all kinds of > interesting details. I was hoping to find a software that would allow me to do > house designing on paper…a free program,that is….a game sort of thing. Once > when I was going through some stress,I imagined a sitting room with a huge > sliding glass window that looked out on the most beautiful garden. And I > invited in a grandmotherly sort who would give me soothing words.

Akron, beer, and Poor Thing? Marilee

Response:

In article <20040719112119.26080.00000…@mb-m28.aol.com>,  franken…@aol.comatose (Frankenmel) wrote: >  Move the television out, so you’re never tempted to watch it in > bed. Like a sunrise, its bright lights tell your brain that it’s time to be > awake.

On the contrary, I’ve used TV for years to distract my racing brain and allow myself to fall asleep.  Most modern TVs come with sleep timers, so when I feel drowsy I can set it to go off in 10 minutes, then roll over and be asleep (most of the time) before it clicks off. Priscilla

Response:

In article <20040719112119.26080.00000…@mb-m28.aol.com>, – Hide quoted text — Show quoted text - franken…@aol.comatose (Frankenmel) wrote: > Don’t take an over-the-counter sleep aid, like Excedrin PM or Nytol. These > products can safely promote sleep on the odd night when aches or pains make > it > hard to drop off, but doctors say that after a night or two, as the body > builds > tolerance, they stop working. > Don’t take melatonin, the health-food supplement that some people use to > treat > jet lag. "It’s not regulated by the Food and Drug Administration, so you > don’t > know what you’re getting," says Steven Scharf, M.D., medical director of the > Sleep Disorders Center at the University of Maryland, in College Park. "And > it > has failed to show any long-term benefit."

I find both diphenhydramine (the sleep-inducing agent in most OTC sleep aids) and melatonin to be reliable, safe, means of encouraging my brain to go to sleep.  Melatonin works faster than diphenhydramine, but it can raise my blood glucose. Priscilla

Response:

"Susan " <suf…@aol.comnospam> wrote in message

news:20040719123156.14094.00000485@mb-m21.aol.com… > My SIL (younger) used to create imaginary conversations between various Jane > Austen characters when she couldn’t sleep. > Makes me feel like an inadequate insomniac, by comparison.  :-/

The psychologist I saw years ago said she used to envision herself a painter in Paris, painting wonderful works of art on a public street where passers-by would stop and admire her work. I design/envision a completely off-the-wall dwelling, with any number of rooms, nooks, crannied, labor saving devices, etc. Or I play "The Minister’s Cat". Marilee

Response:

Remove all office equipment from your bedroom — it should be reserved for relaxation. Move the television out, so you’re never tempted to watch it in bed. Like a sunrise, its bright lights tell your brain that it’s time to be awake. Keep it cool. The temperature of the human body naturally drops a bit a night. Cool air supports that process. Establish a consistent bedtime and, more important, waking time. "It allows your brain to keep your body on a 24-hour schedule," says Robert Ballard, M.D., director of the Sleep Disorders Center at the National Jewish Medical and Research Center, in Denver. Take a warm bath. The water raises your body temperature so that when you get out, it falls — just as it naturally does during the night. Drink warm milk or herbal tea. By calming you, it cues your body that it’s time to sleep. Experiment with meditation or consciously try to relax your muscles. If you like to read before closing your eyes, choose reading material that’s relaxing, not upsetting. Try sex. It might lead to sleep in some cases what not to do: Don’t consume caffeine (including chocolate) within four to six hours of bedtime. Choose warm milk or herbal tea instead of caffeinated beverages. Don’t exercise within two hours of bedtime. It raises the heart rate and body temperature, waking you up. (Exercise earlier in the day can reduce stress.) Don’t take an over-the-counter sleep aid, like Excedrin PM or Nytol. These products can safely promote sleep on the odd night when aches or pains make it hard to drop off, but doctors say that after a night or two, as the body builds tolerance, they stop working. Don’t take melatonin, the health-food supplement that some people use to treat jet lag. "It’s not regulated by the Food and Drug Administration, so you don’t know what you’re getting," says Steven Scharf, M.D., medical director of the Sleep Disorders Center at the University of Maryland, in College Park. "And it has failed to show any long-term benefit." Sharon……..Don’t think of it as getting hot flashes. Think of it as your inner child playing with matches.

Response:

Arrgh…should have said "for" insomniacs. Sharon……..Don’t think of it as getting hot flashes. Think of it as your inner child playing with matches.

Response:

Frankenmel wrote: > Arrgh…should have said "for" insomniacs.

But they could also be "from" insomniacs. For example, I’d add to the reading in bed one: read nothing too intriguing that "captures" your imagination and interest.  That’s one of my failings – I can read something of mild interest and be sleepy after a few pages, but if I get caught up in a good novel, next thing I know it’s 2 AM. And read with the dimmest light you can tolerate. After lights out, watch the brain-generated light show that seems to dance across your eyelids.  It gives me a focus of attention that diverts the hamster cage from starting up, and puts me right to sleep most nights. Don’t drink anything a couple of hours before bedtime if you have acid reflux or heartburn at night.  There’s nothing like a good heartburn to keep you awake. FurPaw

Response:

>From: FurPaw >After lights out, watch the brain-generated light show that seems to >dance across your eyelids.  It gives me a focus of attention that >diverts the hamster cage from starting up, and puts me right to sleep >most nights.

I don’t see the light show behind my eyelids. At least I don’t think I do. A tip I find helpful is to "play" a soothing song in my head. Also I sometimes imagine sitting by a stream in a forest and imagine birds twittering and the stream babbling. Sharon……..Don’t think of it as getting hot flashes. Think of it as your inner child playing with matches.

Response:

I’ve tried most of these.  Personal notes on a few… "Frankenmel" <franken…@aol.comatose> wrote in message

news:20040719112119.26080.00000121@mb-m28.aol.com… > Remove all office equipment from your bedroom — it should be reserved for > relaxation. Move the television out, so you’re never tempted to watch it in > bed. Like a sunrise, its bright lights tell your brain that it’s time to be > awake. > Keep it cool. The temperature of the human body naturally drops a bit a night. > Cool air supports that process.

Ever since peri, I’ve *needed* it to be definitely cool in there.  I even have the heating vent in my bedroom shut all winter.  Any heat there is, it seeps in from the upstairs hallway. > Establish a consistent bedtime and, more important, waking time. "It allows > your brain to keep your body on a 24-hour schedule," says Robert Ballard, M.D., > director of the Sleep Disorders Center at the National Jewish Medical and > Research Center, in Denver.

 > Take a warm bath. The water raises your body temperature so that when you get > out, it falls — just as it naturally does during the night.

I’ve tried the warm bath several times; weeks, months, & years apart from the tries.  Has never worked.  I think it makes me too warm – or something…  (I normally take a shower in the morning, not at night.) > Drink warm milk or herbal tea. By calming you, it cues your body that it’s time > to sleep.

I dislike drinking milk (as an adult) & just the *thought* of _warm_ milk sounds awful to me – gag.  Otoh, sometimes tea – even regular tea – has worked if I’m still awake at 2 or 3 am. > Experiment with meditation or consciously try to relax your muscles. > If you like to read before closing your eyes, choose reading material that’s > relaxing, not upsetting.

I read every night – it’s very relaxing to me, & have found that I can read only fiction before falling asleep. If I read any sort of nonfiction – even pleasant stuff like a travel guide, it keeps my mind way too alert & I’ll just keep reading & reading, wide awake & thinking about what I’m reading. Cathy

Response:

Chelation Is Here To Stay

Question:

Facts are, people are using it will success.

success defined as no angiographic proof?? They are only concerned with RESULTS. It is a real pity that this dirty tactic group could care less if it saves from sawing open the chest and having bypasses. They are the group who want no further studies. have launched the first large-scale clinical trial to determine the safety and efficacy of EDTA chelation therapy in individuals

again Jan doesn’t bother to read the site she quotes.. when a "study" is undertaken Jannie…there is NO preconcieved evidence that the "hoped for by Jan Drew" results will result.. come back when this study is completed…not merely started..and we will talk..not that you will listen tell ya what ….you do the chelation..those of us with a brain,,,,will go for the heavy duty stuff hawki

Response:

Inspite of the witch hunts and dirty tactics of *organized medicine* Facts are, people are using it will success. They know all about the efforts to stop it, they are aware of the group of debunkers who eagerly claim, it doesn’t work, rather than it remains unproven. They are only concerned with

RESULTS. So are we. We want the treatment to RESULT in an opening of narrowed, hardened arteries, so that the diease process wil be reversed. Chelation has never done that. It is a real pity that this dirty tactic group could care less if it saves from sawing open the chest and having bypasses. They are the group who want no further studies.

If that is the only way of saving a life, less. Since chelation has never been shown to reverse atherosclerosis or arteriosclerosis, then surgery may be necessary.

Response:

Inspite of the witch hunts and dirty tactics of *organized medicine*

In spite of?  Looks from the URL that "Evil Organized Medicine" is plonking down big bucks to do this study. Facts are, people are using it will success. They know all about the efforts to stop it, they are aware of the group of debunkers who eagerly claim, it doesn’t work, rather than it remains unproven. They are only concerned with RESULTS. It is a real pity that this dirty tactic group could care less if it saves from sawing open the chest and having bypasses. They are the group who want no further studies. http://nccam.nih.gov/news/2002/chelation/pressrelease.htm

We’d better keep this on, since when it comes up negative Jan will insist that she knew it was part of the EOM conspiracy. — begin signature.exe A:

Looing for info on sleep study mask selection

Question:

Where did you have your titration done? – Hide quoted text — Show quoted text -Tom Devlin wrote: > NormC <no…@socal.rr.com> wrote: > >I think there are number of us who would like to get a better picture of what you can > >expect, or what you might be able to ask for, in the way of a CPAP interface (nasal >mask, full face mask, pillows) for use during a sleep test. > There was a plastic box full of masks (at least six types) sitting on > the end table when I got to my room. I only took a close look at the > Breeze, just to see if it was different than mine, but I’m sure that I > recognized both Mirage nasal and full-face versions. I’m not sure > about the others, but they were all clear plastic, not a gel mask in > the bunch. > >Has anyone been given the opportunity to try/select an interface before crawling into > >bed?  (Different day, earlier in the day, etc.) > They seemed to be fitting everybody except me, I brought my own > Breeze, whether they were there for a diagnostic test (and might fall > asleep soon enough for a split-test) or, naturally, for titration. > >Has anyone been given the opportunity after crawling into bed? > >Has anyone had an opportunity to try different interfaces during the test? > I tried three during my initial titration, the Breeze, Mirage > nasal,and Mirage full face. > Tom

Response:

Otter Perry <otter…@earthlink.net> wrote: >Where did you have your titration done?

St. Joseph Mercy Sleep Disorders Center, in Auburn Hills MI. Tom

Response:

this is a very good idea — I am going to try the new pressure tonite but I am going to ask my doc … when she responds about my new headset (hopefully today or tomorrow) about the autopap.  I am sure the sleep lab must have one around.  Or maybe the dme has one? He seemed to say that it was the sleep clinic department head’s opinion that in most cases, increased pressure or the appropriate pressure relieves open mouth.  I don’t know if that’s true but I suspect it might be true for me since in the first months of my usage, I had no such problems unless I had a cold or something and in fact, I was rarely troubled by colds.  So …. I appreciate your insistence.  I will consider and I think you could be right. This is hard … the waiting and the … worry and the not knowing.  I am thinking of investing in a little computer video cam so I can view what goes on! – Hide quoted text — Show quoted text -NormC wrote: > Susan Williamson Hill wrote: > > Norm, > > One more thing … we adjusted the size of the nasal pillows that nite too.  She got larger or > > smaller ones for me, I can’t remember.  I am seeing that I did have a good experience and I’m glad > > of it.  Now I just wish I could get my pressure regulated after 8 months.  I guess change just > > happens. > No!  Be proactive.  Don’t wait for another night in the sleep clinic.  Request to use an > autpPAP, NOW, to fine tune your pressure requirments.  I will be doing this today. > > Hope your appt. goes well… keep us posted. > > NormC wrote: > > > I’m very, very envious.  There’s not one single use thing I can tell anyone about.  My > > > experience was as short and sour (not sweet) as anything could be.  It makes me angry that > > > my internist sent me to that lab and even angrier that the lab didn’t do one single thing > > > like you mention. > > > If you don’t mind, I’d like to forward your post to my internist and take a copy of it > > > with me to the neurologist sleep doc tomorrow.  It was his clinic that did nothing! > > > Susan Williamson Hill wrote: > > > > When I had my test I had already visited this site and heard so many good things about the > > > > Breeze.  My doc sent me to the sleep lab the day before the test to see where I would be and > > > > have an orientation with the sleep technician.  A very nice and knowledgeable woman, tho a > > > > bit convicted about her choice of head gear. > > > > She gave me pamphlets and told me many things, most of which I was too sleepy to follow at > > > > the time.  Then she let me try the cpap sitting in a chair that partically reclined.  First > > > > she tried the Simplicity mask (her favorite) and I was pretty happy but asked for the Breeze > > > > and we even happier.  We tried two or more pillow sizes which I felt a little guilty about > > > > because they have to sterilize them after, but I still "stood up" for myself.  I wanted to > > > > stay there all afternoon and maybe rest a bit– if she had let me lie down I would have > > > > stayed all nite. > > > > She described the cpap to me in a very nice way.  She asked me if I had ever walked on the > > > > beach.  Thankfully I have — and if I had done this with a strong wind blowing in my face — > > > > which I have and if I didn’t breathe out against or with that wind.  And that, she said, in a > > > > more concentrated manner is the way the cpap functions.  Wow — I spent my time thinking > > > > beach instead of plastic, metal, pumps and hoses and it was nice. > > > > Since the Breeze fit well and worked better for me (less claustrophobic) the night of the > > > > test I asked for that and I asked for humidification and heat because I had heard about that > > > > here and it helped me so much.  I don’t think I would have been as successful without the > > > > heat and humidification.  The sleep technician was a good one, very attentive and very > > > > knowledgeable.  I think she was surprised when I asked for humidification and later for heat > > > > during the second part of the test (split study).  I was glad that it all went so well > > > > because I can see how it could be a total nightmare. > > > > I have heard of there being a laryngeal monitor that you have to swallow being used … ack > > > > I’m not sure if I would have done well with that. > > > > That’s my experience share…. > > > > NormC wrote: > > > > > I think there are number of us who would like to get a better picture of what you can > > > > > expect, or what you might be able to ask for, in the way of a CPAP interface (nasal mask, > > > > > full face mask, pillows) for use during a sleep test. > > > > > Has anyone been given the opportunity to try/select an interface before crawling into > > > > > bed?  (Different day, earlier in the day, etc.) > > > > > Has anyone been given the opportunity after crawling into bed? > > > > > Has anyone had an opportunity to try different interfaces during the test? > > > > > Bottom line is what have your experiences been in this very important matter?  In most > > > > > cases there is bound to be one or more titrations.  Let’s figure out how to get what we > > > > > need! > > > > > TIA

Response:

Susan Williamson Hill wrote: > Norm, > One more thing … we adjusted the size of the nasal pillows that nite too.  She got larger or > smaller ones for me, I can’t remember.  I am seeing that I did have a good experience and I’m glad > of it.  Now I just wish I could get my pressure regulated after 8 months.  I guess change just > happens.

No!  Be proactive.  Don’t wait for another night in the sleep clinic.  Request to use an autpPAP, NOW, to fine tune your pressure requirments.  I will be doing this today. – Hide quoted text — Show quoted text -> Hope your appt. goes well… keep us posted. > NormC wrote: > > I’m very, very envious.  There’s not one single use thing I can tell anyone about.  My > > experience was as short and sour (not sweet) as anything could be.  It makes me angry that > > my internist sent me to that lab and even angrier that the lab didn’t do one single thing > > like you mention. > > If you don’t mind, I’d like to forward your post to my internist and take a copy of it > > with me to the neurologist sleep doc tomorrow.  It was his clinic that did nothing! > > Susan Williamson Hill wrote: > > > When I had my test I had already visited this site and heard so many good things about the > > > Breeze.  My doc sent me to the sleep lab the day before the test to see where I would be and > > > have an orientation with the sleep technician.  A very nice and knowledgeable woman, tho a > > > bit convicted about her choice of head gear. > > > She gave me pamphlets and told me many things, most of which I was too sleepy to follow at > > > the time.  Then she let me try the cpap sitting in a chair that partically reclined.  First > > > she tried the Simplicity mask (her favorite) and I was pretty happy but asked for the Breeze > > > and we even happier.  We tried two or more pillow sizes which I felt a little guilty about > > > because they have to sterilize them after, but I still "stood up" for myself.  I wanted to > > > stay there all afternoon and maybe rest a bit– if she had let me lie down I would have > > > stayed all nite. > > > She described the cpap to me in a very nice way.  She asked me if I had ever walked on the > > > beach.  Thankfully I have — and if I had done this with a strong wind blowing in my face — > > > which I have and if I didn’t breathe out against or with that wind.  And that, she said, in a > > > more concentrated manner is the way the cpap functions.  Wow — I spent my time thinking > > > beach instead of plastic, metal, pumps and hoses and it was nice. > > > Since the Breeze fit well and worked better for me (less claustrophobic) the night of the > > > test I asked for that and I asked for humidification and heat because I had heard about that > > > here and it helped me so much.  I don’t think I would have been as successful without the > > > heat and humidification.  The sleep technician was a good one, very attentive and very > > > knowledgeable.  I think she was surprised when I asked for humidification and later for heat > > > during the second part of the test (split study).  I was glad that it all went so well > > > because I can see how it could be a total nightmare. > > > I have heard of there being a laryngeal monitor that you have to swallow being used … ack > > > I’m not sure if I would have done well with that. > > > That’s my experience share…. > > > NormC wrote: > > > > I think there are number of us who would like to get a better picture of what you can > > > > expect, or what you might be able to ask for, in the way of a CPAP interface (nasal mask, > > > > full face mask, pillows) for use during a sleep test. > > > > Has anyone been given the opportunity to try/select an interface before crawling into > > > > bed?  (Different day, earlier in the day, etc.) > > > > Has anyone been given the opportunity after crawling into bed? > > > > Has anyone had an opportunity to try different interfaces during the test? > > > > Bottom line is what have your experiences been in this very important matter?  In most > > > > cases there is bound to be one or more titrations.  Let’s figure out how to get what we > > > > need! > > > > TIA

Response:

Norm, One more thing … we adjusted the size of the nasal pillows that nite too.  She got larger or smaller ones for me, I can’t remember.  I am seeing that I did have a good experience and I’m glad of it.  Now I just wish I could get my pressure regulated after 8 months.  I guess change just happens. Hope your appt. goes well… keep us posted. – Hide quoted text — Show quoted text -NormC wrote: > I’m very, very envious.  There’s not one single use thing I can tell anyone about.  My > experience was as short and sour (not sweet) as anything could be.  It makes me angry that > my internist sent me to that lab and even angrier that the lab didn’t do one single thing > like you mention. > If you don’t mind, I’d like to forward your post to my internist and take a copy of it > with me to the neurologist sleep doc tomorrow.  It was his clinic that did nothing! > Susan Williamson Hill wrote: > > When I had my test I had already visited this site and heard so many good things about the > > Breeze.  My doc sent me to the sleep lab the day before the test to see where I would be and > > have an orientation with the sleep technician.  A very nice and knowledgeable woman, tho a > > bit convicted about her choice of head gear. > > She gave me pamphlets and told me many things, most of which I was too sleepy to follow at > > the time.  Then she let me try the cpap sitting in a chair that partically reclined.  First > > she tried the Simplicity mask (her favorite) and I was pretty happy but asked for the Breeze > > and we even happier.  We tried two or more pillow sizes which I felt a little guilty about > > because they have to sterilize them after, but I still "stood up" for myself.  I wanted to > > stay there all afternoon and maybe rest a bit– if she had let me lie down I would have > > stayed all nite. > > She described the cpap to me in a very nice way.  She asked me if I had ever walked on the > > beach.  Thankfully I have — and if I had done this with a strong wind blowing in my face — > > which I have and if I didn’t breathe out against or with that wind.  And that, she said, in a > > more concentrated manner is the way the cpap functions.  Wow — I spent my time thinking > > beach instead of plastic, metal, pumps and hoses and it was nice. > > Since the Breeze fit well and worked better for me (less claustrophobic) the night of the > > test I asked for that and I asked for humidification and heat because I had heard about that > > here and it helped me so much.  I don’t think I would have been as successful without the > > heat and humidification.  The sleep technician was a good one, very attentive and very > > knowledgeable.  I think she was surprised when I asked for humidification and later for heat > > during the second part of the test (split study).  I was glad that it all went so well > > because I can see how it could be a total nightmare. > > I have heard of there being a laryngeal monitor that you have to swallow being used … ack > > I’m not sure if I would have done well with that. > > That’s my experience share…. > > NormC wrote: > > > I think there are number of us who would like to get a better picture of what you can > > > expect, or what you might be able to ask for, in the way of a CPAP interface (nasal mask, > > > full face mask, pillows) for use during a sleep test. > > > Has anyone been given the opportunity to try/select an interface before crawling into > > > bed?  (Different day, earlier in the day, etc.) > > > Has anyone been given the opportunity after crawling into bed? > > > Has anyone had an opportunity to try different interfaces during the test? > > > Bottom line is what have your experiences been in this very important matter?  In most > > > cases there is bound to be one or more titrations.  Let’s figure out how to get what we > > > need! > > > TIA

Response:

By all means share away — I want to say that the sleep study is a difficult thing regardless of how nice anyone is but I was determined to make mine as good an experience as it could be and get to the bottom of the problem.  I think I was fortunate to be able to work this way with the people and as tired as I was, it was just a miracle something didn’t go wrong. I realize now that this study was actually my second study.  The first was 5 years ago now, one where the technician came to my home with computers and monitors and all manner of gear.  They studied me with problems all night and I was a nervous wreck and had a lot of trouble settling down to sleep.  I never was tried on cpap on that first study. That time, the ent I was referred to misinterpreted my test results.  I had severe apnea at that time — my oxygen saturations went down in the high sixties and I had numerous apneas.  The doc told me I had mild apnea and that it wasn’t recommended to use the cpap.  He made me understand that cpap worked through the throat, something I couldn’t imagine working for me as I have a strong gag reflex.  I ended up trying to correct the problem with a dental device and every kind of alternative therapy you could imagine (acupuncture, herbs, homeopathy, craniosacracral therapies) to no avail.  TMJ and headaches and earaches and panic attacks that took my attention away from the real problem took me 4 years to sort out and come back to sleep apnea as the first problem to solve. So Norm — please forward away … and use this experience if it will help you or anyone else. It’s really hard to understand and communicate about what happens to you when you sleep — especially this stuff and we need all the kind help and expert intervention we can get. take care… – Hide quoted text — Show quoted text -NormC wrote: > I’m very, very envious.  There’s not one single use thing I can tell anyone about.  My > experience was as short and sour (not sweet) as anything could be.  It makes me angry that > my internist sent me to that lab and even angrier that the lab didn’t do one single thing > like you mention. > If you don’t mind, I’d like to forward your post to my internist and take a copy of it > with me to the neurologist sleep doc tomorrow.  It was his clinic that did nothing! > Susan Williamson Hill wrote: > > When I had my test I had already visited this site and heard so many good things about the > > Breeze.  My doc sent me to the sleep lab the day before the test to see where I would be and > > have an orientation with the sleep technician.  A very nice and knowledgeable woman, tho a > > bit convicted about her choice of head gear. > > She gave me pamphlets and told me many things, most of which I was too sleepy to follow at > > the time.  Then she let me try the cpap sitting in a chair that partically reclined.  First > > she tried the Simplicity mask (her favorite) and I was pretty happy but asked for the Breeze > > and we even happier.  We tried two or more pillow sizes which I felt a little guilty about > > because they have to sterilize them after, but I still "stood up" for myself.  I wanted to > > stay there all afternoon and maybe rest a bit– if she had let me lie down I would have > > stayed all nite. > > She described the cpap to me in a very nice way.  She asked me if I had ever walked on the > > beach.  Thankfully I have — and if I had done this with a strong wind blowing in my face — > > which I have and if I didn’t breathe out against or with that wind.  And that, she said, in a > > more concentrated manner is the way the cpap functions.  Wow — I spent my time thinking > > beach instead of plastic, metal, pumps and hoses and it was nice. > > Since the Breeze fit well and worked better for me (less claustrophobic) the night of the > > test I asked for that and I asked for humidification and heat because I had heard about that > > here and it helped me so much.  I don’t think I would have been as successful without the > > heat and humidification.  The sleep technician was a good one, very attentive and very > > knowledgeable.  I think she was surprised when I asked for humidification and later for heat > > during the second part of the test (split study).  I was glad that it all went so well > > because I can see how it could be a total nightmare. > > I have heard of there being a laryngeal monitor that you have to swallow being used … ack > > I’m not sure if I would have done well with that. > > That’s my experience share…. > > NormC wrote: > > > I think there are number of us who would like to get a better picture of what you can > > > expect, or what you might be able to ask for, in the way of a CPAP interface (nasal mask, > > > full face mask, pillows) for use during a sleep test. > > > Has anyone been given the opportunity to try/select an interface before crawling into > > > bed?  (Different day, earlier in the day, etc.) > > > Has anyone been given the opportunity after crawling into bed? > > > Has anyone had an opportunity to try different interfaces during the test? > > > Bottom line is what have your experiences been in this very important matter?  In most > > > cases there is bound to be one or more titrations.  Let’s figure out how to get what we > > > need! > > > TIA

Response:

i thought looing was what was happening before CPAP going to a loo every 2 hours all night. Warren

Response:

Warren wrote: > i thought looing was what was happening before CPAP going to a loo every 2 > hours all night. > Warren

Whoops!  Should have been "Looking".  Maybe this is why there hasn’t been but one response.

Response:

When I had my test I had already visited this site and heard so many good things about the Breeze.  My doc sent me to the sleep lab the day before the test to see where I would be and have an orientation with the sleep technician.  A very nice and knowledgeable woman, tho a bit convicted about her choice of head gear. She gave me pamphlets and told me many things, most of which I was too sleepy to follow at the time.  Then she let me try the cpap sitting in a chair that partically reclined.  First she tried the Simplicity mask (her favorite) and I was pretty happy but asked for the Breeze and we even happier.  We tried two or more pillow sizes which I felt a little guilty about because they have to sterilize them after, but I still "stood up" for myself.  I wanted to stay there all afternoon and maybe rest a bit– if she had let me lie down I would have stayed all nite. She described the cpap to me in a very nice way.  She asked me if I had ever walked on the beach.  Thankfully I have — and if I had done this with a strong wind blowing in my face — which I have and if I didn’t breathe out against or with that wind.  And that, she said, in a more concentrated manner is the way the cpap functions.  Wow — I spent my time thinking beach instead of plastic, metal, pumps and hoses and it was nice. Since the Breeze fit well and worked better for me (less claustrophobic) the night of the test I asked for that and I asked for humidification and heat because I had heard about that here and it helped me so much.  I don’t think I would have been as successful without the heat and humidification.  The sleep technician was a good one, very attentive and very knowledgeable.  I think she was surprised when I asked for humidification and later for heat during the second part of the test (split study).  I was glad that it all went so well because I can see how it could be a total nightmare. I have heard of there being a laryngeal monitor that you have to swallow being used … ack I’m not sure if I would have done well with that. That’s my experience share…. – Hide quoted text — Show quoted text -NormC wrote: > I think there are number of us who would like to get a better picture of what you can > expect, or what you might be able to ask for, in the way of a CPAP interface (nasal mask, > full face mask, pillows) for use during a sleep test. > Has anyone been given the opportunity to try/select an interface before crawling into > bed?  (Different day, earlier in the day, etc.) > Has anyone been given the opportunity after crawling into bed? > Has anyone had an opportunity to try different interfaces during the test? > Bottom line is what have your experiences been in this very important matter?  In most > cases there is bound to be one or more titrations.  Let’s figure out how to get what we > need! > TIA

Response:

I’m very, very envious.  There’s not one single use thing I can tell anyone about.  My experience was as short and sour (not sweet) as anything could be.  It makes me angry that my internist sent me to that lab and even angrier that the lab didn’t do one single thing like you mention. If you don’t mind, I’d like to forward your post to my internist and take a copy of it with me to the neurologist sleep doc tomorrow.  It was his clinic that did nothing! – Hide quoted text — Show quoted text -Susan Williamson Hill wrote: > When I had my test I had already visited this site and heard so many good things about the > Breeze.  My doc sent me to the sleep lab the day before the test to see where I would be and > have an orientation with the sleep technician.  A very nice and knowledgeable woman, tho a > bit convicted about her choice of head gear. > She gave me pamphlets and told me many things, most of which I was too sleepy to follow at > the time.  Then she let me try the cpap sitting in a chair that partically reclined.  First > she tried the Simplicity mask (her favorite) and I was pretty happy but asked for the Breeze > and we even happier.  We tried two or more pillow sizes which I felt a little guilty about > because they have to sterilize them after, but I still "stood up" for myself.  I wanted to > stay there all afternoon and maybe rest a bit– if she had let me lie down I would have > stayed all nite. > She described the cpap to me in a very nice way.  She asked me if I had ever walked on the > beach.  Thankfully I have — and if I had done this with a strong wind blowing in my face — > which I have and if I didn’t breathe out against or with that wind.  And that, she said, in a > more concentrated manner is the way the cpap functions.  Wow — I spent my time thinking > beach instead of plastic, metal, pumps and hoses and it was nice. > Since the Breeze fit well and worked better for me (less claustrophobic) the night of the > test I asked for that and I asked for humidification and heat because I had heard about that > here and it helped me so much.  I don’t think I would have been as successful without the > heat and humidification.  The sleep technician was a good one, very attentive and very > knowledgeable.  I think she was surprised when I asked for humidification and later for heat > during the second part of the test (split study).  I was glad that it all went so well > because I can see how it could be a total nightmare. > I have heard of there being a laryngeal monitor that you have to swallow being used … ack > I’m not sure if I would have done well with that. > That’s my experience share…. > NormC wrote: > > I think there are number of us who would like to get a better picture of what you can > > expect, or what you might be able to ask for, in the way of a CPAP interface (nasal mask, > > full face mask, pillows) for use during a sleep test. > > Has anyone been given the opportunity to try/select an interface before crawling into > > bed?  (Different day, earlier in the day, etc.) > > Has anyone been given the opportunity after crawling into bed? > > Has anyone had an opportunity to try different interfaces during the test? > > Bottom line is what have your experiences been in this very important matter?  In most > > cases there is bound to be one or more titrations.  Let’s figure out how to get what we > > need! > > TIA

Response:

I think there are number of us who would like to get a better picture of what you can expect, or what you might be able to ask for, in the way of a CPAP interface (nasal mask, full face mask, pillows) for use during a sleep test. Has anyone been given the opportunity to try/select an interface before crawling into bed?  (Different day, earlier in the day, etc.) Has anyone been given the opportunity after crawling into bed? Has anyone had an opportunity to try different interfaces during the test? Bottom line is what have your experiences been in this very important matter?  In most cases there is bound to be one or more titrations.  Let’s figure out how to get what we need! TIA

Response:

On Mon, 25 Mar 2002 20:48:56 GMT, NormC <no…@socal.rr.com> wrote: >Bottom line is what have your experiences been in this very important matter?  

They first tried me with the Mirage… back in the Dark Ages (pre-Breeze, pre-Ultra Mirage), it had a lot of good  commentary.   — Things would be a lot happier on Sesame Street if they’d just toss some Zoloft in Oscar the Grouch’s trashcan.

Response:

NormC <no…@socal.rr.com> wrote: >I think there are number of us who would like to get a better picture of what you can >expect, or what you might be able to ask for, in the way of a CPAP interface (nasal >mask, full face mask, pillows) for use during a sleep test.

There was a plastic box full of masks (at least six types) sitting on the end table when I got to my room. I only took a close look at the Breeze, just to see if it was different than mine, but I’m sure that I recognized both Mirage nasal and full-face versions. I’m not sure about the others, but they were all clear plastic, not a gel mask in the bunch. >Has anyone been given the opportunity to try/select an interface before crawling into >bed?  (Different day, earlier in the day, etc.)

They seemed to be fitting everybody except me, I brought my own Breeze, whether they were there for a diagnostic test (and might fall asleep soon enough for a split-test) or, naturally, for titration. >Has anyone been given the opportunity after crawling into bed? >Has anyone had an opportunity to try different interfaces during the test?

I tried three during my initial titration, the Breeze, Mirage nasal,and Mirage full face. Tom

Response:

Possible New Alternative to mask

Question:

Sleep Apnea Sufferers May Find Relief Without Bulky Mask PITTSBURGH, May 29 /PRNewswire/ — Victims of the common sleep ailment called sleep apnea may have a more comfortable alternative choice for treatment, according to researchers at the Center for Sleep Disorders at The Western Pennsylvania Hospital. Sleep apnea affects as many as 5 percent of the population worldwide and is a condition in which a person is jolted awake many times during sleep as their body reacts to frequent, short periods of time when the person has stopped breathing.  Those with sleep apnea usually suffer from profound sleepiness that may interfere with work and other activities. The most often prescribed treatment for sleep apnea now is a bulky mask that is secured to the face and head with tight Velcro straps.  The mask is attached to a machine that produces continuous positive air pressure (CPAP). Traditionally, air has been forced into the nose to splint open the patient’s throat while they sleep.  However, up to 60 percent of the patients develop nasal congestion and skin irritation using the nasal mask. Now, for the first time in many years, there appears to be a promising alternative, according to Lewis Kline, M.D., director of the Center for Sleep Disorders at West Penn.  Dr. Kline and researchers from Fisher & Paykel Healthcare of New Zealand are developing an oral interface device called the Vestibular-in-line Pressure System, which is known commercially as Oracle. In the first U.S. clinical trial, Dr. Kline treated 19 patients with the Oracle, which is a strapless, butterfly-shaped device that rests between the lips and teeth.  The preliminary results showed the device to be a suitable alternative with similar usage rates as the nasal mask.  Although some patients experienced discomfort as a result of airway drying and minor gum irritation, there were fewer complaints of air leaks, nasal congestion, skin irritation and initial claustrophobia with the Oracle than with the nasal mask. Dr. Kline and his colleague, Ritu Khanna, M.D., will present their findings at the 15th Annual meeting of Associated Professional Sleep Society June 5-10 in Chicago. "The findings are encouraging.  From what we’ve seen, this has the potential to be the most promising oral interface to be developed in years," Dr. Kline said. MAKE YOUR OPINION COUNT –  Click Here   http://tbutton.prnewswire.com/prn/11690X68125212   SOURCE  Western Pennsylvania Hospital   CO:  Western Pennsylvania Hospital ST:  Pennsylvania, Illinois IN:  HEA SU:  PDT TDS 05/29/2001 13:07 EDT http://www.prnewswire.com

Response:

- Hide quoted text — Show quoted text -micst…@aol.com (Mic Stand) wrote in message <news:20010604003131.00523.00001692@ng-mr1.aol.com>… > Sleep Apnea Sufferers May Find Relief Without Bulky Mask > PITTSBURGH, May 29 /PRNewswire/ — Victims of the common sleep ailment called > sleep apnea may have a more comfortable alternative choice for treatment, > according to researchers at the Center for Sleep Disorders at The Western > Pennsylvania Hospital. > Sleep apnea affects as many as 5 percent of the population worldwide and is a > condition in which a person is jolted awake many times during sleep as their > body reacts to frequent, short periods of time when the person has stopped > breathing.  Those with sleep apnea usually suffer from profound sleepiness that > may interfere with work and other activities. > The most often prescribed treatment for sleep apnea now is a bulky mask that is > secured to the face and head with tight Velcro straps.  The mask is attached to > a machine that produces continuous positive air pressure (CPAP). Traditionally, > air has been forced into the nose to splint open the patient’s throat while > they sleep.  However, up to 60 percent of the patients develop nasal congestion > and skin irritation using the nasal mask. > Now, for the first time in many years, there appears to be a promising > alternative, according to Lewis Kline, M.D., director of the Center for Sleep > Disorders at West Penn.  Dr. Kline and researchers from Fisher & Paykel > Healthcare of New Zealand are developing an oral interface device called the > Vestibular-in-line Pressure System, which is known commercially as Oracle. > In the first U.S. clinical trial, Dr. Kline treated 19 patients with the > Oracle, which is a strapless, butterfly-shaped device that rests between the > lips and teeth.  The preliminary results showed the device to be a suitable > alternative with similar usage rates as the nasal mask.  Although some patients > experienced discomfort as a result of airway drying and minor gum irritation, > there were fewer complaints of air leaks, nasal congestion, skin irritation and > initial claustrophobia with the Oracle than with the nasal mask. > Dr. Kline and his colleague, Ritu Khanna, M.D., will present their findings at > the 15th Annual meeting of Associated Professional Sleep Society June 5-10 in > Chicago. > "The findings are encouraging.  From what we’ve seen, this has the potential to > be the most promising oral interface to be developed in years," Dr. Kline said. > MAKE YOUR OPINION COUNT –  Click Here   > http://tbutton.prnewswire.com/prn/11690X68125212   > SOURCE  Western Pennsylvania Hospital   > CO:  Western Pennsylvania Hospital > ST:  Pennsylvania, Illinois > IN:  HEA > SU:  PDT TDS > 05/29/2001 13:07 EDT http://www.prnewswire.com

Sounds very similar to OPAP which is a mold made of your teeth with a tube coming out of it to connect the cpap too.  It is very comfortable but I did not tolerate the air.

Response:

full face mask and pressures

Question:

Pat & Jim wrote: > Hi all > I have recently started using a mirage full face mask and would like to > know: > Also I would like some opinions (from UK and USA citizens) about some thing > my sleep doc said, he said and I quote " not to read/listen to American >news groups ect on OSA as they go way over the top" > TIA > Pat

American newsgroups?? I think your Doc needs to learn about newsgroups and their structure. There are no borders on the internet. The only thing remotely over the top here is most shun surgery. This group has a wealth of knowledge, more than I’ve seen anywhere else. I’m sure that the doc’s know more than we do about the medical aspects of sleep disorders but I like to ask those in the trenches who’ve done it. Next time you go to a sleep specialist or DME ask them how many nights they have slept on a CPAP or if they have even ever had a mask on? — Bob Visit my information & link page at http://twilight.webbernet.net/~gooteebob/index_html.htm news.newusers.questions Moderation Team Worker news:news.newusers.questions

Response:

Lee Babcock <babco…@idirect.ca> wrote: >Tom……. good summation!

Thanks, but I sure wish that it wasn’t. Tom

Response:

On Fri, 27 Apr 2001 11:01:25 GMT, "Pat & Jim" <jsbr26…@cableinet.co.uk> wrote: >Also I would like some opinions (from UK and USA citizens) about >some thing my sleep doc said, he said and I quote " not to read/listen >to American news groups ect on OSA as they go way over the top"

Our brains have not been drugged by Government Health Care. >I personally find it very useful to read all your comments and think >he and others like him are wrong. The USA is usually more >knowlegable

I don’t know about the UK, but it seems in Canada they won’t let the pharmaceutical companies put the Full Statements of Prescribing Information on the Internet.

Response:

On Sat, 28 Apr 2001 08:13:39 GMT, "Pat & Jim" <jsbr26…@cableinet.co.uk> wrote: >All respects of OSA,  such as OSA being life threatening,  secondary >ailments and equipment.

It’s a good thing you are British and not Australian. After all, it’s the Aussies who have been doing a lot of the research. On the other hand, haven’t the British looked down on Australia ever since they used it as a penal colony?

Response:

"*BobGootee" <gootee…@wnol.net> wrote in message

news:3AEB1402.D7D3B07A@wnol.net… – Hide quoted text — Show quoted text -> Pat & Jim wrote: > > Hi all > > I have recently started using a mirage full face mask and would like to > > know: > > Also I would like some opinions (from UK and USA citizens) about some thing > > my sleep doc said, he said and I quote " not to read/listen to American >news groups ect on OSA as they go way over the top" > > TIA > > Pat > American newsgroups?? I think your Doc needs to learn about newsgroups > and their structure. There are no borders on the internet. > The only thing remotely over the top here is most shun surgery. This > group has a wealth of knowledge, more than I’ve seen anywhere else. I’m > sure that the doc’s know more than we do about the medical aspects of > sleep disorders but I like to ask those in the trenches who’ve done it. > Next time you go to a sleep specialist or DME ask them how many nights > they have slept on a CPAP or if they have even ever had a mask on? > Good one "I might try that one out!!!! Pat > — > Visit my information & link page at > http://twilight.webbernet.net/~gooteebob/index_html.htm > news.newusers.questions Moderation Team Worker > news:news.newusers.questions

Response:

Thanks Tom Some good point raised there, maybe we all need to be more assertive with our docs ect, also maybe some docs could do with reading these news groups themselves……. Pat "Tom Devlin" <tomdev…@ameritech.net> wrote in message

news:re9met0b3it7a7mjshm3kkdt634epcv1ih@4ax.com… – Hide quoted text — Show quoted text -> Lee Babcock <babco…@idirect.ca> wrote: > >Tom……. good summation! > Thanks, but I sure wish that it wasn’t. > Tom

Response:

Hi Charlie I did not intend for this thread to become political. I’m 40ish and know nothing about penal colony’s. That to one side, I judge each individual country on first hand experience, not the past. Every country has good and bad points. I’ve no experience of Australia so can’t comment, how ever I do understand that it was an ausie that invented and researched the use of CPAP, bravo to him and all researchers that continue working in this field ect. Thanks for your comments. Pat "Charlie Perrin" <clper…@prodigy.net> wrote in message

news:ju9met8upjnciq4lahb59g17egqoigftcc@4ax.com… – Hide quoted text — Show quoted text -> On Sat, 28 Apr 2001 08:13:39 GMT, "Pat & Jim" > <jsbr26…@cableinet.co.uk> wrote: > >All respects of OSA,  such as OSA being life threatening,  secondary > >ailments and equipment. > It’s a good thing you are British and not Australian. After all, it’s > the Aussies who have been doing a lot of the research. > On the other hand, haven’t the British looked down on Australia ever > since they used it as a penal colony?

Response:

*BobGootee <gootee…@wnol.net> wrote: >The only thing remotely over the top here is most shun surgery.

That’s not over the top, it’s the result of listening to folks who helped their ENTs with the Lexus payments and still ended up on CPAP. >This >group has a wealth of knowledge, more than I’ve seen anywhere else. I’m >sure that the doc’s know more than we do about the medical aspects of >sleep disorders but I like to ask those in the trenches who’ve done it.

Qualified sleep specialists, maybe. Your average GP or ENT usually doesn’t have a clue. >Next time you go to a sleep specialist or DME ask them how many nights >they have slept on a CPAP or if they have even ever had a mask on?

One of the doctors at my sleep center is on CPAP, it made his advise far more "real". Tom – Sick of Spam? Join CAUCE. http://www.cauce.org

Response:

Tom Devlin wrote: > *BobGootee <gootee…@wnol.net> wrote: > >The only thing remotely over the top here is most shun surgery. > That’s not over the top, it’s the result of listening to folks who > helped their ENTs with the Lexus payments and still ended up on CPAP.

Tom, I agree with you on this 100%. I just pointed this out as the only thing people really disagree about here. (I’m against surgery myself) — Bob Visit my information & link page at http://twilight.webbernet.net/~gooteebob/index_html.htm news.newusers.questions Moderation Team Worker news:news.newusers.questions

Response:

Hi all I have recently started using a mirage full face mask and would like to know: Is the pressure different when using a full mask? Should I increase/decrease the pressure myself as it takes at least six weeks to get an appointment to see my sleep doc, for a new titration it can take up to two years for an appointment,  the UK nhs does not have funds to speed this process up unfortunatley. The reason I want to know this is, I dont feel as refreshed in the morning as I did when using a nasal mask,  a profile lite which was ok at first, but having "leak" problems with it after only 3/4 weeks use. Also I would like some opinions (from UK and USA citizens) about some thing my sleep doc said, he said and I quote " not to read/listen to American news groups ect on OSA as they go way over the top" I personally find it very useful to read all your comments and think he and others like him are wrong. The USA is usually more knowlegable, and technology is far better. TIA Pat

Response:

"Pat & Jim" <jsbr26…@cableinet.co.uk> wrote: >I have recently started using a mirage full face mask and would like to >know: >Is the pressure different when using a full mask?

No, the pressure’s the same no matter what mask you use. >Should I increase/decrease the pressure myself as it takes at least six >weeks to get an appointment to see my sleep doc, for a new titration it can >take up to two years for an appointment,  the UK nhs does not have funds to >speed this process up unfortunatley.

Some people here have experimented with self titration, I sure wouldn’t try it myself. >The reason I want to know this is, I dont feel as refreshed in the morning >as I did when using a nasal mask,  a profile lite which was ok at first, but >having "leak" problems with it after only 3/4 weeks use.

Some people find full-face masks to be a little claustrophobic, that might keep you from sleeping as soundly. The Mirage nasal mask might be worth trying if you’re not comfortable with the full-face version. >Also I would like some opinions (from UK and USA citizens) about some thing >my sleep doc said, he said and I quote " not to read/listen to American news >groups ect on OSA as they go way over the top"

In what respect? Tom – Sick of Spam? Join CAUCE. http://www.cauce.org

Response:

- Hide quoted text — Show quoted text -Tom Devlin wrote: > "Pat & Jim" <jsbr26…@cableinet.co.uk> wrote: > >> >Also I would like some opinions (from UK and USA citizens) about some > >>thing my sleep doc said, he said and I quote " not to read/listen to American > >>news groups ect on OSA as they go way over the top" > >> In what respect? > > All respects of OSA,  such as OSA being life threatening,  secondary > >ailments and equipment. > >They tend to play it down. > I’m not sure that things are radically different here. It took me > eight years to get a referral for a sleep test because the doctors > didn’t know enough to ask me the right questions. It wasn’t until the > connection between hypertension and OSA was documented that I was able > to convince my current doctor to go along. Insurance companies don’t > like sleep tests because they’re expensive, it doesn’t seem to have > occurred to them that they’ll save far more money on patient care once > the OSA is treated. > >As I said in my earlier post I do not agree with the my docs opinion, OSA is > >not fully recognised in the UK as an ilness, so it is very difficult to make > >any informed requests for equipment. > See above. OSA is only now starting to get real recognition here, we > don’t think anything’s real until we see it on television. <g> > >Masks: we generaly have to make do with what ever mask we are given and it > >becomes a battle to get them changed. Suggestions like "I Read about this or > >that mask" is again played down and we are told not to listen/read anything > >from the USA. > Once again, I’m not sure we’re ahead. There are far too many DMEs with > no experience in sleep disorders and the equipment’s often chosen by > price or by which company has the fanciest food at the medical > convention hospitality suites. I’ve seen CPAP compliance figures as > low as 30%, not hard to understand when the equipment’s dropped off by > someone who frequently has no more idea of how to use it than the > patient. They go through a bullshit spiel on the absolute necessity of > keeping everything scrupulously clean, strap the mask on (often > incorrectly), and they’re off to the next customer. Follow up is > practically nonexistent, if you’re lucky the person who dropped off > the gear will call in a month or so to see how you’re doing, the woman > who delivered mine seemed very surprised to here that I was fully > compliant, I got the feeling that she didn’t hear that very often. > >Humidifiers its like getting blood out of a stone to get a humidifier. > Passive humidifiers are easy to get _IF_ you know enough to ask for > them but the heated units, which I think should be mandatory, are next > to impossible. So we make do by putting our passive units on heating > pads and end up misusing two pieces of equipment. > >Maybe its just my doc thats badly informed, (or me) which is why I asked for > >opinions from the USA and UK. > You have to realize that the folks who post here are typically the > ones who’ve succeeded in spite of our medical system. We were lucky > enough to know about newsgroups and were able to direct our own > treatment. If we’re occasionally "over the top" it’s because we’re > frustrated by the situation. Just like you, we know more about the > effects and treatment of OSA than most of our doctors, there’s no > reason to envy us on that point. > Tom

Tom……. good summation! Regards, Lee — Lee Babcock Toronto in the GWN

Response:

"Pat & Jim" <jsbr26…@cableinet.co.uk> wrote: >> >Also I would like some opinions (from UK and USA citizens) about some >>thing my sleep doc said, he said and I quote " not to read/listen to American >>news groups ect on OSA as they go way over the top" >> In what respect? > All respects of OSA,  such as OSA being life threatening,  secondary >ailments and equipment. >They tend to play it down.

I’m not sure that things are radically different here. It took me eight years to get a referral for a sleep test because the doctors didn’t know enough to ask me the right questions. It wasn’t until the connection between hypertension and OSA was documented that I was able to convince my current doctor to go along. Insurance companies don’t like sleep tests because they’re expensive, it doesn’t seem to have occurred to them that they’ll save far more money on patient care once the OSA is treated. >As I said in my earlier post I do not agree with the my docs opinion, OSA is >not fully recognised in the UK as an ilness, so it is very difficult to make >any informed requests for equipment.

See above. OSA is only now starting to get real recognition here, we don’t think anything’s real until we see it on television. <g> >Masks: we generaly have to make do with what ever mask we are given and it >becomes a battle to get them changed. Suggestions like "I Read about this or >that mask" is again played down and we are told not to listen/read anything >from the USA.

Once again, I’m not sure we’re ahead. There are far too many DMEs with no experience in sleep disorders and the equipment’s often chosen by price or by which company has the fanciest food at the medical convention hospitality suites. I’ve seen CPAP compliance figures as low as 30%, not hard to understand when the equipment’s dropped off by someone who frequently has no more idea of how to use it than the patient. They go through a bullshit spiel on the absolute necessity of keeping everything scrupulously clean, strap the mask on (often incorrectly), and they’re off to the next customer. Follow up is practically nonexistent, if you’re lucky the person who dropped off the gear will call in a month or so to see how you’re doing, the woman who delivered mine seemed very surprised to here that I was fully compliant, I got the feeling that she didn’t hear that very often. >Humidifiers its like getting blood out of a stone to get a humidifier.

Passive humidifiers are easy to get _IF_ you know enough to ask for them but the heated units, which I think should be mandatory, are next to impossible. So we make do by putting our passive units on heating pads and end up misusing two pieces of equipment. >Maybe its just my doc thats badly informed, (or me) which is why I asked for >opinions from the USA and UK.

You have to realize that the folks who post here are typically the ones who’ve succeeded in spite of our medical system. We were lucky enough to know about newsgroups and were able to direct our own treatment. If we’re occasionally "over the top" it’s because we’re frustrated by the situation. Just like you, we know more about the effects and treatment of OSA than most of our doctors, there’s no reason to envy us on that point. Tom

Response:

I find it interesting that the USA was singled out here, Australia for example takes OSA very seriously (although we still have trouble getting funding for machines etc) and the CPAP was even invented here….not america…maybe that’s something you need to point out to your doctor. Australia is leading the medical field in several areas, OSA quite possibly being one of them.  But i’ve never heard anyone from Au saying dont’ listen to what they say in the USA!!  I do think however it is ALWAYS good to be cautious about anything you read online, be it in a newsgroup, webpage or whatever, cause it’s completely unregulated and people can present whatever they like as fact. My advice is to compare the info you get here with info from other sources, ask your sleep clinic what publications are available in the UK etc.  As far as humidifiers are concerned, my local SA support group (I haven’t been able to attend yet but have spoken to one of the founding members on the phone) says that in this area, 100% of people on CPAP need a humidifier – I’ve yet to get my CPAP, so i haven’t started to tackle the humidifier area yet.  I don’t imagine i’ll have trouble getting a prescription for one, getting the money/funding for one on the other hand will be an entirely different matter. Anyhow i"ve rambled on a bit here but basically what i wanted to say is – get your doc to check out australian research/developments with OSA and then he may see that america isn’t so far off the mark afterall. Beth in Australia "Pat & Jim" <jsbr26…@cableinet.co.uk> wrote in message news:TYuG6.3431$Mz.372699@news1.cableinet.net… – Hide quoted text — Show quoted text -> "Tom Devlin" <tomdev…@ameritech.net> wrote in message > news:gqsjetocsibel8qvuptstmjmhqcctv49t4@4ax.com… > > "Pat & Jim" <jsbr26…@cableinet.co.uk> wrote: > > >I have recently started using a mirage full face mask and would like to > > >know: > > >Is the pressure different when using a full mask? > > No, the pressure’s the same no matter what mask you use. > > >Should I increase/decrease the pressure myself as it takes at least six > > >weeks to get an appointment to see my sleep doc, for a new titration it > can > > >take up to two years for an appointment,  the UK nhs does not have funds > to > > >speed this process up unfortunatley. > > Some people here have experimented with self titration, I sure > > wouldn’t try it myself. > > >The reason I want to know this is, I dont feel as refreshed in the > morning > > >as I did when using a nasal mask,  a profile lite which was ok at first, > but > > >having "leak" problems with it after only 3/4 weeks use. > > Some people find full-face masks to be a little claustrophobic, that > > might keep you from sleeping as soundly. The Mirage nasal mask might > > be worth trying if you’re not comfortable with the full-face version. > > >Also I would like some opinions (from UK and USA citizens) about some > thing > > >my sleep doc said, he said and I quote " not to read/listen to American > news > > >groups ect on OSA as they go way over the top" > > In what respect? >  All respects of OSA,  such as OSA being life threatening,  secondary > ailments and equipment. > They tend to play it down. > As I said in my earlier post I do not agree with the my docs opinion, OSA is > not fully recognised in the UK as an ilness, so it is very difficult to make > any informed requests for equipment. > Masks: we generaly have to make do with what ever mask we are given and it > becomes a battle to get them changed. Suggestions like "I Read about this or > that mask" is again played down and we are told not to listen/read anything > from the USA. > Humidifiers its like getting blood out of a stone to get a humidifier. > Maybe its just my doc thats badly informed, (or me) which is why I asked for > opinions from the USA and UK. > Pat > > – > > Sick of Spam? Join CAUCE. http://www.cauce.org

Response:

"Tom Devlin" <tomdev…@ameritech.net> wrote in message

news:gqsjetocsibel8qvuptstmjmhqcctv49t4@4ax.com… – Hide quoted text — Show quoted text -> "Pat & Jim" <jsbr26…@cableinet.co.uk> wrote: > >I have recently started using a mirage full face mask and would like to > >know: > >Is the pressure different when using a full mask? > No, the pressure’s the same no matter what mask you use. > >Should I increase/decrease the pressure myself as it takes at least six > >weeks to get an appointment to see my sleep doc, for a new titration it can > >take up to two years for an appointment,  the UK nhs does not have funds to > >speed this process up unfortunatley. > Some people here have experimented with self titration, I sure > wouldn’t try it myself. > >The reason I want to know this is, I dont feel as refreshed in the morning > >as I did when using a nasal mask,  a profile lite which was ok at first, but > >having "leak" problems with it after only 3/4 weeks use. > Some people find full-face masks to be a little claustrophobic, that > might keep you from sleeping as soundly. The Mirage nasal mask might > be worth trying if you’re not comfortable with the full-face version. > >Also I would like some opinions (from UK and USA citizens) about some thing > >my sleep doc said, he said and I quote " not to read/listen to American news > >groups ect on OSA as they go way over the top" > In what respect?

 All respects of OSA,  such as OSA being life threatening,  secondary ailments and equipment. They tend to play it down. As I said in my earlier post I do not agree with the my docs opinion, OSA is not fully recognised in the UK as an ilness, so it is very difficult to make any informed requests for equipment. Masks: we generaly have to make do with what ever mask we are given and it becomes a battle to get them changed. Suggestions like "I Read about this or that mask" is again played down and we are told not to listen/read anything from the USA. Humidifiers its like getting blood out of a stone to get a humidifier. Maybe its just my doc thats badly informed, (or me) which is why I asked for opinions from the USA and UK. Pat – Hide quoted text — Show quoted text -> – > Sick of Spam? Join CAUCE. http://www.cauce.org

Response:

Simple screening techniques for OSA?

Question:

Ryk <r…@home.com> wrote: >I found my sleep test a little unnerving. I might have acted earlier >if the diagnostic possibilities were less intrusive, not to mention >that a sleep lab test must cost a fortune. (I live in Canada, so money >was not a direct issue in the testing.) >Is anybody here aware of any really simple diagnostic that might be >prescribed e.g. for all snorers as a way of catching more of the >undiagnosed OSA before it gets to be a severe enough problem to >*drive* people to seek medical help?

John Burnell just posted the results of some very interesting studies where a microphone was used to detect sleep disorders with a high degree of accuracy. Still experimental, but it gives hope for the future. I can’t imagine a better contrast to the sleep center than lying in your own bed with, at most, a microphone attached. Tom – Sick of Spam? Join CAUCE. http://www.cauce.org

Response:

Ryk wrote: > I found my sleep test a little unnerving. I might have acted earlier > if the diagnostic possibilities were less intrusive, not to mention > that a sleep lab test must cost a fortune.

What do you mean by intrusive?  My polysomnogram was less intrusive at two nights worth than my mother’s recent colonoscopy and endoscopy for polyps and  possible ulcers. Nothing was shoved inside my tender parts. Granted the glue stinks and can be stubborn to wash out, but I did not need to be anesthetized for the technician to wire me up, no one was _Required_ to drive me home the next day. At best it is an annoyance to be temporarily endured in order to gain a great deal. I have gained back a life worth living, and a longer life span too boot. And what did it take to get this? A couple of nights sleeping in an uncomfortable situation. I did it and I’ll do it again to keep my present ability to stay awake at work, to stay awake after I get home to run errands and use my computer, to be able to go to a movie with friends on the weekend, to go to a picnic, to play with my cat and dog, to talk to my family…. to be able to live. For what it is worth, the few informal surveys we have had from time to time on the cost of the sleep lab tests tends to vary a great deal from area to area. — Magesteff – "Reality is merely an illusion, albeit a very persistent one."   -Albert Einstein

Response:

Ryk wrote: > I found my sleep test a little unnerving. I might have acted earlier > if the diagnostic possibilities were less intrusive, not to mention > that a sleep lab test must cost a fortune. (I live in Canada, so money > was not a direct issue in the testing.) > Is anybody here aware of any really simple diagnostic that might be > prescribed e.g. for all snorers as a way of catching more of the > undiagnosed OSA before it gets to be a severe enough problem to > *drive* people to seek medical help? > Ryk

Since I have been diagnosed and have become knowledgable on OSA, I have dianosed five people, four of whom are now on CPAP with the fith waiting for his second study. Diagnosis is fairly simple from the symptoms, but a titration must be done to establish the pressure level for treatment. Regards, Lee — Lee Babcock Scarborough (Toronto), Ontario, Canada Email —- babco…@idirect.ca

Response:

On Mon, 19 Jun 2000 18:04:52 -0400, "Magesteff (Steffeny)" <mages…@bellsouth.net> wrote: >Ryk wrote: >> I found my sleep test a little unnerving. I might have acted earlier >> if the diagnostic possibilities were less intrusive, not to mention >> that a sleep lab test must cost a fortune. >What do you mean by intrusive?

It definitely intrudes on one’s life to spend a night (or two or three) sleeping in a lab with techs watching and wires all over the place. It probably feels even more intrusive for younger patients who are not used to the indignities of active health care. I certainly agree with you that, for me, it was worth doing, and that it’s small potatoes compared to many other procedures. I was wondering about options for earlier diagnosis that would be so non-intrusive (and cheap) that a GP might suggest them in the same way as suggesting a blood test for cholesterol. I just wonder what might have been different in my life if I had been diagnosed earlier. I think it would have been a good thing. Ryk

Response:

Ryk wrote: > I found my sleep test a little unnerving. I might have acted earlier > if the diagnostic possibilities were less intrusive, not to mention > that a sleep lab test must cost a fortune. (I live in Canada, so money > was not a direct issue in the testing.)

I can understand how the test may have been un-nerving.  The 1st study I did was about 8 years ago, when the bed was uncomfortable, the wires ran through a hole in a wall, and the glue (and the abrasion before glueing) was a big downer. My last test a month ago.  It was much better.  The adhesive was much easier to deal with, and they didn’t have to rub so hard.  It was better than the normal sticky pads they use for EKGs. and there were fewer leads on my scalp. They had normal double beds, and a nicely furnished room with TV ! The hookup was via a connector in the headboard. All in all.. not a bad experience. I guess there is lots of variation. I’d suggest that screening with the Epworth questions and some of the other predictive questionairres would be a good way to start, but unfortunatly the only way to know for sure is to do the study. There isn’t any other way of doing the proper sleep staging that I’ve heard of… since ‘waking’ may not be always directly observed.

Response:

Ryk <r…@home.com> wrote:

: I found my sleep test a little unnerving. I might have acted earlier : if the diagnostic possibilities were less intrusive, not to mention : that a sleep lab test must cost a fortune. (I live in Canada, so money : was not a direct issue in the testing.) : Is anybody here aware of any really simple diagnostic that might be : prescribed e.g. for all snorers as a way of catching more of the : undiagnosed OSA before it gets to be a severe enough problem to : *drive* people to seek medical help? Disclaimer:  I’m not a doctor, nor do I play one on TV.   Diagnosing OSA is not particularly difficult.  All you would have to do is watch the person sleep or have the person videotape him/herself.  The cessations in breathing are fairly obvious.  A sleep test is requred, though, to determine the correct pressure for xPAP therapy, check O2 levels, and to make sure that no central apneas are present.   Scott

Response:

I found my sleep test a little unnerving. I might have acted earlier if the diagnostic possibilities were less intrusive, not to mention that a sleep lab test must cost a fortune. (I live in Canada, so money was not a direct issue in the testing.) Is anybody here aware of any really simple diagnostic that might be prescribed e.g. for all snorers as a way of catching more of the undiagnosed OSA before it gets to be a severe enough problem to *drive* people to seek medical help? Ryk

Response:

New book on sleep

Question:

Hey Pat…..when you get that "pricey" sleep book….will you share stuff with us here on this ng.  I hope so, and will be looking forward to reading postings from you.  Thanks, Deb

Response:

I have two other sleep books and I can scan some of the stuff in.  Maybe later in the next 2 weeks I will try seeing if I can post something of interest. Mrs. Duck <debb…@net1plus.com> wrote in message

news:sb6fro74r2a18@corp.supernews.com… – Hide quoted text — Show quoted text -> Hey Pat…..when you get that "pricey" sleep book….will you share > stuff with us here on this ng.  I hope so, and will be looking forward > to reading postings from you.  Thanks, Deb

Response:

I am feeling rich so I ordered it.  Even though I have two books on sleep disorders which are fairly good, I figured it couldn’t hurt to have another.   I have spent so much on cpaps and supplies it s ridiculous.  I have bought the breeze and full face mask this year already, insurance deductible of $200 and doctors bills were about $200 so there is $800 there, plus my purchase of bipap (DME only covers $2000 per year) and it might be $2400 or $2600.  Have not received explanation of benefits yet.  Talls with insurance company and they can’t say yet and talked with billing of DME and they say they might lower price. Joe at cpapman.com sells this bipap for just under $1900 and the DME cost plus rental of $187 per month which goes towards purchase, but I am in 2nd month now, but I don’t plan on giving them the money that easily.  After being on this group for over a year and the problems I have had and what I have learned, knowledge sure helps.  The billing department says that normally they charge over $4000 for the tranquillity bipap model 1700 and since Joe charges so much less, I don’t know why these clowns, excuse me, DMEs think that they are giving us a deal. I set pretax at $2,600 and looks like no problem using. Thanks for the info. – Hide quoted text — Show quoted text -Kevin C Welch wrote: > For those of you with extra finances and a tolerance for medical-caliber > literature, there is a new book about sleep which received a good review > in JAMA this month. > Title: Sleep Medicine > Author: Michael S. Aldrich > ISBN: 0-19-512957-1 > Price: $110 > 382 pages > http://shop.barnesandnoble.com/booksearch/isbnInquiry.asp?userid=1POK… > — > ———————————————- > Kevin C Welch > System Administrator, Pulmonary Imaging Center > 830 Gates Bldg. > 3600 Spruce Street > Philadelphia, PA 19104 > ph: 215-349-8980 > pg: 215-207-1035 > ———————————————- > PGP Public Key: http://www.circ.upenn.edu/kwelch/kwelch.asc

Response:

AWAKE in Sacramento or SF?

Question:

A.W.A.K.E. is part of the American Sleep Apnea Assn, and as such is only for those affected by sleep apnea.  However, it is open to the public and there are no membership fees or costs to attend meetings.  Some of what you learn at meetings might be of some help with insomnia, but most will be specifically related to sleep apnea.  Unfortunately, there is no network of organized support groups for insomnia, as there is no association for those affected by insomnia.  Keep in mind that anyone can start a support group for any purpose.  It’s easier when it’s part of an organized network of groups, but not required.  Visit your local sleep centers, plan an organizational meeting for a local insomnia group, have an announcement in your newspaper, put up flyers … start a group in your community. — Regards, Lauren Ero, MS A.W.A.K.E. Network Director/Membership Coordinator American Sleep Apnea Association http://www.sleepapnea.org Tracy Sears Titus <legaltr…@aol.comnojunk> wrote in message news:19990927202322.21292.00003412@ng-cd1.aol.com… – Hide quoted text — Show quoted text -> >I was wondering if there is and AWAKE group in the Sacramento area.  If > >soemone could send me some info, a website, phone number, anything, I’d be > >grateful. Although the SF Bay Area is a little further out of my way, I’d > >still be interested in any groups there as well. > >Thanks, Scott > Can you tell me if AWAKE is only for sleep apnea or other disorders as well?  I > have severe insomnia, but no apnea.  Done the sleep disorders test. Results > were 66% sleep functiona nd never getting to a deep sleep.  Supposedly that’s > why I always feel like I am awake.  His assement = problem is psychological, > with no further recommendations. > Tracy > Legaltr…@aol.com

Response:

>I was wondering if there is and AWAKE group in the Sacramento area.  If >soemone could send me some info, a website, phone number, anything, I’d be >grateful. Although the SF Bay Area is a little further out of my way, I’d >still be interested in any groups there as well. >Thanks, Scott

Can you tell me if AWAKE is only for sleep apnea or other disorders as well?  I have severe insomnia, but no apnea.  Done the sleep disorders test.  Results were 66% sleep functiona nd never getting to a deep sleep.  Supposedly that’s why I always feel like I am awake.  His assement = problem is psychological, with no further recommendations. Tracy Legaltr…@aol.com

Response:

Lauren here is the link I got them from: http://www.bway.net/~marlene/awchapt.htm but I realize that it is posted by this group in New York. "Lauren Ero, M.S. A.W.A.K.E. Network Director" wrote: – Hide quoted text — Show quoted text -> It is interesting to see you provide this list here, since several of these > groups are not registered with the American Sleep Apnea Association as > A.W.A.K.E. groups.  People can certainly have local support groups, but they > are not A.W.A.K.E. groups if they are not registered with us.  Sacramento, > San Francisco, and Stanford groups are part of the A.W.A.K.E. Network. > — > Regards, > Lauren Ero, MS > A.W.A.K.E. Network Director/Membership Coordinator > American Sleep Apnea Association > http://www.sleepapnea.org > > CONCORD > > Apria Home Health Care                  Contact:  Lori Ellis > > 4041 Pike Lane, Suite C                           (510) 680-8101 > > Concord, CA  94520 > > OAKLAND > > California Center for Sleep Disorders > > 3100 Summit Street, South Bldng          (510) 834-8333 > > Oakland, CA  94623 > > PALO ALTO > > Wake Up America                         Contact: Mike Davis > > 701 Welch Road,  Suite 2226                      (415) 725-8920 > > Palo Alto, CA  94304 > > SACRAMENTO > > Sutter Sleep Disorders Center           Contact: Michael Green or Elaine > > Besser > > 650 Howe Ave.   Suite 910                       (916) 646-3300 > > Sacramento, CA  95825 > > SAN FRANCISCO > > UCSF/Mt. Zion Sleep Disorders Ctr.      Contact: Kimberly Trotter > > 1600 Divisadero St.                         (415) 885-7886 > > San Francisco, CA  94115 > > STANFORD > > Stanford Sleep Disorders Center > > 401 Quarry Road                         Contact:  Angela Giacomini > > Stanford, CA  94305                                (415) 725-5907 > > Scott Rex wrote: > > > Hi everyone, > > > I was wondering if there is and AWAKE group in the Sacramento area.  If > > > soemone could send me some info, a website, phone number, anything, I’d > be > > > grateful. Although the SF Bay Area is a little further out of my way, > I’d > > > still be interested in any groups there as well. > > > Thanks, Scott

Response:

It is interesting to see you provide this list here, since several of these groups are not registered with the American Sleep Apnea Association as A.W.A.K.E. groups.  People can certainly have local support groups, but they are not A.W.A.K.E. groups if they are not registered with us.  Sacramento, San Francisco, and Stanford groups are part of the A.W.A.K.E. Network. — Regards, Lauren Ero, MS A.W.A.K.E. Network Director/Membership Coordinator American Sleep Apnea Association http://www.sleepapnea.org – Hide quoted text — Show quoted text -> CONCORD > Apria Home Health Care                  Contact:  Lori Ellis > 4041 Pike Lane, Suite C                           (510) 680-8101 > Concord, CA  94520 > OAKLAND > California Center for Sleep Disorders > 3100 Summit Street, South Bldng          (510) 834-8333 > Oakland, CA  94623 > PALO ALTO > Wake Up America                         Contact: Mike Davis > 701 Welch Road,  Suite 2226                      (415) 725-8920 > Palo Alto, CA  94304 > SACRAMENTO > Sutter Sleep Disorders Center           Contact: Michael Green or Elaine > Besser > 650 Howe Ave.   Suite 910                       (916) 646-3300 > Sacramento, CA  95825 > SAN FRANCISCO > UCSF/Mt. Zion Sleep Disorders Ctr.      Contact: Kimberly Trotter > 1600 Divisadero St.                         (415) 885-7886 > San Francisco, CA  94115 > STANFORD > Stanford Sleep Disorders Center > 401 Quarry Road                         Contact:  Angela Giacomini > Stanford, CA  94305                                (415) 725-5907 > Scott Rex wrote: > > Hi everyone, > > I was wondering if there is and AWAKE group in the Sacramento area.  If > > soemone could send me some info, a website, phone number, anything, I’d be > > grateful. Although the SF Bay Area is a little further out of my way, I’d > > still be interested in any groups there as well. > > Thanks, Scott

Response:

Hi everyone, I was wondering if there is and AWAKE group in the Sacramento area.  If soemone could send me some info, a website, phone number, anything, I’d be grateful. Although the SF Bay Area is a little further out of my way, I’d still be interested in any groups there as well. Thanks, Scott

Response:

Sacramento area chapter is 916-537-5337 – Hide quoted text — Show quoted text -Scott Rex wrote: > Hi everyone, > I was wondering if there is and AWAKE group in the Sacramento area.  If > soemone could send me some info, a website, phone number, anything, I’d be > grateful. Although the SF Bay Area is a little further out of my way, I’d > still be interested in any groups there as well. > Thanks, Scott

Response:

Below is a list of awake meetings.  I have been to the Stanford one for the last six months.  It is quite large.  It meets on the first Wednesday of every month at the location listed below which will be October 6, Wednesday and starts at 7pm. CONCORD Apria Home Health Care                  Contact:  Lori Ellis 4041 Pike Lane, Suite C                           (510) 680-8101 Concord, CA  94520 OAKLAND California Center for Sleep Disorders 3100 Summit Street, South Bldng          (510) 834-8333 Oakland, CA  94623 PALO ALTO Wake Up America                         Contact: Mike Davis 701 Welch Road,  Suite 2226                      (415) 725-8920 Palo Alto, CA  94304 SACRAMENTO Sutter Sleep Disorders Center           Contact: Michael Green or Elaine Besser 650 Howe Ave.   Suite 910                       (916) 646-3300 Sacramento, CA  95825 SAN FRANCISCO UCSF/Mt. Zion Sleep Disorders Ctr.      Contact: Kimberly Trotter 1600 Divisadero St.                         (415) 885-7886 San Francisco, CA  94115 STANFORD Stanford Sleep Disorders Center 401 Quarry Road                         Contact:  Angela Giacomini Stanford, CA  94305                                (415) 725-5907 – Hide quoted text — Show quoted text -Scott Rex wrote: > Hi everyone, > I was wondering if there is and AWAKE group in the Sacramento area.  If > soemone could send me some info, a website, phone number, anything, I’d be > grateful. Although the SF Bay Area is a little further out of my way, I’d > still be interested in any groups there as well. > Thanks, Scott

Response:

i need info please !!!

Question:

I can tell you from personal experience (overnight last friday) the people at Winthrop-University Hospital are great.  Dr Groth and the sleep techs really showed caring and understanding.  When the take home test showed severe APNEA they move my overnight titration up a full month, even though it was an inconvenience to them.  It is worth the 45 min on the LIE from my home.  All I am waiting for is my CPAP. Thanks to the whole group! Good luck Peggy! – Hide quoted text — Show quoted text -Patrick Richards wrote: > NEW YORK > Albany > Capital Region Sleep/Wake Disorders Center St. Peter’s Hospital Pine > West Plaza #1 Washington Avenue Extension Albany, > NY  12205 Attn: Aaron E. Sher, M.D., Paul B. Glovinsky, Ph.D.  Phone: > 518-464-9999, Fax:   518-464-9650. > Bronx > Sleep/Wake Disorders Center Montefiore Medical Center 111 East 210th > Street  Bronx, NY  10467 Attn: Michael J. Thorpy, > M.D.   Phone:  718-920-4841, Fax:  718-798-4352.  Tho…@aecom.yu.edu > Cooperstown > Bassett Healthcare Sleep Disorders Center Bassett Healthcare One > Atwell Road  Cooperstown, NY  13326 Attn: Lee C. > Edmonds, M.D., Robert C. Reese, RRT, RPSGT  Phone:  607-547-6979, > Fax:   607-547-6906.  rees…@hotmail.com > www.bassetthealthcare.org > Elmira > St. Joseph’s Hospital Sleep Disorders Center St. Joseph’s Hospital 555 > East Market Street  Elmira, NY  14902 Attn: > Kathleen R. Reilly, BS, RRT, Paula Cook, RPSGT, RRT  Phone: > 607-737-7008, Fax:   607-737-1522. > Mineola > Sleep Disorders Center Winthrop-University Hospital 222 Station Plaza > North  Mineola, NY  11501 Attn: Michael Weinstein, > M.D., FCCP, Maritza Groth, M.D., FCCP, Claude Albertario, RPSGT, > Phone:  516-663-3907, Fax:  516-663-4788. > mweinst…@winthrop.org > New Hyde Park > Sleep-Wake Disorders Center Long Island Jewish Medical Center 270-05 > 76th Avenue  New Hyde Park, NY  11042 Attn: > Harly Greenberg, M.D., Jane Luchsinger, MS  Phone:  718-470-7058, > Fax:   718-470-7058.  GREEN…@LIJ.EDU > New York > The Sleep Disorders Center Columbia-Presbyterian Medical Center 161 > Fort Washington Avenue  New York, NY  10032 > Attn: Neil B. Kavey, M.D.   Phone:   212-305-1860 and 914-948-0400, > Fax:   212-305-5496. > N…@COLUMBIA.EDU > Sleep-Wake Disorders Center The New York Presbyterian Hospital – > Cornell Campus 520 East 70th Street  New York, > NY  10021 Attn: Daniel Wagner, M.D., Margaret Moline, Ph.D.  Phone: > 914-997-5751, > Sleep Disorders Institute 1090 Amsterdam Avenue   New York, NY   10025 > Attn: Gary K. Zammit, Ph.D.    Phone: > 212-523-1700, Fax:  212-523-1704.  gzam…@slrhc.org > Rochester > Sleep Disorders Center of Rochester 2110 Clinton Avenue South > Rochester, NY  14618 Attn: Donald W. Greenblatt, > M.D.   Phone:  716-442-4141, Fax:  716-442-6259. > Stony Brook > Sleep Disorders Center State University of New York at Stony Brook > University Hospital MR 120 A Stony Brook, NY > 11794-7139 Attn: Marta Maczaj, M.D.    Phone:  516-444-2916, Fax: > 516-444-7851. > Syracuse > The Sleep Center Community General Hospital Broad Road  Syracuse, NY > 13215 Attn: Robert E. Westlake, M.D., Bruce > D. Hall, RPSGT, RRT  Phone:  315-492-5877, Fax:  315-492-5521. > www.cgh.org > The Sleep Laboratory* St. Joseph’s Hospital Health Center 945 East > Genesee Street Suite 300 Syracuse, NY  13210 Attn: > Edward T. Downing, M.D., Stephen F. Swierczek, RPSGT  Phone: > 315-475-3379, Fax:  315-475-5077. > www.SJHSYR.ORG > Utica > The Mohawk Valley Sleep Disorders Center St. Elizabeth Medical Center > 2209 Genesee Street  Utica, NY  13501 Attn: > Steven A. Levine, D.O., FCCP, Mark Cassidy, RPSGT  Phone: > 315-734-3484, Fax:   315-734-3494.  mv…@stemc.org > White Plains > The Sleep Disorders Center-White Plains Columbia-Prebyterian Medical > Center 185 Maple Avenue  White Plains, NY > 10601 Attn: Neil B. Kavey, M.D.   Phone:   914-948-0400, Fax: > 212-305-5496.  N…@COLUMBIA.EDU > Sleep-Wake Disorders Center The New York Presbyterian Hospital – > Cornell Campus 21 Bloomingdale Road  White Plains, > NY  10605 Attn: Daniel R. Wagner, M.D., Medical Director, Margaret L. > Moline, Ph.D., Director  Phone:  914-997-5751, > Fax:  914-682-6911.  dwagner%west…@nyh.med.cornell.edu or > mmoline%wes > peggyg wrote: >> i hope someone can help me…i live in NYC and i’m lookingfor a >> place that does sleep disorder studies….if anyone canhelp please >> email me the information tiapeggype…@accesshub.net

Response:

NEW YORK Albany Capital Region Sleep/Wake Disorders Center St. Peter’s Hospital Pine West Plaza #1 Washington Avenue Extension Albany, NY  12205 Attn: Aaron E. Sher, M.D., Paul B. Glovinsky, Ph.D.  Phone:  518-464-9999, Fax:   518-464-9650. Bronx Sleep/Wake Disorders Center Montefiore Medical Center 111 East 210th Street  Bronx, NY  10467 Attn: Michael J. Thorpy, M.D.   Phone:  718-920-4841, Fax:  718-798-4352. Tho…@aecom.yu.edu Cooperstown Bassett Healthcare Sleep Disorders Center Bassett Healthcare One Atwell Road  Cooperstown, NY  13326 Attn: Lee C. Edmonds, M.D., Robert C. Reese, RRT, RPSGT  Phone: 607-547-6979, Fax:   607-547-6906.  rees…@hotmail.com www.bassetthealthcare.org Elmira St. Joseph’s Hospital Sleep Disorders Center St. Joseph’s Hospital 555 East Market Street  Elmira, NY  14902 Attn: Kathleen R. Reilly, BS, RRT, Paula Cook, RPSGT, RRT  Phone: 607-737-7008, Fax:   607-737-1522. Mineola Sleep Disorders Center Winthrop-University Hospital 222 Station Plaza North  Mineola, NY  11501 Attn: Michael Weinstein, M.D., FCCP, Maritza Groth, M.D., FCCP, Claude Albertario, RPSGT,   Phone:  516-663-3907, Fax:  516-663-4788. mweinst…@winthrop.org New Hyde Park Sleep-Wake Disorders Center Long Island Jewish Medical Center 270-05 76th Avenue  New Hyde Park, NY  11042 Attn: Harly Greenberg, M.D., Jane Luchsinger, MS  Phone: 718-470-7058, Fax:   718-470-7058.  GREEN…@LIJ.EDU New York The Sleep Disorders Center Columbia-Presbyterian Medical Center 161 Fort Washington Avenue  New York, NY  10032 Attn: Neil B. Kavey, M.D.   Phone:   212-305-1860 and 914-948-0400, Fax:   212-305-5496. N…@COLUMBIA.EDU Sleep-Wake Disorders Center The New York Presbyterian Hospital – Cornell Campus 520 East 70th Street  New York, NY  10021 Attn: Daniel Wagner, M.D., Margaret Moline, Ph.D. Phone:  914-997-5751, Sleep Disorders Institute 1090 Amsterdam Avenue   New York, NY   10025 Attn: Gary K. Zammit, Ph.D.    Phone: 212-523-1700, Fax:  212-523-1704.  gzam…@slrhc.org Rochester Sleep Disorders Center of Rochester 2110 Clinton Avenue South   Rochester, NY  14618 Attn: Donald W. Greenblatt, M.D.   Phone:  716-442-4141, Fax:  716-442-6259. Stony Brook Sleep Disorders Center State University of New York at Stony Brook University Hospital MR 120 A Stony Brook, NY 11794-7139 Attn: Marta Maczaj, M.D.    Phone:  516-444-2916, Fax:  516-444-7851. Syracuse The Sleep Center Community General Hospital Broad Road Syracuse, NY   13215 Attn: Robert E. Westlake, M.D., Bruce D. Hall, RPSGT, RRT  Phone:  315-492-5877, Fax: 315-492-5521.    www.cgh.org The Sleep Laboratory* St. Joseph’s Hospital Health Center 945 East Genesee Street Suite 300 Syracuse, NY  13210 Attn: Edward T. Downing, M.D., Stephen F. Swierczek, RPSGT Phone:  315-475-3379, Fax:  315-475-5077. www.SJHSYR.ORG Utica The Mohawk Valley Sleep Disorders Center St. Elizabeth Medical Center 2209 Genesee Street  Utica, NY  13501 Attn: Steven A. Levine, D.O., FCCP, Mark Cassidy, RPSGT  Phone: 315-734-3484, Fax:   315-734-3494.  mv…@stemc.org White Plains The Sleep Disorders Center-White Plains Columbia-Prebyterian Medical Center 185 Maple Avenue  White Plains, NY 10601 Attn: Neil B. Kavey, M.D.   Phone:   914-948-0400, Fax:  212-305-5496.  N…@COLUMBIA.EDU Sleep-Wake Disorders Center The New York Presbyterian Hospital – Cornell Campus 21 Bloomingdale Road  White Plains, NY  10605 Attn: Daniel R. Wagner, M.D., Medical Director, Margaret L. Moline, Ph.D., Director  Phone:  914-997-5751, Fax:  914-682-6911.  dwagner%west…@nyh.med.cornell.edu or mmoline%wes – Hide quoted text — Show quoted text -peggyg wrote: > i hope someone can help me…i live in NYC and i’m > lookingfor a place that does sleep disorder studies….if > anyone canhelp please email me the > information tiapeggype…@accesshub.net

Response: